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The newly revised interview for deteriorations in daily living activities in dementia (R-IDDD2): distinguishing initiative from performance at assessment

Published online by Cambridge University Press:  28 November 2016

Clarissa M. Giebel ,
David Challis  and
Daniela Montaldi
Clarissa M. Giebel*
Affiliation:
School of Health Sciences, University of East Anglia, Norwich, UK Division of Neuroscience and Experimental Psychology, University of Manchester, Manchester, UK
David Challis
Affiliation:
Personal Social Services Research Unit, The University of Manchester, Manchester, UK
Daniela Montaldi
Affiliation:
Division of Neuroscience and Experimental Psychology, University of Manchester, Manchester, UK
*
Correspondence should be addressed to: Clarissa Giebel, School of Health Sciences, University of East Anglia, Norwich, NR4 7TJ, UK. Phone: +44-1603-593259. Email: c.giebel@uea.ac.uk.
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Abstract

Background:

Minimal evidence exists on the detailed deficits in complex instrumental activities of daily living (IADLs) in mild dementia. The aim of this study was twofold, to validate a revised questionnaire focusing measuring the initiative and performance of IADLs in mild dementia and to explore the relationship between individual IADLs and patient and carer well-being.

Methods:

A total of 183 carers of people with mild dementia completed a further modified Revised Interview for Deterioration in Daily Living Activities 2 (R-IDDD2), which comprised new activities such as computer use, as well as sub-activities on the performance scale. Carers also completed questionnaires assessing patient quality of life (QoL-AD), carer quality of life (AC-QoL), and burden (GHQ-12).

Results:

Persons with dementia were significantly poorer initiating than performing cleaning, doing repair work, and preparing a hot or cold meal, whereas being poorer at performing dressing and following current affairs. Using the computer, preparing a hot meal, finance, and medication management were most impaired, whereas more basic activities of dressing, washing oneself, brushing hair or teeth, and preparing a hot drink were most preserved. Poor initiative and performance on nearly all activities were significantly related to reduced carer and patient well-being.

Conclusions:

The R-IDDD2 offers a platform to comprehensively assess everyday functioning. Deteriorations in initiative and performance need to be targeted separately in interventions, as the former requires effective triggering and the latter structured training and support. Most activities were significantly associated with well-being, particularly patient quality of life so that improving any activity should improve well-being.

Keywords

instrumental activities of daily livingdementiaquality of lifecarer burdeninitiativeperformance
Type
Research Article
Information
International Psychogeriatrics , Volume 29 , Issue 3 , March 2017 , pp. 497 - 507
Copyright
Copyright © International Psychogeriatric Association 2016 

