Skip to main content Accessibility help
×
Home

Elderly Latino community members make an educational video: an academic-community collaboration to promote memory evaluations

  • Judith Neugroschl (a1), Margaret C. Sewell (a1), Mari Umpierre (a2), Raquel Rodriguez (a3), Laura Meyers (a4), Stephanie Kranes (a5), Carlos Aldrete (a6), Alma Collazo (a1), Licet Valois (a7) and Mary Sano (a1) (a2)...

Abstract

Objectives:

To develop an educational video to reach elderly Latinos in order to improve understanding and encourage evaluation of cognitive changes by 1) using focus groups to identify dementia knowledge gaps, health communication preferences and trusted advisors for health concerns; 2) collaborating with elderly Latino community members to create a video; and 3) collecting survey data regarding community response to the video.

Design:

Grounded theory qualitative approach using focus groups; collaborative community based model to create the video and anonymous survey at community screenings.

Setting:

Community senior centers in East Harlem, New York.

Participants:

A team of low-income mono and bilingual elderly Latino community residents, researchers, clinicians, and a film professional.

Measurements:

Thematic analysis of focus group transcripts; three item survey.

Results:

A collaboratively produced video and initial assessment in 49 Latino elders that indicated the video had a positive effect on interest in obtaining a brief memory screening at outreach events (71%).

Conclusions:

The project demonstrates the feasibility of this interdisciplinary partnership to create a culturally and linguistically sensitive video to promote service use concerning memory loss and cognitive evaluations among elderly Latinos. Initial survey results suggested a positive response and an increase in interest in memory screening.

Copyright

Corresponding author

Correspondence should be addressed to: Judith Neugroschl and Margaret C. Sewell, The Alzheimer’s Disease Research Center-Icahn School of Medicine at Mount Sinai, 1 Gustave L. Levy Place, Box 1230, New York, NY 10029, USA. Phone: 212-241-8329; Fax: 212-996-0987. Email: judith.neugroschl@mssm.edu; margaret.sewell@mssm.edu.

Footnotes

Hide All
*

Co-first authors.

