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Bioethics and Disability
Toward a Disability-Conscious Bioethics

Part of Cambridge Disability Law and Policy Series

  • Date Published: April 2011
  • availability: Available
  • format: Hardback
  • isbn: 9780521110303


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About the Authors
  • Bioethics and Disability provides tools for understanding the concerns, fears, and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children, and adults with disabilities, Bioethics and Disability proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases. Disability-conscious bioethics will bring together disability experts and bioethicists to identify and mitigate disability bias in our health care systems.

    • A one-stop shop for anyone interested in bioethics, disabilities studies and law, drawing on and synthesizing all three fields
    • The case study format is easily accessible and engaging, and the book is meticulously researched and documented, making it a valuable resource for research
    • The substance works on many levels, making the book appropriate for both novices and experts in healthcare, bioethics and disability studies
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    Reviews & endorsements

    "… impressive … a worthwhile contribution to the field of bioethics and, hopefully, a model for people who are so struck by these thorny issues that they are likely to take up the challenge to be disability-conscious."
    Theoretical Medicine and Bioethics

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    Product details

    • Date Published: April 2011
    • format: Hardback
    • isbn: 9780521110303
    • length: 386 pages
    • dimensions: 229 x 152 x 22 mm
    • weight: 0.66kg
    • availability: Available
  • Table of Contents

    1. The struggle: disability rights versus bioethics
    2. Clashing perspectives and a call for reconciliation
    3. Infancy
    4. Childhood
    5. The reproductive years
    6. Adulthood
    7. The end of life
    8. Toward a disability-conscious bioethics.

  • Author

    Alicia Ouellette, Albany Law School
    Alicia Ouellette is a Professor of Law at Albany Law School and a Professor of Bioethics in the Union Graduate College/Mount Sinai School of Medicine Bioethics Program. Her recent publications include 'Shaping Parental Authority over Children's Bodies' and 'Growth Attenuation, Parental Choice, and the Rights of Disabled Children'. She is also a co-editor (with Laurence McCullough and Robert Baker) of The Cambridge Dictionary of Bioethics (2010). Before joining the law faculty, she served as an Assistant Solicitor General for the State of New York. As ASG, she briefed and argued more than 100 appeals on issues ranging from termination of treatment for the terminally ill to the responsibility of gun manufacturers for injuries caused by handguns. She continues her advocacy work in select cases and was lead counsel on the law professors' brief submitted in support of same-sex couples who sought the right to marry in New York State.

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