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Carers and Empowerment in the UK: A Critical Reflection

  • Mary Larkin (a1) and Alisoun Milne (a2)


This article provides a critical reflection on carer empowerment in the UK, an issue which has received limited attention in policy and research. The arena is characterised by considerable conceptual confusion around key terminology, carer, care and caring, and by limited understanding of the meaning and outcomes of carer empowerment. Despite increased national acknowledgment of carers, a politically active carers' movement and a number of policies intended to enhance the recognition and rights of carers, many carers remain invisible and receive little support from services, to the detriment of their own health and well-being. Addressing these challenges, alongside developing a robust theoretical foundation for taking the ‘carers' agenda’ forward, is needed if carers are to move towards a more empowered status in the twenty-first century.



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Adams, R. (2003) Social Work and Empowerment, 3rd edition, London: Palgrave Macmillan.
Adams, R. (2008) Empowerment, Participation and Social Work, 4th edition, London: Palgrave Macmillan.
Ainsworth, M. D. S. and Bowlby, J. (1991) ‘An ethological approach to personality development’, American Psychologist, 46, 4, 331–41.
Anderson, R., Mikulic, B., Vermeylen, G., Lyly-Yrjanainen, M. and Zigante, V. (2009) Second European Quality of Life Survey Overview, Dublin: European Foundation for the Improvement of Living and Working Conditions.
Arksey, H. and Glendinning, C. (2007) ‘Choice in the context of informal care-giving’, Health and Social Care in the Community, 15, 2, 165–75.
Barnes, M. (2006) Caring and Social Justice, Basingstoke: Palgrave Macmillan.
Becker, F. and Becker, S. (2008) Young Adult Carers in the UK: Experiences, Needs and Services for Carers Aged 16–24, London: The Princess Royal Trust for Carers.
Beresford, P. (2007) ‘User involvement, research and health inequalities: developing new directions’, Health and Social Care in the Community, 15, 4, 306–12.
Bowlby, S., McKie, L., Gregory, S. and Macpherson, I. (2010) Interdependency and Care Over the Life Course, Abingdon: Routledge.
Browning, D. (2007) Evaluation of the Self-Directed Support Network: A Review of Progress up to 31st March 2007, London: In Control.
Buckner, L. and Yeandle, S. (2011) Valuing Carers 2011: Calculating the Value of Carers’ Support, London: Carers UK.
Bytheway, B. and Johnson, J. (1998) ‘The social construction of carers’, in Symonds, A. and Kelly, A. (eds.), The Social Construction of Community Care, London: Macmillan, pp. 241–53.
Carers UK (2008) Carers in Crisis, London: Carers UK.
Carers UK (2010) Tipping Point for Care: Time for a New Social Contract, London: Carers UK.
Carers UK (2012a) Facts about Carers, London: Carers UK.
Carers UK (2012b) Future Care: Care and Technology in the 21st Century, London: Carers UK.
Carers UK (2012c) Draft Care and Support Bill, London: Carers UK.
Carr, S. (2010) Personalisation: A Rough Guide, London: Social Care Institute for Excellence.
Chamberlayne, P. and King, A. (2000) Cultures of Care: Biographies of Carers in Britain and the Two Germanies, Bristol: The Policy Press.
Chinn, D. (2011) ‘Critical health literacy: a review and critical analysis’, Social Science and Medicine, 73, 1, 60–7.
Clarke, J. (2005) ‘New Labour's citizens: activated, empowered, responsibilised, abandoned?’, Critical Social Policy, 25, 4, 447–63.
Clarke, N. (2001) ‘Training as a vehicle to empower carers in the community: more than a question of information sharing’, Health and Social Care in the Community, 9, 2, 7988.
Clements, L. (2009) Carers and Their Rights: The Law Relating to Carers, 3rd edition, London: Carers UK.
Dalley, G. (1996) Ideologies of Caring: Rethinking Community and Collectivism, 2nd edition, London: Macmillan.
Department of Health (2007) Putting People First: A Shared Vision and Commitment to the Transformation of Adult Social Care, London: HMSO.
Department of Health (2010a) Recognised, Valued and Supported: Next Steps for the Carers Strategy, London: Department of Health.
Department of Health (2010b) A Vision for Adult Social Care: Capable Communities Active Citizens, London: Department of Health.
Department of Health, Social Services and Public Safety (2006) Caring for Carers, Belfast: Department of Health, Social Services and Public Safety.
Dominelli, L. and Gollins, T. (1997) ‘Men, power and caring relationships’, The Sociological Review, 45, 3, 396415.
