Agree, E., Bissett, B., and Rendall, M. (2003) ‘Simultaneous Care for Parents and Care for Children among Midlife British Women and Men’ Population Trends, 112 (Summer): 29–35.Google Scholar

Allsop, J., and Mulcahy, L. (1996) Regulating Medical Work: Formal and Informal Controls. Buckingham: Open University Press.Google Scholar

Alzheimer’s Society (2012a) Dementia 2012: A National Challenge, available at: www.alzheimers.org.uk/site/scripts/download_info.php?fileID=1389, last accessed on 4 October 2016.Google Scholar

Alzheimer’s Society (2012b) England: Mapping the Dementia Gap 2012, available at: www.alzheimers.org.uk/site/scripts/download_info.php?fileID=1665, accessed on 21 August 2013.Google Scholar

Alzheimer’s Society (2014) Dementia 2014 Infographic, available at: www.alzheimers.org.uk/infographic, last accessed on 4 October 2016.Google Scholar

Alzheimer’s Society (2016) The Progression of Alzheimer’s Disease and Other Dementias, available at: www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=133, last accessed on 27 September 2016.Google Scholar

Aminzadeh, F., Byszewski, A., Molnar, F. J., and Eisner, M. (2007) ‘Emotional Impact of Dementia Diagnosis: Exploring Persons with Dementia and Caregivers’ Perspectives’, Aging and Mental Health, 11 (3): 281–290.Google Scholar

Andrews, L., Stocking, C., Krizek, T., Gottlieb, L., Krizek, C., Vargish, T., and Siegler, M. (1997) ‘An Alternative Strategy for Studying Adverse Events in Medical Care’, The Lancet, 349: 309–313.Google Scholar

Annear, M. J., Toye, C., McInerney, F., Eccleston, C., Tranter, B., Elliott, K., and Robinson, A. (2015) ‘What Should We Know about Dementia in the 21st Century? A Dephi Consensus Study’, BMC Geriatrics, 15(5). DOI: 10.1186/s12877-015-0008-1.Google Scholar

Association of Directors of Adult Social Services (ADASS) (2016) ADASS Responds to Carers Trust Report, available at: www.adass.org.uk/adass-responds-to-carers-trust-report/, last accessed on 18 July 2016.Google Scholar

Azmi, S., Hatton, C., Emerson, E., and Caine, A. (1997) ‘Listening to Adolescents and Adults with Disabilities from South Asian Communities’, Journal of Applied Research in Intellectual Disabilities, 10(3): 250–263.Google Scholar

Bamford, C., Lamont, S., Eccles, M., Robinson, L., May, C., and Bond, J. (2004) ‘Disclosing a Diagnosis of Dementia: A Systematic Review’, International Journal of Geriatric Psychiatry, 19 (2): 151–169.Google Scholar

Banerjee, S., Murray, J., Foley, B., Atkins, L., Schneider, J., and Mann, A. (2003) ‘Predictors of Institutionalisation in People with Dementia’, Journal of Neurology, Neurosurgery and Psychiatry, 74(9): 1315–1316.Google Scholar

Barclay, L. (2000) ‘Autonomy and the Social Self’, in Mackenzie, C. and Stoljar, N. (eds) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self, pp. 52–71. Oxford: Oxford University Press.Google Scholar

Barnes, M. (2012) Care in Everyday Life: An Ethic of Care in Practice. Bristol: The Policy Press.Google Scholar

Baron, M. (2002) ‘Acting from Duty’, in Wood, A. W. (ed) Immanuel Kant Groundwork for the Metaphysics of Morals, pp. 92–110. New Haven: Yale University Press.Google Scholar

Bartlett, H., and Phillips, D. R. (1996) ‘Policy Issues in the Private Health Sector: Examples from Long Term Care in the UK’, Social Science and Medicine, 43(5): 731–737.Google Scholar

Bell, A., Bowes, A., and Dawson, A. (2007) Free Personal Care in Scotland: Recent Developments. York: Joseph Rowntree Foundation, available at: www.jrf.org.uk/report/free-personal-care-scotland-recent-developments, last accessed 17 October 2016.Google Scholar

Bendall, C. (2014) ‘Some Are More ‘Equal’ Than Others: Heteronormativity in the Post-White Era of Financial Remedies’, Journal of Social Welfare and Family Law, 36(3): 260–275.Google Scholar

Beaupert, F., Carney, T., Chiarella, M., Satchell, C., Walton, M., Bennett, B., and Kelly, P. (2014) ‘Regulating Healthcare Complaints: A Literature Review’, International Journal of Health Care Quality Assurance, 27(6): 505–518.Google Scholar

Biggs, H. (2001) Euthanasia: Death with Dignity and the Law. Oxford: Hart Publishing.Google Scholar

Bismark, M. M., Dauer, E. A., Paterson, R., and Studdert, D. M. (2006) ‘Accountability Sought by Patients following Adverse Events from Medical Care: The New Zealand Experience’, Canadian Medical Association Journal, 175(8): 889–894.Google Scholar

Black, J. (2002) ‘Critical Reflections on Regulation’, Australian Journal of Legal Philosophy, 27: 1–35.Google Scholar

Boaden, A. (2016) Fix Dementia Care: Hospitals. London: Alzheimer’s Society, available at www.alzheimers.org.uk/fixdementiacare, last accessed on 23 June 2016.Google Scholar

Borley, G., and Hardy, S. (2016) ‘A Qualitative Study on Becoming Cared for in Alzheimer’s Disease: The Effects to Women’s Sense of Identity’, Ageing and Mental Health. DOI: 10.1080/13607863.2016.1200535. Advance Access.Google Scholar

Borley, G., Sixsmith, J., and Church, S. (2014) ‘How Does a Woman with Alzheimer’s Disease Make Sense of Becoming Cared For?’, Dementia. DOI: 10.1177/1471301214561647. Online First.Google Scholar

Bramer, M. (2010) ‘The Importance of Personal Relationships to Kantian Moral Theory: A Reply to Care Ethics’, Hypatia, 25(1): 121–139.Google Scholar

Brammer, A. (2014) Safeguarding Adults. Basingstoke: Palgrave Macmillan.Google Scholar

Braye, S., Orr, D., and Preston-Shoot, M. (2011) The Governance of Adult Safeguarding: Findings from Research into Safeguarding Adults Board: Final Report to the Department of Health. London: SCIE.Google Scholar

Brazier, M., and Cave, E. (2011) Medicine, Patients and the Law. London: Penguin Books (5th edition).Google Scholar

Bryden, C. (2005) Dancing with Dementia: My Story of Living Positively with Dementia. London: Jessica Kingsley Publishers.Google Scholar

Brodaty, H., and Donkin, M. (2009) ‘Family Caregivers of People with Dementia’, Dialogues in Clinical Neuroscience, 11(2): 217–228.Google Scholar

Brodaty, H., Thomson, C., Thompson, C., and Fine, M. (2005) ‘Why Caregivers of People with Dementia and Memory Loss Don’t Use Services’, International Journal of Geriatric Psychiatry, 20: 537–546.Google Scholar

Brooker, D. (2005) ‘Dementia Care Mapping: A Review of the Literature’, The Gerontologist, 45 (Suppl 1): 11–18.Google Scholar

Brooker, D., La Fontaine, J., Evans, S., Bray, J., and Saad, K. (2014) ‘Public Health Guidance to Facilitate Timely Diagnosis of Dementia: Alzheimer’s Cooperative Valuation in Europe Recommendations’, International Journal of Geriatric Psychiatry, 29(7): 682–693.Google Scholar

Bubeck, D. (1995) Care, Gender and Justice. Oxford: Clarendon Press.Google Scholar

Canda, E. R. (2013) ‘Filial Piety and Care for Elders: A Contested Confucian Virtue Reexamined’, Journal of Ethnic and Cultural Diversity in Social Work, 22(3–4): 213–234.Google Scholar

Care Quality Commission (CQC) (2010) Essential Standards of Quality and Safety. London: Care Quality Commission.Google Scholar

Care Quality Commission (CQC) (2011) Dignity and Nutrition for Older People. London: Care Quality Commission.Google Scholar

Care Quality Commission (CQC) (2015) Guidance for Providers on Meeting the Regulations. London: Care Quality Commission, available at: www.cqc.org.uk/sites/default/files/20150324_guidance_providers_meeting_regulations_01.pdf, last accessed on 20 October 2016.Google Scholar

