Hostname: page-component-848d4c4894-ndmmz Total loading time: 0 Render date: 2024-06-01T08:46:24.263Z Has data issue: false hasContentIssue false
  • English
  • Français

Priorities and satisfaction on the help needed and provided in a first episode of psychosis. A survey in five European Family Associations☆

Published online by Cambridge University Press:  16 April 2020

L. de Haan ,
L. Kramer ,
B. van Raay ,
M. Weir ,
J. Gardner ,
S. Akselson ,
E. Ladinser ,
S. McDaid ,
S. Hernández Dols  and
L. Wouters
L. de Haan*
Affiliation:
Adolescent Clinic, Academic Medical Center/de Meren, University of Amsterdam, Department of Psychiatry, Postbox 22700 1100 DE, Amsterdam, The Netherlands
L. Kramer
Affiliation:
Adolescents with Psychotic Disorders, Psychiatric Spectrum Gelderland-Oost, Warnsveld, The Netherlands
B. van Raay
Affiliation:
EUFAMI, The European Federation of Associations of Families of Mentally III People, Heverlee, Belgium
M. Weir
Affiliation:
National Schizophrenia Fellowship (Scotland), [NSF (Scotland)], UK
J. Gardner
Affiliation:
National Schizophrenia Fellowship (Scotland), [NSF (Scotland)], UK
S. Akselson
Affiliation:
Swedish Schizophrenia Fellowship, Riks-IFS, Sweden
E. Ladinser
Affiliation:
H.P.E. Hilfe fur Angehorige psychisch Erkrankter, Austria
S. McDaid
Affiliation:
Schizophrenia Ireland (SI), Ireland
S. Hernández Dols
Affiliation:
Confederacion Espanola de Agrupaciones de Familiares y Enfermos Mentales FEAFES, Spain
L. Wouters
Affiliation:
Adolescent Clinic, Academic Medical Center/de Meren, University of Amsterdam, Department of Psychiatry, Postbox 22700 1100 DE, Amsterdam, The Netherlands
*
*Corresponding author. E-mail address:l.dehaan@amc.uva.nl (L. de Haan).
Get access

Summary

In the case of a first episode of psychosis among members of different associations of families of mentally ill people, little is known about their priorities and how satisfied they are with the help provided to them. A survey was conducted in five European family associations. Respondents emphasized the need for early (ambulant) intervention through outreach with very practical goals directed at creating stability and social functioning. About one-third of the respondents are unsatisfied or very unsatisfied. The highest percentage of unsatisfied respondents was in the following five areas of care: advice on how to handle specific problems; help with preserving or regaining social functioning; help with regaining structure and routine; information; prompt assistance preferably in patientˈs own environment. The agreement of these findings with findings from earlier studies underlines the importance of suggesting specific changes in the delivery of care.

Keywords

First episodePriorities for treatmentFamily membersPsychotic disorderSchizophrenia
Type
Original Article
Information
European Psychiatry , Volume 17 , Issue 8 , December 2002 , pp. 425 - 433
Copyright
Copyright © Éditions scientifiques et médicales Elsevier SAS 2002

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

☆

In this survey, the person who experiences the first psychotic episode has been referred to as the ‘patient’. This word is used for solely practical reasons and is not intended to reflect any specific perception by the researchers of the person with the psychosis.

References

Budd, R.J., Hughes, I.C.T.What do relatives of people with schizophrenia find helpful about family intervention? Schizophr Bull 1997; 23: 341-346.Google Scholar
Hatfield, A.B.Help-seeking behavior in families of schizophrenics Am J Community Psychol 1979; 7(5): 563-569.Google Scholar
Winefield, H.R., Harvey, E.J.Needs of family caregivers in chronic schizophrenia Schizophr Bull 1994; 20: 557-566.Google Scholar
Perreault, M., Rogers, W.L., Leichner, P., Sabourin, S.Patients’ request and satisfaction with services in an outpatient setting Psychiatr Serv 1996; 47: 287-292.Google Scholar
Slade, M., Phelan, M.A comparison of needs assessed by staff and by an epidemiologically representative sample of patients with psychosis Psychol Med 1998; 28: 543-550.Google Scholar
Wiersma, D., Nienhuis, F.J., Giel, R., Slooff, C.J.Stability and change in needs of patients with schizophrenic disorders: a 15- and 17 year follow-up from first onset of psychosis, and a comparison between ‘objective’ and ‘subjective’ assessments of needs for care Soc Psychiatry Psychiatr Epidemiol 1998; 33: 49-56.Google Scholar
Svensson, B., Hansson, L.Patient satisfaction with inpatient psychiatric care: the influence of personality traits, diagnosis and perceived coercion Acta Psychiatrica Scandinavica 1994; 90: 379-384.Google Scholar
Leavey, G., King, M., Cole, E., Hoar, A., Johnson-Sabine, E.First-onset psychotic illness: patients’ and relatives’ satisfaction with services Br J Psychiatry 1997; 170: 53-57.Google Scholar
Phelan, M., Slade, M., Thornicroft, G., Dunn, G., Holloway, F., Wykes, T., Strathdee, G., Loftus, L., McCrone, P., Hayward, P.The camberwell assessment of need: the validity and reliability of an instrument to assess the needs of people with severe mental illness Br J Psychiatry 1995; 167: 589-595.Google Scholar
Brewin, C., Wing, J., Mangen, S., Brugha, T., MacCarthy, B.Principles and practice of measuring need in the long-term mentally ill: the MRC needs for care assessment Psychol Med 1987; 17: 971-981.Google Scholar
de Haan, L., van Raaij, B., van den Berg, R., Jager, M., Houweling, P., Stockmann, M., Delsing, P., Linszen, D., Peters, B., Wouters, L.Preferences for treatment during a first psychotic episode Eur Psychiatry 2001; 16: 83-89.Google Scholar
Schene, A.H., Van Wijngaarden, B.A survey of an organization for families of patients with serious mental illness in the Netherlands Psychiatr Serv 1995; 46: 807-813.Google Scholar
de Haan, L., Timmer, T., Linszen, D.H., Wouters, L., Lenior, M.E.Het beloop van schizofrenie gedurende vijf jaar na een eerste opname in de westerse wereld, een meta-analyse Tijdschrift voor Psychiatrie 2001; 43: 559-565.Google Scholar
Bustillo, J.R., Lauriello, J., Horan, W.P., Keith, S.J.The psychosocial treatment of schizophrenia: an update Am J Psychiatry 2001; 158: 163-175.Google Scholar
Submit a response

Comments

No Comments have been published for this article.