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Primary care cardiology for patients with hypoplastic left heart syndrome

  • Jeffrey R. Boris (a1)
Abstract
Abstract

Primary care cardiology is also known as ambulatory cardiology and outpatient cardiology. Primary care cardiology for the longitudinal management of patients with hypoplastic left heart syndrome is both poorly described and has limited evidence to justify its basis. This article briefly discusses the various complications that these patients can develop, reviews the medical literature, and describes a framework for the care of these complex patients from infancy to transition to care by specialists in adults with congenital cardiac disease.

Copyright
Corresponding author
Correspondence to: Dr J. R. Boris, MD, Clinical Associate Professor of Paediatrics, Division of Cardiology, Children's Hospital of Philadelphia, 3400 Civic Center Boulevard, Philadelphia, Pennsylvania 19104, United States of America. Tel: +1 215 590 3180; Fax: +1 267 426 5324; E-mail: borisj@email.chop.edu
References
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1.Wernovsky G, Rome JJ, Tabbutt S, et al. Guidelines for the outpatient management of complex congenital heart disease. Congenit Heart Dis 2006; 1: 1026.
2.Ghanayem NS, Hoffman GM, Mussatto KA, et al. Home surveillance program prevents interstage mortality after the Norwood procedure. J Thorac Cardiovasc Surg 2003; 126: 13671377.
3.Ghanayem NS, Cava JR, Jaquiss RD, Tweddell JS. Home monitoring of infants after stage one palliation for hypoplastic left heart syndrome. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2004; 7: 3238.
4. The National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC). http://jcchdqi.org, accessed 26 February 2011.
5. The Children's Oncology Group. http://childrensoncologygroup.org, accessed 26 February 2011.
6.Rathod RH, Farias M, Friedman KG, et al. A novel approach to gathering and acting on relevant clinical information: SCAMPs. Congenit Heart Dis 2010; 5: 343353.
7. The Pediatric Heart Network. http://www.pediatricheartnetwork.com, accessed 26 February 2011.
8. The International Pediatric and Congenital Cardiac Code (IPCCC). http://www.ipccc.net/, accessed 26 February 2011.
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Cardiology in the Young
  • ISSN: 1047-9511
  • EISSN: 1467-1107
  • URL: /core/journals/cardiology-in-the-young
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