Aslakson, RA, Schuster, AL, Reardon, J, et al. (2015) Promoting perioperative advance care planning: A systematic review of advance care planning decision aids. Journal of Comparative Effectiveness Research 4, 615–650.10.2217/cer.15.43
Auriemma, CL, Nguyen, CA, Bronheim, R, et al. (2014) Stability of end-of-life preferences: A systematic review of the evidence. JAMA Internal Medicine 174, 1085–1092.10.1001/jamainternmed.2014.1183
Austin, CA, Mohottige, D, Sudore, RL, et al. (2015) Tools to promote shared decision making in serious illness: A systematic review. JAMA Internal Medicine 175, 1213–1221.10.1001/jamainternmed.2015.1679
Baidoobonso, S (2014) Patient care planning discussions for patients at the end of life: An evidence-based analysis. Ontario Health Technology Assessment Series 14, 1–72.
Barclay, JS, Blackhall, LJ, and Tulsky, JA (2007) Communication strategies and cultural issues in the delivery of bad news. Journal of Palliative Medicine 10, 958–977.10.1089/jpm.2007.9929
Bashi, N, Karunanithi, M, Fatehi, F, et al. (2017) Remote monitoring of patients with heart failure: An overview of systematic reviews. Journal of Medical Internet Research 19, e18.10.2196/jmir.6571
Becker, LA and Oxman, AD (2011) Overview of reviews. In Cochrane handbook for systematic reviews of interventions, version 5.1.0, updated March 2011. Higgins, JPT, Green, S (eds.), The Cochrane Collaboration.
Bernacki, RE, Block, SD, and American College of Physicians High Value Care Task Force (2014) Communication about serious illness care goals: A review and synthesis of best practices. JAMA Internal Medicine 174, 1994–2003.10.1001/jamainternmed.2014.5271
Biondo, PD, Lee, LD, Davison, SN, et al. (2016) How healthcare systems evaluate their advance care planning initiatives: Results from a systematic review. Palliative Medicine 23, 23.
Black, AD, Car, J, Pagliari, C, et al. (2011) The impact of eHealth on the quality and safety of health care: A systematic overview. PLoS Medicine 8, e1000387.10.1371/journal.pmed.1000387
Brinkman-Stoppelenburg, A, Rietjens, JA, and van der Heide, A (2014) The effects of advance care planning on end-of-life care: A systematic review. Palliative Medicine 28, 1000–1025.10.1177/0269216314526272
Butler, M, Ratner, E, McCreedy, E, et al. (2014) Decision aids for advance care planning: An overview of the state of the science. Annals of Internal Medicine 161, 408–418.10.7326/M14-0644
Chung, HO, Oczkowski, SJ, Hanvey, L, et al. (2016) Educational interventions to train healthcare professionals in end-of-life communication: A systematic review and meta-analysis. BMC Medical Education 16, 131.10.1186/s12909-016-0653-x
Clarivate Analytics (2016) EndNote X7. Clarivate Analitics; Philadelphia, USA. Available at: https://endnote.com/.
