Hostname: page-component-8448b6f56d-c4f8m Total loading time: 0 Render date: 2024-04-25T06:52:00.978Z Has data issue: false hasContentIssue false

Older adults living with HIV: a valuable resource?

Published online by Cambridge University Press:  02 November 2016

VICKI E. HUTTON*
Affiliation:
Australian College of Applied Psychology, Melbourne, Australia.
*
Address for correspondence: Vicki E. Hutton, Australian College of Applied Psychology, 123 Lonsdale Street, Melbourne, Victoria 3000, Australia E-mail: vicki.hutton5@gmail.com

Abstract

Subjective wellbeing was examined amongst 274 adults living with HIV in Australia and the United States of America. There were 164 adults aged 49 years and under, and 110 adults aged 50 years and over. Participants completed a composite questionnaire comprising the Personal Wellbeing Index-Adult (PWI-A), the HIV-Unsupportive Social Interactions Inventory (USII), and demographic and health-related items. Participants reported mean PWI-A scores of 54.7 points, considerably below the Western population normative range of 70–80 points. Older adults reported significantly greater subjective wellbeing compared to younger adults, but still below the normative range. Experiences of unsupportive social interactions were a significant predictor of reduced subjective wellbeing amongst all participants. Qualitative comments provided a greater understanding of the characteristics and psychological devices that enable some older adults to maintain and/or increase subjective wellbeing, even in the face of negative stressors such as unsupportive social interactions. This provides valuable information for service providers and clinicians as HIV increasingly becomes recognised as a disease affecting older adults in developed nations. Rather than positioning the ageing HIV-population as a potential burden, it is proposed that learning more about the coping mechanisms employed by older adults with HIV could prove beneficial for the HIV-population as a whole.

Type
Articles
Copyright
Copyright © Cambridge University Press 2016 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Arnold, M. E., Rice, A., Flannery, D. and Rotheram-Borus, M. J. 2008. HIV disclosure among adults living with HIV. AIDS Care, 20, 1, 8092.Google Scholar
Beuthin, R. E., Bruce, A. and Sheilds, L. 2015. Storylines of aging with HIV: shifts toward sense making. Qualitative Health Research, 25, 5, 612–21.CrossRefGoogle ScholarPubMed
Brashers, D. E., Neidig, J. L., Russell, J. A., Cardillo, L. W., Haas, S. M., Dobbs, L. K., Garland, M., McCartney, B. and Nemeth, S. 2003. The medical, personal, and social causes of uncertainty in HIV illness. Issues in Mental Health Nursing, 24, 5, 497522.CrossRefGoogle ScholarPubMed
Braun, V. and Clarke, V. 2006. Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 2, 77101.Google Scholar
Chambers, L. A., Wilson, M. G., Rueda, S., Gogolishvili, D., Qiyun Shi, M., Rourke, S. B. and The Positive Aging Review Team 2014. Evidence informing the intersection of HIV, aging and health: a scoping review. AIDS and Behavior, 18, 4, 661–75.Google Scholar
Cummins, R. A. 2010. Subjective wellbeing, homeostatically protected mood and depression: a synthesis. Journal of Happiness Studies, 11, 1, 117.CrossRefGoogle Scholar
Cummins, R. A. and Nistico, H. 2002. Maintaining life satisfaction: the role of positive cognitive bias. Journal of Happiness Studies, 3, 1, 3769.Google Scholar
