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Recovery priorities of people with psychosis in acute mental health in-patient settings: a Q-methodology study

Published online by Cambridge University Press:  08 February 2021

Catherine Douglas*
Affiliation:
School of Health and Social Care, University of Essex, Wivenhoe Park, ColchesterCO4 3SQ, UK Merton Primary Care Recovery Service, The Wilson Hospital, Cranmer Road, Mitcham, London, CR4 4TP, UK
Lisa Wood
Affiliation:
School of Health and Social Care, University of Essex, Wivenhoe Park, ColchesterCO4 3SQ, UK North East London NHS Foundation Trust, Acute and Rehabilitation Directorate, Goodmayes Hospital, Barley Lane, IlfordIG3 8XJ, UK
Danny Taggart
Affiliation:
School of Health and Social Care, University of Essex, Wivenhoe Park, ColchesterCO4 3SQ, UK
*
*Corresponding author. Email: Cat.Douglas@swlstg.nhs.uk
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Abstract

Background:

Personal recovery from psychosis has been explored extensively in community samples but there has been little exploration with people currently receiving care from an acute mental health in-patient setting.

Aims:

The aim of this study was to explore the personal recovery priorities of people experiencing psychosis who are currently receiving care from an acute mental health in-patient ward.

Method:

A Q-methodology mixed-methods approach was adopted. Thirty-eight participants were recruited from an outer London acute mental health hospital. They were required to sort 54 statements regarding personal recovery from most important to least important to reflect their recovery priorities. Thirty-six were included in the final analysis.

Results:

Analysis revealed four distinct viewpoints relating to factors that promote recovery in the acute mental health in-patient setting. These were: stability, independence and ‘keeping a roof over your head’; hope, optimism and enhancing well-being; personal change, self-management and social support; and symptom reduction through mental health support.

Conclusions:

Acute mental health in-patient wards need to ensure that they are considering the personal recovery needs of in-patients. Symptom reduction was valued by some, but broad psychosocial factors were also of priority.

Type
Main
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Copyright
© British Association for Behavioural and Cognitive Psychotherapies 2021

Introduction

Psychosis is a mental health difficulty consisting of experiences such as hearing voices, seeing things that others do not see, holding strong beliefs that are not shared by others, and difficulties with thinking and concentration (Cooke, Reference Cooke2017). Psychosis was traditionally seen as a degenerative medical illness; however, due to influential service user movements and long-term outcome research, it is now understood to be a recoverable mental health experience (Law and Morrison, Reference Law and Morrison2014). In defining recovery, distinctions are often drawn between clinical recovery and personal recovery (Slade et al., Reference Slade, Amering and Oades2008). Clinical recovery, which operates within a medical framework, sees recovery as a dichotomous state where one is either classified as ‘ill’ or ‘recovered’, interspersed with periods of ‘remission’ and ‘relapse’ (Schrank and Slade, Reference Schrank and Slade2007). Personal recovery, described by Anthony (Reference Anthony1993), emerged from the survivor movement which saw the emergence of service user’s individual accounts of recovery. Personal recovery is synonymous with narratives of ‘living well with…’ suggesting that one can live a socially, functionally and emotionally fulfilling life even in the presence of continued experiences of psychosis. In relation to psychosis, personal recovery can be linked to social recovery which emphasises improvements in functioning over symptom reduction (Hodgekins et al., Reference Hodgekins, French, Birchwood, Mugford, Christopher, Marshall, Everard, Lester, Jones, Amos, Singh, Sharma, Morrison and Fowler2015).

