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Beyond Autonomy
Limits and Alternatives to Informed Consent in Research Ethics and Law

$110.00 (C)

Part of Cambridge Bioethics and Law

David G. Kirchhoffer, Bernadette J. Richards, Thomas H. Murray, Steve Matthews, Jeanette Kennett, S. Stewart Braun, Garrett Cullity, Christi D. Favor, Christopher D. Cordner, Justin Oakley, José Miola, Anita Ho, Wendy Rogers
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  • Publication planned for: November 2019
  • availability: Not yet published - available from November 2019
  • format: Hardback
  • isbn: 9781108491907

$ 110.00 (C)

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About the Authors
  • Respect for autonomy has become a fundamental principle in human research ethics. Nonetheless, this principle and the associated process of obtaining informed consent do have limitations. This can lead to some groups, many of them vulnerable, being left understudied. This book considers these limitations and contributes through legal and philosophical analyses to the search for viable approaches to human research ethics. It explores the limitations of respect for autonomy and informed consent both in law and through the examination of cases where autonomy is lacking (infants), diminished (addicts), and compromised (low socio-economic status). It examines alternative and complementary concepts to overcome the limits of respect for autonomy, including beneficence, dignity, virtue, solidarity, non-exploitation, vulnerability and self-ownership. It takes seriously the importance of human relationality and community in qualifying, tempering and complementing autonomy to achieve the ultimate end of human research - the good of humankind.

    • Offers a multidisciplinary and interdisciplinary exploration of the limits of respect for autonomy in human research ethics and the search for solutions
    • Engages with concrete historical and recent cases in human research ethics
    • Boasts an international list of contributors who are expert in their fields and who have practical experience in human research ethics governance and policy-making
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    Product details

    • Publication planned for: November 2019
    • format: Hardback
    • isbn: 9781108491907
    • dimensions: 228 x 152 mm
    • contains: 5 tables
    • availability: Not yet published - available from November 2019
  • Table of Contents

    Introduction. The limits of respect for autonomy David G. Kirchhoffer
    Part I. Exploring Problems of Respect for Autonomy in Bioethics, Law and Society:
    1. Autonomy and the law: widely used, poorly defined Bernadette J. Richards
    2. Lack of autonomy: debates concerning research involving children Thomas H. Murray
    3. Diminished autonomy: consent and chronic addiction Steve Matthews and Jeanette Kennett
    4. Compromised autonomy: social inequality and issues of status and control S. Stewart Braun
    Part II. The Search for Alternative or Complementary Concepts Surrounding Autonomy:
    5. Self-ownership in research ethics Garrett Cullity
    6. Beneficence in research ethics David G. Kirchhoffer, Christi D. Favor and Christopher D. Cordner
    7. Dignity, being and becoming in research ethics David G. Kirchhoffer
    8. Virtues in research ethics: developing an empirically-informed account of virtues in biomedical research practice Justin Oakley
    Part III. Beyond Autonomy: Turning to the Community to Protect the Individual:
    9. Duties of shared membership in research ethics José Miola
    10. Engaging communities in human research in the Global South Anita Ho
    11. Reducing shared vulnerabilities to data misuse Wendy Rogers.

  • Editors

    David G. Kirchhoffer, Australian Catholic University
    David G. Kirchhoffer is Director of the Queensland Bioethics Centre at the Australian Catholic University's Brisbane Campus. He holds a Ph.D. from the Katholieke Universiteit Leuven and an M.Phil. from St Augustine College of South Africa. He is the author of Human Dignity in Contemporary Ethics (2013).

    Bernadette J. Richards, University of Adelaide
    Bernadette J. Richards is Associate Professor of Law and Director of the Research Unit for the Study of Society, Ethics and the Law at the University of Adelaide, and a member of the Australian Health Ethics Committee. She is a chief investigator of a current NHMRC-funded Partnership Grant exploring advance care planning and is currently writing a book entitled Technology, Healthcare and the Law: An evolving relationship (forthcoming).


    David G. Kirchhoffer, Bernadette J. Richards, Thomas H. Murray, Steve Matthews, Jeanette Kennett, S. Stewart Braun, Garrett Cullity, Christi D. Favor, Christopher D. Cordner, Justin Oakley, José Miola, Anita Ho, Wendy Rogers

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