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Policymaking in a plural society: the case of human experiments in medicine in Israel

Published online by Cambridge University Press:  23 October 2023

Michal Neubauer-Shani*
Affiliation:
Department of Politics and Governance and the Division of Multidisciplinary Studies in Social Sciences, Ashkelon Academic College, Yizhak Ben-Zvi 12, Ashkelon, Israel
Etienne Lepicard
Affiliation:
Center for medical education, Hadassah and Hebrew University Medical School, Ein-Kerem Campus, Jerusalem, Israel
*
Corresponding author: Michal Neubauer-Shani; Email: michal.neubauer@mail.huji.ac.il

Abstract

Various processes in recent years have brought about trends of polarization within democratic societies, challenging political stability. Against this backdrop, policy patterns that are being adopted regarding controversial issues are significantly affected by these countries’ aspiration to create and maintain a consensus, which may have implications not favoring the public. One such issue is human experiments in medicine (clinical trials), which has been regulated by most countries through primary legislation. As a deeply divided society, Israel has been addressing this issue through regulation and secondary legislation, despite several attempts to have it regulated through primary legislation. This article employs the consociational model alongside Public Choice Theory to explain the adoption of this policy pattern on the issue of human experiments. Based on thematic analysis of semi-structured interviews and existing sources, it sheds light on the normative choice that weighs the merits of primary legislation against the virtues of accommodation and consensus.

Type
Research Article
Copyright
© The Author(s), 2023. Published by Cambridge University Press

