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Best-Practice Guideline on the Prevention of Abuse and Neglect of Older Adults

Published online by Cambridge University Press:  18 April 2016

Sandra P. Hirst*
Affiliation:
University of Calgary – Faculty of Nursing
Tasha Penney
Affiliation:
Registered Nurses’ Association of Ontario
Susan McNeill
Affiliation:
Registered Nurses’ Association of Ontario
Veronique M. Boscart
Affiliation:
Conestoga College Institute of Technology and Advanced Learning
Elizabeth Podnieks
Affiliation:
Ryerson University
Samir K. Sinha
Affiliation:
Mt. Sinai Hospital, Toronto
*
La correspondance et les demandes de tirés-à-part doivent être adressées à : / Correspondence and requests for offprints should be sent to: Sandra P. Hirst, R.N., Ph.D., GNC(C) University of Calgary Faculty of Nursing 25 University Dr. NW Calgary, AB T2N 1N4 (shirst@ucalgary.ca)
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Abstract

A systematic review of the literature was conducted to identify effective approaches to preventing and addressing abuse and neglect of older adults within health care settings in Canada. The review was conducted using databases searched from January 2000–April-May 2013. Additionally, expert panel members submitted article citations from personal archives. Two research associates (NRA) screened each title and abstract for inclusion. After inter-rater reliability was determined between the NRAs (Kappa score of 0.76), the records were divided, appraised, and data extracted independently. The review resulted in 62 studies that focused on identifying, assessing, and responding to abuse and neglect of older adults; education, prevention, and health promotion strategies; and organizational and system-level supports to prevent and respond to abuse and neglect. Abuse and neglect of older adults remains under-explored in terms of evidence-based studies; consequently, further research in all of the areas described in the results is needed.

Résumé

Une revue systématique de la littérature a été effectuée afin d’identifier des moyens efficaces pour prévenir et combattre l’abus et la négligence envers les adultes âgés dans les établissements de soins de santé au Canada. L’examen a été fait en utilisant les bases de données qui ont été recherchés à partir de janvier 2000 à avril / mai 2013. En outre, les membres des groupes d’experts ont présenté les citations d’articles tirés des archives personnelles. Deux associés de recherche infirmier (ARI) ont selectionné chaque titre et chaque résumé pour l’inclusion. Après le coefficient d’objectivité a été déterminé entre les ARI (score Kappa de 0,76), les dossiers ont été divisés, évalués et les données extraites indépendamment. L’examen a révélé 62 études portant sur l’identification, l’évaluation et la réponse à l’abus et la négligence des personnes âgées; stratégies d’éducation, de prévention et de promotion de la santé; et soutien organisationnel au niveau du système pour prévenir et combattre ce type de maltraitance et de négligence. L’abus et la négligence envers les aînés demeure peu exploré en termes d’études fondées sur des preuves; par conséquent, il faut davantage de recherche dans tous les domaines décrites.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2016 

Background

The past few decades have seen a substantial increase in the awareness and understanding, and the personal and societal costs, related to the abuse and neglect of older adults in Canadian society. Supporting this has been substantial growth in research studies, specific to the incidence, prevalence, causation, and detection of abuse and neglect of older adults. In Canada, it is currently estimated that the prevalence of abuse and neglect ranges from between 4 and 10 per cent among those aged 65 and older, although some researchers believe this may still underestimate an often hidden issue within our society (Brennan, Reference Brennan2009; Canadian Centre for Justice Statistics, 2002; Podnieks, Pillemer, Nicholson, Shillington, & Frizze, Reference Podnieks, Pillemer, Nicholson, Shillington and Frizze1990; Pottie-Bunge, Reference Pottie-Bunge, Pottie-Bunge and Locke2000).

The World Health Organization (WHO) (2000a, 2000b) has been influential in establishing a commonly used definition of abuse: “a single, or repeated act, or lack of appropriate action, occurring within any relationship where there is an expectation of trust which causes harm or distress to an older person” (p. 126). The United Nations International Plan of Action (2002) adopted in Madrid recognized the importance of addressing abuse and neglect of older adults and incorporated it within its framework for universal human rights.

Authorities or key stakeholder organizations in every Canadian jurisdiction, with the exception of Nunavut, have adopted a definition of abuse and neglect of older adults. The National Seniors Council of Canada (2007) identified that abuse may take numerous forms: financial, physical, emotional or psychological, sexual, systemic, spiritual, and neglect. Subsequently, the National Initiative for the Care of the Elderly (2012) in Canada developed through consensus building the following definition, “Mistreatment of older adults refers to actions/behaviours or lack of actions/behaviours that cause harm or risk of harm within a trust relationship” (McDonald, L., Beaulieu, M. et al. Reference McDonald and Beaulieu2012, p. 4).

Although health care providers are well positioned to recognize abuse and neglect against older adults, the level of reporting of these types of cases is believed to be substantially lower than its true incidence (Almogue, Weiss, Marcus, & Beloosesky, Reference Almogue, Weiss, Marcus and Beloosesky2010; Bond & Butler, Reference Bond and Butler2013; Polkastro & Payne, Reference Polkastro and Payne2014; Schmeidel, Daly, Rosenbaum, Schmuch, & Jogerst, Reference Schmeidel, Daly, Rosenbaum, Schmuch and Jogerst2012). Potential barriers to recognizing and reporting abuse and neglect of older adults include their reluctance to acknowledge the abuse, health care professionals’ limited knowledge, a lack of protocols to identify abuse, fear of liability, and the small number of services available to support older adults in these situations (Rodriguez, Wallace, Woolf, & Mangione, Reference Rodriguez, Wallace, Woolf and Mangione2006; Taylor, Bachuwa, Evans, & Jackson-Johnson, Reference Taylor, Bachuwa, Evans and Jackson-Johnson2006; Wei & Herbers, Reference Wei and Herbers2004).

Furthermore, until recently, there existed no comprehensive clinical guidelines for preventing and addressing abuse and neglect of older adults applicable to the Canadian context. One of the reasons for this deficit is that the current body of research in this area is underdeveloped, related to the lack of development of theoretical models to understand abuse and neglect of older adults. A theory provides an explanation of why something happens the way it does; abuse and neglect are complex and multilayered experiences that require robust theoretical frameworks to guide an understanding as well as actions to address these concerns. Explanations as to why the field of abuse and neglect of older adults has been devoid of guiding theories include the fact that (a) abuse and neglect of older adults has only within the past several decades gained national attention, (b) recognition is limited at organizational and governmental levels of a need to support theory development, and (c) the field has tended to support the belief that caregiver stress sufficiently explains the occurrence of abuse and neglect in this population group.

