This list contains references from the content that can be linked to their source. For a full set of references and notes please see the PDF or HTML where available.
R. J. Blendon , J. M. Benson M. J. Herrmann (2005), ‘The American public and the Terri Schiavo case’, Archives of Internal Medicine, 165: 2580–2584.
R. A. Burt (2005), ‘The end of autonomy’, The Hastings Center Report, 35(6): S9–S13.
R. Dresser (1995), ‘Dworkin on dementia: elegant theory, questionable policy’, The Hastings Center Report, 25(6): 32–38.
N. N. Dubler (2005), ‘ “Conflict and consensus at the end of life” ’. Improving end of life care: why has it been so difficult?’, The Hastings Center Report, 35(6): S19–S25.
J. H. Evans (2006), ‘Religious belief, perceptions of human suffering, and support for reproductive genetic technology’, Journal of Health Politics, Policy and Law, 31(6): 1047–1074.
T. E. Finucane , C. Christmas B. A. Leff (2007), ‘Tube feeding in dementia: how incentives undermine health care quality and patient safety’, Journal of the American Medical Directors Association, 8(4): 205–208.
M. W. Gauderer (1991), ‘Percutaneous endoscopic gastrostomy: a 10-year experience with 220 children’, Journal of Pediatric Surgery, 26(3): 288–294.
M. R. Gillick (2000), ‘Rethinking the role of tube feeding in patients with advanced dementia’, New England Journal of Medicine, 342(3): 206–210.
Z. C. Hartsell J. S. Williams (2010), ‘Is it ethical to provide enteral tube feedings for patients with dementia?’, Journal of the American Academy of Physician Assistants, 23(10): 55–56.
S. Hickman , B. J. Hammes , A. H. Moss S. W. Tolle (2005), ‘Hope for the future: achieving the original intent of advance directives’, Hastings Center Report Special Report, 35(6): S26–S30.
T. Hope (2004), Medical Ethics: A Very Short Introduction, Oxford: Oxford University Press.
T. Hope (1992), ‘Advance directives about medical treatment: making up one's mind while one still has a mind’, British Medical Journal, 304(6824): 398.
S. H. Kadish (1992), ‘Letting patients die: legal and moral reflections’, California Law Review, 80: 857–888.
A. Meisel , L. Snyder T. Quill (2000), ‘Seven legal barriers to end-of-life care: myths, realities, and grains of truth’, Journal of the American Medical Association, 284(19): 2495–2501.
S. L. Mitchell , D. K. Kiely , S. C. Miller , S. R. Connor , C. Spence J. M. Teno (2007), ‘Hospice care for patients with dementia’, Journal of Pain and Symptom Management, 34(1): 7–16.
C. Parsons , C. M. Hughes , A. P. Passmore K. L. Lapane (2010), ‘Withholding, discontinuing and withdrawing medications in dementia patients at the end of life: a neglected problem in the disadvantaged dying?’, Drugs Aging, 27(6): 445–449.
J. W. Shega , G. W. Hougham , C. B. Stocking , D. Cox-Hayley G. A. Sachs (2003), ‘Barriers to limiting the practice of feeding tube placement in advanced dementia’, Journal of Palliative Medicine, 6(6): 885–893.
J. O. Tan , T. Hope A. Stewart (2003), ‘Anorexia nervosa and personal identity: the accounts of patients and their parents’, International Journal of Law and Psychiatry, 26(5): 533–548.
J. M. Teno , S. L. Mitchell , P. L. Gozalo , D. Dosa , A. Hsu , O. Intrator V. Mor (2010), ‘Hospital characteristics associated with feeding tube placement in nursing home residents with advanced cognitive impairment’, Journal of the American Medical Association, 303(6): 544–550.
J. Vollman (2001), ‘Advance directives in patients with Alzheimer's disease: ethical and clinical considerations’, Medicine, Health Care and Philosophy, 4: 161–167.
A. Ho (2008), ‘Relational autonomy or undue pressure? Family's role in medical decision-making’, Scandinavian Journal of Caring Sciences, 22: 128–135.
L. M. Murphy T. O. Lipman (2003), ‘Percutaneous endoscopic gastrostomy does not prolong survival in patients with dementia’, Archives of Internal Medicine, 163(11): 1351–1353.
A. Bayer (2007), ‘Death with dementia – the need for better care’, Age and Ageing, 35(2): 101–102.
D. Birch D. Jim (2008), ‘A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia’, Journal of Clinical Nursing, 17: 1144–1163.