Fine, M. and Glendinning, C. (2005) ‘Dependence, independence or inter-dependence? Revisiting the concepts of “care” and “dependence”’, Ageing and Society, 25, 4, 601–21.
Foucault, M. (1977) Discipline and Punishment, Harmondsworth: Penguin.
George, M. (2001) It Could Be You: A Report on the Chances of Becoming a Carer, London: Carers UK.
Gilbert, T. and Powell, J. L. (2010) ‘Power and social work in the United Kingdom: a Foucauldian excursion’, Journal of Social Work, 10, 1, 322.
Glasby, J. and Littlechild, R. (2010) Direct Payments and Personal Budgets: Putting Personalisation into Practice, Bristol: The Policy Press.
Glasby, J., Ham, C., Littlechild, R. and McKay, S. (2010) The Case for Social Care Reform: The Wider Economic and Social Benefits, Birmingham: Health Services Management Centre/Institute of Applied Social Studies.
Glendinning, C., Tjadens, F., Arksey, H., Moree, M., Moran, N. and Nies, H. (2009a) Care Provision within Families and Its Socio-Economic Impact on Care Providers, York: Social Policy Research Unit.
Glendinning, C., Arksey, H., Jon, K., Moran, N., Netten, A. and Rabiee, P. (2009b) The Individual Budgets Pilot Projects: Impact and Outcomes for Carers, York: Social Policy Research Unit.
Hatton, C., Duffy, S., Waters, J., Senker, J., Crosby, N., Poll, C., Tyson, A., Towell, D. and O'Brien, J. (2008) An Evaluation of and Report on in Control's Work 2005–2007, London: In Control.
Health and Social Care Information Centre (2010a) The Survey of Carers in Households, 2009/10 England,
Health and Social Care Information Centre (2010b) Personal Social Services Survey of Adult Carers in England, 2009–10,
HM Government (1995) Carers (Recognition and Services) Act, London: The Stationery Office.
HM Government (1999) Caring about Carers: A National Strategy for Carers, London: The Stationery Office.
HM Government (2005) Disability Discrimination Act, London: The Stationery Office
HM Government (2008) Carers at the Heart of 21st-Century Families and Communities: A Caring System on Your Side, London: The Stationery Office.
HM Government (2012) Draft Care and Support Bill, London: The Stationery Office.
HM Treasury and Department for Education and Skills (DfSE) (2007) Aiming High for Children: Supporting Families, London: HM Treasury.
Hockey, J. and James, A. (2002) Social Identities across the Life Course, Basingstoke: Palgrave Macmillan.
Hudson, B. (2005) ‘Sea change or quick fix? Policy on long-term conditions in England’, Health and Social Care in the Community, 13, 4, 378–85.
Hughes, G. (1998) ‘A suitable case for treatment? Constructions of disability’, in Saraga, E. (ed.), Embodying the Social: Constructions of Difference, London: Routledge.
Humphries, R. (2011) Social Care Funding and the NHS: An Impending Crisis?, London: Kings Fund.
King, D. and Pickard, L. (2013) ‘When is a carer's employment at risk? Longitudinal analysis of unpaid care and employment in midlife in England’, Health and Social Care in the Community, 21, 3, 303–14.
Kittay, E. F. (1999) Love's Labor: Essays on Women, Equality, and Dependency, London: Routledge.
Knapp, M. (2012) ‘Welcome from our Director’, in School for Social Care Research, Supporting the Future of Social Care through Research, London: NIHR School for Social Care Research.
Kumpers, S., Mur, I., Maarse, H. and van Raak, A. (2005) ‘A comparative study of dementia care in England and the Netherlands using neo-institutionalist perspectives’, Qualitative Health Research, 15, 9, 1199–230.
Larkin, M. (2012a) What about the carers?’, in Lloyd, C. E. and Heller, T. D. (eds.), Long Term Conditions: Challenges in Health and Social Care, London: Sage Publications.
Larkin, M. (2012b) ‘Working with vulnerable people: experiences of disability’, in Lloyd, C. E. and Heller, T. D. (eds.), Long Term Conditions: Challenges in Health and Social Care, London: Sage Publications.
Larkin, M. and Dickinson, H. (2011) ‘Personalisation: what will the impacts be for carers?’, Third Sector Research Centre Working Paper 64,
Larkin, M., Richardson, E.-L. and Tabreman, J. (2012) ‘New partnerships in health and social care for an era of public spending cuts’, Health and Social Care in the Community, 20, 2, 199207.