Craig, P, Dieppe, P, Macintyre, S, et al. (2008) Developing and evaluating complex interventions: The new Medical Research Council guidance. BMJ 337, a1655.10.1136/bmj.a1655
De Vleminck, A, Houttekier, D, Pardon, K, et al. (2013) Barriers and facilitators for general practitioners to engage in advance care planning: A systematic review. Scandinavian Journal of Primary Health Care 31, 215–226.10.3109/02813432.2013.854590
Detering, KM, Hancock, AD, Reade, MC, et al. (2010) The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial. BMJ 340, c1345.10.1136/bmj.c1345
Dixon, J, Matosevic, T, and Knapp, M (2015) The economic evidence for advance care planning: Systematic review of evidence. Palliative Medicine 29, 869–884.10.1177/0269216315586659
Durbin, CR, Fish, AF, Bachman, JA, et al. (2010) Systematic review of educational interventions for improving advance directive completion. Journal of Nursing Scholarship 42, 234–241.10.1111/j.1547-5069.2010.01357.x
Fosse, A, Schaufel, MA, Ruths, S, et al. (2014) End-of-life expectations and experiences among nursing home patients and their relatives--a synthesis of qualitative studies. Patient Education & Counseling 97, 3–9.10.1016/j.pec.2014.05.025
Frost, DW, Cook, DJ, Heyland, DK, et al. (2011) Patient and healthcare professional factors influencing end-of-life decision-making during critical illness: A systematic review. Critical Care Medicine 39, 1174–1189.10.1097/CCM.0b013e31820eacf2
Gale, NK, Heath, G, Cameron, E, et al. (2013) Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Medical Research Methodology 13, 117.10.1186/1471-2288-13-117
Gilissen, J, Pivodic, L, Smets, T, et al. (2017) Preconditions for successful advance care planning in nursing homes: A systematic review. International Journal of Nursing Studies 66, 47–59.10.1016/j.ijnurstu.2016.12.003
Gorman, TE, Ahern, SP, Wiseman, J, et al. (2005) Residents' end-of-life decision making with adult hospitalized patients: A review of the literature. Academic Medicine 80, 622–633.10.1097/00001888-200507000-00004
Grant, MJ and Booth, A (2009) A typology of reviews: An analysis of 14 review types and associated methodologies. Health Information Library Journal 26, 91–108.10.1111/j.1471-1842.2009.00848.x
Hall, S, Kolliakou, A, Petkova, H, et al. (2011) Interventions for improving palliative care for older people living in nursing care homes. Cochrane Database of Systematic Reviews (3), CD007132.
Hanson, LC, Tulsky, JA, Danis, M (1997) Can clinical interventions change care at the end of life? Annals of Internal Medicine 126, 381–388.10.7326/0003-4819-126-5-199703010-00007
Harrison Dening, K, Jones, L, and Sampson, EL (2011) Advance care planning for people with dementia: A review. International Psychogeriatrics 23, 1535–1551.10.1017/S1041610211001608
Hickman, SE, Hammes, BJ, Moss, AH, et al. (2005) Hope for the future: achieving the original intent of advance directives. The Hastings Cent Report S26–S30.10.1353/hcr.2005.0093
Hickman, SE, Keevern, E, and Hammes, B (2015) Use of the Physician Orders for Life-Sustaining Treatment program in the clinical setting: A systematic review of the literature. Journal of the American Geriatrics Society 63, 341–350.10.1111/jgs.13248
Houben, CH, Spruit, MA, Groenen, MT, et al. (2014) Efficacy of advance care planning: A systematic review and meta-analysis. Journal of the American Medical Directors Association 15, 477–489.10.1016/j.jamda.2014.01.008
Jain, A, Corriveau, S, Quinn, K, et al. (2015) Video decision aids to assist with advance care planning: A systematic review and meta-analysis. BMJ Open 5, e007491.10.1136/bmjopen-2014-007491
Jethwa, KD and Onalaja, O (2015) Advance care planning and palliative medicine in advanced dementia: a literature review. Bjpsych Bulletin 39, 74–78.10.1192/pb.bp.114.046896
Jezewski, MA, Meeker, MA, Sessanna, L, et al. (2007) The effectiveness of interventions to increase advance directive completion rates. Journal of Aging & Health 19, 519–536.10.1177/0898264307300198
Johnson, KS, Elbert-Avila, KI, and Tulsky, JA (2005) The influence of spiritual beliefs and practices on the treatment preferences of African Americans: A review of the literature. Journal of the American Geriatrics Society 53, 711–719.10.1111/j.1532-5415.2005.53224.x
Johnson, S, Butow, P, Kerridge, I, et al. (2015) Advance care planning for cancer patients: A systematic review of perceptions and experiences of patients, families, and healthcare providers. Psycho-oncology 25, 362-386.10.1002/pon.3926
Kavalieratos, D, Corbelli, J, Zhang, D, et al. (2016) Association between palliative care and patient and caregiver outcomes: A systematic review and meta-analysis. JAMA 316, 2104–2114.10.1001/jama.2016.16840
Ke, LS, Huang, X, O'Connor, M, et al. (2015) Nurses' views regarding implementing advance care planning for older people: A systematic review and synthesis of qualitative studies. Journal of Clinical Nursing 24, 2057–2073.
Kelly, B, Rid, A, and Wendler, D (2012) Systematic review: Individuals' goals for surrogate decision-making. Journal of the American Geriatrics Society 60, 884–895.10.1111/j.1532-5415.2012.03937.x
Khandelwal, N, Kross, EK, Engelberg, RA, et al. (2015). Estimating the effect of palliative care interventions and advance care planning on ICU utilization: A systematic review. Critical Care Medicine 43, 1102–1111.
