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Clinical Ethics in Pediatrics
A Case-Based Textbook

$61.00

Yoram Unguru, Jessica Berg, Douglas S. Diekema, Malcolm Parker, Maureen Kelley, Roger Worthington, Mark R. Mercurio, Christine Harrison, Tom Gallagher, David Loren, Anthony J. Thomas, Charlisse Caga-Anan, Christy Cummings, Steven Leuthner, Jeffrey L. Ecker, Howard L. Minkoff, Jeff Botkin, Andrew Beckstrom, David Woodrum, A. Wyatt, Annie Janvier, John D. Lantos, Joel Frader, Kelly Michelson, Norman Fost, Jeffrey Burns, Geoffrey Miller, Alex Kon, Eduard Verhagen, Marcia Levetown, Aviva Goldberg, Todd Varness, Halle Salas, Don Brunnquell, Ben Wilfond, Lainie F. Ross, Erik D. Kodish, Valerie Blake, Douglas Opel, David C. Magnus, D. Micah Hester, Armand Antommaria, Ian Holzman, Denise Dudzinski, Stephanya Shear
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  • Date Published: October 2011
  • availability: In stock
  • format: Paperback
  • isbn: 9780521173612

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  • This volume provides a practical overview of the ethical issues arising in pediatric practice. The case-based approach grounds the bioethical concepts in real-life situations, covering a broad range of important and controversial topics, including informed consent, confidentiality, truthfulness and fidelity, ethical issues relating to perinatology and neonatology, end-of-life issues, new technologies, and problems of justice and public health in pediatrics. A dedicated section also addresses the topics of professionalism, including boundary issues, conflicts of interests and relationships with industry, ethical issues arising during training, and dealing with the impaired or unethical colleague. Each chapter contains a summary of the key issues covered and recommendations for approaching similar situations in other contexts. Clinical Ethics in Pediatrics: A Case-Based Textbook is an essential resource for all physicians who care for children, as well as medical educators, residents and scholars in clinical bioethics.

    • Provides a practical case-based overview of the ethical issues faced by those caring for children in a healthcare environment
    • Covers professional topics not traditionally addressed by pediatric ethics books, including boundary issues, the impaired provider and relationships with industry
    • Includes practical summaries and recommendations, making this a key resource for clinicians, educators and trainees
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    Product details

    • Date Published: October 2011
    • format: Paperback
    • isbn: 9780521173612
    • length: 262 pages
    • dimensions: 245 x 188 x 14 mm
    • weight: 0.57kg
    • contains: 120 b/w illus. 20 tables
    • availability: In stock
  • Table of Contents