Cummins, R. A. and Schäfer, M. 2011. Australian Unity Wellbeing Index: Report 26.0: The Wellbeing of Australians: Chronic Health. Australian Unity and Deakin University, Melbourne.Google Scholar
Emlet, C. A. 2006. ‘You're awfully old to have this disease’: experiences of stigma and ageism in adults 50 years and older living with HIV/AIDS. The Gerontologist, 46, 6, 781–90.Google Scholar
Emlet, C. A., Fredriksen-Goldsen, K. I. and Kim, H.-J. 2013. Risk and protective factors associated with health-related quality of life among older gay and bisexual men living with HIV disease. The Gerontologist, 53, 6, 963–72.Google Scholar
Emlet, C. A., Tozay, S. and Raveis, V. H. 2011. ‘I'm not going to die from the AIDS’: resilience in aging with HIV disease. The Gerontologist, 51, 1, 101–11.Google Scholar
Goffman, E. 1963. Stigma: Notes on the Management of Spoiled Identity. Simon & Schuster, New York.Google Scholar
Green, G. 2009. The End of Stigma? Changes in the Social Experience of Long Term Illness. Routledge, Oxford.Google Scholar
Grov, C., Golub, S. A., Parsons, J. T., Brennan, M. and Karpiak, S. E. 2010. Loneliness and HIV-related stigma explain depression among older HIV-positive adults. AIDS Care, 22, 5, 630–9.Google Scholar
Harding, R. and Molloy, T. 2008. Positive futures? The impact of HIV infection on achieving health, wealth and future planning. AIDS Care, 20, 5, 565–70.Google Scholar
Heckman, T. G., Heckman, B. D., Kochman, A., Sikkema, K. J., Suhr, J. and Goodkin, K. 2002. Psychological symptoms among persons 50 years of age and older living with HIV disease. Aging and Mental Health, 6, 2, 121–8.Google Scholar
Holloway, I. and Freshwater, D. 2007. Narrative Research in Nursing. Blackwell, Oxford.Google Scholar
IBM Corp. 2013. IBM SPSS Statistics for Windows. Version 22, IBM Corp., Armonk, New York.Google Scholar
Ingram, K. M., Jones, D. A., Fass, R. J., Neidig, J. L. and Song, Y. S. 1999. Social support and unsupportive social interactions: their association with depression among people living with HIV. AIDS Care, 11, 3, 313–29.CrossRefGoogle ScholarPubMed
International Wellbeing Group 2006. Personal Wellbeing Index. Fourth edition, Australian Centre on Quality of Life, Deakin University, Melbourne.Google Scholar
Jeste, D. V., Depp, C. A. and Vahia, I. V. 2010. Successful cognitive and emotional aging. World Psychiatry, 9, 2, 7884.CrossRefGoogle ScholarPubMed
Jeste, D. V., Wolkowitz, O. M. and Palmer, B. W. 2011. Divergent trajectories of physical, cognitive, and psychosocial aging in schizophrenia. Schizophrenia Bulletin, 37, 3, 451–5.Google Scholar
Joint United Nations Programme on HIV/AIDS (UNAIDS) 2013. Global Report: UNAIDS Report on the Global AIDS Epidemic 2013. Available online at http://www.unaids.org/en/media/unaids/contentassets/documents/epidemiology/2013/gr2013/UNAIDS_Global_Report_2013_en.pdf [Accessed 5 June 2016].Google Scholar
Joint United Nations Programme on HIV/AIDS (UNAIDS) 2014. People aged 50 years and older. In The Gap Report 2014. Available online at http://www.unaids.org/sites/default/files/en/media/unaids/contentassets/documents/unaidspublication/2014/UNAIDS_Gap_report_en.pdf [Accessed 5 June 2016].Google Scholar
Joint United Nations Programme on HIV/AIDS (UNAIDS) 2016. Fact Sheet 2016: Global Statistics – 2015. Available online at http://www.unaids.org/sites/default/files/media_asset/UNAIDS_FactSheet_en.pdf [Accessed 5 June 2016].Google Scholar
