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Who Owns the Data in a Medical Information Commons?

Published online by Cambridge University Press:  01 January 2021

Abstract

In this paper, we explore the perspectives of expert stakeholders about who owns data in a medical information commons (MIC) and what rights and interests ought to be recognized when developing a governance structure for an MIC. We then examine the legitimacy of these claims based on legal and ethical analysis and explore an alternative framework for thinking about participants' rights and interests in an MIC.

Type
Symposium Articles
Copyright
Copyright © American Society of Law, Medicine and Ethics 2019

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References

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