Carers Federation (2016) ICA Self Help Pack, available at: www.carersfederation.co.uk/services/independent-complaints-advocacy/, last accessed on 20 October 2016.Google Scholar

Carers Trust (2016) Care Act for Carers One Year On: Lessons Learned, Next Steps London: Carers Trust, available at: https://carers.org/care-act-carers-one-year-commission, accessed on 20 October 2016.Google Scholar

Carers UK (2012) Sandwich Caring: Combining Childcare with Caring for Older or Disabled Relatives. London: Carers UK.Google Scholar

Carers UK (2013) ‘Care Bill: Carers UK Analysis of Main Provisions for Carers’, available at: www.carersuk.org/for-professionals/policy/policy-library/carers-uk-analysis-of-care-bill, accessed on 15 August 2016.Google Scholar

Carers UK (2016) ‘Our History’, available at: www.carersuk.org/about-us/who-we-are/our-history, last accessed 27 September 2016.Google Scholar

Carpenter, B. D., Xiong, C., Porensky, E. K., Lee, M. M., Brown, P. J., Coats, M., Johnson, D., and Morris, J. C. (2008) ‘Reaction to a Dementia Diagnosis in Individuals with Alzheimer’s Disease and Mild Cognitive Impairment’, Journal of the American Geriatrics Society, 56: 405–412.Google Scholar

Carr, S. (2012) Personalisation: A Rough Guide. London: Social Care Institute for Excellence.Google Scholar

Carr, S. (2014) Pay, Conditions and Care Quality in Residential, Nursing and Domiciliary Services, Joseph Rowntree Foundation, available at: myhomelife.org.uk/wp-content/uploads/2015/02/JRF-report-on-care-pay-conditions-summary.pdf, last accessed on 3 October 2016.Google Scholar

Cheng, Y., Rosenberg, M. W., Wang, W., Yang, L., and Li, H. (2012) ‘Access to Residential Care in Beijing, China: Making the Decision to Relocate to a residential Care Facility’, Ageing and Society, 32(08): 1277–1299.Google Scholar

Chinthapalli, K. (2013) ‘The Birth and Death of the Liverpool Care Pathway’, British Medical Journal, 347(7918): 24.Google Scholar

Christman, J., and Anderson, J. 2005. (eds) Autonomy and the Challenges to Liberalism. Cambridge: Cambridge University Press.Google Scholar

Chu, B. (2016) ‘Brexit: Economists Put Cost of UK Losing European Union Single Market Membership at £75bn’, The Independent, Tuesday, 9 August 2016, available at: www.independent.co.uk/news/business/news/brexit-economists-put-cost-of-uk-losing-european-union-single-market-membership-at-75bn-a7181376.html, last accessed 20 October 2016.Google Scholar

Citizen’s Advice (2016) NHS Complaints Process Flowchart, available at: www.citizensadvice.org.uk/healthcare/nhs-and-social-care-complaints/complaining-about-the-nhs/tips-and-tools-to-help-you-make-a-complaint-about-health-services/nhs-complaints-process-flowchart/, last accessed on 22 June 2016.Google Scholar

Clark, H. H., and Gerrig, R. J. (1990) ‘Quotation as Demonstration’, Language 66: 784–805.Google Scholar

Clark, T. (2010) ‘On ‘Being Researched’: Why Do People Engage with Qualitative Research?’, Qualitative Research, 10(4): 399–419.Google Scholar

Cleary, M., Freeman, A., and Walter, G. (2006) ‘Carer Participation in Mental Health Service Delivery’, International Journal of Mental Health Nursing, 15(3): 189–194.Google Scholar

Clements, L. (2011) ‘Disability, Dignity and the Cri De Coeur’, European Human Rights Law Review, 6: 678–685.Google Scholar

Clements, L. (2016) Care Act Overview, available at: www.lukeclements.co.uk/care-act-2014-updated-briefing-september-2016/, last accessed on 20 October 2016.Google Scholar

Clough, B., and Brazier, M. (2014) ‘Never Too Old for Health and Human Rights?’, Medical Law International, 14(3): 133–156.Google Scholar

Cobb, N. (2008) ‘Compulsory Care-Giving: Some Thoughts on Relational Feminism, the Ethics of Care and Omissions Liability’, Cambrian Law Review, 39: 11–25.Google Scholar

Cohen-Almagor, R. (2009) ‘Euthanasia Policy and Practice in Belgium: Critical Observations and Suggestions for Improvement’, Issues in Law and Medicine, 24(3): 187–218.Google Scholar

Commission on Assisted Dying (2012) The Current Legal Status of Assisted Dying Is Inadequate and Incoherent, available at: www.demos.co.uk/files/476_CoAD_FinalReport_158x240_I_web_single-NEW_.pdf?1328113363, last accessed on 28 September 2016.Google Scholar

Commission on Funding Care and Support (2011) Fairer Care Funding, The Report of the Commission on Funding Care and Support, available at: webarchive.nationalarchives.gov.uk/20130107105354/https://www.wp.dh.gov.uk/carecommission/files/2011/07/Fairer-Care-Funding-Report.pdf, last accessed on 27 September 2016.Google Scholar

Committee on the Rights of People with Disabilities (2014) General Comment No. 1 on Article 12: Equal Recognition before the Law CRPD/C/GC/1.Google Scholar

Compassion in Dying (2013) YouGov Survey/Compassion in Dying Results, available at: compassionindying.org.uk/library/knowledge-end-life-rights-choices-yougov-poll-2013/, last accessed on 28 September 2016.Google Scholar

Cooper, D. (2004) Challenging Diversity: Rethinking Equality and the Value of Difference. Cambridge: Cambridge University Press.Google Scholar

Cooper, D. (2007) ‘”Well You Go There to Get Off”: Visiting Feminist Care Ethics through a Women’s Bathhouse’, Feminist Theory, 8(3): 243–262.Google Scholar

Cowan, D. (2004) ‘Legal Consciousness: Some Observations’, Modern Law Review, 67(6): 928–958.Google Scholar

Danzon, P. M. (1985) Medical Malpractice – Theory, Evidence and Public Policy. Cambridge, MA: Harvard University Press.Google Scholar

Davies, N., Maio, L., Vedavanam, K., Manthorpe, J. Vernooij-Dassen, M., and Illife, S. (2014) ‘Barriers to the Provision of High-Quality Palliative Care for People with Dementia in England: A Qualitative Study of Professionals’ Experiences’, Health and Social Care in the Community, 22(4): 386–394.Google Scholar

De Wet, Erika (2004) ‘The Prohibition on Torture as an International Norm of jus cogens and Its Implications for National and Customary Law’, European Journal of International Law, 15(1): 97–121.Google Scholar

Department of Communities and Local Government (2015) English Housing Survey: Headline Report 2013–14, available at: www.gov.uk/government/uploads/system/uploads/attachment_data/file/469213/English_Housing_Survey_Headline_Report_2013-14.pdf, last accessed 28 April 2017.Google Scholar

Department of Health (DH) (1999) Caring about Carers: A National Strategy for Carers, available at: webarchive.nationalarchives.gov.uk/20130107105354/http:/www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4006522, last accessed 27 September 2016.Google Scholar

Department of Health (DH) (2000) No Secrets: Guidance on Developing and Implementing Multi-Agency Policies and Procedures to Protect Vulnerable Adults from Abuse. London: Department of Health, available at: www.gov.uk/government/publications/no-secrets-guidance-on-protecting-vulnerable-adults-in-care, last accessed on 20 August 2015.Google Scholar

Department of Health (DH) (2002) Shifting the Balance of Power: The Next Steps. NHS Executive: London.Google Scholar

Department of Health (DH) (2009a) Living Well with Dementia: A National Dementia Strategy, available at: www.gov.uk/government/publications/living-well-with-dementia-a-national-dementia-strategy, last accessed 27 September 2016.Google Scholar

Department of Health (DH) (2009b) Listening, Responding, Improving – A Guide to Better Customer Care. London: Department of Health.Google Scholar

Department of Health (DH) (2012a) Transforming Care: A National Response to Winterbourne View. London: Department of Health.Google Scholar