In this article, we present the findings from a systematic review that we conducted to synthesize current research evidence on effective approaches to address and prevent abuse and neglect of older adults. The purpose of the review was to inform the development of a best-practice guideline specific to this health challenge. Linking evidence-based guidelines to practice facilitates high-quality nursing and health care for older clients. The purpose of this guideline is to disseminate evidence-based recommendations to clinicians in health care settings that are providing services to older adults, as well as health system administrators and policy makers.

Methods

Developing a search strategy requires a structured approach. As Gillespie and Gillespie (Reference Gillespie and Gillespie2003) wrote, “Start by framing a simple question … this can be refined to specify all the concepts of interest to the … condition” (p. 139). The question will influence the selection of the search terms.

Expert Panel Creation and Selection of Guiding Questions for the Systematic Review

In 2012, the Registered Nurses’ Association of Ontario (RNAO) invited a broad group of experts to serve on an expert panel that would help inform and guide the development of the best-practice guideline. In total, 12 subject matter experts ranging from fields as diverse as nursing, medicine, social work, law, patient advocacy, education, and research formed the expert panel. The panel helped derive the following questions to guide the subsequent literature search that informed the systematic review.

  1. 1. What are the most effective ways for nurses (and other health care providers) to identify and assess for abuse and neglect of older adults?

  2. 2. What are the most effective ways for nurses (and other health care providers) to respond to the abuse and neglect of older adults?

  3. 3. What education do nurses (and other health care providers) need to effectively address abuse and neglect of older adults?

  4. 4. What prevention and health promotion strategies are recommended regarding abuse and neglect of older adults?

  5. 5. What organizational policies and system level supports are required to effectively prevent and address abuse and neglect of older adults (living in facilities and community settings)?

Data Sources and Search Strategy

A comprehensive search strategy was developed through an iterative process between a health sciences librarian and the RNAO’s research team consisting of two nursing research associates (NRA) and a master’s-level-prepared nurse manager. Two literature searches were conducted by the librarian in the following databases: Cumulative Index to Nursing and Allied Health (CINAHL), Cochrane Controlled Trials (CT), Cochrane Systematic Reviews (SR), Database of Abstracts of Reviews of Effectiveness (DARE), Embase, Joanna Briggs Institute, Medline, Medline in Progress, Ovid Healthstar, and PsycINFO. We conducted the first search to select literature published between January 2000 and April 2013 and focused on the question, What are the most effective ways for nurses (and other health care providers) to identify, assess, and respond to abuse and neglect of older adults? The second search was conducted from January 2000–May 2013 and focused on the question, what are the most effective ways to prevent and address abuse and neglect of older adults (living in facilities and community settings)?

Keywords and subject headings relating to the abuse and neglect of older adults were used in each database. Search terms included but were not limited to the following: older adult, mistreatment, risk factor, screening, abuse, education, and best practices. As a generic term, “abuse” was selected because it was more generic in scope versus individual types of abuse being used as search terms. Terms were used alone and in combination. Expert panel members were also asked to review personal libraries to identify records. These were included if the two NRAs independently determined that the records had not been identified by the literature search and met the inclusion criteria. Results from all databases and records submitted were exported into bibliographic management software and merged to form a single database; duplicate citations were removed.

Study Selection and Quality Appraisal Process

The research team, in collaboration with the expert panel, developed inclusion and exclusion criteria . Inclusion criteria included (a) primary focus on abuse and neglect of older adults; (b) population aged 55 and older; (c) published in English or French in a peer-reviewed journal; (d) relevant to the scope of nursing, any health setting, or sector; and (e) records accessible for retrieval, any study type. Commentaries, dissertations, letters to the editor, editorials, papers less than one page in length, and study designs protocols were excluded.

Two NRAs independently screened each title and abstract of the records retrieved according to inclusion and exclusion criteria. Full text of the included records was then assessed for relevance according to the same a priori criteria used for the initial review. Any discrepancies arising throughout the screening process (between NRAs) were resolved by the program manager. The NRA determined inter-rater reliability by independently quality appraising 10 per cent of the included full-text records. Once a sufficient kappa score (κ = 0.76) was achieved, the remaining studies were divided equally between the NRA for independent quality appraisal and data extraction (Fleiss, Levin, & Paik, Reference Fleiss, Levin and Paik2003).

Appraisal tools were selected based on study design and included Critical Appraisal Skills Programme (CASP) for randomized control trials, qualitative studies, and observational studies; Assessing the Methodological Quality of Systematic Reviews (AMSTAR) for systematic reviews; Quasi-experimental Tool adapted from Cochrane Public Health (n.d.) for quasi-experimental studies; and Evaluation Tool for Mixed Methods studies for studies employing more than one type of research method (Long, Godfrey, Randall, Brettle, & Grant, Reference Long, Godfrey, Randall, Brettle and Grant2002). Using the appropriate tool, we scored each study and gave it an overall score that reflected the study’s quality. Quality ratings included strong, moderate, or weak (see Table 1). Although quality rating tools as measures of article merit are still evolving, they nonetheless provide a method of quality assurance to the systematic review process.

Table 1: Quality rating of evidence specific to research question

a Studies (n = 62) that are applicable to multiple thematic categories

TOTAL QA SCORES:

Weak = 21

Moderate = 31

Strong = 10

Data Extraction and Analysis

From all records selected for full-text review, we extracted data for information on authors, study type, purpose, data collection methods, measures, data analysis, results, conclusions, and limitations. Data extraction tables were organized according to the identified search question and further organized by study type (see Table 1). The results of all studies were grouped into a thematic table, which we used to organize and summarize findings. The table outlined the main findings found among the results, conclusions of the study, and an explanation of the findings that aligned with the research question.

Results

Identification of Eligible Studies

The literature search returned 20,475 records, including 12 records submitted by the panel members. This was reduced to 13,064 records after removing duplicates, and further reduced to 816 records after we applied the inclusion and exclusion criteria to the abstracts.

