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The European Brain Council project “Rethinking Schizophrenia” aims to examine the existing state of patient care pathways across Europe. The study objectives of Phase 2 were to evaluate the current models of schizophrenia care on mental health outcomes, access and satisfaction with care, and to identify the foundations of integrated care pathways for young people with first-episode psychosis.
Methods
Using the care pathway, a questionnaire was developed and anonymously disseminated to mental health professionals in nine European countries (Belgium, Denmark, France, Germany, Hungary, Italy, Poland, Spain, and the United Kingdom). The survey included 45 questions and addressed the quality and continuity of care from the first onset of psychosis to long-term care, including assessment of the mental health care systems.
Results
A total of 203 responses were obtained. The majority of mental health professionals were psychiatrists (75%), followed by psychologists (11%), nurses (7%), social workers (2%), and GPs and others (5%). The responses were analyzed qualitatively. The results revealed dissatisfaction with the current state of schizophrenia care systems and significant variability in quality of care. The factors that affect the care pathways most are assessment and early intervention services, continuity of care, availability of various types of services and treatments, collaborative decision-making, and utilization of new technologies.
Conclusions
A comprehensive, integrated approach is essential to improve schizophrenia care across Europe. This strategy emphasizes early intervention, equitable access to treatments, coordinated care models, psychosocial support, and long-term recovery through a biopsychosocial framework and emerging technologies.
This systematic literature review aimed to provide an overview of the characteristics and methods used in studies applying the disability-adjusted life years (DALY) concept for infectious diseases within European Union (EU)/European Economic Area (EEA)/European Free Trade Association (EFTA) countries and the United Kingdom. Electronic databases and grey literature were searched for articles reporting the assessment of DALY and its components. We considered studies in which researchers performed DALY calculations using primary epidemiological data input sources. We screened 3053 studies of which 2948 were excluded and 105 studies met our inclusion criteria. Of these studies, 22 were multi-country and 83 were single-country studies, of which 46 were from the Netherlands. Food- and water-borne diseases were the most frequently studied infectious diseases. Between 2015 and 2022, the number of burden of infectious disease studies was 1.6 times higher compared to that published between 2000 and 2014. Almost all studies (97%) estimated DALYs based on the incidence- and pathogen-based approach and without social weighting functions; however, there was less methodological consensus with regards to the disability weights and life tables that were applied. The number of burden of infectious disease studies undertaken across Europe has increased over time. Development and use of guidelines will promote performing burden of infectious disease studies and facilitate comparability of the results.
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