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Institutional Care for Patients with Huntington's Chorea: Is there a better alternative?

  • Paul Barczak (a1), Ann Pedler (a2), Sarah Hunter (a3) and Tim Betts (a4)
Extract

Despite recent advances in the understanding of Huntington's Chorea, treatment remains, at best, symptomatic and many sufferers end their days in institutional care. A recent survey established the prevalence of Huntington's Chorea in South Wales as 7·65 per 100,000. From this figure, 4,000 or more sufferers of this condition are living in the United Kingdom at present of whom 20% are in hospital or other institutional care. Although some studies have looked in passing at the degree of disability of Huntington's Chorea sufferers in hospital and found it to be considerable, staff and relatives often feel that long stay psychiatric wards are inappropriate or unnecessarily restrictive settings for these patients. This study looks at the disability of Huntington's Chorea sufferers in hospital and other institutions in order to determine the suitability of their placement and to see whether their physical and psychological needs are being met.

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Copyright
This is an Open Access article, distributed under the terms of the Creative Commons Attribution (CC-BY) license (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
References
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BJPsych Bulletin
  • ISSN: 0140-0789
  • EISSN: 2514-9954
  • URL: /core/journals/bjpsych-bulletin
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Institutional Care for Patients with Huntington's Chorea: Is there a better alternative?

  • Paul Barczak (a1), Ann Pedler (a2), Sarah Hunter (a3) and Tim Betts (a4)
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