Review of these articles resulted in 84 records that met the inclusion criteria, of which an additional 22 records were excluded based on their lack of applicability to the initial search questions. Of the 62 studies that met the overall inclusion criteria, quality appraisals resulted in 10 rated as strong, 31 as moderate, and 21 as weak. Weak studies were included in the review if the findings aligned with stronger studies and together formed a common theme, or to support the discussions of recommendations in the best-practice guideline (see Table 2). Figure 1 summarizes the records analysed as part of the review process.

Table 2: Summary of research questions, citations, and quality rating specific to the research questions explored in the study

n = 62 citations (some studies are applicable to multiple research questions)

Figure 1: Identification of the 62 eligible studies found in the literature review for determining a best-practice guideline for preventing the abuse and neglect of older adults. Flow diagram adapted from “Preferred Reporting Items for Systematic Reviews and Meta-analyses: The PRISMA Statement,” by D. Moher, A. Liberati, J. Tetzlaff, D. G. Altman, and The PRISMA Group, Reference Moher, Liberati, Tetzlaff and Altman2009, British Medical Journal, 339, p. b2535

The following is a summary of results according to the five guiding questions

Identifying and Assessing For Abuse and Neglect of Older Adults

Descriptive/observational and qualitative studies form the bulk of studies and reviews for identifying and assessing abuse and neglect. Six studies identified various markers, types, and risk factors associated with abuse and neglect of older adults (Davies et al., Reference Davies, Harries, Cairns, Stanley, Gilhooly and Gilhooly2011; Goergen, Reference Goergen2004; Lindbloom, Brandt, Hough, & Meadows, Reference Lindbloom, Brandt, Hough and Meadows2007; Murphy, Waa, Jaffer, Sauter, & Chan, Reference Murphy, Waa, Jaffer, Sauter and Chan2013; Perez-Carceles et al., Reference Perez-Carceles, Rubio, Pereniguez, Perez-Flores, Osuna and Luna2009; Wiglesworth et al., Reference Wiglesworth, Austin, Corona, Schneider, Liao and Gibbs2009). The main approaches to identify and assess for abuse and neglect of older adults (a) use combined and multi-faceted approaches to assess for abuse and neglect (Cohen, Reference Cohen2011; Cohen, Levin, Gagin, & Friedman, Reference Cohen, Levin, Gagin and Friedman2007; Fulmer et al., Reference Fulmer, Firpo, Guadagno, Easter, Kahan and Paris2003; Sandmoe, Reference Sandmoe2007); (b) conduct screening in acute (e.g., emergency department) and subacute (e.g., rehabilitation care) health care settings (Joubert & Posenelli, Reference Joubert and Posenelli2009); (c) routinely ask about abuse with direct questioning (Cohen, Halevy-Levin, Gagin, Prilutzky, & Friedman, Reference Cohen, Halevy-Levin, Gagin, Prilutzky and Friedman2010; Tetterton & Farnsworth, Reference Tetterton and Farnsworth2011); and (d) utilize the skills of an expert assessment team (Fulmer et al., Reference Fulmer, Firpo, Guadagno, Easter, Kahan and Paris2003). One study indicated that there is a lack of evidence to determine if screening for abuse reduces harm (Caldwell, Gilden, & Mueller, Reference Caldwell, Gilden and Mueller2013). The majority of the studies specific to this question were of weak quality.

Responding to the Abuse and Neglect of Older Adults

Despite the fact that two studies indicated insufficient evidence to support any particular intervention for nurses and other health care providers to respond to abuse and neglect of older adults (Cooper, Blanchard, Selwood, Walker, & Livingston, Reference Cooper, Blanchard, Selwood, Walker and Livingston2010; Ploeg, Fear, Hutchison, MacMillan, & Bolan, Reference Ploeg, Fear, Hutchison, MacMillan and Bolan2009), three important features did emerge, including (a) individualizing the intervention to the older adult (Sandmoe & Kirkevold, Reference Sandmoe and Kirkevold2013; Sandmoe, Kirkevold, & Ballantyne (Reference Sandmoe, Kirkevold and Ballantyne2011); (b) utilizing multipronged and varied strategies (e.g., education and referrals) (Begley, O’Brien, Anand, Killick, & Taylor, Reference Begley, O’Brien, Anand, Killick and Taylor2012; Zink, Jacobson, Regan, & Pabst, Reference Zink, Jacobson, Regan and Pabst2004); and (c) implementing interventions acceptable to the older adult, family, and caregivers (Nahmiash & Reis, Reference Nahmiash and Reis2000; Selwood, Cooper, Owens, Blanchard, & Livingston, Reference Selwood, Cooper, Owens, Blanchard and Livingston2009; Vladescu, Eveleigh, Ploeg, & Patterson, Reference Vladescu, Eveleigh, Ploeg and Patterson2000). Emotionally supportive, culturally considerate, and patient-centred approaches with a harm reduction focus were favoured in the literature (Beaulieu & Leclerc, Reference Beaulieu and Leclerc2006; Cripps, Reference Cripps2001; Lithwick, Beaulieu, Gravel, & Straka, Reference Lithwick, Beaulieu, Gravel and Straka2000; Tetterton & Farnsworth, Reference Tetterton and Farnsworth2011). Effectively responding to the abuse and neglect of older adults requires an interprofessional, collaborative, and coordinated approach (Clancy, McDaid, O’Neill, & O’Brien, Reference Clancy, McDaid, O’Neill and O’Brien2011; Harbison, Coughlan, Karabanow, & VanderPlaat, Reference Harbison, Coughlan, Karabanow and VanderPlaat2005; Heath, Kobylarz, Brown, & Castano, Reference Heath, Kobylarz, Brown and Castano2005; Killick & Taylor, Reference Killick and Taylor2009; Wiglesworth, Mosqueda, Burnight, Younglove, & Jeske, Reference Wiglesworth, Mosqueda, Burnight, Younglove and Jeske2006). Overall, the majority of the studies specific to this question were of moderate to weak quality.