Department of Health (DH) (2012b) National Framework for NHS Continuing Healthcare and NHS-Funded Nursing Care, available at: www.gov.uk/government/publications/national-framework-for-nhs-continuing-healthcare-and-nhs-funded-nursing-care, last accessed on 22 September 2016.Google Scholar

Department of Health (DH) (2015) Cap on Care Costs: Written statement – HLWS135, 17 July 2015, available at: www.parliament.uk/business/publications/written-questions-answers-statements/written-statement/Lords/2015–07-17/HLWS135/, last accessed 27 September 2016.Google Scholar

Department of Health (DH) (2016) Care and Support Statutory Guidance, available at: www.gov.uk/government/publications/care-act-statutory-guidance/care-and-support-statutory-guidance, last accessed 3 October 2016.Google Scholar

Department of Health, Local Government Association, ADASS, The Children’s Society and Carers Trust (2015) The Care Act and Whole Family Approaches, available at www.local.gov.uk/care-support-reform/-/journal_content/56/10180/6522308/ARTICLE, last accessed on 21 August 2015.Google Scholar

Dewing, J. (2007) ‘Participatory Research: A Method for Process Consent with Persons Who Have Dementia’, Dementia, 6(1): 11–25.Google Scholar

Dickens, A. P., Richards, S. H., Greaves, C. J., and Campbell, J. L (2011) ‘Interventions Targeting Social Isolation in Older People: A Systematic Review’, BMC Public Health, 11(647): doi: 10.1186/1471-2458-11-647.Google Scholar

Dilnot Commission (2011) Fairer Care Funding: The Report of the Commission on Funding of Care and Support, available at: webarchive.nationalarchives.gov.uk/20130221130239/www.dilnotcommission.dh.gov.uk/our-report/, last accessed 28 September 2016.Google Scholar

Director of Public Prosecutions (DPP) (2010) Policy for Prosecutors in Respect of Cases of Encouraging or Assisting Suicide. London: CPS, available at www.cps.gov.uk/publications/prosecution/assisted_suicide_policy.html, last accessed 28 September 2016.Google Scholar

Donnelly, M. (2009) ‘Best Interests, Patient Participation and the Mental Capacity Act 2005’, Medical Law Review. 17(1): 1–29.Google Scholar

Donnelly, M. (2010) Healthcare Decision-Making and the Law: Autonomy, Capacity and the Limits of Liberalism. Cambridge: Cambridge University Press.Google Scholar

Donnelly, M. (2014) ‘A Legal Overview’, in Foster, C., Herring, J. and Doron, I. (eds) The Law and Ethics of Dementia, pp. 271–282. Oxford: Hart.Google Scholar

Doron, I., and Werner, P. (2008) ‘Facts on Law and Ageing Quiz: Older People’s Knowledge of Their Legal Rights’, Ageing and Society. 28: 1159–1174.Google Scholar

Doron, I., Gal, I., Shavit, M., and Weisberg-Yosub, P. (2011) ‘Unheard Voices: Complaint Patterns of Older Persons in the Health Care System’, European Journal of Ageing, 8(1): 63–71.Google Scholar

Douglas, G., Woodward, H., Humphrey, A., Morrell, G., and Mills, L. (2010) ‘Inheritance and the Family: Public Attitudes’, Family Law. (December): 1308–1316.Google Scholar

Douglas, G., Woodward, H., Humphrey, A., Mills, L., and Morrell, G. (2011) ‘Enduring Love: Attitudes to Family and Inheritance Law in England and Wales’, Journal of Law and Society. 38(2): 245–271.Google Scholar

Drakopoulou, M. (2000) ‘The Ethic of Care, Female Subjectivity and Feminist Legal Scholarship’, Feminist Legal Studies 8: 199–226.Google Scholar

Drennan, V. M., Cole, L., and Illife, S. (2011) ‘A Taboo within a Stigma? A Qualitative Study of Managing Incontinence with People with Dementia Living at Home’, BMC Geriatrics 2011, 11(75 ): DOI: www.biomedcentral.com/1471–2318/11/75.Google Scholar

Dunn, M., Clare, I., and Holland, A. (2008) ‘To Empower or to Protect? Constructing the Vulnerable Adult in English Law and Policy’, Legal Studies 28(2): 234–253.Google Scholar

Dworkin, G., Frey, R. G., and Bok, S. (1998) Euthanasia and Physician-Assisted Suicide: For and Against. Cambridge: Cambridge University Press.Google Scholar

Dworkin, R. (1986) ‘Autonomy and the Demented Self’, The Millbank Quarterly. 64: 4–16.Google Scholar

Dworkin, R. (1993) Life’s Dominion: An Argument about Abortion, Euthanasia, and Individual Freedom. New York: Knopf.Google Scholar

Dyer, C. (2014) ‘NHS Trusts Have New Duty to Be Honest about Mistakes’, British Medical Journal: doi: dx.doi.org/10.1136/bmj.g7334 (published 01 December 2014).Google Scholar

Equality and Human Rights Commission (EHRC) (2011) Close to Home: An Inquiry into Older People and Human Rights in Home Care, available at: www.equalityhumanrights.com/en/publication-download/close-home-inquiry-older-people-and-human-rights-home-care, last accessed 28 September 2016.Google Scholar

Erol, R., Brooker, D., and Peel, E. (2015) Women and Dementia: A Global Research Review. London: Alzheimer’s Disease International, available at: www.alz.co.uk/women-and-dementia, last accessed 4 October 2016.Google Scholar

Erol, R., Brooker, D., and Peel, E. (2016) ‘The Impact of Dementia on Women Internationally: An Integrative Review’, Health Care for Women International: doi:10.1080/07399332.2016.1219357. Advance access.Google Scholar

Ewick, P., and Silbey, S. (1998) The Common Place of Law: Stories from Everyday Life. London: Chicago University Press.Google Scholar

Felstiner, W. L. F., Abel, R. L., and Sarat, A. (1980–1981) ‘The Emergence and Transformation of Disputes: Naming, Blaming, Claiming … ’, Law and Society Review 15(3–4): 631–654.Google Scholar

Fineman, M. A. (2004) The Autonomy Myth: A Theory of Dependency. New York: The New Press.Google Scholar

Fineman, M. A. (2008) ‘The Vulnerable Subject: Anchoring Equality in the Human Condition’, Yale Journal of Law and Feminism 20(1): 1–23.Google Scholar

Fineman, M. A. (2010) ‘The Vulnerable Subject and the Responsive State’, Emory Law Journal, 60(2): 251–275.Google Scholar

Fineman, M. A. (2011) ‘Vulnerability, Equality and the Human Condition’, in Jones, J., Grear, A., Fenton, R. and Stevenson, K. (eds) Gender, Sexualities and Law, pp. 53–62. London: Routledge.Google Scholar

Fineman, M. A. (2012) “Elderly’ as Vulnerable: Rethinking the Nature of Individual and Societal Responsibility’, The Elder Law Journal, 20(1): 71–112.Google Scholar

Fineman, M. A. (2013) ‘Equality, Autonomy and the Vulnerable Subject in Law and Politics’, in Fineman, M. A. and Greer, A. (eds) Vulnerability: Reflections on a New Ethical Foundation for Law and Politics, pp. 13–28. Farnham: Ashgate.Google Scholar

Fineman, M. A. (2014) ‘Vulnerability, Resilience, and LGBT Youth’, Temple Political and Civil Rights Law Review, 23: 307–330.Google Scholar

Fisher, B., and Tronto, J. C. (1991) ‘Toward a Feminist Theory of Care’, in Abel, E. and Nelson, M. (eds) Circles of Care: Work and Identity in Women’s Lives, pp. 35–62. Albany, NY: State University of New York Press.Google Scholar

Fletcher, R. (2017) ‘Negotiating Strangeness on the Abortion Trail’, in Harding, R., Fletcher, R. and Beasley, C. (eds) ReValuing Care in Theory, Law and Policy: Cycles and Connections, pp. 14–30. Abingdon: Routledge.Google Scholar

Foster, C., Herring, J., and Doron, I. (eds) (2014) The Law and Ethics of Dementia. Oxford: Hart Publishing.Google Scholar

Foucault, M. (1983) The History of Sexuality, Volume 3: Care of the Self.Google Scholar