Kim, H, Deatrick, JA, and Ulrich, CM (2017) Ethical frameworks for surrogates' end-of-life planning experiences. Nursing Ethics 24, 46–69.10.1177/0969733016638145
Kinley, J, Froggatt, K, and Bennett, MI (2013) The effect of policy on end-of-life care practice within nursing care homes: A systematic review. Palliative Medicine 27, 209–220.10.1177/0269216311432899
Kirolos, I, Tamariz, L, Schultz, EA, et al. (2014) Interventions to improve hospice and palliative care referral: A systematic review. Journal of Palliative Medicine 17, 957–964.
Klingler, C, In der Schmitten, J, and Marckmann, G (2016) Does facilitated advance care planning reduce the costs of care near the end of life? Systematic review and ethical considerations. Palliative Medicine 30, 423–433.
Layson, RT, Adelman, HM, Wallach, PM, et al. (1994) Discussions about the use of life-sustaining treatments: A literature review of physicians' and patients' attitudes and practices. End of Life Study Group. Journal of Clinical Ethics 5, 195–203.
Lee, MC, Hinderer, KA, and Kehl, KA (2014) A systematic review of advance directives and advance care planning in Chinese people from eastern and western cultures. Journal of Hospice & Palliative Nursing 16, 75–85.
Lewis, E, Cardona-Morrell, M, Ong, KY, et al. (2016) Evidence still insufficient that advance care documentation leads to engagement of healthcare professionals in end-of-life discussions: A systematic review. Palliative Medicine 30, 807–824.
Lim, CE, Ng, RW, Cheng, NC, et al. (2016) Advance care planning for haemodialysis patients. Cochrane Database System Review 7, CD010737.
LoPresti, MA, Dement, F, and Gold, HT (2016) End-of-life care for people with cancer from ethnic minority groups: A systematic review. American Journal of Hospice & Palliative Medicine 33, 291–305.
Lord, K, Livingston, G, and Cooper, C (2015) A systematic review of barriers and facilitators to and interventions for proxy decision-making by family carers of people with dementia. International Psychogeriatrics 27, 1301–1312.
Lorenz, KA, Lynn, J, Dy, S, et al. (2006) Quality measures for symptoms and advance care planning in cancer: A systematic review. Journal of Clinical Oncology 24, 4933–4938.10.1200/JCO.2006.06.8650
Lorenz, KA, Lynn, J, Dy, SM, et al. (2008) Evidence for improving palliative care at the end of life: A systematic review. Annals of Internal Medicine 148, 147–159.10.7326/0003-4819-148-2-200801150-00010
Lou, S, Carstensen, K, Jorgensen, CR, et al. (2017) Stroke patients' and informal carers' experiences with life after stroke: An overview of qualitative systematic reviews. Disability and Rehabilitation 39, 301–313.
Lovell, A and Yates, P (2014) Advance care planning in palliative care: A systematic literature review of the contextual factors influencing its uptake 2008-2012. Palliative Medicine 28, 1026–1035.10.1177/0269216314531313
Luckett, T, Sellars, M, Tieman, J, et al. (2014) Advance care planning for adults with CKD: A systematic integrative review. American Journal of Kidney Diseases 63, 761–770.
Lum, HD, Sudore, RL, and Bekelman, DB (2015) Advance care planning in the elderly. Medical Clinics of North America 99, 391–403.10.1016/j.mcna.2014.11.010
Lund, S, Richardson, A, and May, C (2015) Barriers to advance care planning at the end of life: An explanatory systematic review of implementation studies. PLoS One 10, e0116629.
Martin, RS, Hayes, B, Gregorevic, K, et al. (2016) The effects of advance care planning interventions on nursing home residents: A systematic review. Journal of the American Medical Directors Association 17, 284–293.
Mays, N and Pope, C (1995) Rigour and qualitative research. BMJ 311, 109–112.10.1136/bmj.311.6997.109
Meeker, MA and Jezewski, MA (2005) Family decision making at end of life. Palliative & Supportive Care 3, 131–142.
Molloy, DW, Guyatt, GH, Russo, R, et al. (2000) Systematic implementation of an advance directive program in nursing homes: A randomized controlled trial. JAMA 283, 1437–1444.
