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Bioethics and Disability provides tools for understanding the concerns, fears, and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children, and adults with disabilities, Bioethics and Disability proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases. Disability-conscious bioethics will bring together disability experts and bioethicists to identify and mitigate disability bias in our health care systems.Read more
- A one-stop shop for anyone interested in bioethics, disabilities studies and law, drawing on and synthesizing all three fields
- The case study format is easily accessible and engaging, and the book is meticulously researched and documented, making it a valuable resource for research
- The substance works on many levels, making the book appropriate for both novices and experts in healthcare, bioethics and disability studies
Reviews & endorsements
"… impressive … a worthwhile contribution to the field of bioethics and, hopefully, a model for people who are so struck by these thorny issues that they are likely to take up the challenge to be disability-conscious."
Theoretical Medicine and Bioethics
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- Date Published: July 2013
- format: Paperback
- isbn: 9781107610651
- length: 386 pages
- dimensions: 229 x 152 x 20 mm
- weight: 0.51kg
- availability: Available
Table of Contents
1. The struggle: disability rights versus bioethics
2. Clashing perspectives and a call for reconciliation
5. The reproductive years
7. The end of life
8. Toward a disability-conscious bioethics.
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