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Spot the difference: shared decision-making and supported decision-making in mental health

  • M. B. Simmons (a1) (a2) and P. M. Gooding (a3)
Abstract

Respecting a person’s choices about the mental health services they do or do not use is a mark of quality support, and is often pursued for moral reasons, as a rights imperative and to improve outcomes. Yet, providing information and assistance for people making decisions about the mental health services can be a complex process, and has been approached in various ways. Two prominent approaches to this end are ‘shared decision-making’ and ‘supported decision-making’. This article considers each of these approaches, discussing points of similarity and difference and considering how the two might complement one another. By exploring the contribution that each approach can make, we conclude by proposing how future application of these approaches can account for the broader context of decisions, including support for ongoing decision-making; the multitude of service settings where decision-making occurs; and the diversity in supportive practices required to promote active involvement.

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Copyright
Corresponding author
*Address for correspondence: Dr M. B. Simmons, Orygen, The National Centre of Excellence in Youth Mental Health, Locked Bag 10, Parkville, 3052, Australia. (Email: magenta.simmons@orygen.org.au)
Footnotes
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These authors contributed equally to this work.

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References
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Alambuya, R, Ali, S, Apostolidis, K, Beinfeld, M, Bijwe, S, R, Bravo P, Brocklehurst W, Davis R, Dhir A, Dodd CR, Durand MA, Eaton S, Faber M, Fisler CM, Ford PA, Westrick MG, Nikovska DG, Hendy MA, Johnson C, Johnstone R, Laitner S, Lam LS, Lee DM, Lynch HF, Mankeekar PC, Mbaabu LM, McCay L, Monti M, Moulton BW, Muthambi TC, Paguio J, Richards T, Sawicki NN, Talpade MS, Tunick R, Volbracht E, Wade BH, Wexler RM, Xu B, Barry M, Clay K, Coulter A, Dixon J, Edgman-Levitan S, Elwyn G, Gigerenzer G, Mangione C, Moynihan R, Mulley A, Schwitzer G, Stiggelbout A, Wennberg J, Bachleitner K, Lotherington J, Strangmann S (2011). Salzburg statement on shared decision making. British Medical Journal 342, d1745.
Alegria, M, Polo, A, Gao, S, Santana, L, Rothstein, D, Jimenez, A, Hunter, ML, Mendieta, F, Oddo, V, Normand, SL (2008). Evaluation of a patient activation and empowerment intervention in mental health care. Medical Care 46, 247256.
Aljumah, K, Hassali, MA (2015). Impact of pharmacist intervention on adherence and measurable patient outcomes among depressed patients: a randomised controlled study. BMC Psychiatry 15, 219.
Arstein-Kerslake, A, Watson, J, Browning, M, Martinis, J, Blanck, P (2017). Future directions in supported decision-making. Disability Studies Quarterly 37, 37.
Australian Health Ministers’ Advisory Council (2013). A National Framework for Recovery-Oriented Mental Health Services: Guide for Practitioners and Providers. Australian Health Ministers’ Advisory Council: Canberra.
Bulgarian Centre For Not-For-Profit Law (2014). Supported decision making or how people with intellectual disabilities and mental health problems can live independent lives (http://bapid.com/bapid/wp-content/uploads/2014/08/Supported-decision-making.pdf). Accessed 9 October 2017.
Care Quality Commission (2015). Monitoring the Mental Health Act in 2014/15 (www.gov.uk/government/publications). Accessed 9 October 2017.
Clever, SL, Ford, DE, Rubenstein, LV, Rost, KM, Meredith, LS, Sherbourne, CD, Wang, NY, Arbelaez, JJ, Cooper, LA (2006). Primary care patients’ involvement in decision-making is associated with improvement in depression. Medical Care 44, 398405.
Committee on the Rights of Persons with Disabilities (2014). General Comment No 1: Article 12: Equal Recognition Before the Law, 11th sess, UN Doc CRPD/C/GC/1.
Deegan, PE (2005). The importance of personal medicine: a qualitative study of resilience in people with psychiatric disabilities. Scandinavian Journal of Public Health. Supplement 66, 2935.