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References

Afram, B. et al. (2014). Reasons for institutionalization of people with dementia: informal caregiver reports from 8 European countries. Journal of the American Medical Directors Association, 15, 108–116.CrossRefGoogle ScholarPubMed
Alzheimer Nederland (2012). DeltaPlan Dementie. Alzheimer Nederland.Google Scholar
Alzheimers New Zealand (2010). National Dementia Strategy 2010-2015. Wellington.Google Scholar
Ballard, C., Burns, A., Corbett, A., Livingston, G. and Rasmussen, J. (2013). Helping you to Assess Cognition: A Practical Toolkit for Clinicians. London: Alzheimer's Society.Google Scholar
Beerens, H. C. et al. (2015). Change in quality of life of people with dementia recently admitted to long-term care facilities. Journal of Advanced Nursing, 71, 1435–1447.CrossRefGoogle ScholarPubMed
Brown, P. J., Devanand, D. P., Liu, X. and Caccappolo, E. (2011). Functional impairment in elderly patients with mild cognitive impairment and mild Alzheimer disease. Archives of General Psychiatry, 68, 617–626.CrossRefGoogle ScholarPubMed
Camic, P., Williams, C. M. and Meeten, F. (2013). Does a ‘singing together group’ improve the quality of life of people with dementia and their carers? A pilot evaluation study. Dementia, 12, 157–176.CrossRefGoogle ScholarPubMed
Chiong, W., Hsu, M., Wudka, D., Miller, B. L. and Rosen, H. J. (2014). Financial errors in dementia: testing a neuroeconomic conceptual framework. Neurocase, 20, 389–396.CrossRefGoogle ScholarPubMed
Clare, L. et al. (2000). Intervening with everyday memory problems in dementia of Alzheimer type: an errorless learning approach. Journal of Clinical and Experimental Neuropsychology, 22, 132–146.CrossRefGoogle ScholarPubMed
Clarke, D. E. et al. (2008). Apathy in dementia: clinical and sociodemographic correlates. Journal of Neuropsychiatry and Clinical Neuroscience, 20, 337–347.CrossRefGoogle ScholarPubMed
Department of Health (2009). Living Well with Dementia: A National Dementia Strategy. Accessible Summary. London: Department of Health.Google Scholar
Earnst, K. S. et al. (2001). Loss of financial capacity in Alzheimer's disease: the role of working memory. Aging, Neuropsychology, and Cognition, 8, 109–119.CrossRefGoogle Scholar
Elwick, H., Joseph, S., Becker, S. and Becker, F. (2010). Manual for the Adult Carer Quality of Life Questionnaire (AC-QoL). London: The Princess Royal Trust for Carers.Google Scholar
Fauth, E. B., Schwartz, S., Tschanz, J. T., Ostbye, T., Corcoran, C. and Norton, M. C. (2013). Baseline disability in activities of daily living predicts dementia risk even after controlling for baseline global cognitive ability and depressive symptoms. International Journal of Geriatric Psychiatry, 28, 597–606.CrossRefGoogle ScholarPubMed
Fieo, R., Manly, J. J., Schupf, N. and Stern, Y. (2014). Functional status in the young-old: establishing a working prototype of an extended-instrumental activities of daily living scale. Journal of Gerontology Medical Sciences, 69, 766–772.CrossRefGoogle ScholarPubMed
Folstein, M., Folstein, S. and McHugh, P. (1975). “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.CrossRefGoogle ScholarPubMed
Gelinas, I., Gauthier, L., McIntyre, M. and Gauthier, S. (1999). Development of a functional measure for persons with Alzheimer's disease: the disability assessment for dementia. American Journal of Occupational Therapy, 53, 471–481.CrossRefGoogle ScholarPubMed
Gibson, G., Dickinson, C., Brittain, K. and Robinson, L. (2015). The everyday use of assistive technology by people with dementia and their family carers: a qualitative study. BMC Geriatrics, 15, 89.CrossRefGoogle ScholarPubMed
Giebel, C. M., Challis, D. and Montaldi, D. (2016). A revised interview for deterioration in daily activities in dementia (R-IDDD) reveals the relationship between social activities and wellbeing. Dementia, 15, 1068–1081.CrossRefGoogle Scholar
Giebel, C. M., Sutcliffe, C. and Challis, D. (2015). Activities of daily living and quality of life across different stages of dementia: a UK Study. Aging and Mental Health, 19, 63–71.CrossRefGoogle ScholarPubMed
Giebel, C. and Challis, D. (2015). Translating cognitive and everyday activity deficits into cognitive interventions in mild dementia and mild cognitive impairment. International Journal of Geriatric Psychiatry, 30, 63–71.CrossRefGoogle ScholarPubMed
Goldberg, D. and Williams, P. (1998). A User's Guide to the General Health Questionnaire. Windsor, UK: NFER-Nelson.Google Scholar
Griffith, H. R. et al. (2003). Impaired financial abilities in mild cognitive impairment. Neurology, 60, 449–457.CrossRefGoogle ScholarPubMed
Hoe, J., Katona, C., Roch, B. and Livingston, G. (2005). Use of the QoL-AD for measuring quality of life in people with severe dementia - the LASER-AD study. Age and Ageing, 34, 130–135.CrossRefGoogle ScholarPubMed
Hsieh, S., Schubert, S., Hoon, C., Mioshi, E. and Hodges, J. R. (2013). Validation of the Addenbrooke's cognitive examination III in frontotemporal dementia and Alzheimer's disease. Dementia and Geriatric Cognitive Disorders, 36, 242–250.CrossRefGoogle ScholarPubMed
Jones, R. W. et al. (2015). Dependence in Alzheimer's disease and service use costs, quality of life, and caregiver burden: the DADE study. Alzheimer's & Dementia, 11, 280–290.CrossRefGoogle ScholarPubMed
