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  • David Hailey (a1), Sophie Werkö (a2), Rugayah Bakri (a3), Alun Cameron (a4), Britta Göhlen (a5), Susan Myles (a6), Jasmine Pwu (a7) and Jomkwan Yothasamut (a8)...


Objectives: To obtain further information from members of the International Network of Agencies for Health Technology Assessment (INAHTA) on the involvement of consumers in their programs.

Methods: A questionnaire for a survey was developed and sent to member agencies in November 2010. Survey responses were compared with those from an earlier survey conducted in 2005.

Results: Of the thirty-three agencies that provided responses, 67 percent involve consumers in some aspects of their health technology assessment (HTA) programs, compared with 57 percent in 2005. As in the earlier survey, most agencies reporting involvement have contact with consumer or patient organizations and a large minority also involve individual consumers. Summaries of HTA reports that are intended to be easily understood by consumers are prepared by 84 percent of the agencies, and 42 percent involve consumers in dissemination of HTA material. In both areas, there was some increase from the levels previously reported.

Conclusions: The survey results suggest that there is a trend to increased involvement of consumers by the INAHTA agencies in their programs but that the level of involvement remains relatively limited. The manner of consumer participation varies between agencies.



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1.Hailey, D. Consumer involvement in health technology assessment. HTA Initiative #21. Edmonton: Alberta Heritage Foundation for Medical Research; 2005. [cited 2005 December 10]. Available from:
2.Pivik, J, Rode, E, Ward, C. A consumer involvement model for health technology assessment in Canada. Health Policy. 2004;69:253–68.
3.Ghersi, D. Making it happen: approaches to involving consumers in Cochrane reviews. Eval Health Prof. 2002;25:270–83.
4.Sleath, B, Rucker, TD. Consumer participation in health policy decisions: empowerment or puffery? J Health Care Poor Underserved. 2001;12:3549.
5.Rowe, R, Shepherd, M. Public participation in the new NHS: no closer to citizen control? Soc Polit Adm. 2002;36:275.
6.Telford, R, Boote, JD, Cooper, CL. What does it mean to involve consumers successfully in NHS research? A consensus study. Health Expect. 2004;7:209–20.
7.Royle, J, Oliver, S. Consumer involvement in the health technology assessment program. Int J Technol Assess Health Care. 2004;20:493–7.
8.Hailey, D, Nordwall, M. Survey on the involvement of consumers in health technology assessment programs. Int J Technol Assess Health Care. 2006;22:497–9.
9.Facey, K, Boivin, A, Gracia, J, et al.Patients’ perspectives in health technology assessment: a route to robust evidence and fair deliberation. Int J Technol Assess Health Care. 2010;26:334–40.
10.Lee, A, Skött, LS, Hansen, HP. Organizational and patient-related assessments in HTAs: state of the art. Int J Technol Assess Health Care. 2009;25:530–6.
11.Gagnon, M-P, Desmartis, M, Lepage-Savary, D, et al.Introducing patients’ and the public's perspectives to health technology assessment: A systematic review of international experiences. Int J Technol Assess Health Care 2011;27:3142.
12.Gauvin, FP, Abelson, J, Giacomini, M, Eyles, J, Lavis, JN. Moving cautiously: public involvement and the health technology assessment community. Int J Technol Assess Health Care. 2011;27:43–9.
13.Menon, D, Stafinski, T. Role of patient and public participation in health technology assessment and coverage decisions. Expert Rev Pharmacoecon Outcomes Res. 2011;11:7589.
14.Hailey, D. Development of the International Network of Agencies for Health Technology Assessment. Int J Technol Assess Health Care. 2009;25 (Suppl 1):24–7.
15.Légaré, F, Boivin, A, van der Weijden, T, et al.Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs. Med Decis Making. 2011;31:E4574.
16.Eccles, MP, Grimshaw, JM, Shekelle, P, Schünemann, HJ, Woolf, S. Developing clinical practice guidelines: target audiences, identifying topics for guidelines, guideline group composition and functioning and conflicts of interest. Implement Sci. 2012;7:60.
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International Journal of Technology Assessment in Health Care
  • ISSN: 0266-4623
  • EISSN: 1471-6348
  • URL: /core/journals/international-journal-of-technology-assessment-in-health-care
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