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4 results

  • Motor Unit Number Index of the Upper Trapezius: A Meta-Analysis and Cross-sectional Study of Its Reliability

  • Agessandro Abrahao, Liane Phung, David Fam, Marcio Luiz Escorcio-Bezerra, Lawrence R. Robinson, Kelvin E. Jones, Lorne Zinman
  • Journal:
    Canadian Journal of Neurological Sciences / Volume 51 / Issue 1 / January 2024
    Published online by Cambridge University Press:
    08 February 2023, pp. 129-133
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  • Motor unit number index of the upper trapezius (MUNIX-Trapezius) is a candidate biomarker for bulbar lower motor neuron function; however, reliability data is incomplete. To assess MUNIX-Trapezius reliability in controls, we conducted a systematic review, a cross-sectional study (n = 20), and a meta-analysis. We demonstrated a high inter- and intra-rater intraclass correlation (0.86 and 0.94, respectively), indicating that MUNIX-Trapezius is reliable with between-study variability moderated by age and MUNIX technique. With further validation, this measure can serve as a disease monitoring and response biomarker of bulbar function in the therapeutic development for amyotrophic lateral sclerosis.

  • When Dementia is in the House: Needs Assessment Survey for Young Caregivers

  • Katherine R. Nichols, David Fam, Cheryl Cook, Michelle Pearce, Gail Elliot, Sylvia Baago, Kenneth Rockwood, Tiffany W. Chow
  • Journal:
    Canadian Journal of Neurological Sciences / Volume 40 / Issue 1 / January 2013
    Published online by Cambridge University Press:
    23 September 2014, pp. 21-28
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  • Objective:

    To learn more about the needs and experiences of young carers for patients of frontotemporal dementia (FTD) in order to create a relevant support website for young caregivers to dementia patients.

    Methods:

    Two focus groups were held with a total of fourteen young carers aged 11-18. The data corpus was collected through a semi-structured interview facilitated by a medical journalist who had prior experience as a caregiver to a patient with FTD. The transcripts were narrowed to a dataset for descriptive analysis using a coding scheme to reveal the main themes of their responses.

    Results:

    Seven overlapping theme areas were: emotional impact of living with a parent with FTD, caregiving, coping, symptoms, diagnosis, relationships, and support. Based on the participants' responses, a website was launched providing supportive information and counsel for young carers.

    Conclusion:

    Young carers saw the experience of caring for a parent with early-onset dementia as positive overall, but identified opportunities for professionals to assist them in overcoming stigma and the challenge of balancing childhood and adolescent development within this context.