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Article contents
The Third Annual US Celebration of World Hospice and Palliative Care Day: A virtual coming together to unify the global palliative care community
Published online by Cambridge University Press: 05 April 2023
Abstract
Objectives
On 3–4 October 2022, the Memorial Sloan Kettering Cancer Center Supportive Care Service and Department of Psychiatry and Behavioral Sciences hosted the Third Annual United States (US) Celebration of World Hospice and Palliative Care Day (WHPCD). The purpose of this article is to reflect on the event within the broader context of the international WHPCD theme: “healing hearts and communities.” We describe lessons learned in anticipation of the fourth annual conference to be held on 3–4 October 2023.
Methods
Description of the third annual event, conference planning team reflection, and attendee evaluation responses.
Results
The Worldwide Hospice Palliative Care Alliance launched WHPCD in 2005 as an annual unified day of action to celebrate and support hospice and palliative care globally. Since 2020, the conference has attracted an increasing number of attendees from around the world. Two primary aims continue to guide the event: community building and wisdom sharing. Fifty-two interprofessional palliative care experts, advocates, patients, and caregivers provided 13 unique interactive sessions. Four hundred and fifty-eight multidisciplinary registrants from at least 17 countries joined the program. Free registration for colleagues in low- and middle-income countries, students and trainees, and individuals experiencing financial hardship remains a cornerstone of inclusion and equitable access to the event.
Significance of results
The US WHPCD celebration provides a virtual platform that offers opportunities for scientific dissemination and collective reflection on hospice and palliative care delivery amid significant local and global changes in clinical practice, research, policy and advocacy, and population health. We remain committed to ensuring an internationally relevant, culturally diverse, and multidisciplinary agenda that will continue to draw increased participation worldwide during future annual events.
Keywords
- Type
- Original Article
- Information
- Copyright
- © The Author(s), 2023. Published by Cambridge University Press.
References
Applebaum, AJ, Sannes, T, Mitchell, HR, et al. (2023) Fit for duty: Lessons learned from outpatient and homebound hematopoietic cell transplantation to prepare family caregivers for home-based care. Transplantation and Cellular Therapy 29(3), 143–150. doi:10.1016/j.jtct.2022.12.014CrossRefGoogle ScholarPubMed
Center to Advance Palliative Care (CAPC) (n.d.) Equitable access to quality palliative care for black patients: A national scan of challenges and opportunities. https://www.capc.org/project-equity-improving-health-equity-for-people-with-serious-illness/equitable-access-to-quality-palliative-care-for-black-patients-a-national-scan-of-challenges-and-opportunities/ (accessed 27 March 2023).Google Scholar
Chochinov, HM (2022) The Platinum Rule: A new standard for person-centered care. Journal of Palliative Medicine 25(6), 854–856. doi:10.1089/jpm.2022.0075CrossRefGoogle Scholar
Chochinov, HM, Kristjanson, LJ, Breitbart, W, et al. (2011) Effect of dignity therapy on distress and end-of-life experience in terminally ill patients: A randomised controlled trial. The Lancet Oncology 12(8), 753–762. doi:10.1016/S1470-2045(11)70153-XCrossRefGoogle Scholar
Chochinov, HM, McClement, SE, Hack, TF, et al. (2012) The Patient Dignity Inventory: Applications in the oncology setting. Journal of Palliative Medicine 15(9), 998–1005. doi:10.1089/jpm.2012.0066CrossRefGoogle ScholarPubMed
Coombes, L, Braybrook, D, Roach, A, et al. C-POS (2022) Achieving child-centred care for children and young people with life-limiting and life-threatening conditions – a qualitative interview study. European Journal of Pediatrics 181(10), 3739–3752. doi:10.1007/s00431-022-04566-wCrossRefGoogle Scholar
De Lima, L and Pastrana, T (2016) Evaluation of the effectiveness of workshops on the availability and rational use of opioids in Latin America. Journal of Palliative Medicine 19(9), 964–971. doi:10.1089/jpm.2016.0091CrossRefGoogle ScholarPubMed
Hadler, RA, Goldshore, M, Rosa, WE, et al. (2022) “What do I need to know about you?”: The Patient Dignity Question, age, and proximity to death among patients with cancer. Supportive Care in Cancer 30(6), 5175–5186. doi:10.1007/s00520-022-06938-2CrossRefGoogle ScholarPubMed
Jones, KF, Khodyakov, D, Arnold, R, et al. (2022) Consensus-based guidance on opioid management in individuals with advanced cancer-related pain and opioid misuse or use disorder. JAMA Oncology 8(8), 1107–1114. doi:10.1001/jamaoncol.2022.2191CrossRefGoogle Scholar
Knaul, FM, Farmer, PE, Krakauer, EL, et al. Lancet Commission on Palliative Care and Pain Relief Study Group (2018) Alleviating the access abyss in palliative care and pain relief-an imperative of universal health coverage: The Lancet Commission report. Lancet 391(10128), 1391–1454. doi:10.1016/S0140-6736(17)32513-8CrossRefGoogle ScholarPubMed
