Hostname: page-component-76fb5796d-9pm4c Total loading time: 0 Render date: 2024-04-25T11:36:52.424Z Has data issue: false hasContentIssue false
  • English
  • Français

Improving peri-operative psychosocial interventions for children with autism spectrum disorder undergoing ENT procedures

Published online by Cambridge University Press:  30 September 2020

R Fahy ,
M Corbett  and
I Keogh
R Fahy*
Affiliation:
Department of Otorhinolaryngology, Head and Neck Surgery, University Hospital Galway, and Academic Department of Otorhinolaryngology, School of Medicine, National University of Ireland, Galway, Ireland
M Corbett
Affiliation:
Department of Otorhinolaryngology, Head and Neck Surgery, University Hospital Galway, and Academic Department of Otorhinolaryngology, School of Medicine, National University of Ireland, Galway, Ireland
I Keogh
Affiliation:
Department of Otorhinolaryngology, Head and Neck Surgery, University Hospital Galway, and Academic Department of Otorhinolaryngology, School of Medicine, National University of Ireland, Galway, Ireland
*
Author for correspondence: Dr Ronan Fahy, Cregclare, Ardrahan, Galway, Ireland E-mail: ronanfahy@rcsi.com
Get access Rights & Permissions [Opens in a new window]

Abstract

Objectives

Children with autism spectrum disorder face a broad range of communication and sensory challenges. Many of these children also have chronic ENT issues. This study aims to better understand these challenges and improve our services for children with autism spectrum disorder.

Methods

Questionnaires and semi-structured interviews were carried out with parents of children with autism spectrum disorder.

Results

Thirty-four individuals participated, comprising 9 caregivers and 25 staff members. All parents recognised their critical roles in understanding their children's special needs and sensitivities. Parents and staff stressed the importance of a partnership role that inquired about unique needs, leading to environmental modifications for individual children.

Conclusion

The importance of listening to and involving caregivers is a fundamental tenet; parents must be recognised as the experts. Uncertainty must be kept to a minimum, with clear communication in a structured, low-arousal environment for these children. We have listened to parents and staff, and developed a social story.

Keywords

Autism Spectrum DisorderInterviewPerioperative CarePsychosocial Support Systems
Type
Main Articles
Information
The Journal of Laryngology & Otology , Volume 134 , Issue 9 , September 2020 , pp. 838 - 844
Copyright
Copyright © JLO (1984) Limited, 2020