Foucault, M. (1991) ‘Governmentality’, in Burchell, G., Gordon, C. and Miller, P (eds), The Foucault Effect: Studies in Governmentality, pp. 87–104. Chicago: University of Chicago Press.Google Scholar

Francis, R. (2013) Report of the Mid Staffordshire NHS Trust Public Inquiry. London: Crown Copyright.Google Scholar

Gal, I., and Doron, I. (2007) ‘Informal Complaints on Health Services: Hidden Patterns, Hidden Potentials’, International Journal for Quality in Health Care 19(3): 158–163.Google Scholar

Gal, I., Weisberg-Yosub, P., Shavit, M., and Doron, I., (2010) ‘Complaints on Health Services: A Survey of Person with Disabilities’, Journal of Disability Policy Studies 21(3): 181–188.Google Scholar

Gallagher, R (2011) ‘Swallowing Difficulties: A Prognostic Signpost’, Canadian Family Physician 57(12): 1407–1409.Google Scholar

Gaugler, J. E., Yu, F., Krichbaum, K., and Wyman, J. F. (2009) Predictors of Nursing Home Admission for Persons with Dementia. Medical Care 47(2): 191–198.Google Scholar

GBD (2014) ‘Global, Regional, and National Age–Sex Specific All-Cause and Cause-Specific Mortality for 240 Causes of Death, 1990–2013: A Systematic Analysis for the Global Burden of Disease Study 2013’, The Lancet 385: 117–171.Google Scholar

Genn, H. (1999) Paths to Justice: What People Do and Think about Going to Law. Oxford: Hart.Google Scholar

Genn, H., and Lloyd-Bostock, S. (1995) Medical Negligence Research Project: The Operation of the Tort System in Medical Negligence Cases, final report to the Nuffield Foundation. London: Nuffield Foundation.Google Scholar

Genova, L. (2010) Still Alice. London: Pocket Books.Google Scholar

George, R. H. (2011) ‘In Defence of Dissent: R (McDonald) v Royal Borough of Kensington and Chelsea’, Elder Law Journal 1(4): 409–414.Google Scholar

Georges, J., Jansen, S., Jackson, J., Meyrieux, A., Sadowska, A., and Selmes, M. (2008) ‘Alzheimer’s Disease in Real Life – The Dementia Carer’s Survey’, International Journal of Geriatric Psychiatry 23: 546–551.Google Scholar

Gilligan, C. (1982) In a Different Voice: Psychological Theory and Women’s Development. Cambridge, MA: Harvard University Press.Google Scholar

Glenn, E. N. (2010) Forced to Care: Coercion and Caregiving in America. Cambridge, MA: Harvard University Press.Google Scholar

Golan, O. G. (2014) ‘End-of-Life Care’, in Foster, C., Herring, J., and Doron, I., (eds) The Law and Ethics of Dementia, pp. 393–420. Oxford: Hart Publishing.Google Scholar

Grear, A. (2011) ‘The Vulnerable Living Order: Human Rights and the Environment in a Critical and Philosophical Perspective’, Journal of Human Rights and the Environment 2(1): 23–44.Google Scholar

Greenwood, N., and Smith, R. (2015) ‘Barriers and Facilitators for Male Carers in Accessing Formal and Informal Support: A Systematic Review’, Maturitas: The European Menopause Journal 82(2): 162–169.Google Scholar

Grice, P. (1989) Studies in the Way of Words. Cambridge, MA: Harvard University Press.Google Scholar

Hansson, S. (2015) ‘Calculated Overcommunication: Strategic Use of Prolixity, Irrelevance and Repetition in Administrative Language’, Journal of Pragmatics 84: 172–188.Google Scholar

Harding, R. (2008) ‘Recognising (and Resisting) Regulation: Attitudes to the introduction of civil partnership’, Sexualities 11(6): 741–762.Google Scholar

Harding, R. (2011) Regulating Sexuality: Legal Consciousness in Lesbian and Gay Lives. Routledge: London.Google Scholar

Harding, R. (2012) ‘Legal Constructions of Dementia: Discourses of Autonomy at the Margins of Capacity’, Journal of Social Welfare and Family Law 34(4): 425–442.Google Scholar

Harding, R. (2014) ‘Dementia and Carers: Relationality and informal carers’ experiences’, in Foster, C., Herring, J., and Doron, I. (eds) The Law and Ethics of Dementia, pp. 379–391. Oxford: Hart.Google Scholar

Harding, R. (2015) ‘Statutory Wills and the Limits of Best Interests Decision-Making’, Modern Law Review 78(6): 945–970.Google Scholar

Harding, N., and Palfrey, C. (1997) The Social Construction of Dementia: Confused Professionals? London: Jessica Kingsley Publishers.Google Scholar

Harding, R., and Peel, E. (2010) Duties to Care: A Socio-Legal Exploration of Caring for People with Dementia. Funded by the British Academy (Grant no: SG1000017).Google Scholar

Harding, R., and Peel, E. (2013) ‘“He Was Like a Zombie”: Off-label Prescription of Antipsychotic Drugs in Dementia’, Medical Law Review 21(2): 243–277.Google Scholar

Harding, R., Fletcher, R., and Beasley, C. (eds) (2017) ReValuing Care in Theory Law and Policy: Cycles and connections Abingdon: Routledge.Google Scholar

Harpwood, V. (2007) Medicine, Malpractice and Misapprehensions. Abingdon: Routledge-Cavendish.Google Scholar

Health and Social Care Information Centre (HSCIC) (2013) Community Care Statistics: Social Services Activity, England 2012–13, Final Release, available at: content.digital.nhs.uk/catalogue/PUB13148/comm-care-stat-act-eng-2012–13-fin-rep.pdf, last accessed 17 October 2016.Google Scholar

Health and Social Care Information Centre (HSCIC) (2015) Data on Written Complaints in the NHS 2014–15, available at content.digital.nhs.uk/catalogue/PUB18021, last accessed on 28 September 2016.Google Scholar

Heer, K., Larkin, M. Burchess, I., and Rose, J. (2012) ‘The Cultural Context of Care-Giving: Qualitative Accounts from South Asian Parents Who Care for a Child with Intellectual Disabilities in the UK’, Advances in Mental Health and Intellectual Disabilities 6(4): 179–191.Google Scholar

Held, V. (2006) The Ethics of Care: Personal, Political and Global. Oxford: Oxford University Press.Google Scholar

Hellstrom, I., Nolan, M., Nordenfelt, L., and Lundh, U. (2007) ‘Ethical and Methodological Issues in Interviewing Persons with Dementia’ Nursing Ethics 14(5): 608–619.Google Scholar

Herring, J. (1999) ‘The Human Rights Act and the Welfare Principle in Family Law – Conflicting or Complementary?’, Child and Family Law Quarterly 11(3): 223–235.Google Scholar

Herring, J. (2013) Caring and the Law. Oxford: Hart.Google Scholar

Herring, J. (2016) Medical Law and Ethics, 6th edition. Oxford: Oxford University Press.Google Scholar

Herring, J., and Foster, C. (2012) ‘Welfare Means Relationality, Virtue and Altruism’, Legal Studies 32(3): 480–498.Google Scholar

Hervey, T. K., and McHale, J. V. (2015) European Union Health Law: Themes and Implications. Cambridge: Cambridge University Press.Google Scholar

Hill, A. (2012) ‘Winterbourne View Care Home Staff Jailed for Abusing Residents’, The Guardian, 26 October 2012, available at: www.theguardian.com/society/2012/oct/26/winterbourne-view-care-staff-jailed, last accessed on 18 July 2016.Google Scholar

Hirst, M. (2005) ‘Carer Distress: A Prospective, Population-Based Study’, Social Science and Medicine 61(3): 697–708.Google Scholar

HM Government (2013) The Care Bill Explained Cm 8627. London: TSO, available at: www.gov.uk/government/publications/the-care-bill-explained, last accessed 17 October 2016.Google Scholar

HM Government (2016) Benefit Cap, available at www.gov.uk/benefit-cap, last accessed 17 October 2016.Google Scholar

Holt, E. (1996) ‘Reporting on Talk: The Use of Direct Reported Speech in Conversation’, Research on Language and Social Interaction 29(3): 219–245.Google Scholar

Holt, G. R. (2011) ‘Editorial: Timely Diagnosis of Alzheimer Disease Gives Patients Opportunities to Make Choices’, Southern Medical Journal 104(12): 779–780.Google Scholar

