I previously reported (O'Shea, 1989) on the experiences of national Huntington's disease (HD) organisations in Britain, Holland, Ireland, New Zealand, and the USA. The Australian experience was discussed later (Kapp, 1990; O'Shea, 1990). The earlier paper supported the contention (Black, 1988) that the medical profession in general was not supportive of HD voluntary groups. I also expressed concern that the lobbying of voluntary groups representing far more common disorders was “bound to dilute the impact that Huntington societies may have.”
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