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10 - How to Create a National Advocacy Organization

from Section II - Pellicular Impulses

Published online by Cambridge University Press:  06 July 2010

Elias Aboujaoude
Affiliation:
Stanford University School of Medicine, California
Lorrin M. Koran
Affiliation:
Stanford University School of Medicine, California
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Summary

This chapter is about how to create a National Advocacy Organization. It presents a quick list of the things that would help to meet the need. The list included: raise public awareness; educate treatment professionals; set up regional support networks; support research; provide reliable information and resource referrals; centralize operations and create an ability to communicate; act as an archive for relevant data. There is a big difference between a support group and a non-profit charitable organization. Trichotillomania Learning Center (TLC)'s original board of directors numbered six: three from the support group, one from the Seattle call list, author's business partner, and lastly the author. The decision to create a non-profit entity was based on the fact that a charitable organization can receive tax-deductible contributions, which can and must be used in the service of the target population.
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Publisher: Cambridge University Press
Print publication year: 2010

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