Hope, T., Keene, J., and Gedling, K. (1998) ‘Predictors of Institutionalization for People with Dementia Living at Home with a Carer’, International Journal of Geriatric Psychiatry 13: 682–690Google Scholar

Horsey, K., and Rackley, E. (2015) Tort Law. Oxford: Oxford University Press.Google Scholar

Huang, Y., Chu, C., Ho, C., Lan, S., Hsieh, C., and Hsieh, Y. (2014) ‘Decision-Making Factors Affecting Different Family Members regarding the Placement of Relatives in Long-Term Care Facilities’, BMC Health Services Research 14(21): www.biomedcentral.com/1472–6963/14/21.Google Scholar

Hussein, S., and Manthorpe, J. (2012) ‘The Dementia Social Care Workforce in England: Secondary Analysis of a National Workforce Dataset’, Aging & Mental Health 16(1): 110–118.Google Scholar

Illife, S., and Manthorpe, J. (2004) ‘Editorial: The Hazards of Early Recognition of Dementia: A Risk Assessment’, Aging and Mental Health 8(2): 99–105.Google Scholar

Ingham, H., Bamford, S., and Jones, G. (2015) The Costs and Benefits of Paying All the Lowest-Paid Care Home Workers in the UK the Living Wage. York: Joseph Rowntree Foundation.Google Scholar

Innes, A. (2009) Dementia Studies: A Social Science Perspective. London: Sage.Google Scholar

Innes, A., Blackstock, K., Mason, A., Smith, A., and Cox, S. (2005) ‘Dementia Care Provision in Rural Scotland: Service Users’ and Carers’ Experiences’, Health and Social Care in the Community 13(4): 354–365.Google Scholar

Institute of Public Care (IPC) (2011) People Who Pay for Care: Quantitative and Qualitative Analysis of Self-Funders in the Social Care Market, available at: https://ipc.brookes.ac.uk/publications/publication_646.html, last accessed on 28 September 2016.Google Scholar

Jackson, E. (2013) ‘The Liverpool Care Pathway Review’, Elder Law Journal 3(4): 402–404.Google Scholar

Jackson, E. (2016) Medical Law: Text, Cases and Materials. 4th edition. Oxford: Oxford University Press.Google Scholar

Jackson, E., and Keown, J. (2012) Debating Euthanasia. Oxford: Hart Publishing.Google Scholar

Jha, A., Tabet, N., and Orrell, M. (2001) ‘To Tell or Not to Tell—Comparison of Older Patients’ Reaction to Their Diagnosis of Dementia and Depression’, International Journal of Geriatric Psychiatry 16: 879–885.Google Scholar

Johnson, H., Bouman, W. P., and Pinner, G. (2000) ‘On Telling the Truth in Alzheimer’s Disease: A Pilot Study of Current Practice and Attitudes’, International Psychogeriatrics 12(2): 221–229.Google Scholar

Johnson, T. M., Ouslander, J. G., Uman, G. C., and Schnelle, J. F. (2001) ‘Urinary Incontinence Treatment Preferences in Long-Term Care’, Journal of the American Geriatric Society 49:710–718.Google Scholar

Kant, I. (2002) Groundwork for the Metaphysics of Morals, edited and translated by Wood, A. W.. New Haven: Yale University Press.Google Scholar

Kao, H. -F., and Stuifbergen, A. K. (1999) ‘Family Experiences Related to the Decision to Institutionalize an Elderly Member in Taiwan: An Exploratory Study’, Social Science and Medicine 49(8): 1115–1123.Google Scholar

Katbamna, S., Bhakta, P., Ahmad, W., Baker, R., and Parker, G. (2002) ‘Supporting South Asian Carers and Those They Care for: The Role of the Primary Health Care Team’, The British Journal of General Practice 52(477): 300–305.Google Scholar

Kelly, F., and Innes, A. (2013) ‘Human Rights, Citizenship, and Dementia Care Nursing’, International Journal of Older People Nursing 8(1): 61–70.Google Scholar

Keown, J. (1995) Euthanasia Examined: Ethical, Clinical and Legal Perspectives. Cambridge: Cambridge University Press.Google Scholar

Keown, J. (2002) Euthanasia, Ethics and Public Policy: An Argument against Legalisation. Cambridge: Cambridge University Press.Google Scholar

Kerridge, R (2009) Parry and Kerridge: The Law of Succession, 12th Edition. London: Sweet and Maxwell.Google Scholar

Kirby, P. (2006) ‘Theorising Globalisation’s Social Impact: Proposing the Concept of Vulnerability’, Review of International Political Economy 13(4): 632–655.Google Scholar

Kitzinger, C. (2015) ‘Feminism and the “Right to Die”: Editorial Introduction to the Special Feature’, Feminism and Psychology 25(1): 101–104.Google Scholar

Laurie, G., Harmon, S., and Porter, G. (2016) Mason and McCall Smith’s Law and Medical Ethics, 10th Edition. Oxford: Oxford University Press.Google Scholar

Law Commission (2011) Adult Social Care (Law Com No, 326). London: TSO.Google Scholar

Leadership Alliance for the Care of Dying People (LACDP) (2014) One Chance to Get It Right: Improving People’s Experience of Care in the, Last Few Days and Hours of Life, available at: www.gov.uk/government/publications/liverpool-care-pathway-review-response-to-recommendations, last accessed on 19 September 2016.Google Scholar

Leckey, R. (2008) Contextual Subjects: Family, State and Relational Theory. Toronto: University of Toronto Press.Google Scholar

Lewis, P. (2007) Assisted Dying and Legal Change. Oxford: Oxford University Press.Google Scholar

Lewis, P. (2011) ‘Informal Legal Change on Assisted Suicide: The Policy for Prosecutors’, Legal Studies 31(1): 119–134.Google Scholar

Lloyd, B. T., and Stirling, C. (2011) ‘Ambiguous Gain: Uncertain Benefits of Service Use for Dementia Carers’, Sociology of Health and Illness 33(6): 899–913.Google Scholar

Lloyd-Bostock, S. (1999) ‘Calling Doctors and Hospitals to Account: Complaining and Claiming as Social Processes’, in Rosenthal, M., Mulcahy, L. and Lloyd-Bostok, S. M. (eds) Medical Mishaps: Pieces of the Puzzle, pp. 109–123. Buckingham: Open University Press.Google Scholar

Local Government Ombudsman (LGO) (2015) Quality Counts: Annual Report and Accounts 2014–15, available at: www.lgo.org.uk/information-centre/reports/lgo-annual-reports, last accessed 28 September 2016.Google Scholar

Luppa, M., Luck, T., Braehler, E., Koenig, H. H., and Riedel-Heller, S. G. (2008) ‘Prediction of Institutionalisation in Dementia: A Systematic Review’, Dementia and Geriatric Cognitive Disorders 26: 65–78.Google Scholar

MacKenzie, C., and Stoljar, N. (eds) (2000a) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self. Oxford: Oxford University Press.Google Scholar

MacKenzie, C., and Stoljar, N. (2000b) ‘Introduction: Autonomy Refigured’, In MacKenzie, C. and Stoljar, N. (eds) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self, pp. 3–31. Oxford: Oxford University Press.Google Scholar

Macneil, I. R. (1983) ‘Values in Contract: Internal and External’, Northwestern University Law Review 78: 340–418.Google Scholar

Macneil, I. R. (2000) ‘Relational Contract Theory: Challenges and Queries’, Northwestern University Law Review 94: 877–907.Google Scholar

Maguire, C. P., Kirby, M., Coen, R., Coakley, D., Lawlor, B. A., and O’Neill, D. (1996) ‘Family Members’ Attitudes toward Telling the Patient with Alzheimer’s Disease Their Diagnosis’, British Medical Journal 313: 529–530.Google Scholar

Mandelstam, M. (2011a) ‘Safeguarding Adults at Risk of Harm: A Legal Guide for Practitioners’, SCIE Report 50, available at: www.scie.org.uk/publications/reports/report50.asp, last accessed on 20 August 2015.Google Scholar

Mandelstam, M. (2011b) How We Treat the Sick: Neglect and Abuse in Our Health Services. London: Jessica Kingsley.Google Scholar

