Skip to main content

We use cookies to distinguish you from other users and to provide you with a better experience on our websites. Close this message to accept cookies or find out how to manage your cookie settings.

Close cookie message
Cancel
×
×
Home
  • Home
Article
  • Cited by 22
  • Cited by
    Crossref Citations
    Crossref logo
    This article has been cited by the following publications. This list is generated based on data provided by CrossRef.
    de Boer, Marike E. Depla, Marja F. I. A. Frederiks, Brenda J. M. Negenman, Annemarieke A. Habraken, Jolanda M. van Randeraad-van der Zee, Carlijn H. Embregts, Petri J. C. M. and Hertogh, Cees M. P. M. 2018. Involuntary care – capturing the experience of people with dementia in nursing homes. A concept mapping study. Aging & Mental Health, p. 1.
    Bauer, Michael Fetherstonhaugh, Deirdre Haesler, Emily Beattie, Elizabeth Hill, Keith D. and Poulos, Christopher J. 2018. The impact of nurse and care staff education on the functional ability and quality of life of people living with dementia in aged care: A systematic review. Nurse Education Today, Vol. 67, Issue. , p. 27.
    SMITH, NICK TOWERS, ANN-MARIE PALMER, SINEAD BEECHAM, JENNIFER and WELCH, ELIZABETH 2017. Being occupied: supporting ‘meaningful activity’ in care homes for older people in England. Ageing and Society, p. 1.
    Surr, Claire A. Gates, Cara Irving, Donna Oyebode, Jan Smith, Sarah Jane Parveen, Sahdia Drury, Michelle and Dennison, Alison 2017. Effective Dementia Education and Training for the Health and Social Care Workforce: A Systematic Review of the Literature. Review of Educational Research, Vol. 87, Issue. 5, p. 966.
    Arthur, Antony Aldus, Clare Sarre, Sophie Maben, Jill Wharrad, Heather Schneider, Justine Barton, Garry Argyle, Elaine Clark, Allan Nouri, Fiona and Nicholson, Caroline 2017. Can Health-care Assistant Training improve the relational care of older people? (CHAT) A development and feasibility study of a complex intervention. Health Services and Delivery Research, Vol. 5, Issue. 10, p. 1.
    Dröes, R.M. Chattat, R. Diaz, A. Gove, D. Graff, M. Murphy, K. Verbeek, H. Vernooij-Dassen, M. Clare, L. Johannessen, A. Roes, M. Verhey, F. and Charras, K. 2017. Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging & Mental Health, Vol. 21, Issue. 1, p. 4.
    Peisah, Carmelle 2017. Mental Health and Illness of the Elderly. p. 369.
    Villar, Feliciano Celdrán, Montserrat Vila-Miravent, Josep and Serrat, Rodrigo 2017. Involving institutionalised people with dementia in their care-planning meetings: lessons learnt by the staff. Scandinavian Journal of Caring Sciences,
    Robertson, Sarah Cooper, Claudia Hoe, Juanita Hamilton, Olivia Stringer, Aisling and Livingston, Gill 2017. Proxy rated quality of life of care home residents with dementia: a systematic review. International Psychogeriatrics, Vol. 29, Issue. 04, p. 569.
    Rycroft-Malone, Jo Burton, Christopher R Williams, Lynne Edwards, Stephen Fisher, Denise Hall, Beth McCormack, Brendan Nutley, Sandra Seddon, Diane and Williams, Roger 2016. Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions. Health Services and Delivery Research, Vol. 4, Issue. 12, p. 1.
    Jutkowitz, Eric Brasure, Michelle Fuchs, Erika Shippee, Tetyana Kane, Rosalie A. Fink, Howard A. Butler, Mary Sylvanus, Tonye and Kane, Robert L. 2016. Care-Delivery Interventions to Manage Agitation and Aggression in Dementia Nursing Home and Assisted Living Residents: A Systematic Review and Meta-analysis. Journal of the American Geriatrics Society, Vol. 64, Issue. 3, p. 477.
    Spector, Aimee Revolta, Catherine and Orrell, Martin 2016. The impact of staff training on staff outcomes in dementia care: a systematic review. International Journal of Geriatric Psychiatry, Vol. 31, Issue. 11, p. 1172.
    Peisah, Carmelle 2016. Mental Health and Illness of the Elderly. p. 1.
    Motteran, Arianna Trifiletti, Elena and Pedrazza, Monica 2016. Well-being and Lack of Well-being among Nursing Home Residents. Ageing International, Vol. 41, Issue. 2, p. 150.
    Bird, Mike Anderson, Katrina MacPherson, Sarah and Blair, Annaliese 2016. Do interventions with staff in long-term residential facilities improve quality of care or quality for life people with dementia? A systematic review of the evidence. International Psychogeriatrics, Vol. 28, Issue. 12, p. 1937.
    Oyebode, Jan R and Parveen, Sahdia 2016. Psychosocial interventions for people with dementia: An overview and commentary on recent developments. Dementia, p. 147130121665609.
    Alushi, Ledia Hammond, John A. and Wood, Julia H. 2015. Evaluation of dementia education programs for pre-registration healthcare students—A review of the literature. Nurse Education Today, Vol. 35, Issue. 9, p. 992.
    Toms, Gill Lawrence, Catherine and Clare, Linda 2015. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease. p. 132.
    Adler, Geri Lawrence, Briana M. Ounpraseuth, Songthip T. and Asghar-Ali, Ali Abbas 2015. A Survey on Dementia Training Needs Among Staff at Community-Based Outpatient Clinics. Educational Gerontology, Vol. 41, Issue. 12, p. 903.
    Low, Lee-Fay Fletcher, Jennifer Goodenough, Belinda Jeon, Yun-Hee Etherton-Beer, Christopher MacAndrew, Margaret Beattie, Elizabeth and Quinn, Terence J 2015. A Systematic Review of Interventions to Change Staff Care Practices in Order to Improve Resident Outcomes in Nursing Homes. PLOS ONE, Vol. 10, Issue. 11, p. e0140711.
    Download full list
    ×
  • Get access
    Add to cart USD35.00
    Check if you have access via personal or institutional login
    Log in Register Recommend to librarian