Deegan, PE (2007). The lived experience of using psychiatric medication in the recovery process and a shared decision-making program to support it. Psychiatric Rehabilitation Journal 31, 6269.
Deegan, PE (2010). A web application to support recovery and shared decision making in psychiatric medication clinics. Psychiatric Rehabilitation Journal 34, 2328.
Dixon, LB, Glynn, SM, Cohen, AN, Drapalski, AL, Medoff, D, Fang, LJ, Potts, W, Gioia, D (2014). Outcomes of a brief program, REORDER, to promote consumer recovery and family involvement in care. Psychiatric Services 65, 116120.
Drake, RE, Deegan, PE (2009). Shared decision making is an ethical imperative. Psychiatric Services 60, 1007.
Edwards, A, Elwyn, G (2006). Inside the black box of shared decision making: distinguishing between the process of involvement and who makes the decision. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy 9, 307320.
Elwyn, G, Frosch, D, Thomson, R, Joseph-Williams, N, Lloyd, A, Kinnersley, P, Cording, E, Tomson, D, Dodd, C, Rollnick, S, Edwards, A, Barry, M (2012). Shared decision making: a model for clinical practice. Journal of General Internal Medicine 27, 13611367.
Elwyn, G, Lloyd, A, May, C, Van Der Weijden, T, Stiggelbout, A, Edwards, A, Frosch, DL, Rapley, T, Barr, P, Walsh, T, Grande, SW, Montori, V, Epstein, R (2014). Collaborative deliberation: a model for patient care. Patient Education and Counseling 97, 158164.
Elwyn, G, Tsulukidze, M, Edwards, A, Legare, F, Newcombe, R (2013). Using a ‘talk’ model of shared decision making to propose an observation-based measure: observer OPTION 5 Item. Patient Education and Counseling 93, 265271.
Gooding, P (2013). Supported decision-making: a rights-based disability concept and its implications for mental health law. Psychiatry, Psychology and Law 20, 431.
Gooding, P (2015). Navigating the “flashing amber lights” of the right to legal capacity in the United Nations Convention on the Rights of Persons with Disabilities: responding to major concerns. Human Rights Law Review 15, 45.
Goossensen, A, Zijlstra, P, Koopmanschap, M (2007). Measuring shared decision making processes in psychiatry: skills versus patient satisfaction. Patient Education and Counseling 67, 5056.
Goss, C, Fontanesi, S, Mazzi, MA, Del Piccolo, L, Rimondini, M, Elwyn, G, Zimmermann, C (2007). Shared decision making: the reliability of the OPTION scale in Italy. Patient Education and Counseling 66, 296302.
Government of British Columbia (1996). Representation Agreement Act R.S.B.C. 1996 c 405.
Greenhalgh, T, Snow, R, Ryan, S, Rees, S, Salisbury, H (2015). Six “biases” against patients and carers in evidence-based medicine. BMC Medicine 13, 1.
Hamann, J, Cohen, R, Leucht, S, Busch, R, Kissling, W (2005). Do patients with schizophrenia wish to be involved in decisions about their medical treatment? The American Journal of Psychiatry 162, 23822384.
Hamann, J, Cohen, R, Leucht, S, Busch, R, Kissling, W (2007). Shared decision making and long-term outcome in schizophrenia treatment. The Journal of Clinical Psychiatry 68, 992997.
Hamann, J, Langer, B, Winkler, V, Busch, R, Cohen, R, Leucht, S, Kissling, W (2006). Shared decision making for in-patients with schizophrenia. Acta Psychiatrica Scandinavica 114, 265273.
Henderson, C, Flood, C, Leese, M, Thornicroft, G, Sutherby, K, Szmukler, G (2004). Effect of joint crisis plans on use of compulsory treatment in psychiatry: single blind randomised controlled trial. British Medical Journal 329, 136.
Hoffmann, TC, Legare, F, Simmons, MB, Mcnamara, K, Mccaffery, K, Trevena, LJ, Hudson, B, Glasziou, PP, Del Mar, CB (2014). Shared decision making: what do clinicians need to know and why should they bother? The Medical Journal of Australia 201, 3539.
