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Factors related to advance care planning among older African American women: Age, medication, and acute care visits

Published online by Cambridge University Press:  27 November 2019

Jung Kwak*
Affiliation:
School of Nursing, The University of Texas at Austin, Austin, TX
Julie L. Ellis
Affiliation:
College of Nursing, University of Wisconsin Milwaukee, Milwaukee, WI
*
Author for correspondence: Jung Kwak, School of Nursing, The University of Texas at Austin, 1710 Red River Street, Austin, TX78701, USA. E-mail: jkwak@nursing.utexas.edu

Abstract

Objectives

Advance care planning (ACP) is linked with high-quality clinical outcomes at the end of life. However, ACP engagement is lower among African Americans than among Whites. In this study, we sought to identify correlates of ACP among African American women with multiple chronic conditions for two reasons: (1) African American women with multiple chronic conditions have high risks for serious illnesses, more intensive treatments, and circumstances that may require substitutes' decision-making and (2) identifying correlates of ACP among African American women can help us identify important characteristics to inform ACP outreach and interventions for this group.

Methods

A cross-sectional survey was conducted with 116 African American women aged ≥50 years who were recruited from the central area of a mid-western city.

Results

On average, participants were 64 years old (SD = 9.42). The majority were not married (78%), had less than a college education (50%), and had an annual income of $15,000 (54%). Their mean numbers of chronic conditions and prescribed medications were 3.31 (SD = 1.25) and 8.75 (SD = 4.42), respectively. Fifty-nine per cent reported having talked with someone about their preferences (informal ACP); only 30% had completed a living will or a power of attorney for healthcare (formal ACP). Logistic regression showed that age, the number of hospitalizations or emergency department visits, and the number of prescription medications were significantly correlated with both informal and formal ACP; other demographic and psychosocial characteristics (the knowledge of ACP, self-efficacy, and trust in the medical system) were not.

Significance of results

Results of this study suggest a need for targeted, culturally sensitive outpatient ACP education to promote ACP engagement in older African American women, taking into account age, the severity of chronic conditions, and levels of medication management.

