Skip to main content
×
×
Home

The psychosocial needs of students conducting research with patients and their families in advanced cancer and palliative care: A scoping review

  • Jamie L. Penner (a1), Moire Stevenson (a2), Monica P. Parmar (a1) (a3) and Emmanuelle Bélanger (a4)
Abstract
Abstract Objective:

The objective of this article was to explore the extent of the scientific literature and evidence base about the psychosocial needs of students conducting research in the fields of advanced cancer and palliative care.

Method:

A scoping review was conducted in major scientific databases. English-language articles on the topic of interest were retained if they were published in peer-reviewed journals between 1995 and 2013.

Results:

A total of 3,161 references were screened, and 7 were retained for analysis. Only two articles were empirical studies involving the collection of primary empirical data. The remaining ones were commentaries and personal reflections. While there is a near absence of empirical research about the psychosocial needs of students, several commentaries suggest that students in this field have a high need for support. Three themes were identified in the limited literature retrieved: (1) the importance of proper training and supervision; (2) the availability of emotional support structures; and (3) the use of effective and deliberate self-care strategies.

Significance of results:

This scoping review demonstrates that little is known about the psychosocial needs of students conducting research in advanced cancer and palliative care. However, what is clear is that there is a large emotional impact on student researchers engaged in this type of work. Adequate training and support is needed to promote students' health and well-being, encourage retention of students, and foster high-quality studies. More empirical data are needed to better understand the experiences of students conducting this type of research and to ensure the sustainability of training and research in this field.