AwareCare: a pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings

  • Linda Clare (a1), Rhiannon Whitaker (a2), Robert T Woods (a3), Catherine Quinn (a1), Hannah Jelley (a1), Zoe Hoare (a2), Joan Woods (a3), Murna Downs (a4) and Barbara A. Wilson (a5)...
Abstract

Background: The extent to which care home residents with severe dementia show awareness is influenced by the extent to which the environment provides opportunities for engagement and by the way in which care staff interact with them. We aimed to establish whether training care staff to observe and identify signs of awareness in residents with severe dementia resulted in improved quality of life for residents.

Methods: In this pilot cluster randomized trial, care staff in four homes (n = 32) received training and supervision and carried out structured observations of residents using the AwareCare measure (n = 32) over an eight-week period, while staff in four control homes (n = 33) had no training with regard to their residents (n = 33) and no contact with the research team. The primary outcome was resident quality of life. Secondary outcomes were resident well-being, behavior and cognition, staff attitudes and well-being, and care practices in the home.

Results: Following intervention, residents in the intervention group had significantly better quality of life as rated by family members than those in the control group, but care staff ratings of quality of life did not differ. There were no other significant between-group differences. Staff participating in the intervention identified benefits in terms of their understanding of residents’ needs.

Conclusions: Staff were able to use the observational measure effectively and relatives of residents in the intervention homes perceived an improvement in their quality of life.