The personal recovery model is often prioritised by service users (Pilgrim and McCranie, Reference Pilgrim and McCranie2013) and depicts recovery as a journey with a more optimistic and less stigmatising view of mental health. It centres on utilizing personal strengths and is built on the premise that although individuals may not have full control over their experiences of psychosis, they can take control in other areas of their life (Bonney and Stickley, Reference Bonney and Stickley2008; Jacob, Reference Jacob2015). Studies exploring the subjective experience of recovery from psychosis have emphasised social support, engagement in meaningful activities, and regaining independence along with personal factors such as acceptance and developing an understanding of experiences (Connell et al., Reference Connell, Schweitzer and King2015; Lam et al., Reference Lam, Pearson, Ng, Chiu, Law and Chen2011; Windell and Norman, Reference Windell and Norman2013). A Q-methodology study, conducted by Wood et al. (Reference Wood, Price, Morrison and Haddock2013), identified four key perspectives: collaborative support and understanding; emotional change through social and medical support; regaining functioning and occupational goals; and self-focused recovery. Research exploring recovery from psychosis describes it as a gradual and staged process. Pitt et al. (Reference Pitt, Kilbride, Nothard, Welford and Morrison2007) described three stages of recovery from psychosis which include: rebuilding the self, rebuilding life, and hope for a better future. Much of the recovery literature has focused on individuals in the community who are arguably more stable in relation to their recovery journey, with a lack of research with those who are experiencing acute distress.

Mental health in-patient services have improved dramatically over recent years and are increasingly offering care underpinned by a biopsychosocial framework (Bowers, Reference Bowers2014). Importantly, best-practice guidelines outline that in-patient care should incorporate multi-disciplinary working, psychological formulation and intervention, and involvement of those with lived experience in the delivery of their services, demonstrating its shift away from a bio-medical framework (Perry et al., Reference Perry, Palmer, Thompson, Worrall and Chaplin2017). There have been a number of initiatives which have aimed to improve the quality of in-patient care delivered in in-patient settings, for example STAR Wards (Star Wards, 2017) and SAFE wards (Bowers, Reference Bowers2014), which again have improved the quality of care provided. However, the integration of recovery-focused practices is still limited. Very little research exists on the specific recovery priorities for those who are experiencing acute distress. It is likely that the recovery priorities and needs of acute mental health in-patients experiencing current severe distress, are different from those who are not hospitalised. Only one study has explored the subjective recovery experiences of service users’ currently in hospital settings. Laithwaite and Gumley (Reference Laithwaite and Gumley2007) explored the subjective experiences of recovery of service users in a high-secure forensic setting and identified the crucial role of relationships with staff and family. Personal recovery is likely to be a contentious issue in current acute mental health in-patient settings, which are dominated by more medical approaches to treatment aiming to reduce symptoms and risk (Wood et al., Reference Wood, Williams, Billings and Johnson2019). Moreover, persistent service user dissatisfaction of acute psychiatric in-patient care (Care Quality Commission, 2017) may indicate that service users’ recovery needs are not being considered appropriately in this setting. A recent review of service user perspectives of acute mental health in-patient care demonstrated that many psychiatric in-patients feel unsupported and dismissed, isolated from others, unsafe, and that they are receiving inadequate treatment (Wood and Alsawy, Reference Wood and Alsawy2017), which would undoubtedly have an impact on service users’ recovery experiences. It would be important to examine in-patients’ perspectives on recovery to understand how their needs differ. This study aims to examine in-patients’ views about factors that promote recovery from psychosis in an acute mental health in-patient setting.

Method

Design

This study adopted a mixed-methods Q-methodology design to examine the subjective experiences of recovery from psychosis from the perspective of acute mental health in-patients (Watts and Stenner, Reference Watts and Stenner2012).

Development of the Q-set

The Q-set is a systematically generated set of items on a given topic domain (Watts and Stenner, Reference Watts and Stenner2012). The Q-set forms the foundation of the method and comprises the key statements which participants are required to sort. This occurs in a number of key stages, which are outlined below. A structured approach to Q-set formation was developed, which involves a systematic and rigid method to item development, comparable to the process of scale development (Watts and Stenner, Reference Watts and Stenner2012).

Examination of the Q-concourse

Initially, the concourse, defined as the communicability about a certain topic (ideas, thoughts, opinions, views), is explored. A wide-ranging number of sources relating to recovery were systematically explored including academic literature, recovery outcome measures, mental health websites, personal accounts of recovery, NHS websites, NICE guidelines, policy and white paper documents. Recent literature reviews and a Delphi study exploring recovery from psychosis were included to provide an initial framework of themes (Law and Morrison, Reference Law and Morrison2014; Leamy et al., Reference Leamy, Bird, Le Boutillier, Williams and Slade2011; Wood and Alsawy, Reference Wood and Alsawy2017; Wood et al., Reference Wood, Price, Morrison and Haddock2013). A wide range of literature was selected in order to capture the broad spectrum of recovery perspectives from medical conceptualisation to personal service user-defined approaches.

