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Determining the satisfaction levels of the family members of patients with advanced-stage cancer

Published online by Cambridge University Press:  03 June 2014

Hanife Ozcelik*
Affiliation:
Nigde University, Zubeyde Hanim School of Health, Nigde, Turkey
Deniz Ezgi Cakmak
Affiliation:
Ege University, Faculty of Medicine Hospital, Department of Medical Oncology, Izmir, Turkey
Cicek Fadiloglu
Affiliation:
Ege University, Faculty of Nursing, Izmir, Turkey
Yasemin Yildirim
Affiliation:
Ege University, Faculty of Nursing, Izmir, Turkey
Ruchan Uslu
Affiliation:
Ege University, Faculty of Medicine Hospital, Department of Medical Oncology, Izmir, Turkey
*
Address correspondence and reprint requests to: Hanife Ozcelik, Nigde University, Zubeyde Hanim School of Health, 51100, Nigde, Turkey. E-mail: hanifeozcelik@hotmail.com

Abstract

Objective:

The objective of our study was to determine the satisfaction levels of family members of patients with advanced-stage cancer.

Method:

This descriptive study was conducted in the palliative care and medical oncology clinics of a university hospital in the province of Izmir between April of 2011 and January of 2012. The study sample consisted of a total of 145 family members, who were selected from among the family members of patients with advanced-stage cancer receiving palliative treatment. The study data were obtained using the Patient Description Form and Family Satisfaction Scale during face-to-face interviews with patients.

Results:

Some 67% of patients were female and 33% male, 70% were married, 35% were high school graduates, and 34.5% were housewives. The average total family satisfaction score was 76.87 ± 1.14, and the average scores for the component variables were as follows: information giving 74.37 ± 1.28, availability of care 78.40 ± 1.17, physical care 78.99 ± 1.09, and psychosocial care 74.52 ± 1.30. We found a relationship between the level of satisfaction of family members and (1) gender, (2) occupation, (3) presence of someone supporting the care, and (4) possession of sufficient information about the patient (p < 0.05).

Significance of Results:

Satisfaction levels of participants were determined to be high. We found that family member satisfaction levels were affected by gender and occupation, the existence of someone supporting the care, and possession of sufficient information about the patient.