Type
Original Article
Copyright
Copyright © Cambridge University Press 2019

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References

Arnett, MJ, Thorpe, RJ, Gaskin, DJ, et al. (2016) Race, medical mistrust, and segregation in primary care as usual source of care: Findings from the Exploring Health Disparities in Integrated Communities study. Journal of Urban Health 93(3), 456467. https://doi:10.1007/s11524-016-0054-9CrossRefGoogle ScholarPubMed
Barnato, AE (2017) Challenges in understanding and respecting patients’ preferences. Health Affairs 36(7), 12521257. https://doi.org/10.1377/hlthaff.2017.0177CrossRefGoogle ScholarPubMed
Carr, D (2011) Racial differences in end-of-life planning: Why don't Blacks and Latinos prepare for the inevitable? OMEGA — Journal of Death and Dying 63(1), 120. https://doi.org/10.2190/OM.63.1.aCrossRefGoogle ScholarPubMed
Carr, D (2012a) Racial and ethnic differences in advance care planning: Identifying subgroup patterns and obstacles. Journal of Aging and Health 24(6), 923947. https://doi.org/10.1177/0898264312449185CrossRefGoogle Scholar
Carr, D (2012b) The social stratification of older adults’ preparations for end-of-life health care. Journal of Health and Social Behavior 53(3), 297312. https://doi.org/10.1177/0022146512455427CrossRefGoogle Scholar
Carr, D and Luth, EA (2017) Advance care planning: Contemporary issues and future directions. Innovation in Aging 1(1), igx012. https://doi.org/10.1093/geroni/igx012CrossRefGoogle ScholarPubMed
Cella, D, Choi, SW, Condon, DM, et al. (2019) PROMIS® adult health profiles: Efficient short-form measures of seven health domains. Value in Health 22(5), 537544. https://doi.org/10.1016/j.jval.2019.02.004CrossRefGoogle ScholarPubMed
Chiarchiaro, J, Buddadhumaruk, P, Arnold, RM, et al. (2015) Prior advance care planning is associated with less decisional conflict among surrogates for critically ill patients. Annals of the American Thoracic Society 12(10), 15281533. https://doi.org/10.1513/AnnalsATS.201504-253OCCrossRefGoogle ScholarPubMed
Davison, SN and Simpson, C (2006) Hope and advance care planning in patients with end stage renal disease: Qualitative interview study. BMJ 333, 886. https://doi.org/10.1136/bmj.38965.626250.55CrossRefGoogle ScholarPubMed
de Kort, SJ, Pols, J, Richel, DJ, et al. (2010) Understanding palliative cancer chemotherapy: About shared decisions and shared trajectories. Health Care Analysis 18(2), 164174. https://doi.org/10.1007/s10728-009-0121-4CrossRefGoogle ScholarPubMed
Detering, KM, Hancock, AD, Reade, MC, et al. (2010) The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial. BMJ 340, c1345. https://doi.org/10.1136/bmj.c1345CrossRefGoogle ScholarPubMed
Ellis, JL, Kovach, CR, Fendrich, M, Olukotun, O, Baldwin, VK, Ke, W, and Nichols, B (2019) Factors Related to Medication Self-Management in African American Older Women. Res Gerontol Nurs 12(2), 7179.10.3928/19404921-20190206-01CrossRefGoogle ScholarPubMed
Gao, X, Sun, F, Ko, E, et al. (2015) Knowledge of advance directive and perceptions of end-of-life care in Chinese-American elders: The role of acculturation. Palliative and Supportive Care 13(6), 16771684. https://doi.org/10.1017/S147895151500067XCrossRefGoogle ScholarPubMed
Harrison, KL, Adrion, ER, Ritchie, CS, et al. (2016) Low completion and disparities in advance care planning activities among older Medicare beneficiaries. JAMA Internal Medicine 176(12), 18721875. https://doi.org/10.1001/jamainternmed.2016.6751CrossRefGoogle ScholarPubMed
Institute of Medicine (2012) How far have we come in reducing health disparities? Progress since 2000: Workshop summary. Washington, DC: National Academies Press.Google Scholar
Institute of Medicine (2015) Dying in America: Improving quality and honoring individual preferences near the end of life. Washington, DC: National Academies Press.Google Scholar
Koss, CS and Baker, TA (2017) Race differences in advance directive completion: The narrowing gap between White and African American older adults. Journal of Aging and Health 29(2), 324342. https://doi.org/10.1177/0898264316635568CrossRefGoogle Scholar
Koss, CS and Baker, TA (2018) Where there's a will: The link between estate planning and disparities in advance care planning by White and Black older adults. Research on Aging 40(3), 281302. https://doi.org/10.1177/0164027517697116CrossRefGoogle ScholarPubMed
Kwak, J and Haley, WE (2005) Current research findings on end-of-life decision making among racially or ethnically diverse groups. The Gerontologist 45(5), 634641. https://doi.org/10.1093/geront/45.5.634CrossRefGoogle ScholarPubMed
Mack, JW, Weeks, JC, Wright, AA, et al. (2010) End-of-life discussions, goal attainment, and distress at the end of life: Predictors and outcomes of receipt of care consistent with preferences. Journal of Clinical Oncology 28(7), 12031208. https://doi.org/10.1200/JCO.2009.25.4672CrossRefGoogle ScholarPubMed
Quiñones, AR, Botoseneanu, A, Markwardt, S, Nagel, CL, Newsom, JT, Dorr, DA, and Allore, HG (2019) Racial/ethnic differences in multimorbidity development and chronic disease accumulation for middle-aged adults. PloS one 14(6), e0218462.10.1371/journal.pone.0218462CrossRefGoogle ScholarPubMed
Rao, JK, Anderson, LA, Lin, FC, et al. (2014) Completion of advance directives among U.S. consumers. American Journal of Preventive Medicine 46(1), 6570. https://doi.org/10.1016/j.amepre.2013.09.008CrossRefGoogle ScholarPubMed
Rhodes, RL, Batchelor, K, Lee, SC, et al. (2015) Barriers to end-of-life care for African Americans from the providers’ perspective: Opportunity for intervention development. American Journal of Hospice and Palliative Medicine 32(2), 137143. https://doi.org/10.1177/1049909113507127CrossRefGoogle ScholarPubMed
Robinson, MT (2016) Helping African Americans of faith embrace end-of-life discussions. Journal of Palliative Medicine 19(2), 235236. https://doi.org/10.1089/jpm.2015.0321CrossRefGoogle ScholarPubMed
Rui, P and Okeyode, T (2016) National Ambulatory Medical Care Survey: 2016 National Summary Tables. Available at: https://www.cdc.gov/nchs/data/ahcd/namcs_summary/2016_namcs_web_tables.pdf.Google Scholar
Sanders, JJ, Robinson, MT and Block, SD (2016) Factors impacting advance care planning among African Americans: Results of a systematic integrated review. Journal of Palliative Medicine 19(2), 202227. https://doi.org/10.1089/jpm.2015.0325CrossRefGoogle ScholarPubMed
Scherrens, AL, Beernaert, K, Robijn, L, et al. (2018) The use of behavioural theories in end-of-life care research: A systematic review. Palliative Medicine 32(6), 10551077. https://doi.org/10.1177/0269216318758212CrossRefGoogle ScholarPubMed
Sudore, RL, Lum, HD, You, JJ, et al. (2017) Defining advance care planning for adults: A consensus definition from a multidisciplinary Delphi panel. Journal of Pain and Symptom Management 53(5), 821832.e1. https://doi.org/10.1016/j.jpainsymman.2016.12.331CrossRefGoogle ScholarPubMed
Thompson, HS, Valdimarsdottir, HB, Winkel, G, et al. (2004) The Group-Based Medical Mistrust Scale: Psychometric properties and association with breast cancer screening. Preventive Medicine 38(2), 209218. https://doi.org/10.1016/j.ypmed.2003.09.041CrossRefGoogle ScholarPubMed
West, SK and Hollis, M (2012) Barriers to completion of advance care directives among African Americans ages 25–84: A cross-generational study. OMEGA — Journal of Death and Dying 65(2), 125137. https://doi.org/10.2190/OM.65.2.cCrossRefGoogle ScholarPubMed
Wicher, CP and Meeker, MA (2012) What influences African American end-of-life preferences? Journal of Health Care for the Poor and Underserved 23(1), 2858. https://doi.org/10.1353/hpu.2012.0027CrossRefGoogle ScholarPubMed
Wright, AA, Zhang, B, Ray, A, et al. (2008) Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 300(14), 16651673. https://doi.org/10.1001/jama.300.14.1665CrossRefGoogle ScholarPubMed