Copyright
Corresponding author
Address correspondence and reprint requests to: Jamie L. Penner, Hôpital Général Juif Sir Mortimer B. Davis, H-362 3755 Côte Sainte Catherine, Montreal, Quebec H3 T 1E2, Canada. E-mail: jamie.penner@mail.mcgill.ca.
References
Hide All
Anderson S., Allen P., Peckham S., et al. (2008). Asking the right questions: Scoping studies in the commissioning of research on the organisation and delivery of health services. Health Research Policy and Systems/BioMed Central, 6(1), 7. Available from http://doi.org/10.1186/1478-4505-6-7.
Arksey H. & O'Malley L. (2007). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 1932. Available from http://doi.org/10.1080/1364557032000119616.
Armstrong R., Hall B.J., Doyle J., et al. (2011). Cochrane update: “Scoping the scope” of a Cochrane review. Journal of Public Health, 33(1), 147150. Available from http://doi.org/10.1093/pubmed/fdr015.
Davis K., Drey N. & Gould D. (2009). What are scoping studies? A review of the nursing literature. International Journal of Nursing Studies, 46(10), 13861400. Available from http://doi.org/10.1016/j.ijnurstu.2009.02.010.
Dickson-Swift V., James E. L., Kippen S., et al. (2007). Doing sensitive research: What challenges do qualitative researchers face? Qualitative Research, 7(3), 327353. Available from http://doi.org/10.1177/1468794107078515.
Dickson-Swift V., James E.L., Kippen S., et al. (2008). Risk to researchers in qualitative research on sensitive topics: Issues and strategies. Qualitative Health Research, 18(1), 133144. Available from http://doi.org/10.1177/1049732307309007.
Ellington L., Reblin M., Berry P., et al. (2013). Reflective research: Supporting researchers engaged in analyzing end-of-life communication. Patient Education and Counseling, 91(1), 126128. Available from http://doi.org/10.1016/j.pec.2012.09.007.
Emanuel E.J., Fairclough D.L., Wolfe P., et al. (2004). Talking with terminally ill patients and their caregivers about death, dying, and bereavement: Is it stressful? Is it helpful? Archives of Internal Medicine, 164(18), 19992004. Available from http://doi.org/10.1001/archinte.164.18.1999.
Gregory D., Russell C.K. & Phillips L.R. (1997). Beyond textual perfection: Transcribers as vulnerable persons. Qualitative Health Research, 7(2), 294300. Available from http://doi.org/10.1177/104973239700700209.
Higginson I.J. (1999). Evidence-based palliative care: There is some evidence—and there needs to be more. British Medical Journal, 319, 462463. Available from http://dx.doi.org/10.1136/bmj.319.7208.462.
Johnson B. & Clarke J.M. (2003). Collecting sensitive data: The impact on researchers. Qualitative Health Research, 13(3), 421434. Available from http://doi.org/10.1177/1049732302250340.
Koenig B.A., Back A.L. & Crawley L.M. (2003). Qualitative methods in end-of-life research: Recommendations to enhance the protection of human subjects. Journal of Pain and Symptom Management, 25(4), S43S52. Available from http://doi.org/10.1016/S0885-3924(03)00060-5.
Lalor J.G., Begley C.M. & Devane D. (2006). Exploring painful experiences: Impact of emotional narratives on members of a qualitative research team. Journal of Advanced Nursing, 56(6), 607616. Available from http://doi.org/10.1111/j.1365-2648.2006.04039.x.
Lee R.M. (1993). Doing research on sensitive topics. London: Sage.
Levac D., Colquhoun H. & O'Brien K.K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5(1), 69. Available from http://doi.org/10.1186/1748-5908-5-69.
Lorenz K.A., Lynn J., Dy S.M., et al. (2008). Evidence for improving palliative care at the end of life: A systematic review. Annals of Internal Medicine, 148(2), 147159. Available from http://doi.org/10.7326/0003-4819-148-2-200801150-00010.
Moher D., Liberati A., Tetzlaff J., et al. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Annals of Internal Medicine, 151(4), 264269. Available from http://doi.org/10.7326/0003-4819-151-4-200908180-00135.
Newbury J. (2011). Reflexivity in a study of family carers in home palliative care: A personal account. Nurse Researcher, 19(1), 3036. Available from http://doi.org/10.7748/nr2011.10.19.1.30.c8769.
Nordentoft H.M. & Kappel N. (2011). Vulnerable participants in health research: Methodological and ethical challenges. Journal of Social Work Practice, 25(3), 365376. Available from http://doi.org/10.1080/02650533.2011.597188.
Price J. & Nicholl H. (2013). Interviewing parents for qualitative research studies: Using an ABCD model to manage the sensitivities and issues. Child Care in Practice, 19(2), 199213. Available from http://doi.org/10.1080/13575279.2012.743870.
Rager K.B. (2005 a). Compassion stress and the qualitative researcher. Qualitative Health Research, 15(3), 423430. Available from http://doi.org/10.1177/1049732304272038.
Rager K.B. (2005 b). Self-care and the qualitative researcher: When collecting data can break your heart. Educational Researcher, 34(4), 2327. Available from http://doi.org/10.3102/0013189X034004023.
Steinhauser K.E. & Barroso J. (2009). Using qualitative methods to explore key questions in palliative care. Journal of Palliative Medicine, 12(8), 725730. Available from http://doi.org/10.1089=jpm.2009.9580.
Woodby L.L., Williams B.R., Wittich A.R., et al. (2011). Expanding the notion of researcher distress: The cumulative effects of coding. Qualitative Health Research, 21(6), 830838. Available from http://doi.org/10.1177/1049732311402095.
Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

Palliative & Supportive Care
  • ISSN: 1478-9515
  • EISSN: 1478-9523
  • URL: /core/journals/palliative-and-supportive-care
Please enter your name
Please enter a valid email address
Who would you like to send this to? *
×

Keywords:

Metrics

Altmetric attention score

Full text views

Total number of HTML views: 6
Total number of PDF views: 56 *
Loading metrics...

Abstract views

Total abstract views: 312 *
Loading metrics...

* Views captured on Cambridge Core between September 2016 - 24th January 2018. This data will be updated every 24 hours.