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

Dr R Fahy takes responsibility for the integrity of the content of the paper

References

American Psychiatric Publishing. Diagnostic and Statistical Manual of Mental Disorders, 5th edn. Arlington, VA: American Psychiatric Publishing, 2013Google Scholar
Maenner, M, Shaw, K, Baio, J, Washington, A, Patrick, M, DiRienzo, M et al. Prevalence of autism spectrum disorder among children aged 8 years – Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2016. MMWR Surveill Summ 2020;69:1–12CrossRefGoogle ScholarPubMed
Elsabbagh, M, Divan, G, Koh, Y, Kim, Y, Kauchali, S, Marcín, C et al. Global prevalence of autism and other pervasive developmental disorders. Autism Res 2012;5:160–79CrossRefGoogle ScholarPubMed
Hansen, S, Schendel, D, Parner, E. Explaining the increase in the prevalence of autism spectrum disorders: the proportion attributable to changes in reporting practice. JAMA Pediatr 2015;169:56–62CrossRefGoogle Scholar
Hayes, J, Ford, T, Rafeeque, H, Russell, G. Clinical practice guidelines for diagnosis of autism spectrum disorder in adults and children in the UK: a narrative review. BMC Psychiatry 2018;18:222CrossRefGoogle ScholarPubMed
Baio, J, Wiggins, L, Christensen, D, Maenner, M, Daniels, J, Warren, Z et al. Prevalence of autism spectrum disorder among children aged 8 years – Autism And Developmental Disabilities Monitoring Network, 11 sites, United States, 2014. MMWR Surveill Summ 2018;67:1–2310.15585/mmwr.ss6706a1CrossRefGoogle ScholarPubMed
Adams, D, Susi, A, Erdie-Lalena, C, Gorman, G, Hisle-Gorman, E, Rajnik, M et al. Otitis media and related complications among children with autism spectrum disorders. J Autism Dev Disord 2016;46:1636–42CrossRefGoogle ScholarPubMed
Miyazaki, C, Koyama, M, Ota, E, Swa, T, Amiya, R, Mlunde, L et al. Allergies in children with autism spectrum disorder: a systematic review and meta-analysis. Rev J Autism Dev Disord 2015;2:374–401CrossRefGoogle Scholar
Thom, R, Keary, C, Palumbo, M, Ravichandran, C, Mullett, J, Hazen, E et al. Beyond the brain: a multi-system inflammatory subtype of autism spectrum disorder. Psychopharmacology 2019;236:3045–6110.1007/s00213-019-05280-6CrossRefGoogle ScholarPubMed
Vohra, R, Madhavan, S, Sambamoorthi, U. Emergency department use among adults with autism spectrum disorders (ASD). J Autism Dev Disord 2016;46:1441–54CrossRefGoogle Scholar
Short, J, Calder, A. Anaesthesia for children with special needs, including autistic spectrum disorder. Continuing Education in Anaesthesia, Critical Care and Pain 2013;13:107–12CrossRefGoogle Scholar
Wigham, S, Rodgers, J, South, M, McConachie, H, Freeston, M. The interplay between sensory processing abnormalities, intolerance of uncertainty, anxiety and restricted and repetitive behaviours in autism spectrum disorder. J Autism Dev Disord 2015;45:943–52CrossRefGoogle ScholarPubMed
Swartz, J, Amos, K, Brindas, M, Girling, L, Ruth Graham, M. Benefits of an individualized perioperative plan for children with autism spectrum disorder. Pediatr Anaesth 2017;27:856–62CrossRefGoogle ScholarPubMed
Vaz, I. Improving the management of children with learning disability and autism spectrum disorder when they attend hospital. Child Care Health Dev 2010;36:753–5CrossRefGoogle ScholarPubMed
Gosh.nhs.uk. Autism. In: https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/autism [21 April 2020]Google Scholar
Wright, B, Marshall, D, Adamson, J, Ainsworth, H, Ali, S, Allgar, V et al. Social Stories™ to alleviate challenging behaviour and social difficulties exhibited by children with autism spectrum disorder in mainstream schools: design of a manualised training toolkit and feasibility study for a cluster randomised controlled trial with nested qualitative and cost-effectiveness components. Health Technol Assess 2016;20:1–258CrossRefGoogle ScholarPubMed
Children's Hospital of Philadelphia. Clinical Pathway for the Approach to Managing Behaviors in Children with Autism Spectrum Disorder (ASD)/Developmental Disorders. In: https://www.chop.edu/clinical-pathway/autism-spectrum-disorder-developmental-disorders-clinical-pathway [21 April 2020]Google Scholar
Cooper, I, Johnson, T. How to use survey results. J Med Libr Assoc 2016;104:174–7CrossRefGoogle ScholarPubMed
Marco, E, Hinkley, L, Hill, S, Nagarajan, S. Sensory processing in autism: a review of neurophysiologic findings. Pediatr Res 2011;69(5 pt 2):48–54R10.1203/PDR.0b013e3182130c54CrossRefGoogle ScholarPubMed
Fisher, W, Felber, J, Phillips, L, Craig, A, Paden, A, Niemeier, J. Treatment of resistance to change in children with autism. J Appl Behav Anal 2019;52:974–93Google ScholarPubMed
Roser, M, Aslin, R, McKenzie, R, Zahra, D, Fiser, J. Enhanced visual statistical learning in adults with autism. Neuropsychology 2015;29:163–72CrossRefGoogle ScholarPubMed
Allen, M, Hartley, C, Cain, K. iPads and the use of “apps” by children with autism spectrum disorder: do they promote learning? Front Psychol 2016;7:1305CrossRefGoogle ScholarPubMed
Seid, M, Sherman, M, Seid, A. Perioperative psychosocial interventions for autistic children undergoing ENT surgery. Int J Pediatr Otorhinolaryngol 1997;40:107–13CrossRefGoogle ScholarPubMed
Biyani, S, Morgan, P, Hotchkiss, K, Cecchini, M, Derkay, C. Autism spectrum disorder 101: a primer for pediatric otolaryngologists. Int J Pediatr Otorhinolaryngol 2015;79:798–802CrossRefGoogle ScholarPubMed