Theme identification

Following exploration of the concourse, themes were identified and extracted which represented subjective acute mental health in-patient recovery experiences. All the Q-concourse sources were read thoroughly, and systematically screened for data items which pertained to recovery from psychosis within an acute mental health in-patient context. Data items were extracted in the form of quotes, statements or questionnaire items, ensuring equal and complete coverage across all themes. During this process, ideas and opinions in relation to recovery were collected in the form of statements. Themes and subthemes were developed alongside this process by grouping together data which shared some similarity or corresponded to a particular aspect of recovery. This process of exploration and identification continued until saturation occurred and no new themes emerged. An initial 29 themes relevant to recovery from psychosis in an in-patient population were identified. Themes were reviewed and scrutinised, and multiple themes, which shared some commonality, were combined to produce over-arching themes. This produced 11 themes and 27 subthemes. Themes and subthemes are outlined in Table 1.

Table 1. Themes and subthemes

Data extraction

Once the themes were developed, a process of data extraction took place to generate statements for the Q-set. During this process, material such as direct quotes, ideas, research findings and items from outcome measures were collected, which totalled approximately 350 data items. These were then grouped together in relation to the themes and subthemes identified. Duplicates and overlapping items were removed, leaving 272 items grouped under the main themes and subthemes.

Q sampling

The next step involved generating a list of statements to form the Q-set. The target number of statements was between 40 and 80, which is suggested as a suitable size for a Q-set, whilst maintaining a representative coverage of the topic (Stainton Rogers, Reference Stainton Rogers, Smith, Harré and Van Langenhove1995; Watts and Stenner, Reference Watts and Stenner2012). The items and themes were read and reviewed. A process of quota sampling was employed whereby two items were chosen to represent each subtheme. This process involved refining and reducing the items in each subtheme to fully capture the views, and opinions expressed. This process resulted in 54 items considered to capture the essence of the data in each subtheme. Each subtheme consisted of two items; however, two subthemes (‘Relationships – General’ and ‘Functional – Activities’) had three items each as these additional items captured something distinct in the data that was not present elsewhere. The next step was to transform the final 54 items into a usable Q-set, by a process of refining and rewording (Table 2).

Table 2. Table of Q-set items

Participants

This study recruited 38 participants from four adult acute mental health in-patient wards in an outer London hospital. The inclusion criteria were: participants with a schizophrenia-spectrum diagnosis or those who met entry criteria for an Early Intervention for Psychosis service; currently receiving care from an acute mental health in-patient unit; and aged between 18 and 65 years. The exclusion criteria were non-English speakers (due to translation costs); those deemed too unwell to participate (by the psychology team); anyone lacking capacity to consent; and those already involved in a research study relating to recovery.

Procedure

Potential participants were screened by the clinical teams for suitability with reference to the inclusion and exclusion criteria. Interested participants were referred to the researcher. Details of the study were explained to the participants and written informed consent was gained. Participants first completed the pre-sort task where they were handed the Q-set and asked to sort the Q-set cards into three piles: important, unimportant or neutral, in response to the condition of instruction (‘Which factors are most important to your recovery?’).

Participants were then presented with the distribution grid (Fig. 1) and instructed to start by arranging the ‘important’ pile of cards onto the grid by first selecting the three most important statement cards and placing them in the +5 column. They were then asked to select the four next most important cards and place them in the +4 column, and so on. The same process was then completed for the ‘unimportant’ and ‘neutral’ piles. Once the sorting was completed, participants were given the opportunity to make any changes. Participants were then given a feedback form and asked four brief questions about the task, which included asking them to identify their reasons for selecting the top three and bottom three statements, identifying anything which was missing, and any other relevant feedback. Notes with regard to engagement and explanations given by participants about their sorts were made by the researcher during the task.