Copyright
COPYRIGHT: © International Psychogeriatric Association 2012
Corresponding author
Correspondence should be addressed to: Professor Linda Clare, School of Psychology, Bangor University, Bangor, Gwynedd LL57 2AS, UK. Phone: +44 1248 388178. Email: l.clare@bangor.ac.uk.
References
Hide All
Asplund, K., Norberg, A., Adolfsson, R. and Waxman, H. M. (1991). Facial expressions in severely demented patients – a stimulus-response study of four patients with dementia of the Alzheimer type. International Journal of Geriatric Psychiatry, 6, 599–606. doi:10.1002/gps.930060809.
Ballard, C.et al. (2001). Quality of care in private sector and NHS facilities for people with dementia: cross-sectional survey. BMJ, 323, 426–427. doi:10.1136/bmj.323.7310.426.
Brooker, D. J. R., Sturmey, P., Gatherer, A. J. H. and Summerbell, C. (1993). The Behavioural Assessment Scale of Later Life (BASOLL): a description, factor analysis, scale development, reliability and validity data for a new scale for older adults. International Journal of Geriatric Psychiatry, 8, 747–754. doi:10.1002/gps.930080907.
Clare, L., Rowlands, J., Bruce, E., Surr, C. and Downs, M. (2008). “I don't do like I used to do”: a grounded theory approach to conceptualising awareness in people with moderate to severe dementia living in long-term care. Social Science and Medicine, 66, 2366–2377. doi:10.1016/j.socscimed.2008.01.045.
Clare, L., Woods, R. T., Whitaker, R., Wilson, B. A. and Downs, M. (2010). Development of an awareness-based intervention to enhance quality of life in severe dementia. Trials, 11, 73. doi:10.1186/1745-6215-11-73.
Clare, L., Markova, I., Roth, I. and Morris, R. (2011). Awareness in Alzheimer's disease and associated dementias: theoretical framework and clinical implications. Aging and Mental Health, 15, 936–944. doi:10.1080/13607863.2011.583630.
Clare, L.et al. (2012). AwareCare: development and validation of an observational measure of awareness in people with severe dementia. Neuropsychological Rehabilitation, 22, 113–133. doi:10.1080/09602011.2011.640467.
Cohen, J. (1988). Statistical Power Analysis for the Behavioral Sciences, 2nd edn.Hillsdale, NJ: Lawrence Erlbaum Associates.
Crespo, M., de Quiros, M. B., Gomez, M. M. and Hornillos, C. (2012). Quality of life of nursing home residents with dementia: a comparison of perspectives of residents, family and staff. The Gerontologist, 52, 56–65. doi:10.1093/geront/gnr080.
Donoghue, C. (2010). Nursing home staff turnover and retention: an analysis of national level data. Journal of Applied Gerontology, 29, 89–106. doi:10.1177/0733464809334899.
Edelman, P., Fulton, B. R., Kuhn, D. and Chang, C.-H. (2005). A comparison of three methods of measuring dementia-specific quality of life: perspectives of residents, staff and observers. The Gerontologist, 45 (Special Issue 1), 27–36. doi:10.1093/geront/45.suppl_1.27.
Goldberg, D. (1992). General Health Questionnaire (GHQ-12). Windsor, UK: NFER-Nelson.
Götell, E., Brown, S. and Ekman, S.-L. (2003). Influence of caregiver singing and background music on posture, movement, and sensory awareness in dementia care. International Psychogeriatrics, 15, 411–430. doi:10.1017/S1041610203009657.
Hintze, J. (2004). NCSS and PASS. Kaysville, Utah. Available at: www.NCSS.com (Number Cruncher Statistical Systems); last accessed 1 October 2007.
Kuske, B., Hanns, S., Luck, T., Angermeyer, M. C., Behrens, J. and Riedel-Heller, S. G. (2007). Nursing home staff training in dementia care: a systematic review of evaluated programs. International Psychogeriatrics, 19, 818–841. doi:10.1017/S1041610206004352.