Manthorpe, J., and Martineau, S. (2011) ‘Serious Case Reviews in Adult Safeguarding in England’, British Journal of Social Work 41(2): 224–241.Google Scholar

Mavronicola, N. (2012) ‘What Is an ‘Absolute Right’? Deciphering Absoluteness in the Context of Article 3 of the European Convention on Human Rights’, Human Rights Law Review 12(4): 723–758.Google Scholar

May, M. L., and Stengel, D. B. (1990) ‘Who Sues Their Doctors: How Patients Handle Medical Grievances’, Law and Society Review 24(1): 105–120.Google Scholar

McDermott, M. (2010) ‘Commentary: YL v Birmingham City Council and Others’, in Hunter, R., McGlynn, C. and Rackley, E. (eds) Feminist Judgments: From Theory to Practice, pp. 311–328. Oxford: Hart.Google Scholar

McLean, S., (2010) Autonomy, Consent and the Law. Abingdon: Routledge.Google Scholar

Meeusen, K., Van den Block, L., Echteld, M., Boffin, N., Bilsen, J., Van Casteren, V., and Deliens, L. (2012) ‘Older People Dying with Dementia: A Nationwide Study’, International Psychogeriatrics 24(10): 1581–1591.Google Scholar

Menzel, P. T., and Chandler-Cramer, M. C. (2014) ‘Advance Directives, Dementia, and Withholding Food and Water by Mouth’, Hastings Center Report 44(3): 23–37.Google Scholar

Merry, S. E. (1990) Getting Justice and Getting Even: Legal Consciousness among Working-Class Americans. London: University of Chicago Press.Google Scholar

Ministry of Justice (2014) ‘Freedom of Information Request on LPA for Health and Welfare Statistics’, available at: www.gov.uk/government/uploads/system/uploads/attachment_data/file/355150/lasting-power-of-attorney-for-health.doc, last accessed on 20 September 2016.Google Scholar

Ministry of Justice (2016) ‘Family Court Statistics Jan-Mar 2016 Tables’, available at https://data.gov.uk/dataset/family-court-statistics/resource/e128efd7-2c5e-4176-89f4-a6e3823e2bf9, last accessed 2 May 2017.Google Scholar

Minns, S. (2015) ‘Lisa Genova – All in the Mind’, Good Reading Magazine published 18 March 2015, available at: https://goodreadingmagazine.wordpress.com/2015/03/18/lisa-genova-all-in-the-mind/, last accessed on 20 September 2016.Google Scholar

Mitchell, S. L., Teno, J. M., Kiely, D. K., Shaffer, M. L., Jones, R. N., Prigerson, H. G., Volicer, L., Givens, J. L., and Hamel, M. B. (2009) ‘The Clinical Course of Advanced Dementia’, The New England Journal of Medicine 361(16): 1529–1538.Google Scholar

Molyneaux, V., Butchard, S., Simpson, J., and Murray, C. (2011) ‘Reconsidering the Term “Carer”: A Critique of the Universal Adoption of the Term “Carer”’, Ageing and Society 31: 422–437.Google Scholar

Monk, D. (2011) ‘Sexuality and Succession Law: Beyond Formal Equality’, Feminist Legal Studies 19(3): 231–250.Google Scholar

Morgan, D. L. (2007) ‘Paradigms Lost and Pragmatism Regained: Methodological Implications of Combining Qualitative and Quantitative Methods’, Journal of Mixed Methods Research 1: 48–76.Google Scholar

Moriarty, J., Sharif, N., and Robinson, J. (2011) ‘Black and Minority Ethnic People with Dementia and Their Access to Support and Services’, SCIE Research Briefing 35, available at: http://www.scie.org.uk/publications/briefings/briefing35/, last accessed 2 May 2017.Google Scholar

Mortimer, C. (2016) ‘Brexit Caused, Lasting Rise in Hate Crime, New Figures Show’, The Independent, Thursday, 8 September 2016, available at: www.independent.co.uk/news/uk/crime/brexit-hate-crime-racism-eu-referendum-poland-islam-more-in-common-a7231836.html, last accessed 20 October 2016.Google Scholar

Mulcahy, L. (2003) Disputing Doctors: The Socio-Legal Dynamics of Complaints about Medical Care. Maidenhead: Open University Press.Google Scholar

Mulcahy, L., and Lloyd-Bostock, S. (1992) ‘Complaining – What’s the Use?’in Dingwall, R and Fenn, P (eds) Quality in Health Care, pp. 51–68. London: Routledge.Google Scholar

Mulcahy, L., and Rosenthal, M. (1999) ‘Beyond Blaming and Perfection: A Multi-Dimensional Approach to Medical Mishap’, in Rosenthal, M., Mulcahy, L. and Lloyd-Bostock, S. (eds) Medical Mishaps: Pieces of the Puzzle, pp. 3–19. Buckingham: Open University Press.Google Scholar

Mulcahy, L., and Tritter, J. (1998) ‘Pathways, Pyramids and Icebergs? Mapping the Links between Dissatisfaction and Complaints’, Sociology of Health and Illness 20(6): 823–845.Google Scholar

Munro, V. E., and Scoular, J. (2012) ‘Abusing Vulnerability? Contemporary Law and Policy Responses to Sex Work in the UK’, Feminist Legal Studies 20: 189–206.Google Scholar

Musa, I., Seymour, J., Narayamsany, M. J., Wada, T., and Conroy, S. (2015) ‘A Survey of Older Peoples’ Attitudes towards Advance Care Planning’, Age and Ageing 44: 371–376.Google Scholar

Myers, G. (1999) ‘Functions of Reported Speech in Group Discussions’, Applied Linguistics 20(3): 376–401.Google Scholar

Naffine, N. (2008) Law’s Meaning of Life: Philosophy, Religion, Darwin and the Legal Person. Oxford and Portland, Oregon: Hart Publishing.Google Scholar

National Institute for Clinical Excellence (NICE) (2006/2016) Dementia: supporting people with dementia and their carers in health and social care (CG42), available at: www.nice.org.uk/guidance/cg42, last accessed 27 September 2016.Google Scholar

National Institute for Clinical Excellence (NICE) (2011) Dementia: The NICE-SCIE Guideline on Supporting People with Dementia and Their Carers in Health and Social Care. Leicester: British Psychological Society, available at: www.scie.org.uk/publications/misc/dementia/dementia-fullguideline.pdf?res=true, last accessed 27 September 2016.Google Scholar

National Institute for Clinical Excellence (NICE) (2013) NICE Charter, available at: www.nice.org.uk/about/who-we-are, last accessed 17 October 2016.Google Scholar

National Institute for Clinical Excellence (NICE) (2015) Care of dying adults in the, last days of life (NG31), available at: www.nice.org.uk/guidance/ng31?unlid=995330362201632233924, last accessed 28 September 2016.Google Scholar

Neuberger, J., Guthrie, C., Aaronovitch, D., Hammed, K., Bonser, T., Harries, R., Charlesworth-Smith, D., Jackson, E., Cox, D., and Waller, S. (2013) More Care, Less Pathway: A Review of the Liverpool Care Pathway, available at: www.gov.uk/government/publications/review-of-liverpool-care-pathway-for-dying-patients, last accessed on 19 September 2016.Google Scholar

Neville, C., Beattie, E., Fielding, E., and MacAndrew, M. (2015) ‘Literature Review: Use of Respite by Carers of People with Dementia’, Health and Social Care in the Community 23(1): 51–63.Google Scholar

NHS Complaints Advocacy (2016) Raising Complaints or Concerns about NHS Services, available at: nhscomplaintsadvocacy.org/standard-self-help-information-pack/, last accessed on 4 July 2016.Google Scholar

Nedelsky, J. (1989) ‘Reconceiving Autonomy: Sources, Thoughts, Possibilities’, Yale Journal of Law and Feminism, 1:7–36.Google Scholar

Nedelsky, J. (2011) Law’s Relations: A Relational Theory of Self, Autonomy and Law. Oxford: Oxford University Press.Google Scholar

Neville, S., and Gray, A. (2015) ‘UK Insurers Unenthusiastic About Covering Social Care Costs’, Financial Times, 19 January 2015, available at: https://www.ft.com/content/bf042c5c-9a88-11e4-86c2-00144feabdc0, last accessed 2 May 2017.Google Scholar