Figure 1. Distribution grid.

Data analysis

Analysis was conducted using Q-method software PQ method (version 2.11; Schmolck, Reference Schmolck2002). A principal components analysis with varimax rotation was used to identify the most parsimonious solution explaining the most variance. Factors produced were based on groups of participants who shared similar viewpoints about recovery within an in-patient setting. Factor extraction drew upon statistical and theoretical considerations. All eigenvalues for factors had to be above 1 (Kaiser–Guttman criteria; Guttman, Reference Guttman1954; Kaiser, Reference Kaiser1960), the cross-product criteria of a factor had to be twice the size of the standard error (Brown, Reference Brown1980), factors had to have at least two loading Q-sorts which had a factor loading of 0.36 or above (Watts and Stenner, Reference Watts and Stenner2012). Qualitative feedback was gathered through a feedback questionnaire (see Supplementary material) to examine participants’ reasons for their Q-sort distribution. Finally, the final factor names were developed drawing upon the most highly endorsed statements, qualitative feedback, and consideration of relevant recovery literature.

Results

Participant demographics

A total of 38 participants were recruited, but only 36 were included in the analysis. Two participants were excluded due to not completing the task, making their results invalid (Krueger et al., Reference Krueger, Casey, Donner, Kirsch and Maack2001). Participant demographics for the final 36 participants are given in Table 3. The majority of participants were male (89%), White British (44%), diagnosed with schizophrenia (44%), and were currently experiencing psychosis (78%). The average age of the sample was 40 years (SD 13.08), and the average number of admissions was 4.83 (SD 5.47).

Q-method analysis

The analysis resulted in a four-factor solution explaining 38% of the study variance. Twenty-five of 36 participants’ Q-sorts loaded significantly on one of the four factors. Participant demographics per factor are outlined in Table 3. The factor loadings, eigenvalues and explained variances are given in Table 4.

Table 3. Demographic information for study participants

Table 4. Q-sort matrix

Factor 1: Stability, independence and ‘keeping a roof over your head’

Factor 1 explains 9% of the study variance, with six participants loading onto the factor, and had an eigenvalue of 4.84. This group had the lowest number of hospital admissions and were focused on improving the practical aspects of their life in the community.

The factor consisted of people who prioritised stable living arrangements, for example having ‘a roof over your head before you can do anything’ (P13) and described how financial and employment security were crucial to maintain this. This caused participants significant worry, ‘I worry about whether I can keep looking after myself and I need a secure residence to have, because if I don’t know where I will be from day to day there is no point in trying’ (P26). Feeling in control of their personal and living circumstances, alongside government support, were particularly valued by this group [items 1, 9, 19, 12, 42, 28, 29, 39, 44; e.g. government support, +5; control over circumstances (money, living, employment etc.), +5; financial stability, +5]. Reducing substance use was rated more importantly by this group when compared with the other three groups (item 49: reducing drug/alcohol use, +2).

This group did value improving their mental health symptoms but it was improvement in the day-to-day impact of their symptoms, which was prioritised (items 41, 7, 28, 13, 37; e.g. the distress my mental health symptoms/voices cause me, +4; impact on memory and concentration, +3; ability to cope with my mental health, +3). This group valued having input from mental health services to help them cope with their experiences of psychosis. Medication was rated more importantly by this group when compared with other groups. Additionally, this group consisted of those who valued feeling in control of their circumstances and as such being involved in decisions relating to their treatment and care was considered important. Psychological therapies (items 3, 48, 36, 16; e.g. support from mental health services, +1; helpfulness of therapy, –1), relationships and religion (items 6, 8, 11, 26, 31, 45, 20, 5, 34, 38; e.g. religion/spirituality to cope, –5; positive perceptions of relationships, –4) were seen to be less important.