Morrison, RS, Chichin, E, Carter, J, et al. (2005) The effect of a social work intervention to enhance advance care planning documentation in the nursing home. Journal of the American Geriatrics Society 53, 290–294.10.1111/j.1532-5415.2005.53116.x
Mpinga, EK, Chastonay, P, and Rapin, CH (2006) [End of life conflicts in palliative care: a systematic review of the literature]. Recherche en Soins Infirmiers 86, 68–95.
Mularski, RA, Dy, SM, Shugarman, LR, et al. (2007) A systematic review of measures of end-of-life care and its outcomes. Health Services Research 42, 1848–1870.
Mullick, A, Martin, J, and Sallnow, L (2013) An introduction to advance care planning in practice. BMJ 347, f6064.
Murray, L and Butow, PN (2016) Advance care planning in motor neuron disease: A systematic review. Palliative & Supportive Care 14, 411–432.
O'Connor AMRostom, A, Fiset, V, et al. (1999) Decision aids for patients facing health treatment or screening decisions: systematic review. BMJ 319, 731–734.
Oczkowski, SJ, Chung, HO, Hanvey, L, et al. (2016) Communication tools for end-of-life decision-making in ambulatory care settings: A systematic review and meta-analysis. PLoS ONE 11, e0150671.
Oliver, DP, Porock, D, and Zweig, S (2004) End-of-life care in U.S. nursing homes: A review of the evidence. Journal of the American Medical Directors Association 5, 147–155.10.1016/S1525-8610(04)70107-3
Ostherr, K, Killoran, P, Shegog, R, et al. (2016) Death in the digital age: A systematic review of information and communication technologies in end-of-life care. Journal of Palliative Medicine 19, 408–420.
Parry, R, Land, V, and Seymour, J (2014) How to communicate with patients about future illness progression and end of life: A systematic review. BMJ Supportive & Palliative Care 4, 331–341.
Patel, RV, Sinuff, T, and Cook, DJ (2004) Influencing advance directive completion rates in non-terminally ill patients: A systematic review. Journal of Critical Care 19, 1–9.
Petriwskyj, A, Gibson, A, Parker, D, et al. (2014) Family involvement in decision making for people with dementia in residential aged care: A systematic review of quantitative literature. International Journal of Evidence-Based Healthcare 12, 64–86.10.1097/XEB.0000000000000003
Qaseem, A, Snow, V, Shekelle, P, et al. (2008) Evidence-based interventions to improve the palliative care of pain, dyspnea, and depression at the end of life: A clinical practice guideline from the American College of Physicians. Annals of Internal Medicine 148, 141–146.
Rahemi, Z and Williams, CL (2016) Older adults of underrepresented populations and their end-of-life preferences: An integrative review. ANS Advances in Nursing Science 39, E1–E29.
Ramsaroop, SD, Reid, MC, and Adelman, RD (2007). Completing an advance directive in the primary care setting: What do we need for success? Journal of the American Geriatrics Society 55, 277–283.
Raymond, M, Warner, A, Davies, N, et al. (2014) Palliative and end of life care for people with dementia: Lessons for clinical commissioners. Primary Health Care Research & Development 15, 406–417.
Ritchie, J and Lewis, J (2003) Qualitative research practice: A guide for social science students and researchers. London: Sage.
Robinson, L, Dickinson, C, Rousseau, N, et al. (2012) A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age & Ageing 41, 263–269.
Sabatino, CP (2010) The evolution of health care advance planning law and policy. Milbank Quarterly 88, 211–239.
Sanders, JJ, Robinson, MT, and Block, SD (2016) Factors impacting advance care planning among African Americans: Results of a systematic integrated review. Journal of Palliative Medicine 19, 202–227.
Schofield, P, Carey, M, Love, A, et al. (2006) ‘Would you like to talk about your future treatment options’? Discussing the transition from curative cancer treatment to palliative care. Palliative Medicine 20, 397–406.
Sessanna, L and Jezewski, MA (2008) Advance directive decision making among independent community-dwelling older adults: A systematic review of health science literature. Journal of Applied Gerontology 27, 486–510.
Sharp, T, Moran, E, Kuhn, I, et al. (2013) Do the elderly have a voice? Advance care planning discussions with frail and older individuals: A systematic literature review and narrative synthesis. British Journal of General Practice 63, e657–e668.
