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16 results

  • Introduction

  • Edited by Edward S. Dove, University of Edinburgh, Niamh Nic Shuibhne, University of Edinburgh
  • Book:
    Law and Legacy in Medical Jurisprudence
    Published online:
    23 December 2021
    Print publication:
    10 March 2022, pp 1-20

  • Summary

    Graeme Laurie stepped down from the Chair in Medical Jurisprudence at the University of Edinburgh in 2019. This edited collection pays tribute to his extraordinary contributions to the field. Graeme has often spoken about the importance of ‘legacy’ in academic work and has forged a remarkable intellectual legacy of his own, notably through his work on genetic privacy, human tissue and information governance, and the regulatory salience of the concept of liminality. The chapters in this volume animate the concept of legacy as a lens of analysis for the study and practice of medical jurisprudence. In this light, legacy reveals characteristics of both benefit and burden, as both a facilitator of and an encumbrance to the development of law, policy and regulation. Overall, the contributions reconcile the ideas of legacy and responsiveness and show that both dimensions are critical to achieve and sustain the health of medical jurisprudence itself as a dynamic, interdisciplinary and policy-engaged field of thinking.

Law and Legacy in Medical Jurisprudence
  • Essays in Honour of Graeme Laurie
  • Edited by Edward S. Dove, Niamh Nic Shuibhne
  • Published online:
    23 December 2021
    Print publication:
    10 March 2022
  • Graeme Laurie stepped down from the Chair in Medical Jurisprudence at the University of Edinburgh in 2019. This edited collection pays tribute to his extraordinary contributions to the field. Graeme often spoke about the importance of 'legacy' in academic work and forged a remarkable intellectual legacy of his own, notably through his work on genetic privacy, human tissue and information governance, and the regulatory salience of the concept of liminality. The essays in this volume animate the concept of legacy to analyse the study and practice of medical jurisprudence. In this light, legacy reveals characteristics of both benefit and burden, as both an encumbrance to and facilitator of the development of law, policy and regulation. The contributions reconcile the ideas of legacy and responsiveness and show that both dimensions are critical to achieve and sustain the health of medical jurisprudence itself as a dynamic, interdisciplinary and policy-engaged field of thinking.

  • Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework

  • Edward S. Dove
  • Journal:
    Journal of Law, Medicine & Ethics / Volume 43 / Issue 4 / Winter 2015
    Published online by Cambridge University Press:
    01 January 2021, pp. 675-689
    Print publication:
    Winter 2015

  • Spurred by a confluence of factors, most notably the decreasing cost of high-throughput technologies and advances in information technologies, a number of population research initiatives have emerged in recent years. These include large-scale, internationally collaborative genomic projects (Table 1) and biobanks (Table 2), the latter of which can be defined as an organized collection of human biological material and associated data stored for one or more research purposes. Biobanks are a key emerging research infrastructure, and those established as prospective research resources comprising biospecimens and data from many participants are viewed as particularly promising drivers of biomedical progress. Such biobanks, particularly those publicly funded and set up to promote the public interest, have expanded across the globe in recent years.