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Daily lives of residents with dementia in nursing homes: development of the Maastricht electronic daily life observation tool

Published online by Cambridge University Press:  23 March 2016

B. de Boer ,
H.C. Beerens ,
S.M.G. Zwakhalen ,
F.E.S. Tan ,
J.P.H. Hamers  and
H. Verbeek
B. de Boer*
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
H.C. Beerens
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
S.M.G. Zwakhalen
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
F.E.S. Tan
Affiliation:
Department of Methodology and Statistics, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
J.P.H. Hamers
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
H. Verbeek
Affiliation:
Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands
*
Correspondence should be addressed to: B. de Boer, MSc, Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht University, the Netherlands. Phone: +31 43 388286. Email: b.deboer@maastrichtuniversity.nl.
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Abstract

Background:

Daily life is a dynamic and multidimensional concept, for which appropriate assessment tools are lacking. This study describes the development of the Maastricht Electronic Daily Life Observation tool (MEDLO-tool), a freely accessible, easy to use, electronic observation tool to assess relevant daily life aspects for nursing home residents with dementia.

Methods:

(1) Determining relevant aspects of daily life for nursing home residents with dementia based on a literature search and expert interviews; (2) pilot testing observation procedures and operationalizations of the aspects of daily life; and (3) exploring inter-rater reliability and feasibility of the tool in a nursing home facility with 16 residents (56% female, mean age: 77).

Results:

The following aspects of daily life are assessed with the MEDLO-tool: (1) activity (activity performed by resident, engagement in this activity, and the degree of physical effort); (2) physical environment (location of the resident and interaction with the physical environment); (3) social interaction (the level and type of social interaction, and with whom this social interaction took place); and (4) emotional well-being (mood and agitation). Each aspect of daily life is observed and scored using standardized scoring options. Agreement on the aspects is high with an average absolute agreement of 86%. Users of the MEDLO-tool indicated that it was feasible in practice and contained clear operationalization of the aspects of daily life.

Conclusions:

The MEDLO-tool is a promising tool to gain real time insight into the aspects of the daily lives of nursing home residents with dementia.

Keywords

Alzheimer's disease (AD)dementialong-term carenursing homesquality of life
Type
Research Article
Information
International Psychogeriatrics , Volume 28 , Issue 8 , August 2016 , pp. 1333 - 1343
Copyright
Copyright © International Psychogeriatric Association 2016 

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