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Spirituality and religious coping are related to cancer-bereaved siblings’ long-term grief

Published online by Cambridge University Press:  20 December 2017

Malin Lövgren*
Affiliation:
The Department of Caring Sciences, Ersta Sköndal Bräcke University College, Palliative Research Centre, Stockholm, Sweden The Department of Women's and Children's Health, Karolinska Institute, Stockholm, Sweden
Josefin Sveen
Affiliation:
The Department of Caring Sciences, Ersta Sköndal Bräcke University College, Palliative Research Centre, Stockholm, Sweden
Gunnar Steineck
Affiliation:
The Department of Oncology-Pathology, Karolinska Institute, Stockholm, Sweden The Department of Oncology, The Sahlgrenska Academy, Gothenburg, Sweden
Alexandra Eilegård Wallin
Affiliation:
School of Education, Health and Society, Dalarna University, Falun, Sweden
Mary-Elizabeth B. Eilertsen
Affiliation:
Faculty of Medicine and Health Sciences, Department of Public Health and Nursing, Norwegian University of Technology and Science, Center for Health Promotion Research, Trondheim, Norway
Ulrika Kreicbergs
Affiliation:
The Department of Caring Sciences, Ersta Sköndal Bräcke University College, Palliative Research Centre, Stockholm, Sweden The Department of Women's and Children's Health, Karolinska Institute, Stockholm, Sweden
*
Author for correspondence: Malin Lövgren, Ersta Sköndal Bräcke University College, The Department of Caring Science, Palliative Research Centre, Stigbergsgatan 30, Box 111 89, 100 61 Stockholm, Sweden. E-mail: malin.lovgren@esh.se.

Abstract

Objective

Many bereaved siblings have still not come to terms with their grief many years after the loss, but few studies have focused on what can help. The aims of this study were to identify cancer-bereaved adolescents’ and young adults’ ways of coping with grief after loss of a sibling, and examine whether these ways of coping were related to their experience of having worked through their grief.

Method

This nationwide survey of 174 cancer-bereaved siblings (73% participation rate) is based on one open-ended question about coping with grief (“What has helped you to cope with your grief after your sibling's death?”) and one closed-ended question about siblings’ long-term grief (“Do you think you have worked through your grief over your sibling's death?”). The open-ended question was analyzed with content analysis; descriptive statistics and Fisher's exact test were used to examine the relation between type of coping and siblings’ long-term grief.

Result

The siblings described four ways of coping: (1) thinking of their dead brother/sister and feeling and expressing their grief; (2) distracting or occupying themselves; (3) engaging in spiritual and religious beliefs/activities; and (4) waiting for time to pass. One of these categories of coping with grief, namely, engaging in spiritual and religious beliefs and activities, was associated with siblings’ experience of having worked through their grief two to nine years after the loss (p = 0.016).

Significance of results

Those siblings who had used spirituality, religious beliefs, and activities to cope were more likely to have worked through their grief than those who had not.

