Cheatham, Sharon L. 2016. Fetal and Hybrid Procedures in Congenital Heart Diseases.
François, Katrien Vandekerckhove, Kristof De Groote, Katya Panzer, Joseph De Wolf, Daniel De Wilde, Hans and Bové, Thierry 2016. Current outcomes of the bi-directional cavopulmonary anastomosis in single ventricle patients: analysis of risk factors for morbidity and mortality, and suitability for Fontan completion. Cardiology in the Young, Vol. 26, Issue. 02, p. 288.
Hansson, L. Öhlund, I. Lind, T. Stecksén-Blicks, C. and Rydberg, A. 2016. Dietary intake in infants with complex congenital heart disease: a case-control study on macro- and micronutrient intake, meal frequency and growth. Journal of Human Nutrition and Dietetics, Vol. 29, Issue. 1, p. 67.
Pados, Britt F. Park, Jinhee Estrem, Hayley and Awotwi, Araba 2016. Assessment Tools for Evaluation of Oral Feeding in Infants Younger Than 6 Months. Advances in Neonatal Care, Vol. 16, Issue. 2, p. 143.
Spillane, Nicole T. Kashyap, Sudha Bateman, David Weindler, Marilyn and Krishnamurthy, Ganga 2016. Comparison of Feeding Strategies for Infants With Hypoplastic Left Heart Syndrome. World Journal for Pediatric and Congenital Heart Surgery, Vol. 7, Issue. 4, p. 446.
Tregay, Jenifer Brown, Katherine Crowe, Sonya Bull, Catherine Knowles, Rachel and Wray, Jo 2016. “I was so worried about every drop of milk” - feeding problems at home are a significant concern for parents after major heart surgery in infancy. Maternal & Child Nutrition, p. n/a.
Urcelay, Gonzalo Arancibia, Francisca Retamal, Javiera Springmuller, Daniel Clavería, Cristián Garay, Francisco Frangini, Patricia González, Rodrigo Heusser, Felipe Arretz, Claudio Zelada, Pamela and Becker, Pedro 2016. Síndrome de hipoplasia de corazón izquierdo: experiencia de 10 años de un programa de etapificación quirúrgica. Revista Chilena de Pediatría, Vol. 87, Issue. 2, p. 121.
Weston, Cindy Husain, S. Adil Curzon, Christopher L. Neish, Steve Kennedy, Gemma T. Bonagurio, Krista and Gosselin, Kevin 2016. Improving Outcomes for Infants with Single Ventricle Physiology through Standardized Feeding during the Interstage. Nursing Research and Practice, Vol. 2016, p. 1.
Aguilar, David C. Raff, Gary W. Tancredi, Daniel J. and Griffin, Ian J. 2015. Childhood growth patterns following congenital heart disease. Cardiology in the Young, Vol. 25, Issue. 06, p. 1044.
Moodley, S. and Tacy, T. A. 2015. Hypoplastic Left Heart Syndrome: Diagnosis, Care and Management From Fetal Life and Beyond. NeoReviews, Vol. 16, Issue. 2, p. e109.
Stewart, Jamie Dempster, Robert Allen, Robin Miller-Tate, Holly Dickson, Gabrielle Fichtner, Samantha Principe, Alex J. Fonseca, Rachel Nicholson, Lisa and Cua, Clifford L. 2015. Caregiver Anxiety Due to Interstage Feeding Concerns. Congenital Heart Disease, Vol. 10, Issue. 2, p. E98.
Vetter, Victoria L. Covington, Theresa M. Dugan, Noreen P. Haley, Danielle Main Dykstra, Heather Overpeck, Mary Iyer, V. Ramesh and Shults, Justine 2015. Cardiovascular deaths in children: General overview from the National Center for the Review and Prevention of Child Deaths. American Heart Journal, Vol. 169, Issue. 3, p. 426.
Black, Allison K. Sadanala, Usha K. Mascio, Christopher E. Hornung, Carlton A. and Keller, Bradley B. 2014. Challenges in Implementing a Pediatric Cardiovascular Home Telehealth Project. Telemedicine and e-Health, Vol. 20, Issue. 9, p. 858.
Hill, Garick Silverman, Alan Noel, Richard and Bartz, Peter J. 2014. Feeding Dysfunction in Single Ventricle Patients with Feeding Disorder. Congenital Heart Disease, Vol. 9, Issue. 1, p. 26.
Shenoy, Rajesh U. and Parness, Ira A. 2014. Hypoplastic Left Heart Syndrome. Journal of the American College of Cardiology, Vol. 64, Issue. 19, p. 2036.
Siehr, Stephanie L. Norris, Jana K. Bushnell, Julie A. Ramamoorthy, Chandra Reddy, V. Mohan Hanley, Frank L. and Wright, Gail E. 2014. Home monitoring program reduces interstage mortality after the modified Norwood procedure. The Journal of Thoracic and Cardiovascular Surgery, Vol. 147, Issue. 2, p. 718.
Miller-Tate, Holly Stewart, Jamie Allen, Robin Husain, Nazia Rosen, Kerry Cheatham, John P. Galantowicz, Mark and Cua, Clifford L. 2013. Interstage Weight Gain for Patients with Hypoplastic Left Heart Syndrome Undergoing the Hybrid Procedure. Congenital Heart Disease, Vol. 8, Issue. 3, p. 228.
Improvement in operative survival of patients with hypoplastic left heart syndrome has led to increasing emphasis on prevention of interstage mortality. Many centres have improved interstage results through programmes of home monitoring following discharge after the Norwood (Stage 1) operation. Experience with heightened interstage surveillance has identified failure to thrive during infancy as a modifiable risk factor for this population, one that has been linked to concerning outcomes at subsequent palliative surgeries. Ensuring normal growth as an infant has thus become a priority of management of patients with functionally univentricular hearts. Herein, we review the existing evidence for best practices in interstage surveillance and optimal nutrition in infants with functionally univentricular hearts. In addition, we highlight data presented at HeartWeek 2011, from Cardiology 2011, the 15th Annual Update on Pediatric and Congenital Cardiovascular Disease, and the 11th Annual International Symposium on Congenital Heart Disease.
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