Shea, BJ, Grimshaw, JM, Wells, GA, et al. (2007) Development of AMSTAR: A measurement tool to assess the methodological quality of systematic reviews. BMC Medical Research Methodology 7, 10.
Siouta, N, van Beek, K, Preston, N, et al. (2016) Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: A systematic literature review of European guidelines and pathways. BMC Palliative Care 15, 18.
Sizoo, EM, Pasman, HR, Dirven, L, et al. (2014) The end-of-life phase of high-grade glioma patients: A systematic review. Supportive Care in Cancer 22, 847–857.
Smith, C, Jaffray, L, and Ellis, I (2013) Electronic advance care planning in community: Nurses' role. Annual Worldwide Nursing Conference (WNC 2013).
Song, K, Amatya, B, Voutier, C, et al. (2016) Advance Care planning in patients with primary malignant brain tumors: A systematic review. Frontiers in Oncology 6, 223.10.3389/fonc.2016.00223
Song, MK (2004) Effects of end-of-life discussions on patients' affective outcomes. Nursing Outlook 52, 118–125.
Sudore, RL, Heyland, DK, Lum, HD, et al. (2017) Outcomes that define successful advance care planning: A Delphi Panel Consensus. Journal of Pain & Symptom Management 55, 245–255.
Sudore, RL, Lum, HD, You, JJ, et al. (2017) Defining advance care planning for adults: A consensus definition from a multidisciplinary Delphi Panel. Journal of Pain & Symptom Management 53, 821–832.
Sumalinog, R, Harrington, K, Dosani, N, et al. (2016) Advance care planning, palliative care, and end-of-life care interventions for homeless people: A systematic review. Palliative Medicine 3, 3.
Tamayo-Velazquez, MI, Simon-Lorda, P, Villegas-Portero, R, et al. (2010) Interventions to promote the use of advance directives: An overview of systematic reviews. Patient Education & Counseling 80, 10–20.10.1016/j.pec.2009.09.027
Taylor, JS, Heyland, DK, and Taylor, SJ (1999) How advance directives affect hospital resource use. Systematic review of the literature. Canadian Family Physician 45, 2408–2413.
The SUPPORT Principal Investigators (1995) A controlled trial to improve care for seriously ill hospitalized patients. The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). The SUPPORT Principal Investigators. JAMA 274, 1591–1598.
Tong, A, Cheung, KL, Nair, SS, et al. (2014) Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD. American Journal of Kidney Diseases 63, 913–927.
van der Steen, JT, van Soest-Poortvliet, MC, Hallie-Heierman, M, et al. (2014) Factors associated with initiation of advance care planning in dementia: A systematic review. Journal of Alzheimer's Disease 40, 743–757.
Walczak, A, Butow, PN, Bu, S, et al. (2016) A systematic review of evidence for end-of-life communication interventions: Who do they target, how are they structured and do they work? Patient Education & Counseling 99, 3–16.
Walling, A, Lorenz, KA, Dy, SM, et al. (2008) Evidence-based recommendations for information and care planning in cancer care. Journal of Clinical Oncology 26, 3896–3902.
Wang, CW and Chan, CL (2015) End-of-life care research in Hong Kong: A systematic review of peer-reviewed publications. Palliative & Supportive Care 13, 1711–1720.
Weathers, E, O'Caoimh, R, Cornally, N, et al. (2016) Advance care planning: A systematic review of randomised controlled trials conducted with older adults. Maturitas 91, 101–109.
Wendler, D and Rid, A (2011) Systematic review: The effect on surrogates of making treatment decisions for others. Annals of Internal Medicine 154, 336–346.
Wicher, CP and Meeker, MA (2012) What influences African American end-of-life preferences? Journal of Health Care for the Poor & Underserved 23, 28–58.10.1353/hpu.2012.0027
Wickson-Griffiths, A, Kaasaleinen, S, Ploeag, J, et al. (2014) A review of advance care planning programs in long-term care homes: Are they dementia friendly? Nursing Research and Practice 2014, 875897.
Zager, BS and Yancy, M (2011) A call to improve practice concerning cultural sensitivity in advance directives: A review of the literature. Worldviews Evidence-Based Nursing 8, 202–211.