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The meaning of occupation for patients in palliative care when in hospital

Published online by Cambridge University Press:  22 January 2016

Lina Eriksson ,
Inger Öster  and
Margareta Lindberg
Lina Eriksson*
Affiliation:
Department of Community Medicine and Rehabilitation, Occupational Therapy, Unit of Research, Education, and Development, Östersund, Umeå University, Umeå, Sweden
Inger Öster
Affiliation:
Department of Community Medicine and Rehabilitation, Occupational Therapy, Umeå University, Umeå, Sweden
Margareta Lindberg
Affiliation:
Department of Community Medicine and Rehabilitation, Occupational Therapy, Umeå University, Umeå, Sweden
*
Address correspondence and reprint requests to Lina Eriksson, Östersunds sjukhus, 83183 Östersund, Sweden. E-Mail: lina.eriksson@regionjh.se
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Abstract

Objective:

The aim of this study was to describe how patients in palliative care relate to occupation during hospitalization and to define the meaning it has for them.

Method:

Eight inpatients in palliative care with various cancer diagnoses were interviewed one time. These interviews were transcribed and analyzed using qualitative content analysis.

Results:

Patients experience occupations as meaningful when in hospital during the last period of their lives. They would like to be able to handle their own needs as much as possible. Staff behavior, the design of the environment, the lack of accessible occupations, and the degree to which patients can decide whether to receive or decline visits affect the possibility to make their wishes a reality. Our results also revealed that patients experience a sense of loss of their role, as well as a lack of control and participation.

Significance of Results:

Our results confirm the importance of occupation and of patients having the option to and being given opportunities to take care of themselves when in palliative care. Further studies are needed to enable us to understand how organized occupations might influence patients' experience of being in a hospital during the final period of life.

Keywords

Meaningful activityLife-threatening illnessHospitalizationQualitative content analysisMeaning
Type
Original Articles
Information
Palliative & Supportive Care , Volume 14 , Issue 5 , October 2016 , pp. 541 - 552
Copyright
Copyright © Cambridge University Press 2016 

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References

REFERENCES

Ås, B. (1981). A five-dimensional model for change: Contradictions and feminist consciousness. Women's Studies International Quarterly, 4(1), 101–114.Google Scholar
Brecher, D.B. (2013). The use of Skype in a community hospital inpatient palliative medicine consultation service. Journal of Palliative Medicine, 16(1), 110–112.CrossRefGoogle Scholar
Cheville, A. (2001). Rehabilitation of patients with advanced cancer. Cancer, 92(4), 1039–1048.Google Scholar
Corbin, J. & Strauss, A.L. (1987). Accompaniments of chronic illness: Changes in body, self, biography, and biographical time. Research in the Sociology of Health Care, 6(3), 249–281.Google Scholar
Coyle, N. (2006). The hard work of living in the face of death. Journal of Pain and Symptom Management, 32(3), 266–274.Google Scholar
Eva, G. & Wee, B. (2010). Rehabilitation in end-of-life management. Current Opinion in Supportive and Palliative Care, 4(3), 158–162.CrossRefGoogle ScholarPubMed
Fryback, P.B. (1993). Health for people with a terminal diagnosis. Nursing Science Quarterly, 6(3), 147–159.Google Scholar
Graneheim, U.H. & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112.CrossRefGoogle ScholarPubMed
Javier, N.S.C. & Montagnini, M.L. (2011). Rehabilitation of the hospice and palliative care patient. Journal of Palliative Medicine, 14(5), 638–648.CrossRefGoogle ScholarPubMed
Kagawa-Singer, M. (1993). Redefining health: Living with cancer. Social Science & Medicine, 37(3), 295–304.Google Scholar
Keesing, S. & Rosenwax, L. (2011). Is occupation missing from occupational therapy in palliative care? Australian Occupational Therapy Journal, 58(5), 329–336.Google Scholar
Kielhofner, G. (2008). Model of human occupation: Theory and applications, 4th ed. Baltimore: Lippincott Williams & Wilkins.Google Scholar
la Cour, K., Josephsson, S., Tishelman, C., et al. (2007). Experiences of engagement in creative activity at a palliative care facility. Palliative & Supportive Care, 5(3), 241–250.Google Scholar
la Cour, K., Johannessen, H. & Josephsson, S. (2009). Activity and meaning making in the everyday lives of people with advanced cancer. Palliative & Supportive Care, 7(4), 469–479.Google Scholar
Law, M., Steinwender, S. & Leclair, L. (1998). Occupation, health and well-being. Canadian Journal of Occupational Therapy, 65(2), 81–91.CrossRefGoogle Scholar
Lyons, M., Orozovic, N., Davis, J., et al. (2002). Doing–being–becoming: Occupational experiences of persons with life-threatening illnesses. The American Journal of Occupational Therapy, 56(3), 285–295.Google Scholar
Malterud, K. (2009). Qualitative methods in medical research: An introduction [in Swedish], 2nd ed. Lund: Studentlitteratur.Google Scholar
Öhman, A. (2009). Gender perspectives on healthcare science [in Swedish]. Stockholm: Högskoleverket.Google Scholar
Rasmussen, B.H. (1999). In pursuit of a meaningful living amidst dying: Nursing practice in a hospice. Doctoral dissertation. Umeå, Sweden: Umeå University.Google Scholar
Rasmussen, B.H. & Sandman, P.O. (1998). How patients spend their time in a hospice and in an oncological unit. Journal of Advanced Nursing, 28(4), 818–828.Google Scholar
Regional Cancer Center (2012). National clinical guidelines for palliative care, 2012–2014. [in Swedish]. Stockholm: Regionala cancercentrum i samverkan.Google Scholar
Seymour-Smith, S. & Wetherell, M. (2006). “What he hasn't told you …”: Investigating the micro-politics of gendered support in heterosexual couples' co-constructed accounts of illness. Feminism & Psychology, 16(1), 105–127.Google Scholar
Svidén, G.A., Tham, K. & Borell, L. (2010). Involvement in everyday life for people with a life threatening illness. Palliative & Supportive Care, 8(03), 345–352.CrossRefGoogle ScholarPubMed
Townsend, E.A. & Polatajko, H.J. (2013). Enabling occupation, II: Advancing an occupational therapy vision for health, well-being, and justice through occupation, 2nd ed. Ottawa: CAOT Publications.Google Scholar
Vrkljan, B.H. & Miller-Polgar, J. (2001). Meaning of occupational engagement in life-threatening illness: A qualitative pilot project. Canadian Journal of Occupational Therapy, 68(4), 237–246.Google Scholar
Wentlandt, K., Burman, D., Swami, N., et al. (2011). Preparation for the end of life in patients with advanced cancer and association with communication with professional caregivers. Psycho-Oncology, 21, 868–876.Google Scholar
World Health Organization (WHO). (2002). Definition of palliative care, 2nd ed. Geneva: World Health Organization.Google Scholar