Kohli, R., Klein, R. S., Schoenbaum, E. E., Anastos, K., Minkoff, H. and Sacks, H. S. 2006. Aging and HIV infection. Journal of Urban Health: Bulletin of the New York Academy of Medicine, 83, 1, 3142.Google Scholar
Koivumaa-Honkanen, H., Honkanen, R., Vinamaki, H., Heikkila, K., Kaprio, J. and Koskenvuo, M. 2000. Self-reported life satisfaction and 20-year mortality in healthy Finnish adults. American Journal of Epidemiology, 152, 10, 983–91.Google Scholar
Krueger, A. B. and Stone, A. A. 2014. Progress in measuring subjective well-being. Science, 346, 6205, 42–3.Google Scholar
Kunzmann, U., Little, T. D. and Smith, J. 2000. Is age-related stability of subjective wellbeing a paradox? Cross-sectional and longitudinal evidence from the Berlin aging study. Psychology and Aging, 15, 3, 511–26.CrossRefGoogle ScholarPubMed
Littlewood, R. A., Vanable, P. A., Carey, M. P. and Blair, D. C. 2008. The association of benefit finding to psychosocial and health behavior adaptation among HIV + men and women. Journal of Behavioral Medicine, 31, 2, 145–55.Google Scholar
Litwin, H. and Stoeckel, K. J. 2013. Social networks and subjective wellbeing among older Europeans: does age make a difference? Ageing & Society, 33, 7, 1263–81.Google Scholar
Logie, C. and Gadalla, T. M. 2009. Meta-analysis of health and demographic correlates of stigma towards people living with HIV. AIDS Care, 21, 6, 742–53.Google Scholar
Lyons, A., Pitts, M., Grierson, J., Thorpe, R. and Power, J. 2010. Ageing with HIV: health and psychosocial well-being of older gay men. AIDS Care, 22, 10, 1236–44.Google Scholar
Masten, J. 2015. ‘A shrinking kind of life’: gay men's experience of aging with HIV. Journal of Gerontological Social Work, 58, 4, 319–37.Google Scholar
Mead, R. and Tooley, G. 2015. What Makes Us Happy? Third edition, Australian Unity and Deakin University, Melbourne.Google Scholar
Moore, R. C., Moore, D. J., Thompson, W. K., Vahia, I. V., Grant, I., and Jeste, D. V. 2013. A case-controlled study of successful aging in older HIV-infected adults. Journal of Clinical Psychiatry, 74, 5, e41723.Google Scholar
Murray, J. M., McDonald, A. and Law, M. 2009. Rapidly ageing HIV epidemic among men who have sex with men in Australia. Sexual Health, 6, 1, 83–6.Google Scholar
Nakagawa, F., May, M. and Phillips, A. 2013. Life expectancy living with HIV: recent estimates and future implications. Current Opinion in Infectious Diseases, 26, 1, 1725.Google Scholar
Neville, K. L. 2003. Uncertainty in illness: an integrative review. Orthopaedic Nursing, 22, 3, 206–14.Google Scholar
Nyirenda, M., Evandrou, M., Mutevedzi, P., Hosegood, V., Falkingham, J. and Newell, M.-L. 2015. Who cares? Implications of care-giving and -receiving by HIV-infected or -affected older people on functional disability and emotional wellbeing. Ageing & Society, 35, 1, 169202.Google Scholar
Owen, G. and Catalan, J. 2012. ‘We never expected this to happen’: narratives of ageing with HIV among gay men living in London, UK. Culture, Health & Sexuality: An International Journal for Research, Intervention and Care, 14, 1, 5972.CrossRefGoogle ScholarPubMed
Patton, M. Q. 1990. Qualitative Evaluation and Research Methods. Second edition, Sage, Newbury Park, California.Google Scholar
Pratt, G., Gascoyne, K. and Cunningham, K. 2010. Human immunodeficiency virus (HIV) in older people. Age and Ageing, 39, 3, 289–94.CrossRefGoogle ScholarPubMed
