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Delivering better end-of-life care in England: barriers to access for patients with a non-cancer diagnosis

  • Rachael Addicott (a1)
Abstract
Abstract

The End of Life Care Strategy (Department of Health, 2008) radically raised the profile of end-of-life care in England, signalling the need for development in planning and delivery, to ensure that individuals are able to exercise genuine choice in how and where they are cared for and die. Research has indicated that there have been continuing difficulties in access to high-quality and appropriate support at the end of life, particularly for patients with a diagnosis other than cancer. This article uses research findings from three case studies of end-of-life care delivery in England to highlight some of the barriers that continue to exist, and understand these challenges in more depth. Access to high-quality and appropriate end-of-life care has been a challenge for all patients nearing the end of life. However, the findings from this research indicate that there are several interrelated reasons why access to end-of-life care services can be more difficult for patients with a non-cancer diagnosis. These issues relate to differences in disease trajectories and subsequent care planning, which are further entrenched by existing funding arrangements.

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Corresponding author
*Correspondence to: Rachael Addicott, The King's Fund, 11-13 Cavendish Square, London W1G 0AN, UK. Email: r.addicott@kingsfund.org.uk
References
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Addicott R.Ashton R. (eds) (2010), Delivering Better Care at the End of Life. The Next Steps. Report from the Sir Roger Bannister Health Summit, Leeds Castle, 19–20 November 2009. London: The King's Fund.
Addicott R.Ross S. (2010), Implementing the End of Life Care Strategy. Lessons from Good Practice, London: The King's Fund.
Addington-Hall J.Higginson I. (eds) (2001), Palliative Care for Non-Cancer Patients, Oxford: Oxford University Press.
Department of Health (2008), End of Life Care Strategy. Promoting High Quality Care for all Adults at the End of Life, London: Department of Health.
Field D.Addington-Hall J. (1999), ‘Extending specialist palliative care to all?’, Social Science and Medicine, 48(9): 12711280.
Gomes B.Higginson I. (2008), ‘Where people die (1974–2030): past trends, future projections and implications for care’, Palliative Medicine, 22: 3341.
Goodwin N., Dixon A., Poole T.Raleigh V. (2011), Improving the Quality of Care in General Practice. Report of an Independent Inquiry Commissioned by the King's Fund. London: The King's Fund.
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Health Economics, Policy and Law
  • ISSN: 1744-1331
  • EISSN: 1744-134X
  • URL: /core/journals/health-economics-policy-and-law
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