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Breathlessness in everyday life from a patient perspective: A qualitative study using diaries

Published online by Cambridge University Press:  10 May 2013

Nasser S. Ahmadi ,
Jörgen Månsson ,
Ulf Lindblad  and
Cathrine Hildingh
Nasser S. Ahmadi*
Affiliation:
Department of Primary Health Care, Institute of Medicine, University of Gothenburg, Gothenburg, Sweden Carema Healthcare, Stockholm, Sweden
Jörgen Månsson
Affiliation:
Department of Primary Health Care, Institute of Medicine, University of Gothenburg, Gothenburg, Sweden Carema Healthcare, Stockholm, Sweden
Ulf Lindblad
Affiliation:
Department of Primary Health Care, Institute of Medicine, University of Gothenburg, Gothenburg, Sweden
Cathrine Hildingh
Affiliation:
School of Social and Health Sciences, Halmstad University, Halmstad, Sweden
*
Address correspondence and reprint requests to: Nasser S. Ahmadi, Department of Primary Health Care, University of Gothenburg, Arvid Wallgrens Backe, Hus 7 P.O. Box 454, SE-405 30 Gothenburg, Sweden. E-mail: nasser.ahmadi@capio.se
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Abstract

Objective:

Breathlessness is a subjective symptom, which makes it difficult to define and understand. The aim of the present study was to illuminate how patients suffering from breathlessness experience their everyday life.

Method:

The study was a qualitative study, and the focus of the analysis was the patients' descriptions of their experiences of breathlessness using a diary with two unstructured questions for a period of 7 consecutive days. Sixteen participants: 7 men, mean age 65 ± 7 (range 55–73 years old), and 9 women, mean age 65 ± 9 (range 50–72 years old) participated in the study.

Results:

Two themes emerged from the analysis: 1) Impaired quality of life and 2) symptom tolerance and adaptation. The theme “impaired quality of life” included the categories limited physical ability, psychological burdens, and social life barriers. The theme “symptom tolerance and adaptation” included importance of health care, social support, hobbies and leisure activities, and coping strategies.

Significance of results:

The findings in our study showed that patients, in spite of considerable difficulties with shortness of breath, found relief in several types of activities, in addition to drug therapy. The result indicates that the “biopsychosocial model” is an appealing approach that should be discussed further to gain a better understanding of breathlessness.

Keywords

BreathlessnessChronic obstructive pulmonary diseaseDiaryDyspneaHeart failurePrimary healthcare
Type
Original Articles
Information
Palliative & Supportive Care , Volume 12 , Issue 3 , June 2014 , pp. 189 - 194
Copyright
Copyright © Cambridge University Press 2013 

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References

REFERENCES

Arne, M., Emtner, M., Janson, S., et al. (2007). COPD patients perspectives at the time of diagnosis: A qualitative study. Primary Care Respiratory Journal: Journal of the General Practice Airways Group, 16, 215–221.Google Scholar
Bailey, C.D., Wagland, R., Dabbour, R., et al. (2010). An integrative review of systematic reviews related to the management of breathlessness in respiratory illnesses. BMC Pulmonary Medicine, 10, 63.CrossRefGoogle Scholar
Bausewein, C., Farquhar, M., Booth, S., et al. (2007). Measurement of breathlessness in advanced disease: A systematic review. Respiratory Medicine, 101, 399–410.CrossRefGoogle ScholarPubMed
Bestall, J.C., Paul, E.A., Garrod, R., et al. (1999). Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax, 54, 581–586.Google Scholar
Booth, S., Silvester, S. & Todd, C. (2003). Breathlessness in cancer and chronic obstructive pulmonary disease: Using a qualitative approach to describe the experience of patients and carers. Palliative & Supportive Care, 1, 337–344.Google Scholar
Edmonds, P.M., Rogers, A., Addington-Hall, J.M., et al. (2005). Patient descriptions of breathlessness in heart failure. International Journal of Cardiology, 98, 61–66.Google Scholar
Elo, S. & Kyngas, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62, 107–115.Google Scholar
Engel, G.L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196, 129–136.Google Scholar
Engel, G.L. (1983). The biopsychosocial model and family medicine. The Journal of Family Practice, 16, 409, 412–403.Google ScholarPubMed
Freer, C.B. (1980). Health diaries: A method of collecting health information. The Journal of the Royal College of General Practitioners, 30, 279–282.Google ScholarPubMed
Graneheim, U.H. & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112.Google Scholar
Guyatt, G.H., Berman, L.B. & Townsend, M. (1987). Long-term outcome after respiratory rehabilitation. CMAJ, 137, 1089–1095.Google ScholarPubMed
Gysels, M., Bausewein, C. & Higginson, I.J. (2007). Experiences of breathlessness: a systematic review of the qualitative literature. Palliative & Supportive Care, 5, 281–302.Google Scholar
Huijnen, B., van der Horst, F., van Amelsvoort, L., et al. (2006). Dyspnea in elderly family practice patients. Occurrence, severity, quality of life and mortality over an 8-year period. Family Practice, 23, 34–39.CrossRefGoogle Scholar
Johnson, M.J., Oxberry, S.G., Cleland, J.G., et al. (2010). Measurement of breathlessness in clinical trials in patients with chronic heart failure: The need for a standardized approach: A systematic review. European Journal of Heart Failure, 12, 137–147.Google Scholar
Jones, P.W., Quirk, F.H., Baveystock, C.M., et al. (1992). A self-complete measure of health status for chronic airflow limitation. The St. George's Respiratory Questionnaire. American Review of Respiratory Disease, 145, 1321–1327.CrossRefGoogle ScholarPubMed
Lumley, M.A., Cohen, J.L., Borszcz, G.S., et al. (2011). Pain and emotion: A biopsychosocial review of recent research. Journal of Clinical Psychology, 67, 942–968.Google Scholar
Mahler, D.A., Ward, J., Fierro-Carrion, G., et al. (2004). Development of self-administered versions of modified baseline and transition dyspnea indexes in COPD. COPD, 1, 165–172.CrossRefGoogle ScholarPubMed
Mahler, D.A., Waterman, L.A., Ward, J., et al. (2007). Responsiveness of patient-reported breathlessness during exercise in persistent asthma. Chest, 131, 195–200.CrossRefGoogle ScholarPubMed
Parkin, D., Rice, N., Jacoby, A., et al. (2004). Use of a visual analogue scale in a daily patient diary: Modelling cross-sectional time-series data on health-related quality of life. Social Science & Medicine, 59, 351–360.Google Scholar
Ponka, D. & Kirlew, M. (2007). Top 10 differential diagnoses in family medicine: Dyspnea. Canadian Family Physician, 53, 1333.Google ScholarPubMed
Roche, N. (2009). Activity limitation: A major consequence of dyspnoea in COPD. European Respiratory Review:An Official Journal of the European Respiratory Society, 18, 54–57.Google Scholar
Saracino, A., Weiland, T.J., Jolly, B., et al. (2010). Verbal dyspnoea score predicts emergency department departure status in patients with shortness of breath. Emergency Medicine Australasia, 22, 21–29.Google Scholar
Stenton, C. (2008). The MRC breathlessness scale. Occupational Medicine, 58, 226–227.Google Scholar
Williams, J.R. (2008). The Declaration of Helsinki and public health. Bulletin of the World Health Organization, 86, 650–652.Google Scholar