Human Rights Committee (2016). Promotion and Protection of All Human Rights, Civil, Political, Economic, Social and Cultural Rights, including the Right to Development, 32nd sess, UN Doc A/HRC/32/L.26 (adopted 29 June 2016).
Johnson, S (2013). Can we reverse the rising tide of compulsory admissions? The Lancet 381, 1603.
Joosten, EA, De Jong, CA, De Weert-Van Oene, GH, Sensky, T, Van Der Staak, CP (2009). Shared decision-making reduces drug use and psychiatric severity in substance-dependent patients. Psychotherapy and Psychosomatics 78, 245253.
Joseph-Williams, N, Lloyd, A, Edwards, A, Stobbart, L, Tomson, D, Macphail, S, Dodd, C, Brain, K, Elwyn, G, Thomson, R (2017). Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal 357, j1744.
Le Blanc, A, Herrin, J, Williams, MD, Inselman, JW, Branda, ME, Shah, ND, Heim, EM, Dick, SR, Linzer, M, Boehm, DH, Dall-Winter, KM, Matthews, MR, Yost, KJ, Shepel, KK, Montori, VM (2015). Shared decision making for antidepressants in primary care: a cluster randomized trial. JAMA Internal Medicine 11, E1E10.
Loh, A, Simon, D, Hennig, K, Hennig, B, Harter, M, Elwyn, G (2006). The assessment of depressive patients’ involvement in decision making in audio-taped primary care consultations. Patient Education and Counseling 63, 314318.
Loh, A, Simon, D, Wills, CE, Kriston, L, Niebling, W, Harter, M (2007). The effects of a shared decision-making intervention in primary care of depression: a cluster-randomized controlled trial. Patient Education and Counseling 67, 324332.
Mccaffery, KJ, Holmes-Rovner, M, Smith, SK, Rovner, D, Nutbeam, D, Clayman, ML, Kelly-Blake, K, Wolf, MS, Sheridan, SL (2013). Addressing health literacy in patient decision aids. BMC Medical Informatics and Decision Making 13 (Suppl. 2): S10.
Mckinstry, B (2000). Do patients wish to be involved in decision making in the consultation? A cross sectional survey with video vignettes. BMJ (Clinical Research Ed.) 321, 867871.
Ministry of Law and Justice (2017). The Mental Healthcare Act (India), 2017 no. 10.
Minkowitz, T (2006). No-force advocacy by users and survivors of psychiatry. Mental Health Commission New Zealand. (www.mhc.govt.nz). Accessed 9 October 2017.
Minkowitz, T (2010). Abolishing mental health laws to comply with the convention on the rights of persons with disabilities. In Rethinking Rights-Based Mental Health Laws (ed. B. McSherry and P. Weller), pp. 151177. Portland: Hart.
Morant, N, Kaminskiy, E, Ramon, S (2016). Shared decision making for psychiatric medication management: beyond the micro-social. Health Expectations 19, 10021014.
Mulley, AG, Trimble, C, Elwyn, G (2012). Stop the silent misdiagnosis: patients’ preferences matter. British Medical Journal 345, e6572.
Muscat, DM, Morony, S, Shepherd, HL, Smith, SK, Dhillon, HM, Trevena, L, Hayen, A, Luxford, K, Nutbeam, D, Mccaffery, K (2015). Development and field testing of a consumer shared decision-making training program for adults with low literacy. Patient Education and Counseling 98, 11801188.
Office of the High Commissioner for Human Rights (OHCHR) (2007). Chapter 6: From provisions to practice: implementing the Convention, Legal Capacity and Supported Decision-Making. In United Nations Handbook for Parliamentarians on the Convention on the Rights of Persons with Disabilities. OHCHR: Geneva. (www.un.org).
O’Neal, EL, Adams, JR, Mchugo, GJ, Van Citters, AD, Drake, RE, Bartels, SJ (2008). Preferences of older and younger adults with serious mental illness for involvement in decision-making in medical and psychiatric settings. American Journal of Geriatric Psychiatry 16, 826833.
