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Perceived Stress and Social Adaptation of the Primary Caregivers of Children with Intellectual Disabilities

Published online by Cambridge University Press:  24 November 2016

Mohd. Ashik Shahrier ,
Md. Nurul Islam  and
Mou-Mita Debroy
Mohd. Ashik Shahrier*
Affiliation:
University of Rajshahi (Bangladesh)
Md. Nurul Islam
Affiliation:
University of Chittagong (Bangladesh)
Mou-Mita Debroy
Affiliation:
University of Chittagong (Bangladesh)
*
*Correspondence concerning this article should be addressed to Mohd. Ashik Shahrier. University of Rajshahi – Psychology Assistant Professor. Department of Psychology. University of Rajshahi. 6205. Rajshahi (Bangladesh). E-mail: ashikpsy@ru.ac.bd
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Abstract

The study aimed to explore whether McCubbin and Patterson’s Double ABCX model of stress and adaptation can promote a better understanding of the impacts of social support, definition of the stressor and coping strategies on stress and adaptation of the primary caregivers of Intellectually Disabled (ID) children above and beyond the effects of other factors. Structured Interview Schedule, Perceived Stress Scale (Keya, 2006) and Social Adjustment Scale (Mahmuda & Parvin, 2005) were administered on 130 caregivers of ID children and 140 caregivers of typically developing children recruited conveniently. Findings reveal that stress and adaptation of the caregivers of ID children were significantly positively associated (r = .429, p < .01). Significant variations in stress and adaptation of the caregivers of ID children were found in terms of children’s disability types (F = 14.50, df = 4/120, p < .001 for stress; F = 11.92, df = 4/120, p < .001 for adaptation) and severity of disability (F = 5.21, df = 1/120, p < .05 for stress; F = 11.14, df = 1/120, p < .01 for adaptation). Factors of the Double ABCX model of stress and adaptation created significant variations in stress (F = 17.94, df = 3/121, p < .001) and adaptation (F = 9.96, df = 3/121, p < .001) of the caregivers of ID children above and beyond the effects of other factors. The findings suggest that the Double ABCX model is valuable in understanding stress and adaptation of the primary caregivers of ID children.

Keywords

caregiversdisabilitysocial adaptationstress
Type
Research Article
Information
The Spanish Journal of Psychology , Volume 19 , 2016 , E87
Copyright
Copyright © Universidad Complutense de Madrid and Colegio Oficial de Psicólogos de Madrid 2016 

