Skip to main content
×
×
Home

Assessment of carers' psychological needs

  • Jan Oyebode
Abstract

Carers play a vital role in supporting family members who need help. Facts and figures on caregiving are set in the context of current UK policy. Research into the impact of caregiving shows that one-third to one-half of carers suffer significant psychological distress. Factors associated with carer stress are reviewed, including those related to the care-recipient, the caregiver, their relationship, and wider family and social support. The most well-known frameworks for understanding caregiving stress, including stress-process models, are introduced. Measures that may help in assessing psychological needs of carers are reviewed, emphasising the distinction between objective and subjective stress. The range of possible interventions leads to promising evidence of the effectiveness of individual psychosocial interventions, but further research is needed.

  • View HTML
    • Send article to Kindle

      To send this article to your Kindle, first ensure no-reply@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about sending to your Kindle. Find out more about sending to your Kindle.

      Note you can select to send to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be sent to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

      Find out more about the Kindle Personal Document Service.

      Assessment of carers' psychological needs
      Available formats
      ×
      Send article to Dropbox

      To send this article to your Dropbox account, please select one or more formats and confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your <service> account. Find out more about sending content to Dropbox.

      Assessment of carers' psychological needs
      Available formats
      ×
      Send article to Google Drive

      To send this article to your Google Drive account, please select one or more formats and confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your <service> account. Find out more about sending content to Google Drive.