Education Needed to Effectively Address Abuse and Neglect of Older Adults

Three issues we identified that related to the education of health care providers were (a) a knowledge and training deficit around the abuse and neglect of older adults (i.e., how to recognize abuse, how to respond appropriately, laws related to reporting abuse) (Almogue et al., Reference Almogue, Weiss, Marcus and Beloosesky2010; Podnieks, Anetzberger, Wilson, Teaster, & Wangmo, Reference Podnieks, Anetzberger, Wilson, Teaster and Wangmo2010; Richardson, Kitchen, & Livingston, Reference Richardson, Kitchen and Livingston2002; Saliga, Adamowicz, Logue, & Smith, Reference Saliga, Adamowicz, Logue and Smith2004); (b) a hesitancy to report abuse and neglect even after education is provided (McCool, Jogerst, Daly, & Xu, Reference McCool, Jogerst, Daly and Xu2009); and (c) a gap between knowledge and practice in that education may increase knowledge about abuse but may not affect health ca1re provider behaviour (i.e., asking about or responding to abuse) (Jogerst, Daly, Dawson, Brinig, & Schmuch, Reference Jogerst, Daly, Dawson, Brinig and Schmuch2003). The literature on older adult abuse education programs have shown mixed results regarding their effectiveness, mainly whether the education programs lead to an increase in knowledge, assessment skills, and reporting of abuse and neglect by health care providers (Alt, Nguyen, & Meurer, Reference Alt, Nguyen and Meurer2011; Jogerst et al., Reference Jogerst, Daly, Dawson, Brinig and Schmuch2003; Mills et al., Reference Mills, Roush, Moye, Kunik, Wilson and Taffet2012; Teresi et al., Reference Teresi, Ramirez, Ellis, Silver, Boratgis and Kong2013; Wong & Marr, Reference Wong and Marr2002).

Despite these limitations and challenges, it is agreed in the literature that effective educational programs are needed so that health care providers have the knowledge to address abuse and neglect of older adults (Ko & Koh, Reference Ko and Koh2012; Meeks-Sjostrom, Reference Meeks-Sjostrom2013). Specifically, education programs should address four key elements: (1) discuss ethical issues involved with abuse (Beaulieu & Leclerc, Reference Beaulieu and Leclerc2006; Rodriguez et al., Reference Rodriguez, Wallace, Woolf and Mangione2006; Winterstein (Reference Winterstein2012); (2) specify professional and legal responsibilities of health care providers when abuse and neglect is suspected or known (Killick & Taylor, Reference Killick and Taylor2009; Malmedal, Hammervold, & Saveman, Reference Malmedal, Hammervold and Saveman2009; Schmeidel et al., Reference Schmeidel, Daly, Rosenbaum, Schmuch and Jogerst2012); (3) use various training strategies focused on increasing knowledge in addressing abuse (Dow et al., Reference Dow, Hempton, Cortes-Simonet, Ellis, Koch and Logiudice2013; Cooper, Selwood, & Livingston, Reference Cooper, Selwood and Livingston2009; Zink et al., Reference Zink, Jacobson, Regan and Pabst2004), and (4) modify attitudes that condone abuse (Shinan-Altman & Cohen, Reference Shinan-Altman and Cohen2009). The majority of the studies specific to this question were of moderate quality.

Prevention and Health Promotion Strategies

Prevention and health promotion strategies targeted the older adult, the abusive caregiver, and the public. Strategies concerning older adults included community activities and supports that enable older people to disclose concerns and access assistance if needed. Examples include (a) implementing a rights-focused advocacy model to empower older adults to overcome abuse and (b) arranging for home-based supportive services, volunteer/buddy advocates, and the involvement of faith communities, community outreach, and support groups (Begley et al., Reference Begley, O’Brien, Anand, Killick and Taylor2012; Cripps, Reference Cripps2001; Nahmiash & Reis, Reference Nahmiash and Reis2000; Proehl, Reference Proehl2012; Wolf, Reference Wolf2001). Strategies for the abusive caregiver included programs specifically targeting abusers (i.e., counselling to minimize stress, education, anger management), and education about caregiving for older adults with cognitive impairments such as dementia (Hsieh, Wang, Yen, & Liu, Reference Hsieh, Wang, Yen and Liu2009; Koch & Nay, Reference Koch and Nay2003; Reay & Browne, Reference Reay and Browne2002). Finally, suggested prevention strategies addressed public education about abuse and neglect of older adults, the rights of older adults, how to protect oneself from abuse, and awareness campaigns about abuse and neglect of older adults (Jogerst, Daly, & Ingram, Reference Jogerst, Daly and Ingram2001). The majority of the studies specific to this question were of moderate quality.

Organizational Policies and System Level Supports

Six strategies emerged that underline how organizations and government systems can target abuse and neglect of older adults. These were (a) developing abuse/neglect of older adults assessment teams (Fulmer et al., Reference Fulmer, Firpo, Guadagno, Easter, Kahan and Paris2003; Heath et al., Reference Heath, Kobylarz, Brown and Castano2005; Lawrence & Banerjee, Reference Lawrence and Banerjee2010; Mosqueda, Burnight, Liao, & Kemp, Reference Mosqueda, Burnight, Liao and Kemp2004; Teaster, Nerenberg, & Stansbury, Reference Teaster, Nerenberg and Stansbury2003; Wiglesworth et al., Reference Wiglesworth, Mosqueda, Burnight, Younglove and Jeske2006); (b) improving working conditions in nursing homes (Goergen, Reference Goergen2004; Shinan-Altman & Cohen, Reference Shinan-Altman and Cohen2009); (c) supporting the supervision, tracking, and monitoring of abuse in nursing homes (Lindbloom et al., Reference Lindbloom, Brandt, Hough and Meadows2007; Malmedal et al., Reference Malmedal, Hammervold and Saveman2009; McCool et al., Reference McCool, Jogerst, Daly and Xu2009; Phillips & Ziminski, Reference Phillips and Ziminski2012; Schmeidel et al., Reference Schmeidel, Daly, Rosenbaum, Schmuch and Jogerst2012); (d) providing funding for abuse programs/services (Jogerst et al., Reference Jogerst, Daly and Ingram2001; Podnieks et al., Reference Podnieks, Anetzberger, Wilson, Teaster and Wangmo2010); (e) developing policies and protocols for responding and for training; and (f) creating supports for health care providers (Buzgova & Ivanova, Reference Buzgova and Ivanova2009; Ko, & Koh, Reference Ko and Koh2012; Sandmoe & Kirkevold, Reference Sandmoe and Kirkevold2013; Sandmoe et al., Reference Sandmoe, Kirkevold and Ballantyne2011).The literature pointed out the challenges and outcomes of mandatory reporting laws and policies (Saliga et al., Reference Saliga, Adamowicz, Logue and Smith2004). Health care providers are not always aware of mandatory reporting laws and policies or how to enforce them. However, even after education is provided, not all providers comply for various reasons (e.g., not wanting to tell on a colleague) (Jogerst et al., Reference Jogerst, Daly, Dawson, Brinig and Schmuch2003; Rodriguez et al., Reference Rodriguez, Wallace, Woolf and Mangione2006). The majority of the studies specific to this question were of moderate quality.

