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Uncovering the Meaning of Home Care Using an Arts-Based and Qualitative Approach*

Published online by Cambridge University Press:  11 August 2014

Kimberly Fraser ,
Mandy Archibald  and
Catherine Nissen
Kimberly Fraser*
Affiliation:
Faculty of Nursing, University of Alberta
Mandy Archibald
Affiliation:
Faculty of Nursing, University of Alberta
Catherine Nissen
Affiliation:
Faculty of Nursing, University of Alberta
*
†La correspondance et les demandes de tirés-à-part doivent être adressées à : / Correspondence and requests for offprints should be sent to:Kimberly Fraser, R.N., Ph.D.Faculty of Nursing, 3rd FloorEdmonton Clinic Health Academy11405-87 AvenueUniversity of AlbertaEdmonton, AB T6G 1C9(kimberly.fraser@ualberta.ca)
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Abstract

The need for home care is increasing in Canada, yet little is known about the home care experience of clients and their families. Uncovering the meaning of the home care experience is an important step towards developing understanding and public awareness. We explored the experiences of home care using arts-based methods and individual interviews with 11 participants (one client and 10 family caregivers). Participants discussed the numerous ways formal home care and family caregiving affected their lives, how they coped with these effects, their experiences in hospitals or assisted living facilities, and aspects of the home care experience they liked or disliked. Participants agreed that home care facilitated a better quality of life for families and clients, although they acknowledged some challenges with it. The artistic outputs produced by participants facilitated interview dialogue and fostered understanding of key themes within the research team.

Résumé

Le besoin de soins à domicile s'accroît au Canada, mais on sait peu de l'expérience de soins à domicile de clients et de leurs familles. Découvrir le sens de l'expérience de soins à domicile est une étape importante vers le développement de la compréhension et la sensibilisation du public. Nous avons exploré les expériences de soins à domicile en utilisant des méthodes axées sur les arts et des entretiens individuels avec 11 participants (un client et 10 aidants naturels). Les participants ont débattu les nombreuses façons de soins à domicile et de la famille et comment ceux-ci ont affecté leur vie, comment ils ont fait face à ces effets, leurs expériences dans les hôpitaux ou les résidences-services, et les aspects de l'expérience de soins à domicile qu'ils aimaient ou n'aimaient pas. Les participants ont convenu que les soins à domicile ont facilité une meilleure qualité de vie pour les familles et les clients, bien qu'ils reconnaissent certains défis avec eux. Les résultats artistiques produites par les participants ont facilité le dialogue de l'entrevue et ont favorisé la compréhension des thèmes clés de la recherche par l'équipe.

Keywords

agingartfamily caregiving/caregiverscommunity nursinghome careknowledge transfervieillissmentartaidants naturelssoins infirmiers communautairessoins à domiciletransfert de connaissances
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 33 , Issue 3 , September 2014 , pp. 246 - 258
Copyright
Copyright © Canadian Association on Gerontology 2014 

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Footnotes

*

We gratefully acknowledge the intellectual input from the full research team for this project: Carla Ickert, Lynn Toon, Deborah Bloomer, Mandy Archibald, and Catherine Nissen. We gratefully acknowledge the Faculty of Nursing Establishment Grant from the University of Alberta for financially supporting the research, authorship, and publication of this article.

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