      Assessment of carers' psychological needs
      Available formats
      ×
Copyright
References
Hide All
Audit Commission (2000) Forget Me Not: Mental Health Services for Older People. London: Audit Commission.
Barusch, A. S. & Spaid, W. M. (1989) Gender differences in caregiving: why do wives report greater burden? Gerontologist, 29, 667676.
Baumgarten, M., Battists, R. N., Infante-Rivard, C. et al (1992) The psychological and physical health of family members caring for an elderly person with dementia. Journal of Clinical Epidemiology, 45, 6170.
Bedard, M., Pedlar, D., Martin, N. J. et al (2000) Burden in caregivers of cognitively impaired older adults living in the community: methodological issues and determinants. International Psychogeriatrics, 12, 307332.
Brody, E.M. (1981) ‘Women in the middle’ and family help to older people. Gerontologist, 21, 471480.
Brody, E.M., Hoffman, C., Kleban, M. et al (1989) Caregiving daughters and their local siblings: perceptions, strains and interactions. Gerontologist, 29, 529538.
Brody, E.M., Litvia, S. J., Hoffman, C. et al (1992) Differential effects of daughters' marital status on their patient care experiences. Gerontologist, 32, 5867.
Brooker, D. (1998) BASOLL - Behavioural Assessment Scale of Later Life. Bicester: Winslow.
Coen, R. D., Swanwick, G. R., O'Boyle, C. A. et al (1997) Behavioural disturbance and other predictors of carer burden in Alzheimer's disease. International Journal of Geriatric Psychiatry, 12, 331336.
Croog, S. H., Sudilovsky, A., Burleson, J. A. et al (2001) Vulnerability of husband and wife caregivers of Alzheimer disease patients to caregiving stressors. Alzheimer Disease and Associated Disorders, 15, 201210.
Cuijpers, P. & Nies, H. (1997) Supporting informal care-givers of demented elderly people: psychosocial interventions and their outcomes. In Care-Giving in Dementia: Research and Applications (eds Meisen, B. M. L. & Jones, G. M. M.) pp. 168177. London: Routledge.
Deimling, G. T., Bass, D. H., Townsend, A. L. et al (1989) Care related stress: a comparison of spouse and adult–child caregivers in shared and separate households. Journal of Aging and Health, 1, 6782.
Department of Health (1999a) Caring for Carers. A National Strategy for Carers. London: Department of Health.
Department of Health (1999b) National Service Framework for Mental Health. Modern Standards and Service Models. London: Department of Health.
Department of Health (2001) National Service Framework for Older People. London: Department of Health.
Enright, R. B. (1991) Time spent caregiving and help received by spouses and adult children of brain-impaired adults. Gerontologist, 31, 375383.
Gerritsen, J. C. & Van der Ende, P. C. (1994) The development of a care-giving burden scale. Age and Ageing, 23, 483491.
Hall, J. (1990) Towards a psychology of caring. British Journal of Clinical Psychology, 29, 129144.
Jones, D. A. & Vetter, N. J. (1984) A survey of those who care for the elderly at home: their problems and their needs. Social Science and Medicine, 19, 511514.
Kaye, L. W. & Applegate, J. S. (1990) Men as Caregivers to the Elderly. Lexington, MA: Lexington Books.
Kinney, J. M. & Stephens, M. A. P. (1989) Caregiving Hassles Scale: assessing the daily hassles of caring for a family member with dementia. Gerontologist, 29, 328332.
Knight, B. G., Lutsky, S. M. & Macofsky-Urban, F. (1993) A meta-analytic review of interventions for caregiver distress: recommendations for future research. Gerontologist, 33, 240248.
Matson, N. (1994) Coping, caring and stress: a study of stroke carers and carers of older confused people. British Journal of Clinical Psychology, 33, 333344.
MacLennan, W. (1998) Caring for carers. Age and Ageing, 27, 651652.
Mui, A. (1992) Caregiver strain among Black and White daughter caregivers: a role theory perspective. Gerontologist, 32, 203212.
Nolan, M. & Grant, G. (1992) Regular Respite: An Evaluation of a Hospital Rota Bed Scheme for Elderly People. London: Age Concern.
Nolan, M. & Grant, G. & Keady, J. (1996) Understanding Family Care. Buckingham: Open University Press.
Nolan, M., Keady, J. & Grant, G. (1995) CAMI: a basis for assessment and support with family carers. British Journal of Adult/Elderly Care Nursing, 1, 822826.
Office of National Statistics, Social Survey Division (1997) Living in Britain: Results from the 1995 General Household Survey. London: Stationery Office.
Pearlin, L. I., Mullan, J. T., Semple, S. J. et al (1990) Caregiving and the stress process: an overview of concepts and their measures, Gerontologist, 30, 583594.
Pruchno, R. A. & Resch, N. L. (1989) Husbands and wives as caregivers: antecedents of depression and burden. Gerontologist, 29, 159165.
Reay, A. M. & Browne, K. D. (2001) Risk factor characteristics in carers who physically abuse or neglect their elderly dependants. Aging and Mental Health, 5, 5662.
Schultz, R., O'Brien, A. T., Bookwala, J. et al (1995) Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates and causes. Gerontologist, 35, 771791.
Spruytte, N., Van Audenhove, C. & Lammertyn, F. (2001) Predictors of institutionalization of cognitive–impaired elderly cared for by their relatives. International Journal of Geriatric Psychiatry, 16, 11191128.
Zarit, S. H. & Edwards, A. B. (1999) Family caregiving: research and clinical intervention. In Psychological Problems of Ageing: Assessment, Treatment and Care (ed. Woods, R. T.) pp. 153193. Chichester: John Wiley & Sons.
Zarit, S. H., Reever, K. E. & Bach-Peterson, J. (1980) Relatives of impaired elderly: correlates of feelings of burden. Gerontologist, 20, 649655.
Zarit, S. H., Todd, P. A. & Zarit, J. M. (1986) Subjective burden of husbands and wives as caregivers: a longitudinal study. Gerontologist, 26, 260266.
Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

BJPsych Advances
  • ISSN: 1355-5146
  • EISSN: 1472-1481
  • URL: /core/journals/bjpsych-advances
Please enter your name
Please enter a valid email address
Who would you like to send this to? *
×

Metrics

Altmetric attention score

Full text views

Total number of HTML views: 6
Total number of PDF views: 41 *
Loading metrics...

Abstract views

Total abstract views: 174 *
Loading metrics...

* Views captured on Cambridge Core between 2nd January 2018 - 16th August 2018. This data will be updated every 24 hours.

Assessment of carers' psychological needs

  • Jan Oyebode
Submit a response

eLetters

No eLetters have been published for this article.

×

Reply to: Submit a response


Your details


Conflicting interests

Do you have any conflicting interests? *