Discussion

When reviewing a substantive body of evidence on a particular topic, it is important that the reviewers understand there is often a large degree of variability in the quality of existing research studies. Indeed, for our systematic review, the quality of the studies we reviewed significantly varied across the results, with only a few appraised as strong studies. The majority of these high-quality studies focused on describing abuse and neglect of older adults; very few focused on what could be done at the individual practitioner level and none at the organization level. This contributes to a number of concerns regarding the evidence that can inform us concerning this important issue.

There was no clear consensus on the definition and measurement of abuse among older adults. Differences in the prevalence of abuse or neglect and its components using the various definitions, both within and between populations of older adults, indicate that caution is required when comparing findings from different studies. Determining the significance of these differences will require prospective outcome studies. This lack of consistency will contribute to whether older adults are recognized as being abused. Indeed, a lack of consistent identification methods means that some older adults will not be identified and referred to appropriate services even as the abuse may continue.

Our review further indicated a lack of evidence to determine if screening for abuse actually reduces its occurrence; this was supported by the U.S. Preventive Services Task Force recommendation statement (2013), based on a systematic review of screening tools, that there is insufficient evidence about the benefits and harms of screening tools and raises doubts about their accuracy and effectiveness. Insufficient evidence also exists supporting the effectiveness of interventions to respond to abuse and neglect. There is a growing interest in providing intervention services for older victims of abuse along the lines of those developed for abused women. Emergency shelters and support groups specifically aimed at older abused adults are relatively new. However, few intervention programs have been formally evaluated, and it is not possible to say which approaches have been most effective.

Perhaps the most hurtful form of abuse against older adults, found in our review, lies generally in the negative attitudes held towards them. As long as older people are devalued by society, they will remain highly susceptible to all forms of abuse. Public awareness campaigns and educational initiatives are key to educating Canadians about abuse and neglect of older adults. Education is a fundamental preventive strategy and should be targeted to practitioners in the various relevant disciplines and to the public. Yet very little is known about the effectiveness of professional education and even less about public awareness campaigns to increase awareness and prevent abuse and neglect of older adults.

To continue to strengthen research evidence and related programs and policies, intervention strategies should be embedded in a rigorous research agenda. Future research should focus on understanding the effectiveness of different tools used to identify and assess for abuse and neglect and intervention approaches, and what works best in addressing this issue among the diversity of cultural groups in Canada.

Arising from the findings are areas rich for further investigation specific to abuse and neglect of older adults. Efforts to mobilize social action against this serious concern at an organizational, provincial/territorial, and national level – and efforts to develop legislation and policy initiatives – are at varying stages of development. However, there is no evidence to support their effectiveness or to indicate the true extent of the problem. Findings indicate a significant lack of available data to inform health policy. The determinants of health might provide a broad and inclusive framework in which to situate awareness, prevention, early detection, and effective intervention specific to the abuse and neglect of older adults, since economic and social factors contribute to their occurrence.

It is the authors’ perspective that enhanced understanding of the causes and consequences of abuse and neglect of older adults will contribute to its eventual elimination. Intergenerational practices that develop from abuse and neglect experiences within families need to be explored: Do they contribute to the experiences, or do they prevent them from developing? Children and youth are part of families, and we observed that clearly missing from the literature was an understanding of young people’s experiences with abuse and neglect of older family members, as well as around opportunities to engage them in ways that limit abuse and neglect.

Limitations of this Systematic Review

The methodology in conducting this systematic review is consistent with others published in recent years. Despite reviewing 13,064 English and French language records and relying on our expert panel to suggest others that we may have missed, the possibility remains that other records related to abuse and neglect of older adults were not identified and reviewed. Although the grey literature, including reporting guidelines, may have provided an alternative means for thinking about abuse and neglect, it was beyond the scope of this systematic literature review.

Conclusion

Abuse and neglect of older adults is a health and societal problem that occurs across a diverse range of settings and is likely more prevalent than is officially reported. It places a significant burden on older adults, in addition to that which is placed on health care providers, the health care system, and governments. This systematic review identified current evidence on effective approaches for addressing and preventing the abuse and neglect of older adults. However, it is clear that further research is needed to continue to articulate the evidence upon which actions must be taken to address abuse and neglect of older adults.