Noddings, N. (2013) Caring: A Feminine Approach to Ethics and Moral Education. Berkeley: University of California Press.Google Scholar

Novak, D. B., Plummer, R., Smith, R. L., Ochtill, H., Morrow, G. R., Bennett, J. M. (1979) ‘Changes in Physicians’ Attitudes toward Telling the Cancer Patient’, Journal of the American Medical Association 241: 897–900.Google Scholar

O’Connor, D. (2007) ‘Self-Identifying as a Caregiver: Exploring the Positioning Process’, Journal of Aging Studies 21(2): 165–174.Google Scholar

O’Rourke, G. (2016) ‘Older People, Personalisation and Self: An Alternative to the Consumerist Paradigm in Social Care’, Ageing and Society, 36: 1008–1030.Google Scholar

Office of National Statistics (2013a) ‘2011 Census: Unpaid Care Snapshot’, available at: www.ons.gov.uk/ons/guide-method/census/2011/carers-week/index.html accessed on 30 July 2015.Google Scholar

Office of National Statistics (2013b) ‘Ethnic Variations in General Health and Unpaid Care Provision, 2011’, London: Office of National Statistics, available at: www.ons.gov.uk/ons/rel/census/2011-census-analysis/ethnic-variations-in-general-health-and-unpaid-care-provision/index.html accessed on 30 July 2015.Google Scholar

Office of National Statistics (2013c) ‘2011 Census: Detailed Characteristics for England and Wales, March 2011’, London: Office of National Statistics, available at: www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/populationestimates/bulletins/2011census/2013–05-16, last accessed 17 October 2016.Google Scholar

Office of National Statistics (2014) ‘Comparing Leading Causes of Death 2004-2014’, available at webarchive.nationalarchives.gov.uk/20160105160709/www.ons.gov.uk/ons/rel/vsob1/mortality-statistics–deaths-registered-in-england-and-wales–series-dr-/2014/stb-mortality-stats-2014.html accessed on 7 September 2016.Google Scholar

Office of National Statistics (2016a) Leading Causes of Death 2013, available at visual.ons.gov.uk/what-are-the-top-causes-of-death-by-age-and-gender/ accessed on 7 September 2016.Google Scholar

Office of National Statistics (2016b) House Prices Index, UK: June 2016, available at www.ons.gov.uk/economy/inflationandpriceindices/bulletins/housepriceindex/june2016, last accessed on 28 April 2017.Google Scholar

Oken, D. (1961) ‘What to Tell Cancer Patients’, Journal of the American Medical Association 175: 1120–1128.Google Scholar

Oliviero, K. E. (2011) ‘Sensational Nation and the Minutemen: Gendered Citizenship and Moral Vulnerabilities’, Signs 36(3): 679–706.Google Scholar

Öslund, U., Kidd, L., Wengström, Y., and Rowa-Dewar, N. (2011) ‘Combining Qualitative and Quantitative Research within Mixed Method Designs: A Methodological Review,’ International Journal of Nursing Studies 48: 369–383.Google Scholar

Ott, B. R., Heindel, W. C., Papandonatos, G. D., Festa, E. K., Davis, J. D., Daiello, L. A., Morris, J. C. (2008) ‘A Longitudinal Study of Drivers with Alzheimer Disease’, Neurology 70(14): 1171–1178.Google Scholar

Ove, T. (2014) ‘Obituary: Sandra Bem / Psychologist, Feminist, Pioneer in Gender Roles’, Pittsburgh Post-Gazette, 22 May 2014, available at: www.post-gazette.com/news/obituaries/2014/05/23/Obituary-Sandra-Bem-Psychologist-feminist-pioneer-in-gender-roles/stories/201405230080, last accessed 28 September 2016.Google Scholar

Pannick, Lord (2009) ‘Functions of a Public Nature’, Judicial Review 14: 109–112.Google Scholar

Parliamentary and Health Service Ombudsman (PHSO) (2015) The Ombudsman’s Annual Report and Accounts 2014–15. London: PHSO, available at: www.ombudsman.org.uk/about-us/publications/annual-reports, last accessed 28 September 2016.Google Scholar

Patel, B. B., and Holland, N. W. (2011) Adverse Effects of Acetylcholinesterase Inhibitors Clinical Geriatrics 19(1): 27–30.Google Scholar

Peel, E. (2014) “The Living Death of Alzheimer’s’ versus ‘Take a Walk to Keep Dementia at Bay’: Representation of Dementia in Print Media and Carer Discourse’, Sociology of Health and Illness 36(6): 885–901.Google Scholar

Peel, E. (2015) ‘Diagnostic Communication in the Memory Clinic: A Conversation Analytic Perspective’, Aging and Mental Health 19(12): 1123–1130.Google Scholar

Peel, E. (2017) “It Has Had Quite a Lot of Reverberations through the Family’: Reconfiguring Relationships through Parent with Dementia Care’, In Harding, R., Fletcher, R. and Beasley, C. (Eds.) Revaluing Care in Theory, Law and Policy: Cycles and Connections, pp. 198–214. Abingdon: Routledge.Google Scholar

Peel, E., and Harding, R. (2014). ‘“It’s a Huge Maze, the System, It’s a Terrible Maze”: Dementia Carers’, Constructions of Navigating Health and Social Care Services’, Dementia: The International Journal of Social Research and Practice 13(5): 642–661.Google Scholar

Peel, E., and Harding, R. (2015) A Right to ‘Dying Well’ with Dementia? Capacity, ‘Choice’ and Relationality. Feminism and Psychology, 25(1): 137–142.Google Scholar

Peel, E., Parry, O., Douglas, M., and Lawton, J. (2006) ‘“It’s No Skin off My Nose”: Why People Take Part in Qualitative Research’, Qualitative Health Research 16(10): 1335–1349.Google Scholar

Perfect, D. (2012) Gender Pay Gaps 2012. Briefing Paper No. 6, Manchester: Equality and Human Rights Commission.Google Scholar

Pinner, G. (2000) ‘Truth-Telling and the Diagnosis of Dementia’, British Journal of Psychiatry 176: 514–515.Google Scholar

POhWER (2016) NHS Complaints Advocacy, available at www.pohwer.net/nhs-complaints-advocacy-self-help-tools.html, last accessed on 22 June 2016.Google Scholar

Priaulx, N. (2007) The Harm Paradox: Tort Law and the Unwanted Child in an Era of Choice. Abingdon: Routledge.Google Scholar

Pritchard-Jones, L. (2016) The Good, the Bad, and the ‘Vulnerable Older Adult’, Journal of Social Welfare and Family Law, 38(1): 51–72.Google Scholar

Pyper, D. (2016) ‘Brexit: Employment Law’, House of Commons Library Briefing Paper CBP 7732, available at: researchbriefings.parliament.uk/ResearchBriefing/Summary/CBP-7732, last accessed 20 October 2016.Google Scholar

Rachels, J. (1986) The End of Life. Oxford: Oxford University Press.Google Scholar

Riggs, D., and Peel, E. (2016) Critical Kinship Studies: An Introduction to the Field. London: Palgrave Macmillan.Google Scholar

Robison, J., Fortinsky, R., Kleppinger, A., Shugrue, N., and Porter, M. (2009) ‘A Broader View of Family Caregiving: Effects of Caregiving and Caregiver Conditions on Depressive Symptoms, Health, Work, and Social Isolation’, Journal of Gerontology: Social Sciences, 64B(6): 788–798.Google Scholar

Robinson, B. C. (1983) ‘Validation of a Caregiver Strain Index’, Journal of Gerontology 38(3): 344–348.Google Scholar

Robinson, J. (1999) ‘The Price of Deceit: The Reflections of an Advocate’, in Rosenthal, M., Mulcahy, L. and Lloyd-Bostock, S. (eds) Medical Mishaps: Pieces of the Puzzle, pp. 246–256. Buckingham: Open University Press.Google Scholar

Rose, N. (1999) Powers of Freedom: Reframing Political Thought, Cambridge: Cambridge University Press.Google Scholar

Rosenthal, M. M., Mulcahy, L., and Lloyd-Bostock, S. (eds) (1999) Medical Mishaps: Pieces of the Puzzle. Buckingham: Open University Press.Google Scholar

Royal College of Psychiatrists (2011) Report of the National Audit of Dementia Care in General Hospitals Editors: Young, J., Hood, C., Woolley, R., Gandesha, A. and Souza, R.. London: Healthcare Quality Improvement Partnership.Google Scholar

