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Transitions and Brain Injury: A Qualitative Study Exploring the Journey of People with Traumatic Brain Injury

  • Anne Louise Conneeley (a1)
Abstract

This qualitative study aimed to explore transitions from hospital to the home over a period of one year.

Methods and procedures: A longitudinal, phenomenological approach was employed and 18 individuals with severe traumatic brain injury, their family members and rehabilitation professionals were interviewed using semistructured interviews, when the person with brain injury was discharged from the ward, after 6 months and again after one year.

Results: Themes identified within the data included returning home, getting back to normal, moving forward and the role of rehabilitation in the transitional period. Further subthemes were also identified including issues of life-course disruption, self-identity, status and reconstruction.

Conclusions: Data suggested that access to rehabilitation programs employing individualised, contextual interventions following discharge to the home were integral in enabling the transition through to autonomy and independence. Consideration of issues of identity and status can enable a different and potentially important perspective on the experience of transitions for those with brain injury. Reclaiming personal autonomy and control appeared to be central to the reconstruction of a coherent sense of self, enabling a meaningful life after brain injury.

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Corresponding author
Address for correspondence: Anne Louise Conneeley, Coventry University, Faculty of Health and Life Sciences, Priory Street, Coventry, Warwickshire, CV1 5FBUnited Kingdom. E-mail address: l.conneeley@coventry.ac.uk
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A. Arber (2006). Reflexivity: A challenge for the researcher as practitioner? Journal of Research in Nursing, 11 (2), 147157.

L. Bach , & A. David (2006). Self-awareness after acquired and traumatic brain injury. Neuropsychological Rehabilitation, 16 (4), 397414.

A. Bandura (1977). Self-efficacy: Towards a unifying theory of behavioural change. Psychological Review, 84, 191215.

J.D. Banja (1994). Risk assessment and patient autonomy. Journal of Head Trauma Rehabilitation, 9 (4), 7072.

V. Braun , & E. Clarke (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77101.

M. Bury (1982). Chronic illness as biographical disruption. Sociology of Health and Illness, 4 (2), 167182.

C.A. Chew-Graham , C.R. May , & M.S. Perry (2002). Qualitative research and the problem of judgement. Lessons from interviewing fellow professionals. Family Practice, 19 (3), 185189.

A.L. Conneeley (2002a). Methodological issues in qualitative research for the researcher/practitioner. British Journal of Occupational Therapy, 65 (4), 185190.

A.L. Conneeley (2003). Quality of life and traumatic brain injury. A longitudinal qualitative study. British Journal of Occupational Therapy, 66 (10), 440446.

A.L. Conneeley (2004). Interdisciplinary collaborative goal-planning in a post-acute neurological setting: A qualitative study. British Journal of Occupational Therapy, 67 (6), 248255.

E. Doig , J. Fleming , & L. Tooth (2001). Patterns of community integration 2–5 years post-discharge from brain injury rehabilitation. Brain Injury, 15, 747762.

L. Finlay , & B. Gough (2003). Reflexivity. Oxford: Blackwell Publishing.

M.R. Frass , & M. Calvert (2009). The use of narratives to identify characteristics leading to productive life following acquired brain injury. American Journal of Speech-Language Pathology, 18 (11), 315328.

W.A. Gordon , J. Cantor , T. Ashman , & M. Brown (2006). Treatment of post-traumatic brain injury executive dysfunction. Journal of Head Trauma Rehabilitation, 21 (2), 156167.

B. Hoogerdijk , U. Runge , & J. Haugboelle (2011). The adaptation process after traumatic brain injury. An individual and ongoing occupational struggle to gain new identity. Scandinavian Journal of Occupational Therapy, 18 (2), 122132.

R.K. Johansen (2002). Listening in the silence, seeing in the dark: Reconstructing life after brain injury. Berkeley, CA: University of California Press.

L. Klinger (2005). Occupational adaptation: Perspectives of people with traumatic brain injury. Journal of Occupational Science, 12 (1), 916.

L. Lefebvre , & M.J. Lever (2006). Sudden and unexpected health situation: From suffering to resilience. Illness, Crisis and Loss, 14 (4), 337354.

G. Letherby (1999). Other than mothers and mothers as others: The experience of motherhood and non-motherhood in relation to ‘infertility’ and ‘involuntary childlessness’. Women's Studies International Forum, 22 (3), 359372.

W.M.M. Levack , N.M. Kayes , & J.K. Fadyl (2010). Experience of recovery and outcome following traumatic brain injury: A meta-synthesis of qualitative research. Disability and Rehabilitation, 32 (12), 986999.

P. McCabe , C. Lippert , M. Weiser , M. Hilditch , C. Hartridge , & J. Villamere (2007). Community reintegration following acquired brain injury. Brain Injury, 21, 231257.

M.A. McColl , J. Bickenbach , J. Johnson , S. Nishihama , M. Schumaker , K. Smith , & B. Yelland (2000). Changes in spiritual beliefs after traumatic disability. Archives of Physical Medicine and Rehabilitation, 81 (6), 817823.

M.A. McColl , P. Carslon , J. Johnson , P. Minnes , K. Shue , D. Davies , & T. Karlovits (1998). The definition of community integration. Perspectives of people with brain injuries. Brain Injury, 12 (1), 1530.

C.D. Serio , J.S. Kreutzer , & A.D. Witol (1997). Family needs after traumatic brain injury. A factor analytic study of the Family Needs Questionnaire. Brain Injury, 11 (1), 19.

M. Sherer , T. Hart , J. Whyte , T.G. Nick , & S.A. Yablon (2005). Neuroanatomic basis of impaired self-awareness after traumatic brain injury: Findings from an early computed tomography. Journal of Head Trauma Rehabilitation, 20 (4), 287300.

M.C. Taylor (2007). Evidence-based practice for occupational therapists. Oxford: Wiley-Blackwell.

J.L. Truelle , P. Fayol , M. Montreuil , & M. Chevignard (2010). Community integration after severe traumatic brain injury in adults. Current Opinion in Neurology, 23 (6), 688694.

B. Turner , J. Fleming , P. Cornwell , L. Worrall , T. Ownsworth , T. Haines , & L. Chenoweth (2007). A qualitative study of the transitions from hospital to home for individuals with acquired brain injury. Brain Injury, 21 (11), 11191130.

B. Turner , J. Fleming , P. Cornwell , T. Haines , & T. Ownsworth (2009). Profiling early outcomes during the transition from hospital to home after brain injury. Brain Injury, 23 (1), 5160.

A.H. Willemse-van Son , G.M. Ribbers , W.C. Hop , & H.J. Starn (2009). Community integration following moderate to severe traumatic brain injury: A longitudinal investigation. Journal Rehabilitation Medicine, 41 (7), 521527.

B. Willer , M. Rosenthal , J.S. Kreutzer , W. Gordon , & R. Rempel (1993). Assessment of community integration following rehabilitation for traumatic brain injury. Journal of Head Trauma Rehabilitation, 8 (2), 7587.

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Brain Impairment
  • ISSN: 1443-9646
  • EISSN: 1839-5252
  • URL: /core/journals/brain-impairment
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