References

Almogue, A., Weiss, A., Marcus, E. L., & Beloosesky, Y. (2010). Attitudes and knowledge of medical and nursing staff toward elder abuse. Archives of Gerontology & Geriatrics, 51(1), 8691.CrossRefGoogle ScholarPubMed
Alt, K. L., Nguyen, A. L., & Meurer, L. N. (2011). The effectiveness of educational programs to improve recognition and reporting of elder abuse and neglect: A systematic review of the literature. Journal of Elder Abuse & Neglect, 23, 213233.CrossRefGoogle ScholarPubMed
Beaulieu, M., & Leclerc, N. (2006). Ethical and psychosocial issues raised by the practice in cases of mistreatment of older adults. Journal of Gerontological Social Work, 46, 161186.CrossRefGoogle ScholarPubMed
Begley, E., O’Brien, M., Anand, J., Killick, C., & Taylor, B. (2012). Older people’s views of support services in response to elder abuse in communities across Ireland. Quality in Ageing & Older Adults, 13(1), 4859.CrossRefGoogle Scholar
Bond, M. C., & Butler, K. H. (2013). Elder abuse and neglect: Definition, epidemiology, and approaches to emergency department screening. Clinics in Geriatric Medicine, 29(1), 257273. doi: 10.1016/j.cger.2012.09.004CrossRefGoogle ScholarPubMed
Brennan, S. (2009). Victimization of older Canadians. Ottawa, ON: Statistics Canada. Retrieved from http://www.statcan.gc.ca/pub/85-002-x/2012001/article/11627-eng.htmGoogle Scholar
Buzgova, R., & Ivanova, K. (2009). Elder abuse and mistreatment in residential settings. Nursing Ethics, 16, 110126.CrossRefGoogle ScholarPubMed
Caldwell, H., Gilden, G., & Mueller, M. (2013). Elder abuse screening instruments in primary care: An integrative review. Clinical Geriatrics, 21(1), 2025.Google Scholar
Canadian Centre for Justice Statistics. (2002). Family violence in Canada: A statistical profile. Ottawa, ON: Author.Google Scholar
Clancy, M., McDaid, B., O’Neill, D., & O’Brien, J. G. (2011). National profiling of elder abuse referrals. Age and ageing, 40, 346352.CrossRefGoogle ScholarPubMed
Cochrane Public Health. (n.d.). Unit eight: Principles of critical appraisal. Retrieved February 1, 2000 from http://ph.cochrane.org/sites/ph.cochrane.org/files/uploads/Unit_Eight.pdfGoogle Scholar
Cohen, M. (2011). Screening tools for the identification of elder abuse. Journal of Clinical Outcomes Management, 18(6), 261270.Google Scholar
Cohen, M., Halevy-Levin, S., Gagin, R., Prilutzky, D., & Friedman, G. (2010). Elder abuse in long-term care residences and the risk indicators. Ageing & Society, 30, 10271040.CrossRefGoogle Scholar
Cohen, M., Levin, S. H., Gagin, R., & Friedman, G. (2007). Elder abuse: Disparities between older people’s disclosure of abuse, evident signs of abuse, and high risk of abuse. Journal of the American Geriatrics Society, 55, 12241230.CrossRefGoogle ScholarPubMed
Cooper, C., Blanchard, M., Selwood, A., Walker, Z., & Livingston, G. (2010). Family carers’ distress and abusive behaviour: Longitudinal study. British Journal of Psychiatry, 196, 480485.CrossRefGoogle ScholarPubMed
Cooper, C., Selwood, A., & Livingston, G. (2009). Knowledge, detection, and reporting of abuse by health and social care professionals: A systematic review. The American Journal of Geriatric Psychiatry, 17, 826838.CrossRefGoogle ScholarPubMed
Cripps, D. (2001). Rights focused advocacy and elder abuse. Australasian Journal on Ageing, 20(1), 1722.CrossRefGoogle Scholar
Davies, M., Harries, P., Cairns, D., Stanley, D., Gilhooly, M., Gilhooly, K., et al. (2011). Factors used in the detection of elder financial abuse: A judgement and decision-making study of social workers and their managers. International Social Work, 54, 404420.CrossRefGoogle Scholar
Dow, B., Hempton, C., Cortes-Simonet, E. N., Ellis, K. A., Koch, S. H., Logiudice, D., et al. (2013). Health professionals’ and students’ perceptions of elder abuse. Australasian Journal on Ageing, 32(1), 4851.CrossRefGoogle ScholarPubMed
Fleiss, J. L., Levin, B., Paik, M. C. (2003). Statistical Methods for Rates and Proportions (3rd ed.). Hoboken, NJ: John Wiley & Sons.CrossRefGoogle Scholar
Fulmer, T., Firpo, A., Guadagno, L., Easter, T. M., Kahan, F., & Paris, B. (2003). Themes from a grounded theory analysis of elder neglect assessment by experts. Gerontologist, 43, 745752.CrossRefGoogle ScholarPubMed
Gillespie, L. D., & Gillespie, W. J. (2003). Finding current evidence: Search strategies and common databases. Clinical Orthopedics and Related Research. 413, 133145.CrossRefGoogle Scholar
Goergen, T. (2004). A multi-method study on elder abuse and neglect in nursing homes. Journal of Adult Protection, 6(3), 1525.CrossRefGoogle Scholar
Harbison, J., Coughlan, S., Karabanow, J., & VanderPlaat, M. (2005). A clash of cultures: Rural values and service delivery to mistreated and neglected older people in Eastern Canada. Practice, 17, 229246.CrossRefGoogle Scholar
Heath, J. M., Kobylarz, F. A., Brown, M., & Castano, S. (2005). Interventions from home-based geriatric assessments of adult protective service clients suffering elder mistreatment. Journal of the American Geriatrics Society, 53, 15381542.CrossRefGoogle ScholarPubMed
Hirst, S. P. (2002). Defining resident abuse within the culture of long-term care institutions. Clinical Nursing Research, 11, 267284.CrossRefGoogle ScholarPubMed
Hsieh, H. F., Wang, J. J., Yen, M., & Liu, T. T. (2009). Educational support group in changing caregivers’ psychological elder abuse behavior toward caring for institutionalized elders. Advances in Health Sciences Education, 14, 377386.CrossRefGoogle ScholarPubMed
Jogerst, G. J., Daly, J. M., Dawson, J. D., Brinig, M. F., & Schmuch, G. A. (2003). Required elder abuse education for Iowa mandatory reporters. Journal of Elder Abuse & Neglect, 15(1), 5973.CrossRefGoogle Scholar
Jogerst, G., Daly, J. M., & Ingram, J. (2001). National elder abuse questionnaire: Summary of adult protective service investigator responses. Journal of Elder Abuse & Neglect, 13(4), 5971.CrossRefGoogle Scholar