Footnotes

References

Hide All
Ayalon, L. and Arean, P. A. (2004). Knowledge of Alzheimer’s disease in four ethnic groups of older adults. International Journal of Geriatric Psychiatry, 19, 5157. doi: 10.1002/gps.1037.
Baruch, N., Allan, C. L., Cundell, M., Clark, S. and Murray, B. (2017). Promoting early dementia diagnosis: a video designed by patients, for patients. International Psychogeriatrics, 29, 863867. doi: 10.1017/S104161021600209X.
Bhana, A. et al. (2014). The VUKA family program: piloting a family-based psychosocial intervention to promote health and mental health among HIV infected early adolescents in South Africa. AIDS Care, 26, 111. doi: 10.1080/09540121.2013.806770.
Borrayo, E. A. (2004). Where’s Maria? A video to increase awareness about breast cancer and mammography screening among low-literacy Latinas. Preventive Medicine, 39, 99110. doi: 10.1016/j.ypmed.2004.03.024.
Cabassa, L. J., Molina, G. B. and Baron, M. (2012). Depression fotonovela: development of a depression literacy tool for Latinos with limited English proficiency. Health Promotion Practice, 13, 747754. doi: 10.1177/1524839910367578.
Chavez, V. et al. (2004). A bridge between communities: video-making using principles of community-based participatory research. Health Promotion Practice, 5, 395403. doi: 10.1177/1524839903258067.
Davis, T. C., Williams, M. V., Marin, E., Parker, R. M. and Glass, J. (2002). Health literacy and cancer communication. CA: A Cancer Journal for Clinicians, 52, 134149. doi: 10.3322/canjclin.52.3.134.
Gagliano, M. E. (1988). A literature review on the efficacy of video in patient education. Journal of Medical Education, 63, 785792. doi: 10.1097/00001888-198810000-00006.
Gallagher-Thompson, D., Singer, L. S., Depp, C., Mausbach, B. T., Cardenas, V. and Coon, D. W. (2004). Effective recruitment strategies for Latino and Caucasian dementia family caregivers in intervention research. The American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 12, 484490. doi: 10.1097/00019442-200409000-00006.
Gallagher-Thompson, D., Solano, N., Coon, D. and Arean, P. (2003). Recruitment and retention of latino dementia family caregivers in intervention research: issues to face, lessons to learn. The Gerontologist, 43, 4551. doi: 10.1093/geront/43.1.45.
Gallagher-Thompson, D. et al. (2015). Effectiveness of a fotonovela for reducing depression and stress in Latino dementia family caregivers. Alzheimer Disease and Associated Disorders, 29, 146–53. doi: 10.1097/WAD.0000000000000077.
Gelman, C. R. (2010). Learning from recruitment challenges: barriers to diagnosis, treatment, and research participation for Latinos with symptoms of Alzheimer’s disease. Journal of Gerontological Social Work, 53, 94113. doi: 10.1080/01634370903361847.
Glaser, B. and Strauss, A. (1994). The Discovery of Grounded Theory: Strategies for Qualitative Research. New Brunswick: Aldine.
Grigsby, T. J., Unger, J. B., Molina, G. B. and Baron, M. (2017). Evaluation of an audio-visual novela to improve beliefs, attitudes and knowledge toward dementia: a mixed-methods approach. Clinical Gerontologist, 40, 130138. doi: 10.1080/07317115.2016.1211210.
Karlawish, J., Barg, F. K., Augsburger, D., Beaver, J., Ferguson, A. and Nunez, J. (2011). What Latino Puerto Ricans and non-Latinos say when they talk about Alzheimer’s disease. Alzheimer’s & Dementia, 7, 161170. doi: 10.1016/j.jalz.2010.03.015.
Lam, T. K. et al. (2003). Encouraging Vietnamese-American women to obtain Pap tests through lay health worker outreach and media education. Journal of General Internal Medicine, 18, 516524. doi: 10.1046/j.1525-1497.2003.21043.x.
Mendez, J. L. and Westerberg, D. (2012). Implementation of a culturally adapted treatment to reduce barriers for Latino parents. Cultural Diversity & Ethnic Minority Psychology, 18, 363372. doi: 10.1037/a0029436.
Morales, J. (2003). Desandando de la vida (Retracing life). Puerto Rico: TUTV; Corporación de Puerto Rico para la Difusión Pública.
Perry, B. L. and Pescosolido, B. A. (2015). Social network activation: the role of health discussion partners in recovery from mental illness. Social Science & Medicine, 125, 116128. doi: 10.1016/j.socscimed.2013.12.033.
Sabido, M. (2002). El tono: Andanzas teóricas, aventuras practicas, el entretenimiento con beneficio social. The Tone: Theoretical Vicissitudes, Practice Adventures, and Entertainment with Social Benefit. Mexico City, Mexico: National Autonomous University.
Singhal, A. and Rogers, E. M. (2002). A theoretical agenda for entertainment-education. Communication Theory, 12, 117135. doi: 10.1111/j.1468-2885.2002.tb00262.x.
Sood, S. (2002). Audience involvement and entertainment-education. Communication Theory, 12, 153172. doi: 10.1111/j.1468-2885.2002.tb00264.x.
Souder, E. and Terry, T. L. (2009). Use of lay educators to overcome barriers to research with Black older adults: a case study using Alzheimer’s Disease Center. Research in Gerontological Nursing, 2, 235242. doi: 10.3928/19404921-20090731-04.
Storey, D. and Sood, S. (2013). Increasing equity, affirming the power of narrative and expanding dialogue: the evolution of entertainment education over two decades. Critical Arts-South-North Cultural and Media Studies, 27, 935. doi: 10.1080/02560046.2013.767015.
Tang, M. X. et al. (1998). The APOE-epsilon4 allele and the risk of Alzheimer disease among African Americans, Whites, and Hispanics. The Journal of the American Medical Association, 279, 751755. doi: 10.1001/jama.279.10.751.
Umpierre, M. et al. (2015). Understanding latino parents’ child mental health literacy: todos a bordo/all aboard. Research on Social Work Practice, 25, 607618.
Valle, R. (2005). Culturally attuned recruitment, retention, and adherence in Alzheimer disease and associated disorders: a best practices working model. Alzheimer Disease and Associated Disorders, 19, 261266. doi: 10.1097/01.wad.0000190804.05502.19.
Valle, R. and Lee, B. (2002). Research priorities in the evolving demographic landscape of Alzheimer disease and associated dementias. Alzheimer Disease and Associated Disorders, 16, S64S76. doi: 10.1097/00002093-200200002-00006.
Valle, R. Ì., Yamada, A.-M. and Matiella, A. C. (2006). Fotonovelas: a health literacy tool for educating latino older adults about dementia. Clinical Gerontologist, 30, 7188. doi: 10.1300/J018v30n01_06.

Keywords

Metrics

Full text views

Total number of HTML views: 0
Total number of PDF views: 0 *
Loading metrics...

Abstract views

Total abstract views: 0 *
Loading metrics...

* Views captured on Cambridge Core between <date>. This data will be updated every 24 hours.

Usage data cannot currently be displayed