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P151: A Chronic Grief Management-Intervention-Video: A Profile of the Sample
- Olimpia Paun, Arlene Miller, Sarah Ailey, Ben Inventor, Masako Mayahara, Jessica Bishop-Royse, Hugh Vondracek
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- Journal:
- International Psychogeriatrics / Volume 35 / Issue S1 / December 2023
- Published online by Cambridge University Press:
- 02 February 2024, p. 218
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- Article
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Objectives
of this presentation are to:
Describe the Chronic Grief Management Intervention-Video (CGMI-V) – an ongoing stage I clinical trial
Describe the profile of the study sample using baseline data
Study purpose:to pilot-test the CGMI-V for establishing effect sizes in caregiver outcomes including chronic grief, symptoms of depression and anxiety, positive states of mind, satisfaction with care in the facility and conflict with staff.
Methods:Participants were randomized to either a control condition or to CGMI-V, a manualized intervention delivered on-line over eight consecutive weeks to family caregivers of persons diagnosed with dementia who were placed in long-term care. Caregivers were measured with standardized demographic and situational surveys (baseline only) and with the following instruments at weeks 8 and 24:
Knowledge of Alzheimer’s (FKAT)
Marwit-Meuser Caregiver Grief Inventory (MM-CGI)
CES-D 20
Family Perception of Caregiver Role
Family Perception of Caregiving Tool
State Trait Anxiety Instrument
Positive States of Mind
Recruitment was conducted via direct contacts with facilities, radio and online advertising.
Results:For the purposes of this presentation, we are reporting only baseline demographic and situational characteristics of the entire sample. Enrollment closed in November, 2022. The study remains open for follow-up only. The final sample size is 99 participants (Intervention=50; Control=49) recruited from across 14 states in the USA.
Participant Characteristics: There were no significant differences in demographics between participants in both conditions. The sample was predominantly Caucasian and female with over two thirds being highly educated, adult children. The average caregiver age was 62.06 (SD=10.20) for those in the CGMI-V condition and 58.18 (SD=11.27) respectively, for those in the control condition. Similarly, there were no significant differences in care recipient demographics. The sample was predominantly Caucasian and female. Over one third of care recipients across both conditions were diagnosed with dementia within the past four years of interviewing. Further analyses are pending.
Conclusions:Sample characteristics illuminate similarities across dementia caregivers who placed family members with dementia in long-term facilities across 14 states in the USA. These findings may inform future grief interventions.
A review of clinical trials of advance care planning interventions adapted for limited health literacy
- Mary Clare K. Houlihan, Masako Mayahara, Barbara Swanson, Louis Fogg
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- Journal:
- Palliative & Supportive Care / Volume 20 / Issue 4 / August 2022
- Published online by Cambridge University Press:
- 27 August 2021, pp. 593-599
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Objectives
Advance care planning is vital for ensuring individuals receive end-of-life care that is consistent with their care preferences and improves patient quality of life and satisfaction with care; however, only 11% of Americans have discussed advance care planning with a healthcare provider. Individuals with limited health literacy are even less likely to participate in advance care planning due to difficulty comprehending complex health information. The purpose of this review was to identify randomized controlled trials designed to address the effects of limited health literacy on advance care planning, evaluate the quality of these studies, and summarize evaluation data to inform future studies.
MethodsThis systematic review examined randomized controlled trials published from January 1997 to July 2020 using the PubMed, CINAHL, PsycINFO, and Scopus databases. Data were extracted and two reviewers independently evaluated the quality of studies using the Joanna Briggs Institute Critical Appraisal Tool.
ResultsThe database search yielded 253 studies and five studies were included in the final review. Studies were conducted in mostly White patients in outpatient clinics in the United States. Researchers wrote text at lower reading levels, added images to materials, and created videos to enhance communication. Health literacy interventions increased participant knowledge, preference for comfort care, engagement, and care documentation; however, several methodological issues were identified, including baseline differences in treatment and control groups, issues with blinding, lack of valid and reliable outcome measures, and inappropriate statistical analyses.
Significance of resultsMore high-quality intervention studies that address the effects of limited health literacy on advance care planning in diverse populations and settings are needed. Future intervention studies should use reliable and valid instruments to measure advance care planning outcomes. Clinicians should use materials appropriate for their patients’ health literacy levels to address their advance care planning needs.