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References

Almond, Gabriel A. 1956. “Comparative Political Systems.” Journal of Politics 18 (3): 391409.CrossRefGoogle Scholar
Almond, Gabriel A., and Bingham Powell, G.. 1966. Comparative Politics: A Developmental Approach. Boston: Little, Brown.Google Scholar
Andeweg, Rudy B. 2000. “Consociational Democracy.” Annual Review of Political Science 3 (1): 509536.CrossRefGoogle Scholar
Arrow, Kenneth. 1963. Social Choice and Individual Values. New York: Wiley.Google Scholar
Axelrod, Robert. 1984. The Evolution of Cooperation. New York: Basic Books.Google Scholar
Beauvais, Caroline, and Jenson, Jane. 2002. “Social Cohesion: Updating the State of the Research.” Ottawa: Canadian Policy Research Network. https://oaresource.library.carleton.ca/cprn/12949_en.pdf (accessed October 14, 2023).Google Scholar
Bogaards, Matthijs, Helms, Ludger, and Lijphart, Arend. 2019. “The Importance of Consociationalism for Twenty-First Century Politics and Political Science.” Swiss Political Science Review 25 (4): 341356.CrossRefGoogle Scholar
Buchanan, James M., and Tullock, Gordon. 1962. The Calculus of Consent. Ann Arbor: University of Michigan Press.Google Scholar
Chan, Joseph, Pong To, Ho, and Chan, Elaine. 2006. “Reconsidering Social Cohesion: Developing a Definition and Analytical Framework for Empirical Research.” Social Indicators Research 75 (2): 273302.CrossRefGoogle Scholar
Cole, Michael. 2015. “Committee Scrutiny within a Consociational Context: A Northern Ireland Case Study.” Public Administration 93 (1): 121–38.CrossRefGoogle Scholar
Diamond, Larry. 1993. “Democracy as Paradox.” In Israeli Democracy Under Stress, eds. Sprinzak, Ehud and Diamond, Larry, 2144. Boulder, CO: Lynne Rienner.CrossRefGoogle Scholar
Don-Yehiya, Eliezer. 1997. The Politics of Accommodation: Settling Conflicts of State and Religion in Israel. Jerusalem: The Floersheimer Institute for Policy Studies. [Hebrew]Google Scholar
Downs, Anthony. 1957. “An Economic Theory of Political Action in a Democracy.” The Journal of Political Economy 65: 135150.CrossRefGoogle Scholar
Ekelund, Robert B., and Tollison, Robert D. 1980. “Mercantilist Origins of the Corporation.” The Bell Journal of Economics 11: 715720.CrossRefGoogle Scholar
Eyal, H. 2017. “Medical Experiments on Human Beings in Israel: A Dynamic of Power, Knowledge and Regulation”. PhD diss. The Hebrew University of Jerusalem. [Hebrew]Google Scholar
Farber, Daniel A. 2017. “Public Choice Theory and Legal Institutions.” UC Berkeley Public Law Research Paper No. 2396056, SSRN: https://ssrn.com/abstract=2396056 or https://doi.org/10.2139/ssrn.2396056 (accessed October 14, 2023).CrossRefGoogle Scholar
Ferlander, Sara, and Timms, Duncan. 1999. “Computer-Supported Community Networks and Social Cohesion.” Paper 1st Regional Telematics Conference (1999). April 10, 2003. http://www.stir.ac.uk/schema/conf/Tanum/tanumpaper.doc Google Scholar
Filc, Dani. 2005. “The Health Business under Neo-Liberalism: The Israeli Case.” Critical Social Policy 25 (2): 180197.CrossRefGoogle Scholar
Filc, Dani. 2009. Circles of Exclusion: The Politics of Health Care in Israel. Ithaca, NY: Cornell University Press.Google Scholar
Galnoor, Itzhak, and Blander, Dana 2013. The Political System in Israel. Tel-Aviv: Am Oved.Google Scholar
Gutmann, Emanuel. 1977. “Religion in Israeli Politics-A Uniting and Splitting Factor.” In The Israeli Political System, eds. Lissak, Moshe and Gutman, Emanuel, 397410. Tel-Aviv: Am Oved. [Hebrew]Google Scholar
Hartzell, Caroline A., and Hoddie, Matthew 2007. “The Art of the Possible: Power-Sharing and Post-Civil War Democracy.” World Politics 67 (1): 3771.CrossRefGoogle Scholar
Hirschman, Albert O. 1995. A Propensity to Self-Subversion. Cambridge, MA: Harvard University Press.Google Scholar
Horowitz, Dan, and Lissak, Moshe. 1978. From Settlement to State: The Jews in Palestine During the British Mandate as Political Community. Tel Aviv: Am Oved. [Hebrew]Google Scholar
Horowitz, Dan, and Lissak, Moshe. 1992. Trouble in Utopia: The Overburdened Polity of Israel. Tel-Aviv: Am Oved.Google Scholar
Howe, Philip J. 2019. “The United States as a Plural Society: Towards a Consociational Solution?Swiss Political Science Review 25 (4): 476–97.CrossRefGoogle Scholar
Jakobovits, Immanuel. 1976. “Clinical Trials.” Asia I: 260–262. https://www.daat.ac.il/daat/kitveyet/assia/nisyonot1-2.htm (accessed October 14, 2023). [Hebrew]Google Scholar
Jenson, Jane. 2010. Defining and Measuring Social Cohesion. Commonwealth iLibrary. https://doi.org/10.14217/9781848590724-en (accessed October 14, 2023).CrossRefGoogle Scholar
Kasen, Leah, and Cromer-Nevo, Michal. 2010. Data Analysis in a Qualitative Research. Ben Gurion University: Be’er Sheva. [Hebrew]Google Scholar
Kimenyi, Mwangi S., and Mukum Mbaku, John. 2019. Institutions and Collective Choice in Developing Countries: Applications of the Theory of Public Choice. London: Routledge.CrossRefGoogle Scholar
Krippendorff, Klaus. 2013. Content Analysis: An Introduction to its Methodology (3rd ed.). Thousand Oaks, CA: Sage.Google Scholar
Lederer, Susan E. 2004. “Research without Borders: The Origins of the Declaration of Helsinki.” In Twentieth Century Ethics of Human Subjects Research: Historical Perspectives on Values, Practices, and Regulations, eds. Volker, Roelcke and Maio, Giovanni, 199218. Stuttgart: Franz Steiner Verlag.Google Scholar
Levy, David M., and Peart, Sandra J.. 2020. Towards an Economics of Natural Equals: A Documentary History of the Early Virginia School. Cambridge: Cambridge University Press.Google Scholar
Lewis, W. Arthur. 1965. Politics in West Africa. London: Allen and Unwin.Google Scholar