Laverack, G. (2005) Public Health: Power, Empowerment and Professional Practice, Basingstoke: Palgrave Macmillan.
Lloyd, L. (2006) ‘Call us carers: limitations and risks in campaigning for recognition and exclusivity’, Critical Social Policy, 26, 4, 945–54.
Lloyd, R. E. (2010) ‘The individual in social care: the ethics of care and the personalisation agenda in services for older people in England’, Ethics and Social Welfare, 4, 2, 188200.
Lyon, D. (2010) ‘Intersections and boundaries of work and non-work’, European Societies, 12, 2, 163–85.
Manthorpe, J., Rapaport, J. and Stanley, N. (2009) ‘Expertise and experience: people with experiences of using services and carers’ views of the Mental Capacity Act 2005’, British Journal of Social Work, 39, 5, 884900.
Matka, E., River, D., Littlechild, R. and Powell, T. (2010) ‘Involving service users and carers in admissions for courses in social work and clinical psychology: cross-disciplinary comparison of practices at the University of Birmingham’, British Journal of Social Work, 40, 7, 2137–54.
McGarry, J. (2008) ‘Defining roles, relationships, boundaries and participation between elderly people and nurses within the home: an ethnographic study’, Health and Social Care in the Community, 17, 1, 8391.
Means, R., Richards, S. and Smith, R. (2008) Community Care: Policy and Practice, 4th edition, Basingstoke: Palgrave Macmillan.
Milne, A. (2010) ‘Dementia screening and early diagnosis: the case for and against’, Health, Risk and Society, 12, 1, 6576.
Milne, A. and Hatzidimitriadou, E. (2003) ‘Isn't he wonderful? Exploring the contribution and conceptualisation of older husbands as carers’, Ageing International, 28, 4, 389408.
Milne, A. and Williams, J. (2003). Women at the Crossroads: A Literature Review of the Mental Health Risks Facing Women in Mid-Life, London: Mental Health Foundation.
Milne, A., Palmer, A., Brigden, C. and Konta, E. (2012) ‘The intersection of work and care: evidence from a local case study’, European Journal of Social Work, DOI: 10.1080/13691457.2012.724388.
Molyneaux, V., Butchard, S., Simpson, J. and Murray, C. (2010) ‘Reconsidering the term “carer”: a critique of the universal adoption of the term “carer”’, Ageing and Society, 31, 3, 422–37.
Moran, N., Arksey, H., Glendinning, C., Jones, K., Netten, A. and Rabiee, P. (2012) ‘Personalisation and carers: whose rights? Whose benefits?’, British Journal of Social Work, 42, 3, 461–79.
Morris, J. (2001) ‘Impairment and disability: constructing an ethics of care which promotes human rights’, Hypatia, 16, 4, 116.
Morris, J. (2005) Citizenship and Disabled People: A Scoping Paper Prepared for the Disability Rights Commission, London: DRC.
Niblett, P. (2011) Personal Social Services Adult Social Care Survey, England 2010–11, Leeds: Health and Social Care Information Centre.
Nolan, M. R., Davies, S., Brown, J., Keady, J. and Nolan, J. (2004) ‘Beyond “person-centred” care: a new vision for gerontological nursing’, International Journal of Older People Nursing in Association with Journal of Clinical Nursing, 13, 3a, 4553.
O'Connor, D. (2007) ‘Self-identifying as a caregiver: exploring the positioning process’, Journal of Aging Studies, 21, 2, 165–74.
Oliver, M. (1996) Understanding Disability: From Theory to Practice, Basingstoke: Palgrave Macmillan.
Oliver, M. (2004) ‘If I had a hammer: the social model in action’, in J. Swain, French, S., Barnes, C. and Thomas, C. (eds.), Disabling Barriers, Enabling Environments, London: Sage.
Parker, G. (1985) With Due Care and Attention: A Review of Research on Informal Care, London: Family Policy Studies Centre.
Parker, G. (1995) Where Next for Research on Carers?, Leicester: Nuffield Community Care Studies Unit, University of Leicester.
Pease, B. (2002) ‘Rethinking empowerment: a postmodern reappraisal for emancipatory practice’, British Journal of Social Work, 32, 2, 135–47.
Pickard, L. (2008) Informal Care for Older People Provided by Their Adult Children: Projections of Supply and Demand to 2041 in England, Report to the Strategy Unit and Department of Health, Canterbury: Personal Social Services Research Unit.
Priestly, M. (2010) Disability: A Lifecourse Approach, Cambridge: Polity Press.