Factor 2: Hope, optimism and enhancing well-being

This factor explained 11% of the study variance and had an eigenvalue of 4.13. Eight participants loaded significantly on this factor (Table 2). This factor consisted of people who reported that enhancing the positive aspects of mental well-being were the most important factors to recovery, and were the only group to view reduction of mental health symptoms as the least important factors. This group had a high number of admissions and longest duration of psychosis, which may reflect enduring experiences of psychosis in the sample. Participants in this group appeared to adopt a living with symptoms approach to recovery and rejected the medical model (item 3: helpfulness of medication, –4).

This group prioritised the interpersonal and intrapersonal factors of recovery and explained how distressing experiences of psychosis and hospitalisation can hinder these. ‘Upon entry to hospital your confidence has taken a bashing and it’s important that your self-worth and purpose is reinstated’ (P4). Maintaining hope and optimism were of particular importance (items 53, 4, 14, 54; e.g. believing I can get better, +5; life having a purpose, +5; self-confidence, +4). Participants engaged in a variety of non-clinical coping strategies to cope, including turning to religion and spirituality (item 34: religion/spirituality to cope, +5), hobbies and exercise (items 25, 17: exercise and eating well, +3, meaningful community activities, +1). This group valued their relationships with peers, staff and family (items 26, 32, 31, 5; e.g. positive perceptions of relationships, +4; staff treating me with dignity and respect, +3).

Finally, this group identified positive aspects to their experiences, which may indicate that some of their symptoms of psychosis were experienced as pleasant. For example, one participant spoke of his voices as being ‘nice most of the time’. All symptoms aspects of their experiences were rated as low (items 2, 3, 7, 41, 18, 52; e.g. frequency of mental health experiences, –5; impact on memory and concentration, –5; the distress my mental health/symptoms/voices cause me, –5).

Factor 3: Personal change, self-management and social support

This factor explained 10% of the study variance, had an eigenvalue of 2.36, and seven participants loaded onto this factor. One participant’s Q-sort loaded negatively on this factor, meaning that this participant’s view was negatively associated with this factor. This group had the shortest duration of psychosis and the second lowest average number of admissions, probably representing people with early stage psychosis.

This factor consisted of people who valued self-management and coping with their experiences without the input of mental health services. Participants wanted to reduce the impact of mental and physical health symptoms and enhance their sense of purpose and self-belief as important factors in their recovery (items 7, 37, 14, 41, 27, 18, 13, 23, 4, 53, 54; e.g. impact on memory and concentration, +5; impacts of mental health on my ability to work, +4; self-confidence, +4; impacts on my personal freedoms and rights, +4).

This group valued self-management and utilising their own resources to facilitate recovery (items 28, 34, 44, 25; e.g. how able I am to cope with my mental health experiences myself, +5; how often I exercise and eat well, +5). One participant wrote ‘exercise helps release endorphins and provides a sense of achievement’ (P16) and another spoke of how their religion helps them to cope, ‘I believe that God and me personally can overcome anything’ (P32). Individuals in this group valued feeling in control of their circumstances and being able to function independently of formal forms of support [items 44, 9; looking after one’s self (e.g. daily tasks), +4; control over circumstances (money, living, employment etc.), +3]. In contrast, access to, and support from mental health services, particularly in-patient services, were seen as some of the most unimportant factors in recovery (items 3, 32, 47, 36, 16, 10, 33, 52, 24; e.g. comfortableness of the hospital ward/environment, –5; support from hospital staff, –4; having my diagnosis explained, –4; helpfulness of therapy, –3).

This group valued having support from loved ones and their broader social system (items 31, 11, 26, 46, 40; e.g. support from family/loved ones, +3; socialising with others, +2). One participant stated, ‘as a society we enjoy seeing each other through the good as well as the bad times’ (P16). Individuals recognised relational factors as affecting their recovery and felt that feelings of loneliness and being a burden would hinder their recovery (items 45, 8; e.g. not being a burden to others, +1).

Negatively loading Q-sort: psychosis as a gift from God

One participant loaded negatively onto this factor, meaning the participant’s view was opposed to the rest of the group. This participant was male, aged 63, but also experiencing his own first episode of psychosis. This participant described his experiences as ‘a gift from God’ (P33) and described the presence of voices as a positive experience. Contrasting with the group, this participant did not value coping through self-management (items 7, 28, 27, 37, 13). This participant valued having a positive in-patient experience (items 20, 24, 10, 33, 36, 47, 32) and valued integrating back into the community (items 5, 22, 39, 17, 19, 42).

