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Health technology assessment use and dissemination by patient and consumer groups: Why and how?

  • Julie Fattal (a1) and Pascale Lehoux (a1)
Abstract

Objectives: Although increasing effort is being devoted to developing strategies to increase knowledge transfer and the uptake of health technology assessment (HTA) by various stakeholders, very little is known about the utilization and dissemination of HTA findings by patient and consumer organizations. The goal of this study is to understand how and why patient and consumer organizations use HTA findings within their organizations, and what factors influence how and when they communicate their findings to members or other organizations.

Methods: We examined the use and dissemination of four controversial HTA reports by sixteen patient and consumer organizations in Ontario and Quebec. We gathered data from semistructured interviews conducted between December 2006 and April 2007.

Results: Although HTA findings are often used by the patient and consumer organizations, key differences were observed in exactly how the four HTA reports were used. Three types of use (instrumental, conceptual, and symbolic) are reported and illustrated. We highlight the importance of the organization's mission and knowledge base in explaining the types of use observed.

Conclusions: We contend that the use and dissemination of HTA reports by specific groups could help in widening the debate around controversial health technologies. The implications and opportunities for HTA agencies relate to the following: (i) identification of “lay” organizations that could help in disseminating results; (ii) acknowledgement of a “lay” audience for HTA findings; (iii) strategic inclusion of advocacy groups during the assessment process for highly controversial technologies; and (iv) contribution of these organizations to the push efforts of knowledge transfer.

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1.J Abelson , J Eyles , CB McLeod , et al. Does deliberation make a difference? Results from a citizens panel study of health goals priority setting. Health Policy. 2003;66:95106.

4.J Barbot . How to build an “active” patient? The work of AIDS associations in France. Soc Sci Med. 2006;62:538551.

6.P Brown , S Zavestoski . Social movements in health: An introduction. Sociol Health Illn. 2004;26:679694.

7.JF Caron-Flinterman , JE Broerse , JF Bunders . The experiential knowledge of patients: A new resource for biomedical research? Soc Sci Med. 2005;60:25752584.

8.JM Eisenberg . Ten lessons for evidence-based technology assessment. JAMA. 1999;282:18651868.

9.VA Entwistle , MJ Renfrew , S Yearley , J Forrester , T Lamont . Lay perspectives: Advantages for health research. BMJ. 1998;316:463466.

11.NJ Fox , KJ Ward , AJ O'Rourke . The ‘expert patient’: Empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the Internet. Soc Sci Med. 2005;60:12991309.

12.K Germann , D Wilson . Organizational capacity for community development in regional health authorities: A conceptual model. Health Promot Int. 2004;19:289298.

15.J Hartley , J Benington . Copy and paste, or graft and transplant? Knowledge sharing through inter-organizational networks. Public Money Manage. 2006;26:101108.

19.T Jørgensen , A Hvenegaard , FB Kristensen . Health technology assessment in Denmark. Int J Technol Assess Health Care. 2000;16:347381.

20.JN Lavis . Research, public policymaking, and knowledge-translation processes: Canadian efforts to build bridges. J Contin Educ Health Prof. 2006;26:3745.

21.J Lomas , N Fulop , D Gagnon , P Allen . On being a good listener: Setting priorities for applied health services research. Milbank Q. 2003;81:363388.

24.ES Nilsen , HT Myrhaug , M Johansen , S Oliver , AD Oxman . Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database Syst Rev. 2006; 3: CD004563.

27.J Pivik , E Rode , C Ward . A consumer involvement model for health technology assessment in Canada. Health Policy. 2004;69:253268.

30.AG Thompson . The meaning of patient involvement and participation in health care consultations: A taxonomy. Soc Sci Med. 2007;64:12971310.

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International Journal of Technology Assessment in Health Care
  • ISSN: 0266-4623
  • EISSN: 1471-6348
  • URL: /core/journals/international-journal-of-technology-assessment-in-health-care
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