Ayalon L., Bachner Y. G., Dwolatzky T. and Heinik J. (2012). Preferences for end-of-life treatment: concordance between older adults with dementia or mild cognitive impairment and their spouses. International Psychogeriatrics, 24 (11), 1798–1804.
Banerjee S. et al. (2007). Improving the quality of care for mild to moderate dementia; an evaluation of the Croydon Memory Service Model. International Journal of Geriatric Psychiatry, 22, 782–788.
Berger J. T. (2010). What about process? Limitations in advance directives, care planning and noncapacitated decision making. The American Journal of Bioethics, 10, 33–34.
Boyd K. et al. (2010). Advance care planning for cancer patients in primary care: a feasibility study. British Journal of General Practice, 60 (581), 449–458.
Braun V. and Clarke V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101.
Carrese J. A., Mullaney J. L., Faden R. R. and Finucane T. E. (2002). Planning for death but not serious future illness: qualitative study of housebound elderly patients. British Medical Journal, 325, 125.
Cavalieri T. A., Latif W., Ciesielski J., Ciervo C. A. J. and Forman L. J. (2002). How physicians approach advance care planning in patients with mild to moderate Alzheimer's Disease. Journal of the American Osteopathic Association, 102, 541–547.
Daly J. et al. (2007). A hierarchy of evidence for assessing qualitative health research. Journal of Clinical Epidemiology, 60, 43–49.
Daveson B. A. et al. (2013). To be involved or not to be involved: a survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe. Palliative Medicine. doi:10.1177/0269216312471883.
Dening K., Jones L. and Sampson E. (2011). Advance care planning for people with dementia: a review. International Psychogeriatrics, 23 (10), 1535–1551.
Dening K. H., Jones L. and Sampson E. (2012). Preferences for end-of-life care: a nominal group study of people with dementia and their family carers. Palliative Medicine. doi:10.1177/0269216312464094.
Folstein M. F., Folstein S. E. and McHugh P. R. (1975). “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.
Gillick M. R. (2010). Advance care planning: an American view. In Hughes J. C., Lloyd-Williams M. and Sachs G. A. (eds.), Supportive Care for the Person with Dementia (pp. 263–270). Oxford: Oxford University Press.
Godwin B. and Waters H. (2009). ‘In solitary confinement’: planning end-of-life well-being with people with advanced dementia, their family and professional carers. Mortality, 14, 265–285.
Hertogh C. (2010). Advance care planning and palliative care in dementia: a view from the Netherlands. In Hughes J. C., Lloyd-Williams M. and Sachs G. A. (eds.), Supportive Care for the Person with Dementia (pp. 271–280). Oxford: Oxford University Press.
Hill K., Kellard K., Middleton S., Cox L. and Pound E. (2007). Understanding Resources in Later Life:Views and Experiences of Older People. York: Joseph Rowntree Foundation.
Hirschman K. B., Xie S. X., Feudtner C. and Karlawish H. T. (2004). How does an Alzheimer's disease patient's role in medical decision making change over time?. Journal of Geriatric Psychiatry and Neurology, 17, 55–60.
Houttekier D. et al. (2010). Place of death of older persons with dementia. A study in five European countries. Journal of American Geriatric Society, 58, 751–756.
Manthorpe J. et al. (2011). The Transition from Cognitive Impairment to Dementia: Older People's Experiences. Southampton. Final Report. NIHR Service Delivery and Organisation programme.
National Institute for Clinical Excellence/Social Care Institute of Excellence (2006). Dementia: Guidance on Health and Social Care. Available at: http://guidance.nice.org.uk/CG42 (Accessed: November 2006). NHS National End of Life Care Programme (2011). Capacity, Care Planning and Advance Care Planning in Life Limiting Illness: A Guide for Health and Social Care Staff. Available at: www.endoflifecareforadults.nhs.uk (Accessed: March 2013).
Robinson A. L. et al. (2012). A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age and Ageing, 41, 263–269. doi:10.1093/ageing/afr148.
Sampson E. and Robinson A. L. (2009). Editorial: End of life care in dementia: building bridges for effective multidisciplinary care. Dementia, 8, 331–334.
Sampson E. L. et al. (2011). Palliative assessment and advance care planning in severe dementia: an exploratory randomized controlled trial of a complex intervention. Palliative Medicine, 25, 197–209.
Samsi K. and Manthorpe J. (2011). “I live for today”: a qualitative study investigating older people's attitudes to advance planning. Health and Social Care 19, 52–59.
Seymour J., Almack K. and Kennedy S. (2010). Implementing advance care planning: a qualitative study of community nurses’ views and experiences. BMC Palliative Care, 9, 1–9.
Seymour J., Gott M., Bellamy G., Ahmedzai S. H. and Clark D. (2004). Planning for the end of life: the views of older people about advance care statements. Social Science and Medicine, 59, 57–68.
Shega J. and Tozer C. (2009). Improving the care of people with dementia at the end of life: the role of hospice and the US experience. Dementia 8, 377–389.
Teno J. (2004). Advance Directives: time to move on. Annals of Internal Medicine, 141, 159–160.