Factor 4: Symptom reduction through mental health support

This factor explained 8% of the study variance, had four people loading onto it and had an eigenvalue of 2.32. This group had the highest number of admissions. This group appeared to represent those with the most acute symptoms and related distress.

This group valued reducing the distress caused by mental health experiences and finding ways of coping (items 28, 41, 7, 13, 2, 18, 23; e.g. how much distress my mental health symptoms/voices cause me, +5; ability to cope with my mental health, +5). Participants viewed their symptoms as burdensome and affecting different areas of their life such as work (items 27, 37; e.g. impacts of mental health on my ability to work, +3). This group also valued social acceptance and acknowledged the social impact of mental health (items 52, 30: having my diagnosis explained, +4; society’s understanding of my mental health, +3).

For this group, having clinical treatment was viewed as integral to recovery and individuals were open to a variety of types of support, such as therapy, medication or psychoeducation (items 36, 3, 16, 52; support from mental health services, +5; having my diagnosis explained, +4; helpfulness of therapy, +4; helpfulness of medication, +1). The group were also sensitive to the quality and input into the care they received (items 33, 47, 21, 24, 32; e.g. support from hospital staff, +3; safeness in hospital, +3; being treated by staff with dignity and respect, +2). Additionally, they valued the amount of involvement that both they and their family had in their treatment and care (items 48, 6; e.g. being involved in my care, +4; involvement of family/loved ones, +3).

The least important factors for this group were spiritual (items 34, 38, 49; e.g. religion/spirituality to cope, –5; my religious/spiritual beliefs being respected, –5), relational (items 26, 5, 11, 20, 31; e.g. positive perceptions of relationships, –3; being part of a community/society, –2), and personal coping strategies (items 17, 50, 10, 22, 25; e.g. enjoyment of hobbies/activities, –4; support to set own life goals, –4; hospital activities, –3).

Feedback on the task

The 36 participants who contributed to the analysis gave feedback on the task. Overall, the majority of participants reported finding the completion of the Q-sort a positive experience and appreciated the opportunity to discuss their recovery, ‘I enjoyed the research interview as I was helped to understand myself better and give my views which is important to me’ (P 4). The only negative feedback was that some participants found it difficult concentrating for the full duration of the task and found the task a challenge, ‘I can’t think and describe all my psychological system in a few minutes’ (P17). Participants were offered regular breaks to try and support them to undertake the task.

Discussion

This study aimed to explore the recovery priorities of an in-patient population of service users who experience psychosis using a Q-methodology design. Analysis revealed four distinct viewpoints that were present relating to recovery priorities. These were: Stability, independence and ‘keeping a roof over your head’; Hope, optimism and enhancing well-being; Personal change, self-management and social support; and Symptom reduction through mental health support. These results suggest that in-patients hold different views about what is important to them in recovery.

The factor of Stability, independence and ‘keeping a roof over your head’ demonstrated the importance of basic needs such as housing, money and employment and being independently able to achieve these. A similar theme was also identified in a Q-methodology study in community samples demonstrating the importance of prioritising social issues across the psychosis spectrum (Wood et al., Reference Wood, Price, Morrison and Haddock2013). This group’s views of recovery aligns with a functional recovery model with finance, housing and employment (Whitley and Drake, Reference Whitley and Drake2010). Research suggests that poorer mental health is linked with increased difficulty with issues relating to welfare rights (Balmer et al., Reference Balmer, Pleasence and Buck2010; Mehta et al., Reference Mehta, Clifford, Taggart and Speed2018). Additionally, poverty is suggested as a risk factor in the development of psychosis (Dean and Murray, Reference Dean and Murray2005). For individuals in this group, getting support to meet their basic needs of housing and finance first, may be far more effective in helping them achieve recovery than viewing these as separate or ‘additional’ needs. Slade et al. (Reference Slade, Amering, Farkas, Hamilton, O’Hagan, Panther and Whitley2014) argue for ‘everyday solutions for everyday problems’ and suggest that having a place to live, should be the ‘base from which people with severe mental illness can achieve numerous recovery goals and improve quality of life’.

