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Burden of care and quality of life among informal caregivers to Alzheimer patients in Egypt

Published online by Cambridge University Press:  29 June 2023

Ateya Megahed Ibrahim Open the ORCID record for Ateya Megahed Ibrahim [Opens in a new window] ,
Mahmoud Metwally Ibrahim  and
Donia Elsaid Fathi Zaghamir
Ateya Megahed Ibrahim*
Affiliation:
Department of Nursing, College of Applied Medical Sciences, Prince Sattam bin Abdulaziz University, Al-Kharj, Saudi Arabia Department of Family and Community Health Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt
Mahmoud Metwally Ibrahim
Affiliation:
Al-Ghad International College for Applied Medical Sciences, Saudi Arabia Department of Pharmacology, Al-Azhar University, Damietta, Egypt
Donia Elsaid Fathi Zaghamir
Affiliation:
Department of Nursing, College of Applied Medical Sciences, Prince Sattam bin Abdulaziz University, Al-Kharj, Saudi Arabia Pediatric Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt
*
Corresponding author: Ateya Megahed Ibrahim; Email: a.eleglany@psau.edu.sa
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Abstract

Background

Alzheimer’s disease is a chronic neurodegenerative disorder that results in total cognitive impairment and functional decline. Family members are the most usual caregivers worldwide, resulting in an increasing total burden and a subsequent degradation of their quality of life.

Objectives

To evaluate the burden of care and quality of life among informal caregivers to Alzheimer patients in Egypt.

Methods

A descriptive research design was used. The study was conducted at outpatient clinics of El-Abbasya Mental Hospital in Cairo, Egypt. This study included 550 informal caregivers of Alzheimer patients. Data were gathered through questionnaires using the Sociodemographic Profile of Family Caregivers, an adopted version of the Montgomery Borgatta Caregiver Burden scale, and Health-Related Quality of Life Scale.

Results

Nearly three quarters (73.5%) of the informal caregivers were female. Additionally, the physical burden among the informal caregivers was the highest (21.58 ± 8.13), while the psychological burden was the lowest (7.48 ± 25.35). Besides, around one-third (30%) of the informal caregivers had a total poor quality of life.

Significance of results

Total burden among informal caregivers of Alzheimer patients was relatively high (64.71 ± 26.86). Moreover, less than one-tenth (8%) of the informal caregivers for Alzheimer’s patients had a good quality of life, whereas more than half (62%) of them had an average quality of life. In the Egyptian context, ongoing health education initiatives for those who care for Alzheimer patients are essential, and additional research employing large study sample sizes in varied contexts is strongly advised.

Keywords

Alzheimer patientsBurden care assessmentInformal caregiversHealth education intiativesQuality of life
Type
Original Article
Information
Palliative & Supportive Care , Volume 22 , Issue 1 , February 2024 , pp. 182 - 189
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Copyright
© The Author(s), 2023. Published by Cambridge University Press.

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