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Tregay, Jenifer Brown, Katherine Crowe, Sonya Bull, Catherine Knowles, Rachel and Wray, Jo 2016. “I was so worried about every drop of milk” - feeding problems at home are a significant concern for parents after major heart surgery in infancy. Maternal & Child Nutrition, p. n/a.
Urcelay, Gonzalo Arancibia, Francisca Retamal, Javiera Springmuller, Daniel Clavería, Cristián Garay, Francisco Frangini, Patricia González, Rodrigo Heusser, Felipe Arretz, Claudio Zelada, Pamela and Becker, Pedro 2016. Síndrome de hipoplasia de corazón izquierdo: experiencia de 10 años de un programa de etapificación quirúrgica. Revista Chilena de Pediatría, Vol. 87, Issue. 2, p. 121.
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Moodley, S. and Tacy, T. A. 2015. Hypoplastic Left Heart Syndrome: Diagnosis, Care and Management From Fetal Life and Beyond. NeoReviews, Vol. 16, Issue. 2, p. e109.
Stewart, Jamie Dempster, Robert Allen, Robin Miller-Tate, Holly Dickson, Gabrielle Fichtner, Samantha Principe, Alex J. Fonseca, Rachel Nicholson, Lisa and Cua, Clifford L. 2015. Caregiver Anxiety Due to Interstage Feeding Concerns. Congenital Heart Disease, Vol. 10, Issue. 2, p. E98.
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Hill, Garick Silverman, Alan Noel, Richard and Bartz, Peter J. 2014. Feeding Dysfunction in Single Ventricle Patients with Feeding Disorder. Congenital Heart Disease, Vol. 9, Issue. 1, p. 26.
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Siehr, Stephanie L. Norris, Jana K. Bushnell, Julie A. Ramamoorthy, Chandra Reddy, V. Mohan Hanley, Frank L. and Wright, Gail E. 2014. Home monitoring program reduces interstage mortality after the modified Norwood procedure. The Journal of Thoracic and Cardiovascular Surgery, Vol. 147, Issue. 2, p. 718.
Miller-Tate, Holly Stewart, Jamie Allen, Robin Husain, Nazia Rosen, Kerry Cheatham, John P. Galantowicz, Mark and Cua, Clifford L. 2013. Interstage Weight Gain for Patients with Hypoplastic Left Heart Syndrome Undergoing the Hybrid Procedure. Congenital Heart Disease, Vol. 8, Issue. 3, p. 228.
Improvement in operative survival of patients with hypoplastic left heart syndrome has led to increasing emphasis on prevention of interstage mortality. Many centres have improved interstage results through programmes of home monitoring following discharge after the Norwood (Stage 1) operation. Experience with heightened interstage surveillance has identified failure to thrive during infancy as a modifiable risk factor for this population, one that has been linked to concerning outcomes at subsequent palliative surgeries. Ensuring normal growth as an infant has thus become a priority of management of patients with functionally univentricular hearts. Herein, we review the existing evidence for best practices in interstage surveillance and optimal nutrition in infants with functionally univentricular hearts. In addition, we highlight data presented at HeartWeek 2011, from Cardiology 2011, the 15th Annual Update on Pediatric and Congenital Cardiovascular Disease, and the 11th Annual International Symposium on Congenital Heart Disease.
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