The second factor of Hope, optimism and enhancing well-being represented people with a longer duration of psychosis and those who valued personal recovery factors such as hope, optimism and self-worth. This group were willing to access support from services; however, their preference was to manage their experiences through self-coping or relational support. This group also highlighted religion as an important coping mechanism to their recovery. Religion and spirituality have been linked with enhancing well-being and are implicated in transformative experiences of psychosis as a means of making sense of experiences (Heffernan et al., Reference Heffernan, Neil, Thomas and Weatherhead2016). This factor may suggest that those with persistent mental health difficulties have less faith in mental health services in treating their difficulties, and therefore are turning to other alternatives.

The third factor of Personal change, self-management and social support represented those in the early stages of psychosis. This group valued self-management strategies and finding individual ways to cope supporting previous personal recovery literature, which has identified the importance of idiosyncratic coping strategies (Laithwaite and Gumley, Reference Laithwaite and Gumley2007; Lam et al., Reference Lam, Pearson, Ng, Chiu, Law and Chen2011; Pitt et al., Reference Pitt, Kilbride, Nothard, Welford and Morrison2007). Moreover, social relationships were highlighted as crucial to recovery aligning with a social model, which emphasises social support and inclusion (Mezzina et al., Reference Mezzina, Davidson, Borg, Marin, Topor and Sells2006). This group thought it was important to see themselves beyond their diagnosis and due to the value they placed on social factors, it is possible they were conscious of the social impact of accessing services or accepting a diagnosis. Research has suggested that stigma and shame around diagnosis, along with denial and lack of information, provides a barrier to accessing support in the early phases of psychosis and to recovery (Wood and Alsawy, Reference Wood and Alsawy2017).

Factor four of Symptom reduction through mental health support represented those who experienced acute and distressing episodes of psychosis. For this group, their primary focus was to improve their experiences of psychosis through support from mental health services. In contrast with much of the research on recovery, these individuals placed much less value on social, functional and intrapersonal factors (Law and Morrison, Reference Law and Morrison2014; Wood et al., Reference Wood, Price, Morrison and Haddock2013). This group’s preference for more clinical forms of support is in line with research suggesting that those who view mental health through a medical model are less likely to endorse self-help (Pattyn et al., Reference Pattyn, Verhaeghe, Sercu and Bracke2013). These individuals placed high value on social acceptance. Their medicalised conceptualisations of mental health may lead them to being more susceptible to perceptions of stigma from others or to experiences of self-stigma (Longdon and Read, Reference Longdon and Read2017). This is an important consideration as stigma poses a significant barrier to recovery and is reportedly more of an issue with diagnoses such as schizophrenia (Schulze and Angermeyer, Reference Schulze and Angermeyer2003). Service user research has indicated that diagnoses can be useful in supporting access to treatment and giving a name to experiences (Pitt et al., Reference Pitt, Kilbride, Welford, Nothard and Morrison2009). However, despite these benefits, research indicates that even when medical labels are experienced positively, the associated experiences of social exclusion remain (Pitt et al., Reference Pitt, Kilbride, Welford, Nothard and Morrison2009).

