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The Patient Dignity Inventory: Just another evaluation tool? Experiences with advanced cancer patients

Published online by Cambridge University Press:  21 June 2017

María Rullán ,
María Arantzamendi ,
Ana Carvajal ,
Marina Martínez ,
Amaia Saenz de Ormijana  and
Carlos Centeno
María Rullán*
Affiliation:
Programa de Investigación ATLANTES, Instituto Cultura y Sociedad, Universidad de Navarra, Pamplona, España Servicio de Aparato Digestivo, Complejo Hospitalario de Navarra, Pamplona, España
María Arantzamendi
Affiliation:
Programa de Investigación ATLANTES, Instituto Cultura y Sociedad, Universidad de Navarra, Pamplona, España Área de Oncología y Hematología, Grupo de Medicina Paliativa, Instituto de Investigación Sanitaria de Navarra, Pamplona, España
Ana Carvajal
Affiliation:
Programa de Investigación ATLANTES, Instituto Cultura y Sociedad, Universidad de Navarra, Pamplona, España Área de Oncología y Hematología, Grupo de Medicina Paliativa, Instituto de Investigación Sanitaria de Navarra, Pamplona, España Departamento de la Persona Adulta, Universidad de Navarra, Facultad de Enfermería, Pamplona, España
Marina Martínez
Affiliation:
Programa de Investigación ATLANTES, Instituto Cultura y Sociedad, Universidad de Navarra, Pamplona, España Área de Oncología y Hematología, Grupo de Medicina Paliativa, Instituto de Investigación Sanitaria de Navarra, Pamplona, España Departamento de Medicina Paliativa, Clínica Universidad de Navarra, Pamplona, España
Amaia Saenz de Ormijana
Affiliation:
Osakidetza, Dirección de Integración Asistencial de la Organización Sanitaria Integrada Araba, País Vasco, España
Carlos Centeno
Affiliation:
Programa de Investigación ATLANTES, Instituto Cultura y Sociedad, Universidad de Navarra, Pamplona, España Área de Oncología y Hematología, Grupo de Medicina Paliativa, Instituto de Investigación Sanitaria de Navarra, Pamplona, España Departamento de Medicina Paliativa, Clínica Universidad de Navarra, Pamplona, España
*
Address correspondence and reprint requests to: María Rullán Iriarte, Servicio de Aparato Digestivo, Complejo Hospitalario de Navarra, Calle de Irunlarrea, 3, 31008 Pamplona, Spain. E mail: mrullan@alumni.unav.es or maria_rullan@hotmail.com.
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Abstract

Objective:

The Patient Dignity Inventory (PDI) evaluates sources of distress related to the feeling of loss of dignity and was designed for patients at the end of life. The aim of the present work was to generate a better understanding of the experiences of healthcare staff when using the PDI.

Method:

An exploratory qualitative study is presented about the experience of 4 professionals who applied the PDI to 124 advanced-cancer patients. Our study consisted of an analysis of their experiences, taken from information generated in a focus group. A thematic analysis was performed on the information generated at that meeting by two researchers working independently.

Results:

The initial experiences with the PDI on the part of the professionals led them to systematically administer the questionnaire as part of an interview instead of having patients fill it out themselves in written form. What started out as an evaluation very often led to a profound conversation on the meaning of life, dignity, and other sensitive, key issues related to the process of the illness.

Significance of results:

The PDI has intrinsic therapeutic value and is useful in clinical practice, and it is also a way of examining issues related to dignity and the meaning of life within the context of advanced-stage illness. There is a need for studies that examine patient experiences through a PDI-based interview.

Keywords

Palliative careQualitative researchDignity therapyPatient Dignity InventoryHealthcare professionals
Type
Original Articles
Information
Palliative & Supportive Care , Volume 16 , Special Issue 1: Special Instruments – Assessment and Measure Issues in Palliative Care , February 2018 , pp. 73 - 79
Copyright
Copyright © Cambridge University Press 2017 

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