Type
Original Articles
Copyright
Copyright © Cambridge University Press 2014 

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References

REFERENCES

Aksoy, S. (2003). Ethical considerations on end-of-life issues in Turkey. In Bioethics in Asia in the 21st century. Song, K.Y. et al. (eds.), pp. 2223. Christchurch, NZ: Eubios Ethics Institute. Available at http://www.eubios.info/ABC4/abc4079.htm.Google Scholar
Babaoglu, E. & Oz, F. (2003). The relationship between psychological and social problems of the spouses who cared for the terminal cancer patients [in Turkish: Terminal dönem kanser hastasina bakim veren eşlerin duygusal ve sosyal sorunlari arasindaki ilişki]. Hemşirelikte Araştırma Geliştirme Dergisi, 2, 2533.Google Scholar
Bingley, A. & Clark, D., (2009). A comparative review of palliative care development in six countries represented by the Middle East Cancer Consortium (MECC). Journal of Pain and Symptom Management, 37(3), 287296.Google Scholar
Can, G., Akın, S., Aydıner, A., et al. (2011). A psychometric validation study of the Quality of Life and FAMCARE scales in Turkish cancer family caregivers. Quality of Life Research, 20, 13191329.Google Scholar
Center for Bioethics, University of Minnesota (2005). End of life care: An ethical overview. Available at http://www.ahc.umn.edu/img/assets/26104/End_of_Life.pdf.Google Scholar
Covinsky, K.E., Goldman, L., Cook, E.F., et al. (1994). The impact of serious illness on patients' families. SUPPORT Investigators: Study to understand prognoses and preferences for outcomes and risks of treatment. The Journal of the American Medical Association, 272, 18391844.10.1001/jama.1994.03520230049037Google Scholar
Dy, S.M., Shugarman, L.R., Lorenz, K.A., et al. (2008). A systematic review of satisfaction with care at the end of life. Journal of the American Geriatrics Society, 56(1), 124129.Google Scholar
EAPC Task Force on the Development of Palliative Care in Europe (2010). Available at http://www.eolc-observatory.net/global_analysis/turkey.htm.Google Scholar
Emanuel, E.J. & Emanuel, L.L. (2000). Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers. Annals of Internal Medicine, 132, 451459.Google Scholar
Glare, P. (2005). Clinical predictors of survival in advanced cancer. The Journal of Supportive Oncology, 3(5), 331339.Google Scholar
Goldstein, N.E., Concato, J., Fried, T.R., et al. (2004). Factors associated with caregiver burden among caregivers of terminally iii patients with cancer. Journal of Palliative Care, 20(1), 3842.10.1177/082585970402000108Google Scholar
Hancock, K., Clayton, J.M., Parker, S.M., et al. (2007). Truth-telling in discussing prognosis in advanced life-limiting illnesses: A systematic review. Palliative Medicine, 21, 507517.10.1177/0269216307080823Google Scholar
Hofmann, J.C., Wenger, N.S., Davis, R.B., et al. (1997). Patient preferences for communication with physicians about end-of-life decisions. SUPPORT Investigators: Study to understand prognoses and preference for outcomes and risks of treatment. Annals of Internal Medicine, 127, 112.Google Scholar
Hwang, S.S., Chang, V.T., Alejandro, Y., et al. (2003). Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center. Palliative & Supportive Care, 1(4), 319329.10.1017/S1478951503030475Google Scholar
Jasnma, F.F.I., Schure, L.M. & Jong, B.M. (2005). Support requirements for caregivers of patients with palliative cancer. Patient Education and Counseling, 58, 182186 Google Scholar
Johansson, M.C. & Danielson, A.B. (2007). Caregivers' perceptions about terminally ill family members quality of life. European Journal of Cancer Care, 16, 338345.10.1111/j.1365-2354.2006.00754.xGoogle Scholar
Kavas, V.M. (2008). The efficacy of narrative methods in the ethical education on approach to death and dying patient . Doctoral dissertation. Ankara: Ankara University Graduate School Of Health Sciences.Google Scholar
Kristjanson, L.J. (1993). Validity and reliability testing of the FAMCARE Scale: Measuring family satisfaction with advanced cancer care. Social Science & Medicine, 36(5), 693701.10.1016/0277-9536(93)90066-DGoogle Scholar
Lo, C., Burman, D., Hales, S., Swami, N., et al. (2009 a). FAMCARE patient scale: Measuring satisfaction with care of outpatients with advanced cancer. European Journal of Cancer, 45, 31823188.Google Scholar
Lo, C., Burman, D., Rodin, G., Zimmermann, C. (2009 b). Measuring patient satisfaction in oncology palliative care: Psychometric properties of the FAMCARE patient scale. Quality of Life Research, 18, 747752.Google Scholar
Loke, Y.A., Liv, F.C.F. & Szeto, Y. (2003). The difficulties faced by informal caregivers of patients with terminal cancer in Hong Kong and the available social support. Cancer Nursing, 26(4), 276283.10.1097/00002820-200308000-00004Google Scholar
Meier, D.E. (2008). Palliative care in U.S. hospitals: Implications for access to quality healthcare. Testimony prepared for the United States Senate Special Committee on Aging, pp. 1–23. Available at http://www.aging.senate.gov/events/hr203dm.pdf.Google Scholar
Meier, D.E. & Sieger, C.E. (2013). The case for hospital-based palliative care. Available at http://www.capc.org/building-a-hospital-based-palliative-care-program/case/.Google Scholar
Northouse, L.L., Katapodi, M., Song, L., et al. (2010). Interventions with family caregivers of cancer patients: Meta-analysis of randomized trials. CA: A Cancer Journal for Clinicians, 60(5), 317339.Google Scholar
Oguz, N.Y., Miles, S.H., Buken, N., et al. (2003). End-of-life care in Turkey. Cambridge Quarterly of Healthcare Ethics, 12, 279284.Google Scholar
Osse, B.H.P., Vernooij-Dassen, M.J.F.J., Schade, E., et al. (2006). Problems experienced by the informal caregivers of cancer patients and their needs for support. Cancer Nursing, 29(5), 378388.10.1097/00002820-200609000-00005Google Scholar
Ozcelik, H., Fadiloglu, C., Karabulut, B., et al. (2010). Palliative care activities in the field of oncology in Turkey. Journal of Palliative Care, 26(4), 305310.Google Scholar
Pehlivan, S., Ovayolu, O., Ovayolu, N., et al. (2012). Relationship between hopelessness, loneliness, and perceived social support from family in Turkish patients with cancer. Supportive Care in Cancer, 20, 733739.Google Scholar
Ringdal, G.I., Jordhoy, M.S. & Kaasa, S. (2002). Family satisfaction with end-of-life care for cancer patients in a cluster randomized trial. Journal of Pain and Symptom Management, 24(1), 5363.10.1016/S0885-3924(02)00417-7Google Scholar
Steinhauser, K.E., Christakis, N.A., Clipp, E.C, et al. (2001). Preparing for the end of life: Preferences of patients, families, physicians, and other care providers. Journal of Pain and Symptom Management, 22, 727737.Google Scholar
Tan, M. & Karabulutlu, E. (2005). Social support and hopelessness in Turkish patients with cancer. Cancer Nursing, 28(3), 236240.10.1097/00002820-200505000-00013Google Scholar
Wright, M., Wood, J., Lynch, T., et al. (2006). Mapping levels of palliative care development: A global view. London: International Observatory on End-of-Life Care.Google Scholar