Type
Original Article
Copyright
Copyright © Cambridge University Press 2017 

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References

Barrera, M, Alam, R, D'Agostino, NM, et al. (2013) Parental perceptions of siblings' grieving after a childhood cancer death: A longitudinal study. Death Studies 37(1), 2546.Google Scholar
Charlton, R (2000) Research: Is an ‘ideal’ questionnaire possible? International Journal of Clinical Practice 54(6), 356359.Google Scholar
Christ, G, Bonanno, G, Malkinson, R, et al. (2003) Bereavement experiences after the death of a child. In When children die: Improving palliative and end-of-life care for children and their families. Field, M and Behrman, RE (eds.). Washington DC: National Academy Press.Google Scholar
Eilegård, A, Steineck, G, Nyberg, T, et al. (2013a) Bereaved siblings' perception of participating in research--a nationwide study. Psychooncology 22(2), 411416.Google Scholar
Eilegård, A, Steineck, G, Nyberg, T, et al. (2013b) Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier. Psychooncology 22(3), 683691.Google Scholar
Fletcher, J, Mailick, M, Song, J, et al. (2013) A sibling death in the family: Common and consequential. Demography 50(3), 803826.Google Scholar
Ganzevoort, RR and Falkenburg, N (2012) Spiritual experiences of continuity and discontinuity among parents who lose a child. Journal of Empirical Theology 25(2), 189204.Google Scholar
Grenklo, TB, Kreicbergs, UC, Valdimarsdottir, UA, et al. (2013) Communication and trust in the care provided to a dying parent: A nationwide study of cancer-bereaved youths. Journal of Clinical Oncology 31(23), 28862894.Google Scholar
Hawthorne, DM, Youngblut, JM, Brooten, D (2016) Parent spirituality, grief, and mental health at 1 and 3months after their infant's/child's death in an intensive care unit. Journal of Pediatric Nursing 31(1), 7380.Google Scholar
Hsieh, HF and Shannon, SE (2005) Three approaches to qualitative content analysis. Qualitative Health Research 15(9), 12771288.Google Scholar
Jenholt Nolbris, M, Enskär, K, and Hellström, AL (2014) Grief related to the experience of being the sibling of a child with cancer. Cancer Nursing 37(5), E1E7.Google Scholar
Kreicbergs, U, Valdimarsdóttir, U, Onelöv, E, et al. (2004) Talking about death with children who have severe malignant disease. New England Journal of Medicine 351(12), 11751186.Google Scholar
Kreicbergs, UC, Lannen, P, Onelöv, E, et al. (2007) Parental grief after losing a child to cancer: Impact of professional and social support on long-term outcomes. Journal of Clinical Oncology 25(22): 33073312.Google Scholar
Lichtenthal, WG, Currier, JM, Neimeyer, RA, et al. (2010) Sense and significance: A mixed methods examination of meaning making after the loss of one's child. Journal of Clinical Psychology 66(7), 791812.Google Scholar
Lövgren, M, Sveen, J, Nyberg, T, et al. (2017) Care at end of life influences grief: A nationwide long-term follow-up among young adults who lost a brother or sister to childhood cancer. Journal of Palliative Medicine Epub ahead of print Sept 26, 2017.Google Scholar
Nolbris, M and Hellström, AL (2005) Siblings' needs and issues when a brother or sister dies of cancer. Journal of Pediatric Oncology Nursing 22(4), 227233.Google Scholar
Prigerson, HG, Maciejewski, PK, Reynolds, CF 3rd et al. (1995). Inventory of complicated grief: A scale to measure maladaptive symptoms of loss. Psychiatry Research 59(1–2), 6579.Google Scholar
Rådestad, I, Steineck, G, Nordin, C, et al. (1996) Psychological complications after stillbirth–influence of memories and immediate management: Population based study. British Medical Journal 312(7045), 15051508.Google Scholar
Stroebe, M and Schut, H (1999) The dual process model of coping with bereavement: Rationale and description. Death Studies 23(3), 197224.Google Scholar
Stroebe, M and Schut, H (2010) The dual process model of coping with bereavement: A decade on. Omega (Westport) 61(4), 273289.Google Scholar
Surbone, A and Baider, L (2010). The spiritual dimension of cancer care. Critical Reviews in Oncology/Hematology 73(3), 228235.Google Scholar
Sveen, J, Eilegård, A, Steineck, G, et al. (2014). They still grieve-a nationwide follow-up of young adults 2–9 years after losing a sibling to cancer. Psychooncology 23(6), 658664. doi:10.1002/pon.3463Google Scholar
Valdimarsdóttir, U, Kreicbergs, U, Hauksdóttir, A, et al. (2007) Parents' intellectual and emotional awareness of their child's impending death to cancer: A population-based long-term follow-up study. Lancet Oncology 8(8), 706714.Google Scholar
Wallin, AE, Steineck, G, Nyberg, T, et al. (2015) Insufficient communication and anxiety in cancer-bereaved siblings: A nationwide long-term follow-up. Palliative and Supportive Care 14(5), 17.Google Scholar