Rapaport, J. and Manthorpe, J. (2008) ‘Family matters: developments concerning the role of the nearest relative and social worker’, British Journal of Social Work, 38, 6, 1115–31.
Ray, M., Bernard, M. and Phillips, J. (2009) Critical Issues in Social Work with Older People, Basingstoke: Palgrave Macmillan.
Ridley, J., Hunter, S. and Rosengard, A. (2010) ‘Partners in care? Views and experiences of carers from a cohort study of the early implementation of the Mental Health (Care and Treatment) (Scotland) Act 2003’, Health and Social Care in the Community, 18, 5, 474–82.
Robinson, L., Iliffe, S., Brayne, C., Goodman, C., Rait, G., Manthorpe, J., Ashley, P. and Moniz-Cook, E. (2010) ‘Primary care and dementia: 2. Long-term care at home: psychosocial interventions, information provision, carer support and case management’, International Journal of Geriatric Psychiatry, 25, 7, 657–64.
Rosenthal, C. J., Martin-Matthews, A. and Keefe, J. M. (2007) ‘Care management and care provision for older relatives amongst employed informal care-givers’, Ageing and Society, 27, 5, 755–78.
Roulstone, A. and Hudson, V. (2007) ‘Carer participation in England, Wales and Northern Ireland: a challenge for inter-professional working’, Journal of Interprofessional Care, 21, 3, 303–17.
Royal College of General Practitioners (2011) Supporting Carers: An Action Guide for General Practitioners and Their Teams, London: Royal College of General Practitioners.
Scottish Government (2010) Caring Together: The Carers Strategy for Scotland 2010–2015, Edinburgh: Scottish Government.
Seabrooke, V. and Milne, A. (2004) Culture and Care in Dementia: A Study of the Asian Community in North West Kent, London: Mental Health Foundation.
Sevenhuijsen, S. (1998) Citizenship and the Ethics of Care: Feminist Considerations of Justice, Morality and Politics, London: Routledge.
Shakespeare, T. and Watson, N. (2001) ‘The social model of disability: an outmoded ideology’, in Barnartt, S. N. and Altman, B. M. (eds.), Research in Social Science and Disability, Volume 2 – Exploring Theories and Expanding Methodologies: Where We Are and Where We Need to Go, New York: Elsevier Science, pp. 928.
Smith, R. (2008) Social Work and Power, Basingstoke: Palgrave Macmillan.
Social Care Institute for Excellence (2011) At a Glance 50: Reimbursements and Payments for Service User Involvement, London: Social Care Institute for Excellence.
Social Care Institute for Excellence (2012) The Involvement of Service Users and Carers in Social Work Education: A Practice Bench Marking Study, London: Social Care Institute for Excellence.
Stalker, K. (ed.) (2003) Reconceptualising Work with Carers: New Directions for Policy and Practice, London: Jessica Kingsley.
Symonds, A. and Kelly, A. (eds.) (1998) The Social Construction of Community Care, Basingstoke: Macmillan.
Tronto, J. C. (1993) Moral Boundaries: A Political Argument for an Ethic of Care, London: Routledge.
Twigg, J. (2006) The Body in Health and Social Care, Basingstoke: Palgrave Macmillan.
Twigg, J., Atkin, K. and Perring, C. (1990) Carers and Services: A Review of Research, London: HMSO.
Ungerson, C. (1983) ‘Why do women care?’, in Finch, J. and Groves, D. A. (eds.), Labour of Love: Women, Work and Caring, London: Routledge & Kegan Paul.
Walmsley, J. (1993) ‘Contradictions in caring: reciprocity and interdependence’, Disability, Handicap and Society, 8, 2, 129–41.
Warren, J. (2007) ‘Young carers: conventional or exaggerated levels of involvement in domestic and caring tasks?’, Children and Society, 21, 2, 136–46.
Welsh Government (2000) Caring about Carers: A Strategy for Carers in Wales and Associated Implementation Plan, Cardiff: Welsh Government.
White, C. (2013) 2011 Census Analysis: Unpaid Care in England and Wales, 2011 and Comparison with 2001, London: Office for National Statistics.
Yeandle, S. and Buckner, L. (2007) Carers, Employment and Services: Time for a New Social Contract?, CES Report No. 6, London: Carers UK.
Young, T. J., Manthorp, C., Howells, D. and Tullo, E. (2011) ‘Developing a carer communication intervention to support personhood and quality of life in dementia’, Ageing and Society, 31, 6, 1003–25.


Carers and Empowerment in the UK: A Critical Reflection

  • Mary Larkin (a1) and Alisoun Milne (a2)


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