Lohman, D, Cleary, J, Connor, S, et al. (2022) Advancing global palliative care over two decades: Health system integration, access to essential medicines, and pediatrics. Journal of Pain and Symptom Management 64(1), 58–69. doi:10.1016/j.jpainsymman.2022.03.001CrossRefGoogle ScholarPubMed
Lynch, KA, Green, A, Saltz, L, et al. (2022) The hardest weeks of my life: A qualitative study of experiences, practice changes, and emotional burden of New York City oncology physicians during the COVID-19 surge in 2020. JCO Oncology Practice 18(5), e669–e676. doi:10.1200/OP.21.00585CrossRefGoogle ScholarPubMed
Marcewicz, L, Kunihiro, SK, Curseen, KA, et al. (2022) Application of critical race theory in palliative care research: A scoping review. Journal of Pain and Symptom Management 63(6), e667–e684. doi:10.1016/j.jpainsymman.2022.02.018CrossRefGoogle ScholarPubMed
McPeake, J, Kentish-Barnes, N, Banse, E, et al. (2023) Clinician perceptions of the impact of ICU family visiting restrictions during the COVID-19 pandemic: An international investigation. Critical Care (London, England) 27(1), . doi:10.1186/s13054-023-04318-8CrossRefGoogle ScholarPubMed
Paiva, CE, Bonilla-Sierra, P, Tripodoro, VA, et al. Collaborative Group for the Advancement of Research in Palliative Care in South America (Los PamPAS Group) (2023) How to advance palliative care research in South America? Findings from a delphi study. Journal of Pain and Symptom Management 65(3), 193–202. doi:10.1016/j.jpainsymman.2022.11.020CrossRefGoogle ScholarPubMed
Palliative Care and Hospice Education and Training Act (PCHETA) (2020) H.R. 647 palliative care and hospice education and training act, 116th Congress. https://www.congress.gov/bill/116th-congress/house-bill/647 (accessed 27 March 2023).Google Scholar
Pastrana, T and De Lima, L (2022) Palliative care in Latin America: Are we making any progress? Assessing development over time using macro indicators. Journal of Pain and Symptom Management 63(1), 33–41. doi:10.1016/j.jpainsymman.2021.07.020CrossRefGoogle ScholarPubMed
Pérez-Cruz, PE, Undurraga, E, Arreola-Ornelas, H, et al. (2023) Bridging gaps to universal palliative care access in Chile: Serious health-related suffering and the cost of expanding the package of care services. The Lancet Regional Health Americas 19, . doi:10.1016/j.lana.2022.100425CrossRefGoogle ScholarPubMed
Roberts, KE, Lichtenthal, WG and Ferrell, BR (2021) Being a bereavement-conscious hospice and palliative care clinician. Journal of Hospice and Palliative Nursing 23(4), 293–295. doi:10.1097/NJH.0000000000000775CrossRefGoogle ScholarPubMed
Rosa, WE, Grant, L, Knaul, FM, et al. (2022a) The value of alleviating suffering and dignifying death in war and humanitarian crises. The Lancet 399(10334), 1447–1450. doi:10.1016/S0140-6736(22)00534-7CrossRefGoogle ScholarPubMed
Rosa, WE, Pandey, S, Epstein, AS, et al. (2022b) The 2nd annual U.S. celebration of World Hospice and Palliative Care Day: A virtual coming together to support equity in palliative care access. Palliative & Supportive Care 20(3), 307–312. doi:10.1017/S147895152200013XCrossRefGoogle Scholar
Rosa, WE, Pandey, S, Epstein, AS, et al. (2021) The inaugural United States World Hospice and Palliative Care Day Celebration: A virtual coming together. Palliative & Supportive Care 19(2), 182–186. doi:10.1017/S1478951521000237CrossRefGoogle ScholarPubMed
Sallnow, L, Smith, R, Ahmedzai, SH, et al. Lancet Commission on the Value of Death (2022) Report of the Lancet Commission on the Value of Death: Bringing death back into life. The Lancet 399(10327), 837–884. doi:10.1016/S0140-6736(21)02314-XCrossRefGoogle ScholarPubMed
Sanders, JJ, Gray, TF, Sihlongonyane, B, et al. (2022) A framework for anti-racist publication in palliative care: Structures, processes, and outcomes. Journal of Pain and Symptom Management 63(3), e337–e343. doi:10.1016/j.jpainsymman.2021.10.001CrossRefGoogle ScholarPubMed
Schoppee, TM, Scarton, L, Bluck, S, et al. (2022) Dignity therapy intervention fidelity: A cross-sectional descriptive study with older adult outpatients with cancer. BMC Palliative Care 21(1), . doi:10.1186/s12904-021-00888-yCrossRefGoogle ScholarPubMed
The Schwartz Center for Compassionate Healthcare (2023) Schwartz rounds and membership. https://www.theschwartzcenter.org/programs/schwartz-rounds/ (accessed 27 March 2023).Google Scholar
Stein, GL, Berkman, C, O’Mahony, S, et al. (2020) Experiences of lesbian, gay, bisexual, and transgender patients and families in hospice and palliative Ccare: Perspectives of the palliative care team. Journal of Palliative Medicine 23(6), 817–824. doi:10.1089/jpm.2019.0542CrossRefGoogle Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2022a) Home. http://www.thewhpca.org (accessed 27 March 2023).Google Scholar
Worldwide Hospice Palliative Care Alliance (WHPCA) (2022b) Campaign toolkit: Healing hearts and communities. https://thewhpca.org/world-hospice-and-palliative-care-day/resources-2022/category/campaign-toolkit (accessed 27 March 2023).Google Scholar