Ramirez-Valles, J. 2002. The protective effects of community involvement for HIV risk behavior: a conceptual framework. Health Education Research, 17, 4, 389403.CrossRefGoogle ScholarPubMed
Sankar, A., Nevedal, A., Neufeld, S., Berry, R. and Luborsky, M. 2011. What do we know about older adults and HIV? A review of social and behavioral literature. AIDS Care, 23, 10, 1187–207.Google Scholar
Scambler, G. 1998. Stigma and disease: changing paradigms. The Lancet, 352, 9133, 1054–5.Google Scholar
Schrimshaw, E. W. and Siegel, K. 2003. Perceived barriers to social support from family and friends among older adults with HIV/AIDS. Journal of Health Psychology, 8, 6, 738–52.CrossRefGoogle ScholarPubMed
Shankar, A., Rafnsson, S. B. and Steptoe, A. 2015. Longitudinal associations between social connections and subjective wellbeing in the English Longitudinal Study of Ageing. Psychology and Health, 30, 6, 686–98.CrossRefGoogle ScholarPubMed
Shippy, R. A. and Karpiak, S. E. 2005. The aging HIV/AIDS population: fragile social networks. Aging and Mental Health, 9, 3, 246–54.Google Scholar
Slater, L. Z., Moneyham, L., Vance, D. E., Raper, J. L., Mugavero, M. J. and Childs, G. 2015. The multiple stigma experience and quality of life in older gay men with HIV. Journal of the Association of Nurses in AIDS Care, 26, 1, 2435.Google Scholar
Smit, P. J., Brady, M., Carter, M., Fernandes, R., Lamore, L., Meulbroek, M., Ohayon, M., Platteau, T., Rehberg, P., Rockstroh, J. K. and Thompson, M. 2012. HIV-related stigma within communities of gay men: a literature review. AIDS Care, 24, 4, 405–12.Google Scholar
Steptoe, A., Deaton, A. and Stone, A. A. 2015. Subjective wellbeing, health, and ageing. The Lancet, 385, 9968, 640–8.Google Scholar
Strine, T. W., Chapman, D. P., Balluz, L. S., Moriarty, D. G. and Mokdad, A. H. 2008. The associations between life satisfaction and health-related quality of life, chronic illness, and health behaviours among US community-dwelling adults. Journal of Community Health, 33, 1, 4050.Google Scholar
SurveyMonkey 2012. SurveyMonkey. Available online at www.surveymonkey.com [Accessed 30 March 2015].Google Scholar
Vance, D. E., Brennan, M., Enah, C., Smith, G. L. and Kaur, J. 2011 a. Religion, spirituality, and older adults with HIV: critical personal and social resources for an aging epidemic. Clinical Interventions in Aging, 6, 101–9.CrossRefGoogle ScholarPubMed
Vance, D. E., McGuinness, T., Musgrove, K., Orel, N. A. and Fazeli, P. L. 2011 b. Successful aging and the epidemiology of HIV. Clinical Interventions in Aging, 6, 181–92.CrossRefGoogle ScholarPubMed
Viala-Danten, M., Dubois, D., Gilet, H., Martin, S., Peeters, K. and Cella, D. F. 2010. Psychometric evaluation of the functional assessment of HIV Infection (FAHI) questionnaire and its usefulness in clinical trials. Quality of Life Research, 19, 8, 1215–27.Google Scholar
Wallach, I. and Brotman, S. 2013. Ageing with HIV/AIDS: a scoping study among people aged 50 and over living in Quebec. Ageing & Society, 33, 7, 1212–42.Google Scholar
Webel, A. R., Longenecker, C. T., Gripshover, B., Hanson, J. E., Schmotzer, B. J. and Salata, R. A. 2014. Age, stress, and isolation in older adults living with HIV. AIDS Care, 26, 5, 523–31.CrossRefGoogle ScholarPubMed
Windle, G. and Woods, R. T. 2004. Variations in subjective wellbeing: the mediating role of a psychological resource. Ageing & Society, 24, 4, 583602.CrossRefGoogle Scholar