Katz, S., Ford, A. B., Moskowitz, R. W., Jackson, B. A. and Jaffe, M. W. (1963). Studies of illness in the aged: the index of ADL: a standardized measure of biological and psychosocial function. Journal of the American Medical Association, 185, 914–919.CrossRefGoogle Scholar
Kurz, A., Pohl, C., Ramsenthaler, M. and Sorg, C. (2009). Cognitive rehabilitation in patients with mild cognitive impairment. International Journal of Geriatric Psychiatry, 24, 163–168.CrossRefGoogle ScholarPubMed
Lawton, M. P. and Brody, E. M. (1969). Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontolology, 9, 179–186.Google ScholarPubMed
Liu-Seiffert, H. et al. (2015). Cognitive and functional decline and their relationship in patients with mild Alzheimer's dementia. Journal of Alzheimer Disease, 43, 949–955.CrossRefGoogle Scholar
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L (1999). Quality of life in Alzheimer's disease: patient and caregiver reports. Journal of Mental Health and Aging, 5, 21–32.Google Scholar
Marson, D. C. et al. (2000). Assessing financial capacity in patients with Alzheimer's disease: a conceptual model and prototype instrument. Archives of Neurology, 57, 877–884.CrossRefGoogle ScholarPubMed
Martin, R. C. et al. (2013). Impaired financial abilities in Parkinson's disease patients with mild cognitive impairment and dementia. Parkinsonism and Related Disorders, 19, 986–990.CrossRefGoogle ScholarPubMed
Martyr, A. et al. (2012). Verbal fluency and awareness of functional deficits in early-stage dementia. Clinical Neuropsychologist, 26, 501–519.CrossRefGoogle ScholarPubMed
Martyr, A., Nelis, S. M. and Clare, L (2014). Predictors of perceived functional ability in early-stage dementia: self-ratings, informant ratings and discrepancy scores. International Journal of Geriatric Psychiatry, 29, 852–862.CrossRefGoogle ScholarPubMed
Mioshi, E., Bristow, M., Cook, R. and Hodges, J. R. (2009). Factors underlying caregiver stress in frontotemporal dementia and Alzheimer's disease. Dementia and Geriatric Cognitive Disorders, 27, 76–81.CrossRefGoogle ScholarPubMed
Mioshi, E., Kipps, C. M., Dawson, K., Mitchell, J., Graham, A. and Hodges, J. R. (2007). Activities of daily living in frontotemporal dementia and Alzheimer disease. Neurology, 68, 2077–2084.CrossRefGoogle ScholarPubMed
Nasreddine, Z. S. et al. (2005). The Montreal Cognitive Assessment, MoCA: a brief screening tool for mild cognitive impairment. Journal of the American Geriatrics Society, 53, 695–699.CrossRefGoogle Scholar
Norwegian Ministry of Health and Care Services (2007). Dementia Plan 2015. Norway: Norwegian Ministry of Health and Care Services.Google Scholar
Peres, K. et al. (2008). Natural history of decline in instrumental activities of daily living performance over the 10 years preceding the clinical diagnosis of dementia: a prospective population-based study. Journal of the American Geriatrics Society, 56, 37–44.CrossRefGoogle ScholarPubMed
Razani, J. et al. (2014). The effects of declining functional abilities in dementia patients and increases in psychological distress on caregiver burden over a one-year period. Clinical Gerontology, 37, 235–252.CrossRefGoogle ScholarPubMed
Reisberg, B. et al. (1984). Functional staging of dementia of the Alzheimer's type. Annals of the New York Academy of Sciences, 435, 481–483.CrossRefGoogle Scholar
Sikkes, S. A. M. et al. (2012). A new informant-based questionnaire for instrumental activities of daily living in dementia. Alzheimer's and Dementia, 8, 536–543.CrossRefGoogle ScholarPubMed
Sutcliffe, C. L., Giebel, C. M., Jolley, D., Challis, D (2016). Experience of burden in carers of people with dementia at the margins of long-term care. International Journal of Geriatric Psychiatry, 31, 101–108.CrossRefGoogle ScholarPubMed
Teunisse, S., Derix, M. M. A. and van Crevel, H. (1991). Assessing the severity of dementia. Archives of Neurology, 48, 274–277.CrossRefGoogle ScholarPubMed
Teunisse, S. and Derix, M. M. (1997). The interview for deterioration in daily living activities in dementia: agreement between primary and secondary caregivers. International Psychogeriatrics, 9, 155–162.CrossRefGoogle ScholarPubMed
van der Vleuten, M., Visser, A. and Meeuwesen, L. (2012). The contribution of intimate live music performances to the quality of life for persons with dementia. Patient Education and Counselling, 89, 484–488.CrossRefGoogle Scholar
Verlinden, V. J. A., van der Geest, J. N., de Bruijn, R. F. A. G., Hofman, A., Koudstaal, P. J. and Arfan Ikram, M. (2015). Trajectories of decline in cognition and daily functioning in preclinical dementia. Alzheimer's and Dementia, doi: 10.1016/j.jalz.2015.08.001.Google ScholarPubMed
Vermeersch, S., Gorus, E., Cornelis, S. and De Vriendt, P. (2015). An explorative study of the relationship between functional and cognitive decline in older persons with mild cognitive impairment and Alzheimer's disease. British Journal of Occupational Therapy, 78, 166–174.CrossRefGoogle Scholar
Voigt-Radloff, S. et al. (2012). Interview for deterioration in daily living activities in dementia: construct and concurrent validity in patients with mild to moderate dementia. International Psychogeriatrics, 24, 382–390.CrossRefGoogle ScholarPubMed
Wübker, A. et al. (2015). Costs of care for people with dementia just before and after nursing home placement: primary data from eight European countries. European Journal of Health Economics, 16, 689–707.CrossRefGoogle ScholarPubMed