Royal College of Psychiatrists (2013). National Audit of Dementia care in general hospitals 2012–13: Second round audit report and update Editors: Young, J., Hood, C., Woolley, R., Gandesha, A. and Souza, R.. London: HQIP.Google Scholar

Samsi, K., and Manthorpe, J. (2011) ‘”I Live for Today”: A Qualitative Study Investigating Older People’s Attitudes to Advance Planning’, Health and Social Care in the Community 19(1): 52–59.Google Scholar

Satz, A. (2009) ‘Animals as Vulnerable Subjects: Beyond Interest-Convergence, Hierarchy, and Property’, Animal Law Review, 16(1): 65–122.Google Scholar

Savitch, N., Abbott, E., and Parker, G. M. (2015) Dementia: Through the Eyes of Women. Research Report. York: Joseph Rowntree Foundation.Google Scholar

Scourfield, P. (2007) ‘Are There Reasons to Be Worried about the ‘Caretelization’ of Residential Care?’, Critical Social Policy 27(2): 155–180.Google Scholar

Scourfield, P. (2011) ‘Caretelization Revisited and the Lessons of Southern Cross’, Critical Social Policy 32(1): 137–148.Google Scholar

Series, L. (2014) ‘Speechless’, The Small Places Blog, available at: https://thesmallplaces.wordpress.com/2014/10/23/speechless/, last accessed on 30 July 2015.Google Scholar

Sevenhuijsen, S. (2003) ‘The Place of Care: The Relevance of the Feminist Ethic of Care for Social Policy’, Feminist Theory, 4(2): 179–197.Google Scholar

Shakespeare, T. (2012) ‘Still a Health Issue’, Disability and Health Journal 5(3): 129–131.Google Scholar

Sheldon, T. (2005) ‘Dutch Approve Euthanasia for a Patient with Alzheimer’s Disease’, British Medical Journal 330: 1041.Google Scholar

Silbey, S. S. (2005) ‘After Legal Consciousness’, Annual Review of Law and Social Science 1: 323–368.Google Scholar

Sloan, B. (2013) Informal Carers and Private Law. Oxford: Hart Publishing.Google Scholar

Slote, M. (2007) The Ethics of Care and Empathy Abingdon: Routledge.Google Scholar

Smith, K., Humphreys, J., and Jones, J. (2006) ‘Essential Tips for Measuring Levels of Consumer Satisfaction with Rural Health Service Quality’, Rural and Remote Health 6(4): 594, available at: www.rrh.org.au/articles/subviewnew.asp?ArticleID=594, last accessed 28 September 2016.Google Scholar

Smith, S. W. (2012) End-of-Life Decisions in Medical Care: Principles and Policies for Regulating the Dying Process Cambridge: Cambridge University Press.Google Scholar

Spitznagel, M. B., Tremont, G., Duncan Davies, J., Foster, S.M., (2006) ‘Psychosocial predictors of dementia caregiver desire to institutionalize: caregiver, care recipient, and family relationship factors’, Journal of Geriatric Psychiatry and Neurology 19: 16–20.Google Scholar

Steele, J. (2014) Tort Law: Text, Cases and Materials, 3rd Edition. Oxford: Oxford University Press.Google Scholar

Stirling, C., Andrews, S., Croft, T., Vickers, J., Turner, P., and Robinson, A. (2010) ‘Measuring Dementia Carers’ Unmet Need for Services – An Exploratory Mixed Method Study’, BMC Health Services Research, 10(122), available at: https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-10-122, last accessed 2 May 2017.Google Scholar

Stewart, A. (2017) ‘Carers as Legal Subjects’, in Harding, R., Fletcher, R. and Beasley, C. (eds) ReValuing Care in Theory Law and Policy: Cycles and Connections, pp. 148–164. London: Routledge.Google Scholar

Sweeting, H., and Gilhooly, M. (1997) ‘Dementia and the phenomena of social death’, Sociology of Health and Illness 19(1): 93–117.Google Scholar

Swinford, S., and Gammell, C. (2011) ‘Warnings of care home ‘were ignored for months’, The Telegraph, 1 June 2011, available at: www.telegraph.co.uk/news/health/news/8551025/Warnings-of-care-home-were-ignored-for-months.html, accessed on 28 September 2016.Google Scholar

Tannen, D. (1989) Talking Voices: Repetition, Dialogue, and Imagery in Conversational Discourse. Cambridge: Cambridge University Press.Google Scholar

Thaler, R. H., and Sunstein, C. R. (2009) Nudge: Improving Decisions about Health, Wealth and Happiness London: Penguin Books.Google Scholar

Timmins, N. (2012) Never Again? The Story of the Health and Social Care Act 2012 London: King’s Fund and Institute for Government, available at: www.kingsfund.org.uk/publications/never-again, last accessed 4 October 2016.Google Scholar

Tobin, J. (2016) NHS and Social Care Workforce: Implications of Leaving the European Union, House of Lords Library Note, available at researchbriefings.parliament.uk/ResearchBriefing/Summary/LLN-2016–0039, last accessed 20 October 2016.Google Scholar

Tronto, J. C. (1993) Moral Boundaries: A Political Argument for an Ethic of Care. London: Routledge.Google Scholar

van der Steen, J. T. (2010) ‘Dying with Dementia What We Know after More than a Decade of Research’, Journal of Alzheimer’s Disease 22: 37–55.Google Scholar

van der Steen, J. T., Radbruch, L., Hertogh, C. M. P. M., de Boer, M. E., Hughes, J. C., Larkin, P., Francke, A. L., Jünger, S., Gove, D., Firth, P., Koopmans, R. T. C. M., and Volicer, L. (2014) ‘White Paper Defining Optimal Palliative Care in Older People with Dementia a Delphi Study and Recommendations from the European Association for Palliative Care’, Palliative Medicine, 28: 197–209.Google Scholar

Vincent, C., Young, M., and Phillips, A. (1994) ‘Why Do People Sue Doctors? A Study of Patients and Relatives Taking Legal Action’, The Lancet 343: 1609–1613.Google Scholar

Vlachogianni, A., Efthymiou, A., Potamianou, D., Sakka, P., and Orgeta, V. (2016) ‘Life after Care: Psychological Adjustment to Bereavement in Family Carers of People with Dementia’, International Psychogeriatrics 28(5): 815–823.Google Scholar

Waldrop, D.P., (2007) ‘Caregiver Grief in Terminal Illness and Bereavement: A Mixed-Method Study’, Health and Social Work 32(3): 197–206.Google Scholar

Wessel, M., Lynøe, N., Juth, N., and Helgesson, G. (2012) ‘The Tip of an Iceberg? A Cross-Sectional Study of the General Public’s Experiences of Reporting Healthcare Complaints in Stockholm, Sweden’, BMJ Open 2(1): 1–5.Google Scholar

White, Chris (2013) 2011 Census Analysis: Unpaid Care in England and Wales, 2011 and Comparison with 2001 (Office of National Statistics), available at: www.ons.gov.uk/ons/rel/census/2011-census-analysis/provision-of-unpaid-care-in-england-and-wales–2011/art-provision-of-unpaid-care.html, last accessed on 27 September 2016.Google Scholar

Woods, B., and Pratt, R. (2005) ‘Awareness in Dementia: Ethical and Legal Issues in Relation to People with Dementia’, Aging and Mental Health, 9:5, 423–429.Google Scholar

Woolham, J., and Benton, C. (2013) ‘The Costs and Benefits of Personal Budgets for Older People: Evidence from a Single Local Authority’, British Journal of Social Work 43 (8) 1472–1491.Google Scholar

World Health Organisation (2016) Dementia: Factsheet April 2016, available at: http://www.who.int/mediacentre/factsheets/fs362/en/, last accessed on 27 September 2016.Google Scholar

Yeates, V (2007) ‘Ambivalence, Contradiction and Symbiosis: Carers’ and Mental Health Users’ Rights’, Law and Policy 29(4): 435–459.Google Scholar

Xie, J. Brayne, C., and Matthews, F. E. (2008) ‘Survival Times in People with Dementia: Analysis from Population Based Cohort Study with 14 Year Follow-Up’, BMJ 336: 258–261.Google Scholar