There are a number of strengths to the study. This is the first study to explore in-patients’ recovery needs using Q-methodology. Q-methodology has a number of strengths including its ability to incorporate a larger sample of participants whilst still being able to identify qualitatively meaningful results. Moreover, it is a participant-friendly method which was supported by participant feedback (Dudley et al., Reference Dudley, Siitarinen, James and Dodgson2009; Wood et al., Reference Wood, Price, Morrison and Haddock2013). A breadth of literature was used to develop the Q-set which maximises the validity of included statements. A limitation to the development of the Q-set was the lack of quality checks and concurrent screening of the literature, which may have led to bias in the development of the Q-set. However, the structured Q-set development method was chosen over the unstructured approach (Watts and Stenner, Reference Watts and Stenner2012), which hopefully would have minimised this bias. Another limitation was that we only gained very limited feedback on participants’ experiences of the task as we did not explicitly ask participants this on the feedback form. The feedback form asked for ‘any other feedback’, where some participants chose to write feedback about undertaking the Q-sort. Although the feedback we did receive was mostly positive, it would have been preferable to explicitly ask people about their experiences of undertaking this research given its novel nature. Another limitation of the Q-methodology was not being able to identify further detail about the recovery factors outlined. We were able to identify, for example, that spirituality and religion are important to in-patients recovering from psychosis but we were not able to identify further detail as to how or why. One of the limitations was the extended length of time it took some participants to complete the study. Some participants described difficulty with concentration and being unable to fully engage in the task, which is reflected in a feedback statement from one participant. Another limitation was the relatively small sample size; often a sample of 40–60 is recommended for Q-methodology (Stainton Rogers, Reference Stainton Rogers, Smith, Harré and Van Langenhove1995). Also, the sample included 89% of male participants which means the findings may not be reflective of female in-patients experiencing psychosis. However, in-patient settings often do have an over-representation of males with psychosis due to factors such as drug use, and risk behaviours such as violence and aggression which make admission more likely. Finally, data from 11 participants did not load significantly onto one of the factors, which may mean there are additional viewpoints that may not be accounted for. However, the aim in Q-method is to uncover the main and distinct viewpoints that are present among the group, and as such a limitation of the method is that it is rarely inclusive of every participant’s viewpoint. Finally, only 25 of 38 participants contributed to the final factor structure, which only explained 38% of the total variance. Although it is recommended that theoretical grounds should be prioritised over statistical ones when determining a factor structure (Watts and Stenner, Reference Watts and Stenner2012), the low levels of loading participants and low explained variance may indicate that the best-fitting model was not chosen and may not be comprehensive in capturing the view of in-patients experiencing psychosis.

This study has a number of important clinical implications. Firstly, this research has identified that people have varying needs when considering recovery. Some prioritised medical approaches, whereas others prioritised psychological, social and spiritual approaches. Arguably, mental health in-patient settings are dominated by the medical model (Wood et al., Reference Wood, Williams, Billings and Johnson2019), and therefore may not be meeting the needs of a number of in-patients. It is important that recovery is assessed within the mental health in-patient setting and a broad biopsychosocial approach to recovery is adopted. In line with current policy, this highlights the need for a range of treatment options to be available and for service users to have choice in this process (Perry et al., Reference Perry, Palmer, Thompson, Worrall and Chaplin2017). Social factors should also be prioritised. The SafeWards model suggests that staff on in-patient wards should have knowledge of, and provide support with, service users’ external circumstances (e.g. housing and financial support), which has been highlighted as important by this research project (Bowers, Reference Bowers2014). However, this should be the priority for in-patient care with service users’ social circumstances and basic needs being met before any further mental health treatment can occur (Wood et al., Reference Wood, Williams, Billings and Johnson2019). Finally, spiritual support was highlighted as important, which indicates the importance of having access to services such as chaplaincy, and for spiritual and religious needs to be integrated into service users’ care plans. More specifically, it should be a component of how their mental health experiences are understood and cared for during an admission.

In summary, four distinct recovery factors were identified which demonstrate the varying approaches to recovery from the perspective of mental health in-patients. A thorough understanding and holistic approach to support these needs is required.

Supplementary material

To view supplementary material for this article, please visit https://doi.org/10.1017/S1352465820000892

Acknowledgements

None.

Financial support

None.

Conflicts of interest

None.

Ethics statement

The study received full Health Research Authority (IRAS ID 205433) and NHS Research Ethics Committee (17/EE/0140) approval. The authors have abided by the Ethical Principles of Psychologists and Code of Conduct as set out by the BABCP and BPS (2014).

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Figure 0

Table 1. Themes and subthemes

Figure 1

Table 2. Table of Q-set items

Figure 2

Figure 1. Distribution grid.

Figure 3

Table 3. Demographic information for study participants

Figure 4

Table 4. Q-sort matrix

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