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Narrating the New Predictive Genetics
Ethics, Ethnography and Science


Part of Cambridge Studies in Society and the Life Sciences

  • Date Published: February 2005
  • availability: Available
  • format: Paperback
  • isbn: 9780521540667

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About the Authors
  • This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services.

    • Incorporates a wide comparative focus by juxtaposing and offsetting cross-cultural materials from the anthropological record
    • Develops novel conceptual insights regarding ethnography's mediation of ethics, bioethics and genetic science
    • The book is one of the first ethnographic studies to document developments and personal experiences of the new genetics from the British angle
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    Product details

    • Date Published: February 2005
    • format: Paperback
    • isbn: 9780521540667
    • length: 216 pages
    • dimensions: 228 x 153 x 21 mm
    • weight: 0.35kg
    • contains: 1 b/w illus.
    • availability: Available
  • Table of Contents

    Part I. Ethnography as Linkage Map:
    1. Thinking futures
    2. Approaching translocations
    Part II. 'Home Truths':
    3. Foretelling foreknowledge
    4. Tracing genealogies of non-disclosure
    Part III. Relational Ethics in Practice:
    5. Reproducing exclusion
    6. Relinquishing exclusion
    7. Conclusion

  • Author

    Monica Konrad, University of Cambridge
    Monica Konrad is Fellow of Girton College and Research Associate at the Department of Social Anthropology, University of Cambridge. Her recent publications address the relevance of contemporary anthropology for global governance in science, international bioethics, and interdisciplinary studies.

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