    Preface
    Part I. Core Issues in Clinical Pediatric Ethics:
    1. Pediatric decision-making: informed consent, parental permission, and child assent Yoram Unguru
    2. Pediatric decision-making: adolescent patients Jessica Berg
    3. Refusal of recommended treatment Douglas S. Diekema
    4. Adolescent confidentiality Malcolm Parker
    5. Adolescent refusals of intervention (and the non-compliant adolescent) Maureen Kelley
    6. Family beliefs and the medical care of children Roger Worthington and Mark R. Mercurio
    7. Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents Christine Harrison
    8. Fidelity and truthfulness: disclosure of errors Tom Gallagher and David Loren
    9. Requests for 'non-therapeutic' interventions in children Anthony J. Thomas and Charlisse Caga-Anan
    Part II. Ethical Issues at the Beginning of Life: Perinatology and Neonatology:
    10. Maternal-fetal conflicts Mark R. Mercurio and Christy Cummings
    11. Fetal interventions and fetal care centers Steven Leuthner
    12. Assisted reproductive technology, multiple births, and the welfare of the child Jeffrey L. Ecker and Howard L. Minkoff
    13. Preimplantation and prenatal genetic testing for inherited diseases, dispositions, and traits Jeff Botkin
    14. Decision-making in the delivery room Mark R. Mercurio
    15. Withholding and withdrawing life-sustaining intervention from neonates Andrew Beckstrom and David Woodrum
    16. The role of QoL assessments in the delivery room and NICU A. Wyatt
    17. International variations in newborn care Annie Janvier and John D. Lantos
    Part III. Ethical Issues at the End of Life in Pediatrics:
    18. End-of-life care Joel Frader and Kelly Michelson
    19. Futility Norman Fost
    20. Advance directives and DNR orders Jeffrey Burns
    21. Definition of death Geoffrey Miller
    22. Physician aid in dying in children: physician-assisted death – terminal sedation and children Alex Kon
    23. The Groningen protocol Eduard Verhagen
    24. Symptom management in dying children Marcia Levetown
    Part IV. Ethical Issues Posed by Advances in Medical Technology and Science:
    25. Organ transplantation and the child donor Joel Frader and Aviva Goldberg
    26. Enhancement technologies and children Todd Varness
    27. Cochlear implants and deaf children Halle Salas
    28. Management of disorders of sexual differentiation Joel Frader
    29. Sterilizing procedures in minors with cognitive disabilities Don Brunnquell
    30. Parental requests for intervention on behalf of children with severe life-limiting conditions with poor quality of life (trisomy 13 and 18) Ben Wilfond
    31. Genetic screening and testing Lainie F. Ross
    32. The introduction of innovative technology in practice John D. Lantos
    33. Human subjects research involving children Erik D. Kodish and Valerie Blake
    Part V. Children, Public Health and Justice:
    34. Resource allocation and triage in disasters and pandemics Jeffrey Burns
    35. Parental refusals of vaccination and school vaccine mandates: balancing parental freedom, child welfare, and public health Douglas Opel and Douglas S. Diekema
    36. Solid organ transplantation and children with developmental disabilities David C. Magnus
    37. Special issues related to the care of orphans Maureen Kelley
    Part VI. Special Topics in Pediatric Ethics:
    38. Conflicts of interest, relationships with industry, and gifts D. Micah Hester
    39. Training issues and learning new procedures Armand Antommaria
    40. Boundary issues Ian Holzman
    41. Ethics consultation and ethics committees Denise Dudzinski
    42. Physician coverage of community events that appear to conflict with public health and professional goals: the case of physician coverage at youth boxing events Stephanya Shear and Douglas Opel
    43. The impaired, incompetent, or unethical provider Douglas S. Diekema
    Index.

  • Editors

    Douglas S. Diekema, Seattle Children's Research Institute
    Douglas S. Diekema is a Professor of Pediatrics at the University of Washington School of Medicine with adjunct appointments in the Departments of Bioethics and Humanities and Internal Medicine in the School of Medicine and the Department of Health Services in the School of Public Health. He is also an attending physician in the emergency department at Seattle Children's Hospital and serves as Director of Education for the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital. He has been a member of the Seattle Children's Hospital ethics committee since 1991, has served as an ethics consultant since 1993, and has been chairperson of the institutional review board since 2000. He is past Chair of the Committee on Bioethics of the American Academy of Pediatrics. Dr Diekema is the author of numerous scholarly publications in medical ethics and pediatric emergency medicine.

    Mark R. Mercurio, Yale University School of Medicine
    Mark R. Mercurio is Associate Professor of Pediatrics and Director of the Program for Biomedical Ethics, Yale University School of Medicine, New Haven, CT, USA.

    Mary B. Adam, Department of Pediatrics, University of Arizona School of Medicine, Tucson
    Mary B. Adam is a pediatrician from the University of Arizona, Tucson, AZ, USA. She currently works in medical education and public health in Kenya.

    Contributors

    Yoram Unguru, Jessica Berg, Douglas S. Diekema, Malcolm Parker, Maureen Kelley, Roger Worthington, Mark R. Mercurio, Christine Harrison, Tom Gallagher, David Loren, Anthony J. Thomas, Charlisse Caga-Anan, Christy Cummings, Steven Leuthner, Jeffrey L. Ecker, Howard L. Minkoff, Jeff Botkin, Andrew Beckstrom, David Woodrum, A. Wyatt, Annie Janvier, John D. Lantos, Joel Frader, Kelly Michelson, Norman Fost, Jeffrey Burns, Geoffrey Miller, Alex Kon, Eduard Verhagen, Marcia Levetown, Aviva Goldberg, Todd Varness, Halle Salas, Don Brunnquell, Ben Wilfond, Lainie F. Ross, Erik D. Kodish, Valerie Blake, Douglas Opel, David C. Magnus, D. Micah Hester, Armand Antommaria, Ian Holzman, Denise Dudzinski, Stephanya Shear

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