Pathare, S, Shields, LS (2012). Supported decision-making for persons with mental illness: a review. Public Health Reviews 34, 15.
Patient Protection and Affordable Care Act (2010). 42 U.S.C. § 18001 et seq.
Perestelo-Perez, L, Rivero-Santana, A, Sanchez-Afonso, JA, Perez-Ramos, J, Castellano-Fuentes, CL, Sepucha, K, Serrano-Aguilar, P (2017). Effectiveness of a decision aid for patients with depression: a randomized controlled trial. Health Expectations 20, 10961105
Shepherd, H, Barratt, A, Trevena, L, Mcgeechan, K, Carey, K, Epstein, R, Butow, P, Del Mar, C, Entwistle, V, Tattersall, M (2011). Three questions that patients can ask to improve the quality of information physicians give about treatment options: a cross-over trial. Patient Education and Counseling 84, 379385.
Simmons, MB, Batchelor, S, Dimopoulos-Bick, T, Howe, D (2017). The choice project: peer workers promoting shared decision making at a Youth Mental Health Service. Psychiatric Service, 68, 764770.
Simmons, MB, Hetrick, SE, Jorm, AF (2011). Experiences of treatment decision making for young people diagnosed with depressive disorders: a qualitative study in primary care and specialist mental health settings. BMC Psychiatry 11, 194.
Simon, D, Kriston, L, Von Wolff, A, Buchholz, A, Vietor, C, Hecke, T, Loh, A, Zenker, M, Weiss, M, Harter, M (2012). Effectiveness of a web-based, individually tailored decision aid for depression or acute low back pain: a randomized controlled trial. Patient Education and Counseling 87, 360368.
Slade, M, Adams, N, O’Hagan, M (2012). Recovery: past progress and future challenges. International Review of Psychiatry 24, 14.
Stacey, D, Legare, F, Col, NF, Bennett, CL, Barry, MJ, Eden, KB, Holmes-Rovner, M, Llewellyn-Thomas, H, Lyddiatt, A, Thomson, R, Trevena, L, Wu, JH (2014). Decision aids for people facing health treatment or screening decisions. The Cochrane Database of Systematic Reviews 1, CD001431.
Swedish National Board of Health and Welfare (2008). A New Profession is Born – Personligt ombud, PO. Västra Aros, Västerås (www.personligtombud.se).
Szmukler, G, Rose, D (2015). Strengthening Self-Determination of Persons with Mental Illness. In Handbook of Neuroethics (ed. J. Clausen and N. Levy), pp. 879895. Springer: London.
United Nations (2006). The Convention on the Rights of Persons with Disabilities, opened for signature 30 March 2007, Doc.A/61/611 (entered into force 3 May 2008). United Nations: Geneva.
Vancouver/Richmond Mental Health Network Society (2005). Representation agreements and supported decision-making (http://francais.ccamhr.ca/communications/repaggreements.html). Accessed 8 October 2017.
Veroff, D, Marr, A, Wennberg, DE (2013). Enhanced support for shared decision making reduced costs of care for patients with preference-sensitive conditions. Health Affairs (Millwood) 32, 285293.
Victorian Government (2014a). Mental Health Act 2014, No. 26.
Victorian Government (2014b). Recovery and supported decision-making. In Mental Health Act 2014 Handbook. (https://www2.health.vic.gov.au/mental-health/practice-and-service-quality/mental-health-act-2014-handbook).
Weller, P (2008). Supported decision-making and the achievement of non-discrimination: the promise and paradox of the disabilities convention. Law in Context 26, 85110.
Weller, P (2013). New Law and Ethics in Mental Health Advance Directives: The Convention on the Rights of Persons with Disabilities and the Right to Choose. Routledge, London.
Westermann, GM, Verheij, F, Winkens, B, Verhulst, FC, Van Oort, FV (2013). Structured shared decision-making using dialogue and visualization: a randomized controlled trial. Patient Education and Counseling 90, 7481.
Woltmann, EM, Wilkniss, SM, Teachout, A, Mchugo, GJ, Drake, RE (2011). Trial of an electronic decision support system to facilitate shared decision making in community mental health. Psychiatric Services 62, 5460.
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