Boote, J, Baird, W, Beecraft, C (2009). Public involvement at the design stage of primary health research: A narrative review of case examples. Health Policy 95, 10–23.
Brett, J, Staniszewska, S, Mockford, C (2010). The PIRICOM Study. A systematic review of the conceptualisation, measurement, impact and outcomes of patient and public involvement in health and social care research. United Kingdom Clinical Research Collaboration: London.
Crawford, MJ, Robotham, D, Thana, L, Patterson, S, Weaver, T, Barber, R, Wykes, T, Rose, D (2011). Selecting outcome measures in mental health: the views of service users. Journal of Mental Health 20, 336–346.
Department of Health (Research and Development Directorate) (2006). Best research for best health. A new national health research strategy. Department of Health: London.
Donovan, J, Mills, N, Smith, M, Brindle, L, Jacoby, A, Peters, T, Frankel, S, Neal, D, Hamdy, F, for the Protect Study Group (2002). Improving design and conduct of randomised trials by embedding them in qualitative research: ProtecT (prostate testing for cancer and treatment) study. British Medical Journal 325, 766–769.
Gillard, S, Borschmann, R, Turner, K, Goodrich-Purnell, , Lovell, K, Chambers, M (2010). ‘What difference does it make?’ Finding evidence of the impact of mental health service user researchers on research into the experiences of detained psychiatric patients. Health Expectations 13, 185–194.
Kitcher, P (2001). Science, Truth and Democracy. Oxford University Press: Oxford.
Rose, D, Leese, M, Oliver, D, Sidhu, R, Bennewith, O, Priebe, S, Wykes, T (2011). A comparison of participant information elicited by service user and non-service user researchers. Psychiatric Services 62, 210–213.
Smith, E, Ross, F, Donovan, S, Manthorpe, J, Brearley, S, Sitzia, J, Beresford, P (2008). Service user involvement in nursing, midwifery and health visiting research: a review of evidence and practice. International Journal of Nursing Studies 45, 298–315.
Szmukler, G (2009). Service users in research and a ‘well-ordered science’. Journal of Mental Health 18, 87–90.
Vale, CL, Thompson, LC, Murphy, C, Forcat, S, Hanley, B (2012). Involvement of consumers in studies run by the Medical Research Council Clinical Trials Unit: results of a survey. Trials 13, 9 [open access (http://www.trialsjournal.com/content/13/1/9)].