Lintern, T., Woods, B. and Phair, L. (2000). Training is not enough to change care practice. Journal of Dementia Care, 8, 15–17.
Magai, C., Cohen, C., Gomberg, D., Malatesta, C. and Culver, C. (1996). Emotional expression during mid-to late-stage dementia. International Psychogeriatrics, 8, 383–395. doi:10.1017/S104161029600275X.
Magai, C., Cohen, C. I. and Gomberg, D. (2002). Impact of training dementia caregivers in sensitivity to nonverbal emotion signals. International Psychogeriatrics, 14, 25–38. doi:10.1017/S1041610202008256.
Maslach, C., Jackson, S. E. and Leiter, M. P. (1996). Maslach Burnout Inventory: Manual. Palo Alto, CA: Consulting Psychologists Press.
McCabe, M. P., Davidson, T. E. and George, K. (2007). Effectiveness of staff training programs for behavioural problems among older people with dementia. Aging and Mental Health, 11, 505–519. doi:10.1080/13607860601086405.
Moniz-Cook, E.et al. (1998). Can staff training reduce behavioural problems in residential care for the elderly mentally ill? International Journal of Geriatric Psychiatry, 13, 149–158. doi:10.1002/(SICI)1099-1166(199803)13:3<149::AID-GPS746>3.0.CO;2-Q.
Norberg, A., Melin, E. and Asplund, K. (1986). Reactions to music, touch and object presentation in the final stage of dementia: an exploratory study. International Journal of Nursing Studies, 23, 315–323. doi:10.1016/0020-7489(86)90054-4.
Perrin, T. (1997). The positive response schedule for severe dementia. Aging and Mental Health, 1, 184–191. doi:10.1080/13607869757290.
Reisberg, B. (1988). Functional assessment staging (FAST). Psychopharmacology Bulletin, 24, 653–659.
Visser, S., McCabe, M. P., Hodgson, C., Buchanan, G., Davison, T. E. and George, K. (2008). Managing behavioral symptoms of dementia: effectiveness of staff education and peer support. Aging and Mental Health, 12, 47–55. doi:10.1080/13607860701366012.
Walter, S. D., Eliasziw, M. and Donner, A. (1998). Sample size and optimal designs for reliability studies. Statistics in Medicine, 17, 101–110. doi:10.1002/(SICI)1097-0258(19980115)17:1<101::AID-SIM727>3.0.CO;2-E.
Ward, T., Dawe, B., Procter, A., Murphy, E. and Weinman, J. (1993). Assessment in severe dementia: the Guy's Advanced Dementia Schedule. Age and Ageing, 22, 183–189. doi:10.1093/ageing/22.3.183.
Weiner, M. F., Martin-Cook, K., Svetlik, D. A., Saine, K., Foster, B. and Fontaine, C. S. (2000). The quality of life in late-stage dementia (QUALID) scale. Journal of the American Medical Directors’ Association, 1, 114–116.
Zimmerman, S.et al. (2005a). Attitudes, stress and satisfaction of staff who care for residents with dementia. Gerontologist, 45 (Special Issue 1), 96–105. doi:10.1093/geront/45.suppl_1.96.
Zimmerman, S.et al. (2005b). Dementia care and quality of life in assisted living and nursing homes. Gerontologist, 45 (Special Issue 1), 133–146. doi:10.1093/geront/45.suppl_1.133.
Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

International Psychogeriatrics
  • ISSN: 1041-6102
  • EISSN: 1741-203X
  • URL: /core/journals/international-psychogeriatrics
Please enter your name
Please enter a valid email address
Who would you like to send this to? *

CAPTCHA *

Skip to the audio challenge
×

Keywords

Metrics

Full text views

Total number of HTML views: 11
Total number of PDF views: 182 *
Loading metrics...

Abstract views

Total abstract views: 850 *
Loading metrics...

* Views captured on Cambridge Core between September 2016 - 21st July 2018. This data will be updated every 24 hours.

Cancel
Confirm
×