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References

Antonovsky, A. (1987). Unravelling the mystery of health: How people manage stress and stay well (1 st Ed.). San Francisco, CA: Jossey-Bass.Google Scholar
Antonovsky, A., & Sagy, S. (1986). The development of a sense of coherence and its impact on responses to stress situations. Journal of Social Psychology, 126, 213–225.Google Scholar
Armstrong, J., & Ager, A. (2005). Perspectives on disability in Afghanistan and their implications for rehabilitation services. International Journal of Rehabilitation Research, 28(1), 87–92. https://doi.org/10.1097/00004356-200503000-00013 CrossRefGoogle ScholarPubMed
Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30, 194–204. https://doi.org/10.2511/rpsd.30.4.194 CrossRefGoogle Scholar
Blacher, J., Shapiro, J., Lopez, S., & Diaz, L. (1997). Depression in Latina mothers of children with mental retardation: A neglected concern. American Journal on Mental Retardation, 101, 483–496.Google Scholar
Brobst, J. B., Clopton, J. R., & Hendrick, S. S. (2009). Parenting children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 24, 38–49.Google Scholar
Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8, 409–423. https://doi.org/10.1177/1362361304047224 Google Scholar
Carpiniello, B., Piras, A., Pariante, C., & Carta, M. (1995). Psychiatric morbidity and family burden among parents of disabled children. Psychiatric Services, 46, 940–942.Google Scholar
CSID & Cambridge Consortium. (2002). ‘Educating children in difficult circumstances: Children with disability’. ESTEEM II Study. Directorate of Primary Education: Primary and mass education division. Retrieved from the Government of the People’s Republic of Bangladesh Webpage http://www.csid-bd.com/research/research06.pdf Google Scholar
Cohen, O., & Dekel, R. (2000). Sense of coherence, ways of coping and well-being of married and divorced mothers. Contemporary Family Therapy: An International Journal 22, 467–486.Google Scholar
Cushner-Weinstein, S., Dassoulas, K., Salpekar, J. A., Henderson, S. E., Pearl, P. L., Gaillard, W. D., & Weinstein, S. L. (2008). Parenting stress and childhood epilepsy: The impact of depression, learning, and seizure-related factors. Epilepsy & Behavior, 13(1), 109–114. https://doi.org/10.1016/j.yebeh.2008.03.010 CrossRefGoogle ScholarPubMed
Diken, I. H. (2006). Turkish mothers’ interpretation of the disability of their children with mental retardation. International Journal of Special Education, 21, 8–27.Google Scholar
Endrawes, G., O’Brien, L., & Wilkes, L. (2007). Mental illness and Egyptian families. International Journal of Mental Health Nursing, 16, 178–187. https://doi.org/10.1111/j.1447-0349.2007.00465.x Google Scholar
Feldman, M., McDonal, L., Serbin, L., Stack, D., Secco, M. L., & Yu, C. T. (2007). Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay. Journal of Intellectual Disability Research, 51, 606–619. https://doi.org/10.1111/j.1365-2788.2006.00941.x Google Scholar
Global Autism Public Health (GAPH) Bangladesh. (2012). ‘Situation analysis of autism and developmental disabilities in Bangladesh (autism, intellectual disabilities, cerebral palsy and ADHD)’. Dhaka, Bangladesh: UNICEF. Bangladesh. Retrieved from UNICEF Bangladesh Webpage http://www.unicef.org/bangladesh/SACDB_Report_FINAL.pdf Google Scholar
Hastings, R. P., Kovshoff, H., Ward, N. J., degli Espinosa, F., Brown, T., & Remington, B. (2005a). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644. https://doi.org/10.1007/s10803-005-0007-8 Google Scholar
Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9, 125–137. https://doi.org/10.1177/1362361305051403 Google Scholar
Hodapp, R. M., Dykens, E. M., & Masino, L. L. (1997). Families of children with Prader–Willi syndrome: Stress support and relations to child characteristics. Journal of Autism and Developmental Disorders, 27, 11–24.Google Scholar
Hoare, P., Harris, M., Jackson, P., & Kerley, S. (1998). A community survey of children with severe intellectual disability and their families: Psychological adjustment, career distress and the effect of respite care. Journal of Intellectual Disability Research, 42, 218–227. https://doi.org/10.1046/j.1365-2788.1998.00134.x Google Scholar
Jones, J., & Passey, J. (2005). Family adaptation, coping and resources: Parents of children with developmental disabilities and behavior problems. Journal on Developmental Disabilities, 11(1), 31–46.Google Scholar
Keya, M. K. (2006). Development of a Scale of Perceived Stress for use in Bangladesh. Bangladesh Psychological Studies, 16, 79–92.Google Scholar
Mahmuda, A., & Parvin, K. (2005). Social adjustment of rape victims in the context of Bangladesh. Bangladesh Psychological Studies, 15, 51–62.Google Scholar
McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The Double ABCX model of adjustment and adaptation, In McCubbin, H. I., Sussman, M. B., & Patterson, J. M. (Eds.), Social stress and the family: Advances and developments in family stress theory and research, (pp. 7–37). New York, NY: The Haworth Press.Google Scholar
Miles, C. (2007). Imran’s Djinn, and theories of epilepsy. Retrieved from Independent Living Institute Website. http://www.independentliving.org/docs7/miles-christine2000.html Google Scholar
National Institute of Population Research and Training (NIPORT), Mitra and Associates, & ICF International. (2012). Bangladesh Demographic and Health Survey 2011. Dhaka, Bangladesh and Calverton, MD: NIPORT, Mitra and Associates, and ICF International. Retrieved from http://dhsprogram.com/pubs/pdf/PR15/PR15.pdf Google Scholar
Pakenham, K. I., Sofronoff, K., & Samios, C. (2004). Finding meaning in parenting a child with Asperger syndrome: Correlates of sense making and benefit finding. Research in Developmental Disabilities, 25, 245–264. https://doi.org/10.1016/j.ridd.2003.06.003 Google Scholar
Pallant, J. F., & Lae, L. (2002). Sense of coherence, well-being, coping and personality factors: Further evaluation of the sense of coherence scale. Personality and Individual Differences, 33(1), 39–48. https://doi.org/10.1016/S0191-8869(01)00134-9 Google Scholar
Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22, 855–864. https://doi.org/10.1037/a0013604 Google Scholar
Reddon, J. E., McDonald, L., & Kysela, G. M. (1992). Parental coping and family stress I: Resources for and functioning of families with a preschool child having a developmental disability. Early Child Development and Care, 83, 1–26. https://doi.org/10.1080/0300443920830101 Google Scholar
Saloviita, T., Itaelinna, M., & Leinonen, E. (2003). Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: A Double ABCX Model. Journal of Intellectual Disability Research, 47, 300–312. https://doi.org/10.1046/j.1365-2788.2003.00492.x CrossRefGoogle ScholarPubMed
Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for Intervention. Child and Family Behavior Therapy, 19, 15–32. https://doi.org/10.1300/J019v19n04_02 Google Scholar
Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38, 876–889. https://doi.org/10.1007/s10803-007-0461-6 Google Scholar
UNICEF. (2009). ‘Situation assessment and analysis of children and women in Bangladesh’. Retrieved from UNICEF Website http://www.unicef.org/bangladesh/BD_Sitan_2009_lowres.pdf Google Scholar
Uskun, E., & Gundogar, D. (2010). The levels of stress, depression and anxiety of parents of disabled children in Turkey. Disability & Rehabilitation, 32, 1917–1927. https://doi.org/10.3109/09638281003763804 Google Scholar