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Self-management and social participation in community-dwelling people with mild dementia: a review of measuring instruments

Published online by Cambridge University Press:  06 February 2019

Floriana Mangiaracina ,
Franka Meiland ,
Yvonne Kerkhof ,
Martin Orrell ,
Maud Graff  and
Rose-Marie Dröes
Floriana Mangiaracina
Affiliation:
Department of Psychiatry, Amsterdam University Medical Centers - VUmc, Amsterdam Public Health Research Institute, Amsterdam, the Netherlands
Franka Meiland
Affiliation:
Department of Psychiatry, Amsterdam University Medical Centers - VUmc, Amsterdam Public Health Research Institute, Amsterdam, the Netherlands
Yvonne Kerkhof
Affiliation:
Department of Psychiatry, Amsterdam University Medical Centers - VUmc, Amsterdam Public Health Research Institute, Amsterdam, the Netherlands Centre for nursing Research, Saxion University of Applied Sciences, Deventer/Enschede, the Netherlands
Martin Orrell
Affiliation:
Institute of Mental Health, University of Nottingham, Nottingham, UK
Maud Graff
Affiliation:
Radboud University Medical Centre, Donders Institute for Cognition, Brain and Behaviour, Scientific Institute for Quality of Healthcare, Radboud Alzheimer Centre, Nijmegen, the Netherlands
Rose-Marie Dröes*
Affiliation:
Department of Psychiatry, Amsterdam University Medical Centers - VUmc, Amsterdam Public Health Research Institute, Amsterdam, the Netherlands
*
Correspondence should be addressed to: Rose-Marie Dröes, Department of Psychiatry, Amsterdam UMC, location VUmc, GGZinGeest Dienst onderzoek en Innovatie, Oldenaller 1, PO Box 74077, 1070 BB Amsterdam, the Netherlands. Phone: + 31-20-7885454. Email: rm.droes@vumc.nl.
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Abstract

Background:

In order to evaluate interventions promoting social health in people with dementia it is essential to have reliable and valid measures. The present review aims to provide an overview of available instruments for the assessment of two domains of social health in community-dwelling people with mild dementia, i.e., the ability to manage life with some degree of independence (self-management) and participation in social activities.

Methods:

An electronic search was conducted in the following databases: PubMed, CINAHL, and PsycINFO. Characteristics of the instruments, feasibility and psychometric properties of the instruments included are reported on.

Results:

We identified eight instruments measuring aspects of self-management and three instruments measuring social participation. Validity and reliability of self-management instruments varied between moderate and good. Little information was found on the psychometric properties of the instruments for social participation. In general, feasibility and responsiveness data regarding application in community-dwelling people with dementia were scarce for both types of instruments.

Conclusions:

Future research into assessment tools for social health should focus on the development of instruments for self-management that also cover the areas of coping with and adapting to the emotional consequences of the disease; instruments for social participation covering the involvement in social interactions that are experienced as meaningful by the person; and on the psychometric properties and responsiveness of instruments. More attention should also be given to the feasibility (ease of use) of these instruments for people with mild dementia, professionals, and researchers.

Keywords

measuresself-managementsocial participationsocial health in dementiacommunity-dwelling
Type
Review Article
Information
International Psychogeriatrics , Volume 31 , Issue 9: Issue Theme: Self-Esteem, Resilience, and Emotional Intelligence , September 2019 , pp. 1267 - 1285
Copyright
© International Psychogeriatric Association 2019 

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