Lijphart, Arend. 1968. The Politics of Accommodation. Berkeley: University of California Press.CrossRefGoogle Scholar
Lijphart, Arend. 1969. “Consociational Democracy.” World Politics 21 (2): 207225.CrossRefGoogle Scholar
Lijphart, Arend. 1977. Democracy in Plural Societies: A Comparative Exploration. New Haven, CT: Yale University Press.Google Scholar
Lijphart, Arend. 2002. “The Evolution of Consociational Theory and Consociational Practices, 1965–2000.” Acta Politica 37 (1–2): 1122.Google Scholar
Lipshits, Hadar M., and Neubauer-Shani, Michal. 2019. “The State-Religion Issue in Israel: Is the Consociational Model Still Alive?Israel Affairs 25 (2): 383399. https://doi.org/10.1080/13537121.2019.1577598 CrossRefGoogle Scholar
Lipsky, Michael. 2010. “Street-Level Bureaucracy: Dilemmas of the Individual in Public Service.” Russell Sage Foundation. https://www.jstor.org/stable/10.7758/9781610446631 (accessed October 14, 2023).Google Scholar
Lohmann, Susanne. 1995. “Information, Access, and Contributions: A Signaling Model of Lobbying.” Public Choice 85 (3–4): 267284.CrossRefGoogle Scholar
Malul, Limor. 2018. “The Shadow of Nazi Medicine on Structuring the Field of Medical Experiments on Human Beings in Israel.” PhD diss. University of Haifa. [Hebrew]Google Scholar
Malul, Limor, Davidovitch, Nadav, and Almog, Shulamit. 2019–2020. “The Impact of Past Events on the Development of Human Medical Experimentation in Israel.” Korot 25: 77100.Google Scholar
McCulloch, Allison and McGarry, John eds. 2017. Power-Sharing: Empirical and Normative Challenges. Abington: Taylor and Francis.CrossRefGoogle Scholar
Mizrahi, Shlomo, and Meydani, Assaf. 2006. Public Policy Between Society and Law: The Supreme Court, Political Participation and Policy Making. Jerusalem: Carmel. [Hebrew]Google Scholar
MoH Director-General Circular. 1999. https://www.gov.il/BlobFolder/policy/mk15-1999/he/files_circulars_mk_mk15_1999.pdf (accessed October 14, 2023).Google Scholar
Nachmias, David, Arbel-Ganz, Ori, and Meydani, Assaf. 2019. Public Policy: Basic Concepts and Theories. Ra’anana: The Open University [Hebrew]Google Scholar
Niskanen, William A. 1971. Bureaucracy and Representative Government. New Brunswick, NJ: Aldine Transaction.Google Scholar
Olson, Mancur Jr. 1965. The Logic of Collective Action. Cambridge, MA: Harvard University Press.CrossRefGoogle Scholar
Public Health Regulations (Medical experiments on Human Subjects). 1980. “Health - The People’s Health - Medical Treatments.” https://www.health.gov.il/LegislationLibrary/Briut18.pdf (accessed October 14, 2023). [Hebrew]Google Scholar
Riker, William H., and Niemi, Donald. 1962. “The Stability of Coalitions on Roll Calls in the House of Representatives.” American Political Science Review 56 (1): 5865.CrossRefGoogle Scholar
Rolfe, Gary. 2006. “Validity, Trustworthiness, and Rigor: Quality and the Idea of Qualitative Research.” Journal of Advanced Nursing 53 (3): 304310. https://doi.org/10.1111/j.1365-2648.2006.03727.x CrossRefGoogle Scholar
Rose, N. 2001. “The Politics of Life Itself.” Theory, Culture and Society 18 (6): 130.CrossRefGoogle Scholar
Rozin, Orit, and Davidovich, Nadav. 2009. “The Medical Association in Israel in the 1950s and in the 2000s.” Iyunim Bitkumat Israel 19: 5692. [Hebrew]Google Scholar
ScTPC Protocols. 2017. Protocol no.116 from the Science and Technology Committee. https://fs.knesset.gov.il//20/Committees/20_ptv_390778.doc (accessed October 14, 2023).Google Scholar
ScTPC Protocols. 2018. Protocol no.171 from the Science and Technology Committee. https://fs.knesset.gov.il//20/Committees/20_ptv_493565.doc (accessed October 14, 2023).Google Scholar
Shvarts, Shifra. 2002. The Workers’ Health Fund in Eretz Israel: Kupat Holim, 1917–1937. Rochester, NY: Rochester University Press.Google Scholar
Shvarts, Shifra. 2008. Health and Zionism: The Israeli Health Care System, 1948–1960. Rochester, NY: Rochester University Press.CrossRefGoogle Scholar
Shvarts, Shifra. 2009. “Raising a Healthy Generation in Our Country: 60 Years of Public Health Policy in Israel.” Refu’a umishpat 40: 922. [Hebrew]Google Scholar
Siegel-Itzkovich, Judy. 2009. “IDF’s Anthrax Vaccine Trial ‘Violated Helsinki Convention’”. British Medical Journal 338: b1325. https://doi.org/10.1136/bmj.b1325 CrossRefGoogle ScholarPubMed
State Comptroller. 2005. State Comptroller’s Report No. 55b. 495552. https://www.mevaker.gov.il/sites/DigitalLibrary/Pages/Reports/2239-19.aspx (accessed October 14, 2023).Google Scholar
Steinberg, Abraham, ed. 2006. Encyclopedia of Medicine and Jewish Law. Jerusalem: Schlesinger Institute of Jewish Medical Ethics. [Hebrew]Google Scholar
Tsahor, Zev. 1997. “The First Elections and the Political Map.” In The First Decade 1948–1958, eds. Zameret, Zvi and Yablonka, Hanna, 1126. Jerusalem: Yad Yitzhak Ben-Zvi. [Hebrew]Google Scholar
Tullock, Gordon. 2019. “The Realm of Public Choice.” In Institutions and Collective Choice in Developing Countries, eds. Kimenyi, Mwangi S. and Mbaku, John Mukum, 1732. Abingdon: Routledge.CrossRefGoogle Scholar
Wargan, Y. 2005. A Comparative Review Regarding: Constitutional Orders Relating to Medical Treatment and Human Experiments Without Consent. Jerusalem: The Knesset Center for Research and Information. [Hebrew]Google Scholar
Weindling, Paul J. 2004. Nazi Medicine and the Nuremberg Trials. From Medical War Crimes to Informed Consent. London and New York: Palgrave Macmillan.CrossRefGoogle Scholar
Zalmanovitz, Yair. 1981. “Histadrut, Kupat Holim, Government: The Conflictual and Consensual Exchange Approach as a Political Explanation.” MA Thesis. University of Haifa. [Hebrew]Google Scholar