Joubert, L., & Posenelli, S. (2009). Responding to a “window of opportunity”: The detection and management of aged abuse in an acute and subacute health care setting. Social Work in Health Care, 48, 702714.CrossRefGoogle Scholar
Killick, C., & Taylor, B. J. (2009). Professional decision making on elder abuse: Systematic narrative review. Journal of Elder Abuse & Neglect, 21, 211238.CrossRefGoogle ScholarPubMed
Ko, C., & Koh, C. K. (2012). Factors related to Korean nurses’ willingness to report suspected elder abuse. Asian Nursing Research, 6, 115119.CrossRefGoogle ScholarPubMed
Koch, S., & Nay, R. (2003). Reducing abuse of older people with dementia and their carers. Australasian Journal on Ageing, 22, 191195.CrossRefGoogle Scholar
Lawrence, V., & Banerjee, S. (2010). Improving care in care homes: A qualitative evaluation of the Croydon care home support team. Aging & Mental Health, 14, 416424.CrossRefGoogle Scholar
Lindbloom, E. J., Brandt, J., Hough, L. D., & Meadows, S. E. (2007). Elder mistreatment in the nursing home: A systematic review. Journal of the American Medical Directors Association, 8, 610616.CrossRefGoogle ScholarPubMed
Lithwick, M., Beaulieu, M., Gravel, S., & Straka, S. M. (2000). The mistreatment of older adults: Perpetrator-victim relationships and interventions. Journal of Elder Abuse & Neglect, 11(4), 95112.CrossRefGoogle ScholarPubMed
Long, A. F., Godfrey, M., Randall, T., Brettle, A., & Grant, M. J. (2002). HCPRDU Evaluation tool for mixed methods. Leeds, England: University of Leeds, Nuffield Institute for Health. Retrieved from http://usir.salford.ac.uk/13070/Google Scholar
McDonald, L., Beaulieu, M., et al. (2012). Defining and measuring elder abuse and neglect. Synthesis of preparatory work required to measure the prevalence of abuse and neglect of older adults in Canada. Ottawa, ON: Human Resources and Social Development Canada (HRSDC).Google Scholar
Malmedal, W., Hammervold, R., & Saveman, B. -I. (2009). To report or not report? Attitudes held by Norwegian nursing home staff on reporting inadequate care carried out by colleagues. Scandinavian Journal of Public Health, 37, 744750.CrossRefGoogle ScholarPubMed
McCool, J. J., Jogerst, G. J., Daly, J. M., & Xu, Y. (2009). Multidisciplinary reports of nursing home mistreatment. Journal of the American Medical Directors Association, 10, 174180.CrossRefGoogle ScholarPubMed
Meeks-Sjostrom, D. J. (2013). Clinical decision making of nurses regarding elder abuse. Journal of Elder Abuse & Neglect, 25, 149161.CrossRefGoogle ScholarPubMed
Mills, W. L., Roush, R. E., Moye, J., Kunik, M. E., Wilson, N. L., Taffet, G. E., et al. (2012). An educational program to assist clinicians in identifying elder investment fraud and financial exploitation. Gerontology & Geriatrics Education, 33, 351363.CrossRefGoogle ScholarPubMed
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & The PRISMA Group. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. British Medical Journal, 339, b2535. doi: 10.1136/bmj.b2535CrossRefGoogle ScholarPubMed
Mosqueda, L., Burnight, K., Liao, S., & Kemp, B. (2004). Advancing the field of elder mistreatment: A new model for integration of social and medical services. The Gerontologist. 44, 703708.CrossRefGoogle ScholarPubMed
Murphy, K., Waa, S., Jaffer, H., Sauter, A., & Chan, A. (2013). A literature review of findings in physical elder abuse. Canadian Association of Radiologists Journal, 64(1), 1014.CrossRefGoogle ScholarPubMed
Nahmiash, D., & Reis, M. (2000). Most successful intervention strategies for abused older adults. Journal of Elder Abuse & Neglect, 12(3/4), 5370.CrossRefGoogle Scholar
National Seniors Council of Canada. (2007). Report of the National Seniors Council on Elder Abuse. Retrieved from http://www.seniorscouncil.gc.ca/eng/research_publications/elder_abuse/2007/hs4_38/page00.shtml Ottawa, ON: Government of Canada.Google Scholar
Perez-Carceles, M. D., Rubio, L., Pereniguez, J. E., Perez-Flores, D., Osuna, E., & Luna, A. (2009). Suspicion of elder abuse in south eastern Spain: The extent and risk factors. Archives of Gerontology and Geriatrics, 49(1), 132137.CrossRefGoogle ScholarPubMed
Phillips, L. R., & Ziminski, C. (2012). The public health nursing role in elder neglect in assisted living facilities. Public Health Nursing, 29, 499509.CrossRefGoogle ScholarPubMed
Ploeg, J., Fear, J., Hutchison, B., MacMillan, H., & Bolan, G. (2009). A systematic review of interventions for elder abuse. Journal of Elder Abuse & Neglect, 21, 187210.CrossRefGoogle ScholarPubMed
Podnieks, E., Anetzberger, G. J., Wilson, S. J., Teaster, P. B., & Wangmo, T. (2010). WorldView environmental scan on elder abuse. Journal of Elder Abuse & Neglect, 22, 164179.CrossRefGoogle ScholarPubMed
Podnieks, E., Pillemer, K., Nicholson, J. P., Shillington, T., & Frizze, A. (1990). National survey on abuse of the elderly in Canada: The Ryerson Study. Toronto, ON: Ryerson Polytechnical Institute.Google Scholar
Polkastro, C., & Payne, B. K. (2014). Assessing the level of elder abuse knowledge preprofessionals possess: Implications for the further development of university curriculum. Journal of Elder Abuse & Neglect, 26(1), 230.Google Scholar
Pottie-Bunge, V. (2000). Abuse of older adults by family members. In Pottie-Bunge, V., & Locke, D. (Eds.). Family violence in Canada: A statistical profile (pp. 2730). Ottawa, ON: Statistics Canada.Google Scholar
Proehl, R. A. (2012). Protecting our elders: An interfaith coalition to address elder abuse. Journal of Religion, Spirituality & Aging, 24, 249266.CrossRefGoogle Scholar
Reay, A. M. C., & Browne, K. D. (2002). The effectiveness of psychological interventions with individuals who physically abuse or neglect their elderly dependents. Journal of Interpersonal Violence, 17(4), 416431.CrossRefGoogle Scholar
Richardson, B., Kitchen, G., & Livingston, G. (2002). The effect of education on knowledge and management of elder abuse: A randomized controlled trial. Age and Ageing, 31, 335341.CrossRefGoogle ScholarPubMed
