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Bereavement and grief in adults with learning disabilities

  • Sheila Hollins (a1) and Alexander Esterhuyzen (a1)



This paper reports the results of the first systematic study of the reaction of people with learning disabilities to bereavement.


A sample of 5O parent-bereaved people with learning disabilities was compared with a matched control group of 50 non-bereaved people. A semi-structured bereavement questionnaire was used along with the following instruments: the Aberrant Behaviour Checklist (ABC), the Psychopathology Instrument for Mentally Retarded Adults (PIMRA) and the Life Events Checklist.


Highly significant differences are demonstrated between bereaved and non-bereaved samples on both the total scores and most of the subscores of the ABC and PIMRA. Staff and carers did not usually attribute behaviour problems to the bereavement and its concomitant life events, nor was there a recognition of psychopathology due to bereavement.


The impact in terms of psychiatric and behavioural morbidity of loss of a parent, with its concomitant life events, in adults with learning disabilities has been underestimated.


Corresponding author

Department of Psychiatry of Disability, St George's Hospital Medical School, Cranmer Terrace, London SWI7 0RE, Fax: 0181 672 1070; e-mail:


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Aman, M. G., Singh, N. N., Stewart, A. W., et al (1985) The Aberrant Behaviour Checklist: a behaviour rating scale for the assessment of treatment effects. American Journal of Mental Deficiency, 89, 485491.
Bicknell, J. (1983) The psychopathology of handicap. British Journal of Medical Psychology, 56, 167178.
Brelstaff, K. (1984) Reactions to death: can the mentally handicapped grieve: the experience of some who did. Teaching and Training, 22, 117.
Farmer, R., Rohde, J. & Sacks, B. (1993) Changing Services for People with Learning Disabilities. London: Chapman & Hall.
Fraser, W. I., Leudar, I., Gray, J., et al (1985) Psychiatric and behavioural disturbance in mental handicap. Journal of Mental Deficiency Research, 30, 4957.
Helsel, W. J. & Matson, J. L. (1988) The relationship of depression to social skills and intellectual functioning in mentally retarded adults. Journal of Mental Deficiency Research, 32, 411418.
Hollins, S. & Sireling, L. (1991) Working through Loss with People who have Learning Disability. Windsor: NFER-Nelson.
Kloeppel, D. A. & Hollins, S. (1989) Double handicap: mental retardation and death in the family. Death Studies, 13, 3138.
McLoughlin, I. J. (1986) Care of the dying. Bereavement in the mentally handicapped. British Journal of Hospital Medicine, 36, 256260.
Matson, J. L. (1988) The PIMRA Manual. Orland Park. IL: International Diagnostic Systems. Inc.
Matson, J. L., Kazdin, A. E. & Senatore, V. (1984) Psychometric properties of the Psychopathology Instrument for Mentally Retarded Adults. Applied Research in Mental Retardation, 5, 8189.
Oswin, M. (1991) Am I Allowed to Cry? A Study of Bereavement amongst People who have Learning Difficulties. London: Human Horizons.
Parkes, C. M. (1972) Bereavement: Studies of Grief in Adult Life. London: Penguin.
Reiss, S., Levitan, G. W. & Szyszko, J. (1982) Emotional disturbance and mental retardation: diagnostic oversha-dowing. American Journal of Mental Deficiency, 86, 567574.
Sovner, R. & Lowry, M. (1991) The functional significance of problems behaviour: a key to effective treatment. The Habilitative Mental Healthcare Newsletter, 10, 5963.
Stack, L., Haldipur, M. D. & Thompson, M. (1987) Stressful life events and psychiatric hospitalisation of mentally retarded patients. American Journal of Psychiatry, 144, 661663.
Stroebe, M. S., Stroebe, W. & O'Hansson, R. (1993) Handbook of Bereavement: Theory, Research and Intervention. Cambridge: Cambridge University Press

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Bereavement and grief in adults with learning disabilities

  • Sheila Hollins (a1) and Alexander Esterhuyzen (a1)


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