Rodriguez, M. A., Wallace, S. P., Woolf, N. H., & Mangione, C. M. (2006). Mandatory reporting of elder abuse: Between a rock and a hard place. Annals of Family Medicine, 4, 403409.CrossRefGoogle Scholar
Saliga, S., Adamowicz, C., Logue, A., & Smith, K. (2004). Physical therapists’ knowledge of physical elder abuse-signs, symptoms, laws, and facility protocols. Journal of Geriatric Physical Therapy, 27(1), 310.CrossRefGoogle Scholar
Sandmoe, A. (2007). How well can standardized instruments help nurses to identify abuse of older people? A literature review. Nordic Journal of Nursing Research & Clinical Studies, 27(2), 48.CrossRefGoogle Scholar
Sandmoe, A., & Kirkevold, M. (2013). Identifying and handling abused older clients in community care: The perspectives of nurse managers. International Journal of Older People Nursing, 8, 8392.CrossRefGoogle ScholarPubMed
Sandmoe, A., Kirkevold, M., & Ballantyne, A. (2011). Challenges in handling elder abuse in community care. An exploratory study among nurses and care coordinators in Norway and Australia. Journal of Clinical Nursing, 20, 33513363.CrossRefGoogle ScholarPubMed
Schmeidel, A. N., Daly, J. M., Rosenbaum, M. E., Schmuch, G. A., & Jogerst, G. J. (2012). Health care professionals’ perspectives on barriers to elder abuse detection and reporting in primary care settings. Journal of Elder Abuse & Neglect, 24(1), 1736.CrossRefGoogle ScholarPubMed
Selwood, A., Cooper, C., Owens, C., Blanchard, M., & Livingston, G. (2009). What would help me stop abusing? The family carer’s perspective. International Psychogeriatrics, 21, 309313.CrossRefGoogle ScholarPubMed
Shinan-Altman, S., & Cohen, M. (2009). Nursing aides’ attitudes to elder abuse in nursing homes: The effect of work stressors and burnout. Gerontologist, 49, 674684.CrossRefGoogle ScholarPubMed
Taylor, D. K., Bachuwa, G., Evans, J., & Jackson-Johnson, V. (2006). Assessing barriers to the identification of elder abuse and neglect: A communitywide survey of primary care physicians. Journal of the National Medical Association, 98, 403404.Google Scholar
Teaster, P. B., Nerenberg, L., & Stansbury, K. L. (2003). A national look at elder abuse multidisciplinary teams. Journal of Elder Abuse & Neglect, 15, 91107.CrossRefGoogle Scholar
Teresi, J. A., Ramirez, M., Ellis, J., Silver, S., Boratgis, G., Kong, J., et al. (2013). A staff intervention targeting resident-to-resident elder mistreatment (R-REM) in long-term care increased staff knowledge, recognition and reporting: Results from a cluster randomized trial. International Journal of Nursing Studies, 50, 644656.CrossRefGoogle ScholarPubMed
Tetterton, S., & Farnsworth, E. (2011). Older women and intimate partner violence: Effective interventions. Journal of Interpersonal Violence, 26, 29292942.CrossRefGoogle ScholarPubMed
United Nations. (2002). Political declaration and Madrid International plan of action on ageing. New York, NY: Author. Retrieved from http://www.un.org/en/events/pastevents/pdfs/Madrid_plan.pdfGoogle Scholar
U.S. Preventive Services Task Force. (2013, April). Screening for intimate partner violence and abuse of elderly and vulnerable adults: Recommendation statement. American Family Physician, 87(8). http://www.aafp.org/afp/2013/0415/od3.htmlGoogle Scholar
Vladescu, D., Eveleigh, K., Ploeg, J., & Patterson, C. (2000). An evaluation of a client-centered case management program for elder abuse. Journal of Elder Abuse & Neglect, 11(4), 522.CrossRefGoogle ScholarPubMed
Wei, G. S., & Herbers, G. E. (2004). Reporting elder abuse: A medical, legal, and ethical overview. Journal of the American Medical Women’s Association, 58, 248254.Google Scholar
World Health Organization (WHO). (2000a). The Toronto Declaration on the Global prevention of elder abuse. Geneva, Switzerland: World Health Organization. Retrieved from http://www.who.int/ageing/projects/elder_abuse/alc_toronto_declaration_en.pdfGoogle Scholar
World Health Organization (WHO). (2000b). The world report on violence and health. Geneva, Switzerland: Author. Retrieved from http://www.who.int/violence_injury_prevention/violence/world_report/en/introduction.pdfGoogle Scholar
Wiglesworth, A., Austin, R., Corona, M., Schneider, D., Liao, S., Gibbs, L., et al. (2009). Bruising as a marker of physical elder abuse. Journal of the American Geriatrics Society, 57, 11911196.CrossRefGoogle ScholarPubMed
Wiglesworth, A., Mosqueda, L., Burnight, K., Younglove, T., & Jeske, D. (2006). Findings from an elder abuse forensic center. Gerontologist, 46, 277283.CrossRefGoogle ScholarPubMed
Winterstein, T. B. (2012). Nurses’ experiences of the encounter with elder neglect. Journal of Nursing Scholarship, 44(1), 5562.CrossRefGoogle ScholarPubMed
Wolf, R. S. (2001). Support groups for older victims of domestic violence. Journal of Women & Aging, 13(4), 7183.CrossRefGoogle ScholarPubMed
Wong, C., & Marr, S. (2002). Factors influencing health-care professionals in identifying and managing elder abuse: A preliminary report. Geriatrics Today: Journal of the Canadian Geriatrics Society, 5, 3447.Google Scholar
Zink, T., Jacobson, J., Regan, S., & Pabst, S. (2004). Hidden victims: The healthcare needs and experiences of older women in abusive relationships. Journal of Women’s Health, 13, 898908.CrossRefGoogle ScholarPubMed
Figure 0

Table 1: Quality rating of evidence specific to research question

Figure 1

Table 2: Summary of research questions, citations, and quality rating specific to the research questions explored in the study

Figure 2

Figure 1: Identification of the 62 eligible studies found in the literature review for determining a best-practice guideline for preventing the abuse and neglect of older adults. Flow diagram adapted from “Preferred Reporting Items for Systematic Reviews and Meta-analyses: The PRISMA Statement,” by D. Moher, A. Liberati, J. Tetzlaff, D. G. Altman, and The PRISMA Group, 2009, British Medical Journal, 339, p. b2535